Search Results for "spd | "sensory processing disorder""

  1. Special Needs You guys! My super restrictive eater with SPD and oral motor issues ate most of a salmon filet! He has never willingly eaten fish in his life, he’s 9. 2-9-2019 8:40pm (0 replies)
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  2. Special Needs Is Abilify only for ASD? It’s the only thing that’s worked for DS 6, with adhd, spd and horrible meltdowns. 12-25-2018 7:19pm (15 replies)
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    • Thinking he is HFA, and has just flown under the radar because while he has a tough time with transitions, he’s very social, has a lot of empathy and so forth. 12-25-2018 7:22pm
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      • Diagnosis is irrelevant. Celebrate that something is helping him be his best self..... 12-25-2018 7:28pm
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        • Trying. :) I should probably add that it only works maybe 80% of the time. The other 20% is horrifically bad. 12-25-2018 7:31pm
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    • No. I know adults who take it. 100% not ASD or anything close 12-25-2018 9:11pm
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      • True. It's an anti-psychotic that also aids in self-regulation. Not a med specific to ASD at all, though it may help some w/ASD. 12-26-2018 1:48am
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    • Ability is also an approved mood stabilizer for kids with bipolar 12-26-2018 5:00am
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    • Who dxed the ADHD? HFA is often confused with ADHD at that age, especially if dx is based heavily on subjective surveys by teachers. 12-26-2018 11:13am
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      • This! 12-26-2018 11:41am
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      • Two psychiatrists and a neuropsych. (I would NEVER listen to teachers for this. I think so many take liberties in “diagnosing”. 12-29-2018 4:10pm
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    • Maybe your child is truly ASD? Because your list of issues could be that. 12-26-2018 11:41am
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      • Then how do you explain the empathy and sociability? 12-29-2018 4:08pm
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    • This post has been deleted. 12-26-2018 1:37pm
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      • This post has been deleted. 12-26-2018 1:38pm
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    • No it’s an antipsychotic used for various disorders 12-26-2018 1:39pm
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      • True. It helped my child with self-regulation. 12-28-2018 8:57pm
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  3. Special Needs Guys, I was just checking my email and there was an email from my 9th grade ds to his learning lab teacher (it's an academic support period he has) and 2 of his teachers asking...(more) 12-20-2018 10:11am (1 reply)
    them for help to remind him about some work he forgot and to make sure he gets it in. He has ADHD and ANxiety and SPD, and this has been a huge ongoing issue with him forgetting, the teachers not checking in (per his IEP). HE TOOK THE FIRST STEP this time. HE DID! I AM DANCING THE HAPPY DANCE PEOPLE.
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    • Yay!!! This is fantastic!!! 12-20-2018 10:13am
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  4. Special Needs We were at an event last night. Ds who is 14yo and has ADHD, SPD, and anxiety, looked at the food being served (it was buffet) and chose not to eat. We were at a table with older...(more) 12-16-2018 1:21pm (8 replies)
    people (it was a fundraiser, and it was where we ended up, I knew most of them), all were questioning why ds wasn't eating, and why wouldn't he at least try the food. I choose not to make food a battle with him because it's not worth it. JUST SHUT UP and stop questioning him and me about it.
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    • I think people are just making small talk personally 12-16-2018 1:22pm
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      • no it wasn't small talk. Small talk is asking a 14yo about school, classes, etc. this was picking on him 12-16-2018 1:22pm
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    • Parents of NT kids do not get it. I'm sorry it was an issue. 12-16-2018 1:22pm
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      • it was older people (some have grandkids or grown kids and they don't get it, because they don't remember or didn't have kids like this 12-16-2018 1:23pm
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      • This is true in my experience. I actually think most parents don't "get" parenting issues that are different from their personal experience (e.g., if your kid is a fabulous...(more) 12-16-2018 1:46pm
        sleeper, you tend to assume that another kid isn't because of X,Y or Z, when really it could be anything).
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    • older people seem so very invested in having kids conform. My kid never does up his shoelaces and I'm tired of arguing with him about it, but my god EVERY old person we pass...(more) 12-16-2018 1:26pm
      seems to have something to say about it.
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    • Was the food bagels and lox? 12-16-2018 1:27pm
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      • LAUGH OUT LOUD no, it was chicken in a cranberry sauce (which wasn't that great) a veggie thing, potatoes, and some under roasted veggies. THe food was not great by my standards...(more) 12-16-2018 1:31pm
        anyway, so it was fine with me if he didn't eat
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  5. Special Needs My first-grader has ADHD and SPD...his new school is doing everything to help him with a 504 plan...special ed teacher told me he needs constant redirection (there are many...(more) 10-19-2018 2:59pm (16 replies)
    supports in the classroom, so, thankfully, he gets lots of help...Can a child outgrow this, or will he always need re-direction with adhd? is there anything we can do now that he is young to help?
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    • Of course outgrow. So many 6 yo need redirected 10-19-2018 2:59pm
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      • op: thanks, but Ive been told my child is below and they are giving him lots of supports to catch up 10-19-2018 3:00pm
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    • Kids who get a lot of support typically learn strategies to control themselves. 10-19-2018 3:00pm
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      • Some, not all 10-19-2018 3:01pm
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      • op: he has attentional difficulties and has very difficult time focusing 10-19-2018 3:01pm
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        • IME, kids really improve once they hit about 7th grade. Elementary school can be rough. 10-19-2018 3:02pm
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        • Every child matures and improves. Will he still need help? Maybe. Will it be as "bad" as now? No 10-19-2018 3:04pm
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    • Some do, some don't. You can't predict the future. 10-19-2018 3:01pm
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      • But it is highly likely that he will not need as much redidirection as he gets older 10-19-2018 3:02pm
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        • or: Fair enough. 10-19-2018 3:02pm
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    • Have you considered auditory processing disorder? Screening questionnaire below....(more) 10-19-2018 7:38pm
      • This post has been deleted. 10-19-2018 9:16pm
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      • op: he fits almost all of these... 10-19-2018 9:19pm
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        • If he hears unclear speech then of course he needs constant redirection. APD can be remediated. 10-19-2018 11:16pm
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        • np: a lot of these are also markers for ADHD. Very hard to tease out which is which. You would need to see an audiologist for an APD screening 10-20-2018 8:58am
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  6. Special Needs Iím not sure if I handled this well. I have a 1st grade ds and he is an odd duck. He has been diagnosed with anxiety and SPD and has mild low tone. We are having him evaluated...(more) 10-8-2018 9:02am (5 replies)
    for adhd. He has friends at school. He pals around with one little girl who is a square peg too. He told me today that, at the lunch table, he blows kisses at some of the boys and they laugh and hide from him. I asked him if they were upset about it and he said that he and they were all laughing. No one was upset. He also told me that he wore his friendís pink jacket on the playground to see what these boys would say. The boys didnít care or react. Iím not sure whether I should discourage him from doing these things. I donít want him to make him even more of an outsider. I also donít want to be a control freak who makes him feel bad over little things. Heís obviously trying to get these boys attention, but this isnít the best way
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    • I think both those things sound pretty benign. He didn't invade anyone's personal space, and he wasn't confrontational. 10-8-2018 9:05am
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      • Ok. I am just afraid of him being bullied. 10-8-2018 9:05am
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        • i am down with not making a big deal except the blowing kisses part. I think you need to tell your kid that most other children would feel uncomfortable about this and to find a...(more) 10-8-2018 9:09am
          different way to engage with them
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          • blowing kisses is inappropriate and he should be taught this. When my don was very little he fid inappropriate things and zi put ghe brakes on it immediately. i dtill fo when he...(more) 10-8-2018 10:56pm
            foes something off.
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    • I think you might want to discuss what the likely results of this behavior will be. You can do it in a neutral and not shaming or controlling way. But for some kids (and I have...(more) 10-8-2018 10:58pm
      one) I think it's almost cruel to just act like their behavior, which alienates them from their peers, is normal.
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  7. Special Needs NEVER EVER go by mail from the camper. Got one great letter, one bad letter. Was up at camp today to pick up younger son from camp. Older son has ADHD and anxiety and SPD and is...(more) 7-6-2018 1:15pm (3 replies)
    part of an inclusion program at this camp (they have social workers, inclusion counselors who are trained etc). Well, they pulled me aside to tell me how awesome ds is doing, how great he is and the reason they haven't called is he just isn't on their priorty list (YEAH) and the letter was written in a bad minute. IN fact, all my anxiety was worthless (I wish I could not let it ramp up) the other night, there was a social at camp and ds was having a tough time because of the space/crowd/noise and so he found 2 girls who were playng cards off to the side and went to join them, then another kid came over and joined them. When a song came on they wanted to dance too, they would go over and dance, then come back to playing cards. He is socially appropriate and everyting.
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    • yay! 7-6-2018 1:17pm
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    • my heart is full. so happy for you 7-6-2018 1:18pm
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      • Thanks. The clsoer I got to camp the more concerned I was I was going to see his bags packed up too ready to come home, but nope. he is having a great tiem 7-6-2018 1:20pm
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  8. Special Needs I am having an anxiety attack. Got a letter from 13yo at ds which follows a letter saying he was happy. The new letter says he is unhappy, has not friends and wants to come home....(more) 7-5-2018 4:16pm (51 replies)
    I have not heard from the camp AT ALL. So I am going with it's just a moment he was having a bad moment. Ds is in an inclusion program, has ADHD, SPD, anxiety (yes, I get it, it's from my side, we are both in therapy). Last year when he was really in dire straights I was getting call after call. it has been a full week and a half and I Have heard NADA from camp. So I know things are better. I have to go up tomorrow to pick up his brother (who is only staying a week). I don't want to be sprung that he is coming home too (NOT GOING TO HAPPEN). Last year, when he came home early, I had phone call after phone call, behavior plans etc put in place first. None did any good. So I should calm down, but why can't I? I sent a quick email to camp checking in and now I am panicked about what that email will say. I hate this shit.
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    • This post has been disliked 5 times. showif this isnít the perfect ďapple, treeĒ example I donít know what is. 7-5-2018 4:17pm
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    • Take a deep breath. Whatever has transpired has transpired. You worrying about it will not affect the outcome. Wait to hear from the camp, and then deal with it. 7-5-2018 4:18pm
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      • I know. I just know that deep down if there was a major issue I would have gotten a call because this is not my first rodeo 7-5-2018 4:19pm
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        • Ok. That is good. So, sit down and write down the two responses you may get: 1) everything is fine or 2) he is struggling. So--will you believe them? Do you think ds's letter was...(more) 7-5-2018 4:21pm
          just one written and sent in a moment of panic and he's fine?
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          • that is my hope. I think (no, I know) if he was TRULY struggling my phone would be ringing 7-5-2018 4:22pm
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            • Ok, so that is good. We all have those times when we are a little low. Your son can have those. 7-5-2018 4:22pm
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    • What camp. 7-5-2018 4:18pm
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      • it's a JCC one 7-5-2018 4:18pm
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        • ^^it's his 5th year. 7-5-2018 4:18pm
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        • Calm down. Don't worry til u get a call. 7-5-2018 4:19pm
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          • I think It's that I am worried they are going to spring it on me tomorrow that he is going home without so much as a phone call 7-5-2018 4:20pm
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            • NP Call them now. You are better off knowing vs perseverating on it. 7-5-2018 4:26pm
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    • is this a specialized camp? 7-5-2018 4:18pm
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      • no, it's a regular camp 7-5-2018 4:18pm
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        • Can you check in with counselors? You might consider a different kind of program next year for kids with some needs- more to find his social niche 7-5-2018 4:21pm
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          • he already is 7-5-2018 4:25pm
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            • is what? 7-5-2018 4:25pm
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              • in a program with kids with needs 7-5-2018 4:34pm
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    • If there is a problem the camp will reach out to you, otherwise just keep writing supportive letters, "you can do it..." ect 7-5-2018 4:19pm
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      • doing that. sent one just yesterday (so he got it today) 7-5-2018 4:20pm
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        • just continue in this vein, remind him how he's gotten through tough stuff before, he will be home soon, he will feel good about himself if he hangs in there, ect 7-5-2018 4:21pm
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    • I don't understand why people force sleepaway camp on their children...and I have one dc (out of 3) away for 7 weeks. If he had issues last year, why not find something different...(more) 7-5-2018 4:20pm
      for him to do this summer?
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      • because HE LOVES IT. Last year he had a horrific school year and was begging to go to camp, he just couldn't manage his anxiety. He begged to go back this year. Is in a bunk with...(more) 7-5-2018 4:21pm
        his friend from out of state, was at his bar mitzvah this year. it's not like I forced him
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        • he loves it but he went home early last year? 7-5-2018 4:22pm
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          • he is a complex kid. He was having major anxiety issues last year, we spent a year in therapy. He had a way better year in school and was so excited to be back at camp. He...(more) 7-5-2018 4:23pm
            couldn't get away from us fast enough at drop off. First letter I got was how happy he was and had friends, the pictures I have gotten are so different from last year, he is with groups of frineds, he is smiling
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            • sounds challenging. Maybe he takes on a bit more than he can chew. 7-5-2018 4:25pm
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        • Loves it? He left early 7-5-2018 4:23pm
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          • Sigh, he was sad he had to go but that was because his anxiety was overwhelming. Why is that hard for you to understand? He loves going there, he talks non stop abou tit. he...(more) 7-5-2018 4:25pm
            wanted to make sure everythign was going to be okay this summer. He worked with his therapist, we made sure the camp put him with his friend from out of state who he saw a few times and they both wanted to be together, the camp knows him.
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            • Something is very, very strange about this story. It's like watching a horror movie and getting little flashes of "something is off" but can't put your finger on it when the film...(more) 7-6-2018 11:39am
              starts.
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              • The child knows the parents want him to go to camp and make friends. The child tries to act the part but internalizes and keeps hidden the suffering. Mom, dad, therapist are all...(more) 7-6-2018 11:45am
                pushing him to do it and he feels he has no choice. Not good. This is not ordinary nervous about first day of camp stuff just be encouraging. The child has ADHD and SPD.
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                • when did sn get full of this kind of trolling? so much projection and bullshit in your armchair analysis. 7-7-2018 1:30am
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        • OK, well...I have heard that many kids have one bad summer...so I think you need a game plan...if he isn't happy this year either...it just means he likes the IDEA of sleepaway...(more) 7-5-2018 4:25pm
          but not the actually reality of it....if I were you I would call the camp today and ask what is going on...if they want him out, take him out and don't send back...they either want him out or don't...you have a right to know what to expect when you go up there....springing it on you that they want you to take him home like that is NOT ok....
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          • Id on't think they would, because of last year. they don't want to send anyone home, he is in a social program there. They know how to work with him and kids like him 7-5-2018 4:26pm
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    • I have a similar profile kid and we do day camps. Sleep away camp is not a good fit. They are targeted as the kids to kick down at sleep away camp. 7-5-2018 4:21pm
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      • damn! they don't stop that? 7-5-2018 4:22pm
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        • No, they do not because it's Lord of the Flies. It takes too much effort to try to stop this dynamic in children. 7-5-2018 4:22pm
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          • My 13 yo is doing a la cart half day camps in activities he likes and he is with kids similar in interest to him. You can do this for your DC too. 7-5-2018 4:24pm
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      • Crushes their sense of self. 7-5-2018 4:22pm
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        • children need to learn how to cope in social situations, and in this day and age every camp is clued into bullying issues and work to shut that down 7-5-2018 4:23pm
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          • They do that from September through June. Summer does not need to be that way. 7-5-2018 4:25pm
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          • They do not shut it down. Bullshit. 7-5-2018 4:25pm
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          • kids with sns and otherwise at risk for bullying do not need to learn to cope with bullying.... 7-5-2018 4:26pm
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            • Thank you 7-5-2018 4:27pm
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            • who said that? 7-5-2018 4:33pm
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              • She said he has ADHD and SPD. 7-6-2018 11:45am
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      • I'm afraid this can happen at mainstream camps 7-5-2018 4:23pm
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      • I do too...he did 2 weeks at a camp but went with friends from home...but they'd have eaten him alive at a regular sleepaway camp 7-5-2018 4:27pm
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    • you can't calm down because you feel helpless and powerless. you have an urge to do something, your fight or flight is kicking in and all you can do is...nothing....(more) 7-5-2018 4:30pm
      first thing to realize is that this letter was written at least three days ago. so whatever mood he was in, it's long over. second thing is that, even if it's all true, and he's miserable, he's not in a dangerous situation, he's not in harm's way. you will learn from this experience and you can make changes or different decisions in the future.
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      • good point. it was postmarked on the 2nd of july. The first happy letter we got was on the 29th, so it probably was just a moment in time. 7-5-2018 4:35pm
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    • I wouldn't be worried about him getting kicked out, but I would worry about his being unhappy. Even if it's just a bad week, that can totally stink when you are stuck at camp. So...(more) 7-5-2018 4:44pm
      I would relax about him getting kicked out - the camp would have alerted you to issues. But that doesn't mean it's going great and he's happy. I would make sure he's OK as well. He might love the idea of it but the reality is a whole other story, and the dynamics at camp and friends at camp change rapidly in this age group.
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  9. Special Needs I'm trying to get a 504 and I emailed the school saying that we need to have a meeting to discuss my child's sensory and emotional issues. Should I have not used the word...(more) 6-21-2018 6:28pm (17 replies)
    emotional l issues? He has mild SPD and anxiety. I don't want to make him sound even worse off than he is. I'm new to this
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    • Movie kid? You will need medical documentation for the 504. Get all your paperwork in order and think about the accommodations you want to see for him. 6-21-2018 6:30pm
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      • Yes. I plan on doignt hat this summer. I just wonder if I'm making things worse for him by using words like "emotional issues" in emails 6-21-2018 6:31pm
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        • It is what it is. He has issues regulating his emotions. I would use specific description though. 6-21-2018 6:32pm
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          • Well, I just kind of wanted to put the issue on the table. I really need to have him seeing the OT and counselor and get a diagnosis 6-21-2018 6:33pm
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            • Just be as specific as possible. I've been seeing your posts, and you're doing a great job with advocating for your dc. Just be clear with what you (and his therapists) believe...(more) 6-21-2018 6:35pm
              is necessary to help him be successful.
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    • Go to wrightslaw.com they have sample emails and such. But really you should get a full evaluation. Donít pre suppose what the issues are. A 504 requires challenges with...(more) 6-21-2018 6:33pm
      activities fr daily life, such as learning, but there is a whole list
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      • I know he had SPD. It's obvious he has anxiety too. But, we need a diagnosis, yes 6-21-2018 6:34pm
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      • np: She definintely needs to get an evaluation before the 504 meeting or she's wasting her time. 6-21-2018 8:22pm
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        • My biggest concern is that she is convinced she knows for sure what he has and what he needs absent an evaluation. She may very well turn out to be right, but I think she needs to...(more) 6-21-2018 8:41pm
          WAIt and see
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          • I completely agree. 6-22-2018 6:39am
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    • I worried about this at one point when we were getting an IEP. I understand your worry but I think they generally minimize anywayóin an effort to save money/do less. No matter how...(more) 6-21-2018 7:05pm
      Dire you make it sound, they tend to make up their own mind and IME, they usually take a more positive look anyway. I would try to describe accurately but NP reports etc often sound a little worse and the school knows that
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    • I have to be honest with you, your insistence that he has SPD is going to annoy the school. They aren't going to give him accommodations for SPD. It's not viewed as a "real"...(more) 6-21-2018 8:22pm
      thing in school districts.
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      • Bigger issues is asking for a 504 absent medical documentation. Zero point in meeting to discuss without that. 6-21-2018 8:38pm
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        • Right. They will give her nothing. 6-22-2018 6:39am
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    • Your best bet is to have the schoo/district do an eval OR do your own...(more) 6-21-2018 9:46pm
      Privately so you present a report with a diagnosis and recommendations. Spend the summer getting things in order so you can start the year with a solid plan of what you want and documentation to back it up. Also helpful if your evaluator can be part of the 504 team meeting.
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      • She should get a private evlauation. 6-22-2018 6:40am
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  10. Special Needs So sad that my ADHD SPD kid is so unlikeable. No friends, no playdates. But I get it. DS often says horribly rude things, criticizes,...(more) 6-19-2018 2:52pm (8 replies)
    complains, insults and is just overall very unpleasant to be around. He did well in a social skills playgroup but was back to the same stuff the minute he was out (and none of the kids wanted to do anything with him anyway). Anyone else have a kid like this?
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    • not yet but mine is only 6. He so far is not rude but the complaining, moodiness, unpleasant rigidity are all there so I fear it will come. 6-19-2018 2:54pm
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      • ^also if you're in nyc, do you have a social skills group you'd recommend? 6-19-2018 2:55pm
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        • Meeting House and Gopi Patel at leapyearseducation.com 6-19-2018 2:58pm
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    • Mine has some of those issues. We are trying but he keeps alientating the people who were once his friends 6-19-2018 2:58pm
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    • What is SPD? 6-19-2018 3:13pm
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      • sensory processing disorder. aka sensory integration disorder 6-19-2018 5:07pm
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    • Honestly, I've never heard of anyone talk about SPD after their child is 3 or 4. Usually it's something more going on. 6-19-2018 6:11pm
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  11. Special Needs Risperdal, yes or no? For ASD/ADHD/SPD/anxious 8 yo...(more) 6-16-2018 9:49am (17 replies)
    Obviously I am getting advice from a child psychiatrist and 2 psychologists and not just YBM, but I am trying to get firsthand reports from parents who have BTDT. Our DC has meltdowns on a 3-4 times/week basis with screaming, crying, occasionally knocking down chairs. Not self injuring or malicious to others but it limits our life hugely. DC canít fly on planes, eat in restaurants, or go to birthday parties. Most play dates end in crying. Problems in a SN school. Was rejected from an ASD school because had a meltdown on school tour (in other words, more behavioral issues that kids who go to a school for autism). However, we have NOT had a chance to give ABA or CBT a fair shake. Would you do risperdal now, or give behavior therapy a few months first?
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    • My ds does very well on ability which is a long acting form of it. Similar profile. He's also on tenex and Zoloft. 6-16-2018 9:51am
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      • ^^^ and lithium. 6-16-2018 9:51am
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        • We are most concerned about side effects (weight gain, growing breasts, tardive dyskinesia). Did you encounter that? 6-16-2018 9:53am
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          • no. none of it. 6-16-2018 9:53am
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          • Also what age did you start? And how has it benefitted your kid? 6-16-2018 9:53am
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            • Similar age. he doesn't throw furniture any more! that's been great. much less labile emotionally, less dangerous. 6-16-2018 9:54am
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    • It's a pretty hardcore antipsychotic. Can they try something lighter like abilify (as poster says above) 6-16-2018 9:54am
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      • ^and the side effect profile is much better 6-16-2018 9:54am
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        • DCís psychiatrist actually said risperdal had fewer side effects 6-16-2018 9:55am
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          • or: That is not true. 6-16-2018 9:55am
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          • Also abilify is in the exact same class of atypical antipsychotics, as risperdal? 6-16-2018 9:56am
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            • or: It's 2nd gen, yes. But it's not as hardcore as risperdal and the side effects are less off-putting. 6-16-2018 9:58am
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              • ^and it works on different receptors 6-16-2018 9:58am
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          • I just posted below. It was the case for my dc. Developed tics in ability and was very agitated on it. He has absolutely no side effects on Risperdal and heís been on it for 11...(more) 6-16-2018 5:53pm
            Years. There was some initial weight gain but that was leveled out after the first hear
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    • My dc is 20. He has been on a low dose of dispersal since he was 9. Itís been a miracle drug for him. Not ASD but adhd and anxiety. 6-16-2018 5:51pm
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    • Risperdal got our ds to where he was accessible to cbt and counseling. Slight weight gain, but he was skinny to start with. 6-16-2018 9:50pm
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    • You are me. We went to Abilify because nothing, and I mean nothing, touched the meltdowns. Hunger is slightly increased and DC is super tired, but the meltdowns have improved 90%....(more) 6-16-2018 10:27pm
      Sadly, we tried every other drug for over a year, and this is the only one that helped with meltdowns. Nothing else even came close. Iím so glad we did it.
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  12. Special Needs My ds has had some issues this year in school, relating to SPD and anxiety. Next week is the last week of school. Is there any benefit to me having a conversation with...(more) 6-15-2018 8:54am (3 replies)
    the principal and cousne
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    • ^^sorry for the repeat post 6-15-2018 8:55am
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    • a conversation about what? 6-15-2018 8:55am
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    • Is there an IEP or 504? 6-15-2018 9:00am
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  13. Special Needs My ds has had some issues this year in school, relating to SPD and anxiety. Next week is the last week of school. Is there any benefit to me having a conversation with the...(more) 6-15-2018 8:50am (1 reply)
    principal and counselor before school ends? Mainly, about things that upset and embarrass him and about accommodations he should have had this year. Or, should we work on getting a diagnosis this summer and just reach out before the fall?
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    • Ah, I asked on the other thread what about. The only thing I would say to them is perhaps that you're going to work toward a diagnosis and getting accommodations in place. 6-15-2018 8:58am
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  14. Special Needs Emotional dysregulation and meltdowns (ASD/SPD/ADHD/anxiety)...(more) 5-27-2018 8:28pm (6 replies)
    Our 8 year old keeps having meltdowns. I know the triggers but we havenít been able to find good interventions to help self regulate. DC would spend 10 hours a day watching TV because excursions to places that are a little too loud or too crowded, where we might hear annoying noises, or that require waiting trigger meltdowns. What treatments have helped reduce meltdowns in your kid? We are starting ABA (again). CBT didnít work (too hyper, though we may try again); we didnít find OT to help with regulation much. Self calming techniques needed.
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    • Not the point of yor post but why does it have to be all day tv watching Bc the child can't go anywhere. There is more to life than excursions vs TV 5-27-2018 8:32pm
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      • Iím just exaggerating a bit. Excursions to my DC include walking in the park or going to a playground...(more) 5-27-2018 8:45pm
        The sensory issues have actually gotten worse to the point that we canít eat in restaurants. Playgrounds are sometimes OK but when there are more than 20 kids, there can be meltdowns. Today the swimming pool had a few loud toddlersómeltdowns. Our world is shrinking.
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    • I have a similar kid, and we got some relief from an ssri for the anxiety. We also used CBT techniques for flexibility and anxiety. At 8 he couldn't engage with...(more) 5-27-2018 8:50pm
      the therapist, so we worked on those things at home. He is 10 now and we are trying CBT again, with a therapist who has experience with asd. Time and a little maturity help too
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    • Coping Cat Intervintion...(more) 5-27-2018 9:29pm
    • Same meltdowns but DC is sensory seeking, so we take him to places he loves and considers a treat. Is there anywhere your son loves to go? It can even be a toy store or ice cream...(more) 5-27-2018 10:00pm
      place, as long as it gets them out of the house. As he gets comfortable going to ďhisĒ places, he may be comfortable branching out. Also, the headphones/listening therapy could be helpful. Lastly, medication. Speak to a highly-recommended psychiatrist. GL.
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    • For now 18 yo ds, it was Abilify from age 12...sorry to say 5-28-2018 8:05am
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  15. Special Needs 13yo ds. ADHD, SPD. Very much a rule follower. Kid in his class has been vaping ds is reporting him for it. The other day he didn't see it, but his friend did and he went with her...(more) 5-17-2018 8:21pm (22 replies)
    to the office ot report it even though he didn't see it. Today, ds reported this kid again because he saw him with a small black box and he was hiding between to trash cans during gym class. This kid is a known bully and has been in trouble multiple times. I am worried for my ds safety because this kid is 2x the size of my ds and not a nice kid. If he even thinks it was my ds he will go afte rhim. not sure even where to start with this.
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    • tell your kid to swim in his lane 5-17-2018 8:21pm
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    • Id advise my kid not to report anyone unless he sees a person violating another person 5-17-2018 8:22pm
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      • SAME. Don't let your kid be BBQ Becky. 5-17-2018 8:22pm
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      • I have told him that. he says this time he saw him so he needed to say something 5-17-2018 8:23pm
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        • He sounds OCD. Is he in therapy 5-17-2018 8:24pm
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          • yes 5-17-2018 8:24pm
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            • it's something to discuss with his therapist. Not for any other reason than it sounds like it's an impulsive. I'm a mom of an ADHD kid who can't control his impulses and we work...(more) 5-17-2018 8:25pm
              on those in therapy
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        • "If you see something, say something" applies to things that will harm others 5-17-2018 8:24pm
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          • Vaping IS harmful 5-17-2018 8:28pm
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            • Not to others 5-17-2018 8:29pm
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              • A culture of tolerance for smoking encourages others to smoke. 5-17-2018 8:32pm
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    • it might be good to advise your DS to MYOB, he does not have to be the one to report on others kids 5-17-2018 8:23pm
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      • I have said it. many times 5-17-2018 8:23pm
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        • he may have to suffer the consequence of being known as a tattler before he gets it 5-17-2018 8:24pm
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          • plus I alway say to my DD who can be the same way, just worry about what you are doing that is wrong and work on that, you don't need to solve others problems 5-17-2018 8:25pm
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    • This post has been disliked 7 times. showtell your kid to keep his fucking mouth shut and mind his business. what the fuck is wrong with you 5-17-2018 8:23pm
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    • OMG, tell your dc to mind his own business.....nobody likes a tattle tale 5-17-2018 8:24pm
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      • you don't think I have? you realize this is SN right? 5-17-2018 8:25pm
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        • yes, and everyone is saying to tell him MYOB. Tell him if this kid wants to vape himself to death, let him. 5-17-2018 8:27pm
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          • yes I understand that and I have. many times. 5-17-2018 8:28pm
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    • I think at this point you can tell your son that he reported this kid enough, let the school handle it from here, even if your son sees it again. 5-17-2018 8:24pm
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      • thanks this is proabbly a good way to at least try to get him to change 5-17-2018 8:25pm
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  16. Special Needs Has anyone had an ADHD diagnosis with a child and found it was sensory processing disorder? 4-25-2018 2:24pm (5 replies)
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    • Mine has both. Could this be possible with yours? 4-25-2018 2:37pm
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      • I honestly don't know anymore 4-25-2018 2:37pm
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        • How was your child diagnosed with either? 4-25-2018 2:39pm
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    • Mine has both + APD= Trifecta! 4-25-2018 8:23pm
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    • I think SPD tends to present alongside another diagnosis? 4-25-2018 9:04pm
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  17. Special Needs Any tips on where to hire a 1;1 person to attend a MS camp with my 9 year high-anxiety/SPD dc? And how much to pay? I have never done this before but DC wants to go this...(more) 4-3-2018 10:40am (10 replies)
    specialized MS camp and I have no alternatives at this point but to hire the 1:1. Really just need someone to be able to take DC out for a walk when he gets overwhelmed.
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    • Can the camp help you? Some of the day camps near me help set this up. 4-3-2018 10:41am
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    • Ask at dc's school? Most paras are off for the summer and many would want the extra work. Figure out what paras in your district are paid. 4-3-2018 10:41am
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      • we go to a private SN school and it is very far from the camp (one hour from the school in NYC) 4-3-2018 10:54am
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        • ^ also it is for only two weeks in the middle of July so I imagine not an easy job to fill 4-3-2018 10:55am
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          • Reach out to (1) the camp and (2) the school district where the camp is to see if you can post a short-term summer job for a para. 4-3-2018 11:42am
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            • What do you think is a good rate to offer? 4-3-2018 11:50am
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              • Whatever the school pays paras hourly 4-3-2018 11:50am
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                • ^you can just ask the local district 4-3-2018 11:51am
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  18. Special Needs Wouldnít behavioral supports work better for all children who have behavior issues in school, not just those with SNs? I am on the SN board for my older dd, who has adhd and...(more) 3-20-2018 2:24pm (3 replies)
    cerebral palsy. But my younger ds is not dxed with anything, he is in first grade and very ďactiveĒ and boisterous, he often gets reprimanded by the teachers in a far less understanding way than the boys in his class who have dxes of SPD, ADHD, or HFA (itís an ICT class). I wish they would show ds the same compassion as those other boys- obviously itís frustrating that heís wiggly and sometimes disruptive, but just because he doesnít have a clinical disorder doesnít mean itís always easy for him to control himself.
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    • I will be flamed but this is why we have so many kids with diagnoses these days...the parent with a kid like your 2nd gets annoyed that he doesn't get support so she seeks out an...(more) 3-20-2018 2:28pm
      ADHD dx for that kid...and on and on.....my middle dc has an ADHD/anxiety diagnosis....if this was the 80s, he'd have no dx, but he needs help to boost his grades because the kids he was doing better than go a diagnosis and now he is behind them so I have to get him a diagnosis so he can move up some more.
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      • This is so dumb. No one wants the "stigma" or expense or stress of having their kid labeled with a diagnosis unless the kid actually has a real diagnosable problem. 3-20-2018 9:16pm
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    • In theory yes. IN practice it is not manageable to be limited to positive supports. 3-20-2018 4:00pm
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  19. Special Needs My 7 year old said last night that she is afraid of voices she hears at night...(more) 2-11-2018 1:59pm (4 replies)
    This is the second time that she has ever said anything to make me worry about auditory hallucinations. Years ago she said she heard an owl hooting in her ear. She has mild autism, ADHD, anxiety and SPD. Normal hearing and APD was ruled out. I have a huge family history of mental illness. If this is just a one-time comment should I panic? Has anyone else here had a young kid with auditory hallucinations?
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    • sounds worthwhile to raise with her shrink, or neuropsych 2-11-2018 2:00pm
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    • In case it matters, I had a grandparent and uncle who were schizophrenic and a parent, brother, uncle and grandfather with bipolar 2-11-2018 2:00pm
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    • It is worth mentioning, but I wouldn't panic. It may just be another anxiety symptom 2-11-2018 2:05pm
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    • Talk to the psych. My DS once told me his imaginary friend whispered terrible things in his ear. What he meant was that he was having intrusive thoughts/ocd symptoms, but he...(more) 2-11-2018 2:41pm
      couldn't figure out how to say that. It can be tricky to figure out. Could definitely be anxiety related and not an actual hallucination. Freaked me out at the time.
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  20. Special Needs DS just turned 8 and ADHD (ADD). He has been on Vyvanse just on school days. Seems to help him focus but I just worry about any long term effects. I hate that he needs this but...(more) 2-7-2018 10:51pm (11 replies)
    Heís had a history of SPD, early intervention, therapies, IEPs, I just wish we could be done.
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    • have you looked into cognitive remediation therapy? 2-7-2018 10:52pm
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      • NP: what is that? 2-7-2018 10:52pm
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        • Basically online training to improve attention, impulse control, etc 2-7-2018 10:54pm
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          • Thx 2-7-2018 10:54pm
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          • np: OP - before you waste your money - there's little evidence demonstrating that these programs (like Cogmed) actually translate into real life - basically the child just...(more) 2-8-2018 3:57pm
            improves playing the game/doing the on-line activities but no studies show this helping in the classroom. Per my neuropsych.
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    • if it makes you feel better, my anecdotal story is that ds has been on vyvanse for what must be 7 years now. he is 15, HS freshman back in mainstream school, b student, 2 sports...(more) 2-8-2018 8:12am
      teams, model UN, normal-ish life for a 15 year old boy. he's tall enough despite not eating much, takes melatonin to help w sleep on vyvanse days...sometimes he is a jerk to us but I feel like that's not anything to do with the vyvanse, just normal-ish 15 year old stuff.
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      • ^^the worry and concern is kind of neverending, but that's me, not him 2-8-2018 8:14am
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      • Thank you. He is like that now, at 8. His personality 3-14-2018 11:58pm
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    • He is just 8. He may not need to be on it forever. My DD was on it for a few years, now just takes it for when she has big assignments or tests. She has outgrown the impulsivity...(more) 2-8-2018 10:35pm
      part of her adhd.
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  21. Special Needs WHEN will my 13yo ds who has ADHD, SPD, and Anxiety realize that when someone touches him, or pushes him on the playground it isn't a violent hit, it's sometimes and accident and...(more) 12-21-2017 1:51pm (2 replies)
    sometimes playful and to not freak out about everything? yes it has gotten better and less over time, but it happened today and I am jsut not looking forward to this afternoon when he starts telling me about it (the principal called me about it, hell, we just had his 504 meeting yesterday (with the vice principal) and this was brought up!
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    • is he on any medication? Because all 3 of those diagnoses will contribute to him freaking out over a touch or hit. It's the fight or flight response - he's on heightened alert 12-21-2017 4:41pm
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      • ^^and is DC is any therapy? He needs to learn strategies to cope when this occurs. 12-21-2017 4:41pm
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  22. Special Needs Stubborn, self-directed ADHD, SPD, 5 y/0 DS has 1st IEP meeting next week. COncerned because he hit his teacher after she...(more) 12-12-2017 7:37pm (10 replies)
    grabbed him trying to run away. He remarked: "Im going to have you arrested!" I dont understand where this attitude is coming from (He was on a sugar high following school holiday party at school, so that exacerbated his behaviors). What related service might help deal with these kind of behavioral issues. PCIT isnt helping. TIA
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    • If he's only 5 I'd be concerned about where he is getting that language as well. That is not typical 5-year old talk. Ask for counselling, but try to figure out where that...(more) 12-12-2017 7:53pm
      vocabulary is coming from. And blame the lack of schedule/ need for structure vs the sugar -- and use that to seek more support in the classroom.
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      • THx. Can you get structure in a mainstream class via an IEP? 12-12-2017 8:02pm
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        • Perhaps -- you could end up with a para, a recommendation for ICT or a recommendation for a special class. You could get more OT sessions, counseling, a FBA followed by a BIP as...(more) 12-12-2017 8:47pm
          mentioned by poster below, classroom accommodations or some combo of the above. It will depend on the rest of his behaviors in class, academic needs and social-emotional needs. Good luck!
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          • Thx! What is FBA ? 12-13-2017 1:15am
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            • functional behavior analysis 12-13-2017 10:46am
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    • ABA can help. The district BCBA can observe him and put a behavior intervention plan in place 12-12-2017 8:10pm
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      • Do they offer ABA in Kindergarten? 12-13-2017 1:14am
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        • Also what related service is ABA offered under? 12-13-2017 1:17am
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        • You will not get ABA unless he is classified as ASD. 12-14-2017 7:26am
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    • 1. i don't thik "I am going to have you arrested," is that unusual for a 5yo. Kids hear about what to do if strangers touch them, etc. 2. Things that could help - ABA,...(more) 12-13-2017 10:09am
      counseling, maybe OT, smaller class. 3. "Sugar high," is an old wives tale. Sugar does not make you hyper. Too much sugar is not a good thing, but it does make you bounce off a wall.
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  23. Special Needs Need help with meltdowns. 3yo (SPD but not ASD) has been having 3-5 meltdowns every day....(more) 9-5-2017 5:32pm (4 replies)
    Meeting a psychiatrist in a week, but this is hell. Nothing works: redirection, punishments, bribes. Please, if anyone has been through this...what can I do? Meltdowns seem to be not at all sensory, and happen anywhere and everywhere, for any reason.
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    • Get an ABA person and sensory OT to help...(more) 9-6-2017 8:50pm
      Also I guarantee that there is a pattern. Start taking down notes. When and where were you right before the meltdown. Who was there. What was your kid doing. Is your kid having medical issues like an illness. Are they hungry. I have found that taking data (using a classic ABC chart--antecendent, behavior, consequence) showed me that my kid had many meltdown triggers but they are actually totally predictable. Hers include: hating the sound of people chewing; social anxiety around people complimenting her; having to wait her turn; being too hot, cold, hungry, uncomfortable due to itchy clothes, or hurt; losing a game; and wanting attention.
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      • This is so helpful; thank you. And what did you do for consequences? DC's meltdowns are so severe that he is simply walked/dragged/carried to his room and must stay there for five...(more) 9-9-2017 8:06pm
        Minutes with the door closed.
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    • Is your dc overstimulated, stressed, overtired? I would simplify things drastically, cut out any screen time and make a very simple structured schedule around meals, healthy...(more) 9-6-2017 8:56pm
      snacks and easy activities such as one on one trip to quiet playground, quiet book time, floor time play with you or another adult.
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      • This is good advice. I have two other kids and work from home and am very guilty on the screen time front. 9-9-2017 8:53pm
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  24. Special Needs CBT and Psychiatrist recs for NYC, for anxious 7 year old with ASD, ADHD, and SPD...(more) 6-19-2017 4:10pm (1 reply)
    Our 7 year old just developed an anxiety-related phobia which is causing it to be hard for her to leave the house. She's smart and verbal and mildly autistic, and has had social anxiety related to autism for a while. Does anyone have recommendations, both for CBT and possibly psychiatrist/meds in NYC for this profile?
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    • Gabrielle Silver, MD for psychiatrist, definitely. 6-20-2017 11:36pm
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  25. Special Needs I just did something I never ever do. Ds (12yo) texted me he left his homework in the printer, they are not allowed inside during recess to go print stuff. Could I please bring it...(more) 6-13-2017 12:13pm (16 replies)
    to him (he left it in our printer this am. I WAH. Anyway, he has ADHD, SPD and severe anxiety. A couple of weeks ago, he had such a bad anxiety attack over something he literally pulled his hair out. So I took it to him because I didn't wan thim to freak out again.
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    • I do this stuff all the time. Most parents do - they are not as obsessed with not enabling their kids. It's fine. 6-13-2017 12:14pm
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      • thanks, I really feel that they need to "fail" to move ahead, not forget things, so I don't normally do this. 6-13-2017 12:16pm
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    • That is OK. 6-13-2017 12:15pm
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    • That was nice of you. It will help him to know he has uour support 6-13-2017 12:15pm
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    • My ds is ADHD, has weak exec function, i would totally do that. Many parents don't understand. Kids need different levels of support 6-13-2017 12:15pm
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    • i think that's fine. he remembered. we all forget things sometimes, he was resourceful enough to ask you. just remind him you won't always be available in a pinch. sometimes the...(more) 6-13-2017 12:15pm
      rules at school are harder than work (at work you would be allowed to use the printer) but maybe i feel that way bc kids are at super strict schools.
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    • that's fine. everyone deserves a little help sometimes, especially if you know they generally are trying their best. 6-13-2017 12:15pm
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    • I would totally do it for him. 6-13-2017 12:15pm
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    • you did the right thing 6-13-2017 12:16pm
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    • I do this for all my kids from time to time and they dont have anxiety, i sah and its not hard fro me 6-13-2017 12:16pm
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    • i would absolutely have done the same thing. 6-13-2017 12:16pm
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    • not allowed at our school 6-13-2017 12:18pm
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      • Like I said, I don't like doing this, and I woudn't normally, however, after what we just went through, I had to 6-13-2017 12:19pm
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    • yes. he's 12 and cares about his hw. could be worse. 6-13-2017 12:20pm
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    • I am a hard ass, but see zero wrong with what you did given teh sitch 6-13-2017 12:24pm
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    • I would have done the Same thing. 6-13-2017 7:56pm
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