Search Results for "spd | "sensory processing disorder""

  1. Special Needs Has anyone done Therapeutic Listening or The Listening Program?...(more) 2-17-2020 5:47pm (1 reply)
    If so was it helpful? This is for a 9 year old with “Mild” ASD, misophonia and sensory processing disorder, especially auditory hypersensitivity
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    • My dd did Tomatis years and years ago and I feel like it helped her enormously. 2-17-2020 5:51pm
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  2. Special Needs Ds recently diagnosed w/ developmental coordination disorder? Ive never hear of this and no prior doctor gave this d except for adhd and SPD 2-13-2020 1:26pm (3 replies)
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    • Did he crawl as a baby or move straight to walking?... Also, check out the website SENG 2-13-2020 1:31pm
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    • Ds has this in addition to adhd. He’s 21 now 2-13-2020 7:10pm
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      • >>>it’s the same thing as dyspraxia 2-13-2020 7:10pm
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  3. Special Needs My second grader w/ adhd and SPD has a hard time focusing at school and is always slouching over his desk and resting his head on arms...What can be done to help him? 2-8-2020 8:03am (3 replies)
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    • i'd ask an expert- what does the iep say 2-8-2020 8:04am
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      • says nothing about slouching 2-8-2020 8:09am
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    • more sleep, adhd meds, non-desk seating...my dc was always jealous of this one kid who got to sit in the teacher's special chair during some parts of the day...it was a big...(more) 2-8-2020 8:10am
      rocking chair with cushions and a foot stool...and during rug time he also got to sit in a different chair and not on the rug with everyone else
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  4. Special Needs What can I do for my adhd child? we moved to new school & they keep saying hes doing fine--yet previous district said he needs constant refocusing...on a playdate recently, his...(more) 1-26-2020 12:54pm (8 replies)
    classmate said my child is constantly distracted in class especially during math--which of course weve noticed bcuz he is failing...504 plan says ds must have preferential seating near front/source of instruction...classmate said my ds cant concentrate as hes placed in the back row at math time bcuz its on the rug and they place the tallest kids in the back row!!! I had a feeling the teacher wasnt being truthful..this proves it...plus they put him on some kind of rocking chair base--this has never been recommended for my child w/ adhd who also has sensory processing disorder....he is overstimulated on this constant rocking base...what can i do? to make matters worse the school OT evaluated my son But NEVER observed in classroom. she never recommended anything yet but said she will try different things in her OT room first...this is outrageous...Thank you
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    • Call ameeting 1-26-2020 12:56pm
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      • op: we just had a meeting last week. this never came up bcuz teacher says hes doing fine 1-26-2020 1:02pm
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    • Is there anyway you can move him to another school? I'm sorry but they sound shifty and clueless. You can try to work with them but he may be better off somewhere the staff cares...(more) 1-26-2020 12:57pm
      more about meeting his needs. I'm really sorry
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      • op: thx...there is another elementary school in the same district where the principal does care BUT were not zoned for that school 1-26-2020 1:06pm
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        • OR again... Where are you? In NYC you can go to a a "family welcome center" for the district and demand a variance. Seriously, put on your mama bear claws and make this happen. If...(more) 1-26-2020 1:09pm
          you harass the living crap out of people they tend to give you what you want eventually.
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          • Nassau county 1-26-2020 4:01pm
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    • Typical public school BS for this sort of thing. I’d find another school if they dint want to comply. 1-26-2020 1:02pm
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    • You need to get a NP in the school to evaluate your child during school. This district sounds like they are screwing you over. 1-27-2020 6:20pm
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  5. Special Needs We moved into a new apt ground floor a few months ago and my child has sensory processing disorder. He can not bear the noise from our upstairs tenants who wake up at 5 am every...(more) 1-4-2020 8:56am (22 replies)
    Morning.. he can not go back to sleep and it’s affecting his sleep and school life can We break our lease? Thanks
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    • Can you get a white noise machine for your ds room? how loud are they? 1-4-2020 8:57am
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      • op: thx. they wake all of us up...when they're in the bathroom the exhaust goes on and sounds like a motor in our rooms 1-4-2020 3:11pm
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    • talk to the LL and help them find a renter to replace you. Are you in NYC? It won't be hard. Did the LL use a broker, or Streeteasy or what? 1-4-2020 8:57am
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      • ^^and by help find, I mean, clean the apt and be willing to let people come look, that's all 1-4-2020 8:58am
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      • op: thx we are in nassau county...this is a big property management company apt. complex 1-4-2020 3:12pm
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    • ask your landlord. usually if you find someone to take your apt they're okay with it but who knows. i've seen ll not give a shit and i've seen ll ask you to find a replacement and...(more) 1-4-2020 8:57am
      i've see ll force you to pay the remainder of the money
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      • in NYC there are rules against that. It's pretty tenant friendly 1-4-2020 8:58am
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        • against what? holding you accountable to the lease? 1-4-2020 8:59am
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          • yes, ma'am. don't like it, don't live here 1-4-2020 9:01am
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            • so leases are really just suggestions and can be completely disregarded? 1-4-2020 9:02am
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              • COMPLETELY that's what I said. 1-4-2020 9:03am
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                • i can't tell from your sarcastic snotty comment exactly what your intention was 1-4-2020 9:03am
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                  • I find people who battle with the messenger to be very petty and not very bright. I've brought you some printed material but I suggest you find more. And then argue with that....(more) 1-4-2020 9:05am
                    • god you're a snotty cunt 1-4-2020 9:05am
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                      • and you're a moronic twat 1-4-2020 9:06am
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                    • this article is 6 months old. i'm not a landlord and i haven't broken a lease in the last 6 months so i'm not sure why you think we all should be up on new lease laws that are 6b...(more) 1-4-2020 9:07am
                      months old. you're a cunt.
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    • IMCP: I've lived in apartments and condos for probably decades and never heard the upstairs people. Are your upstairs tenants really fat? 1-4-2020 9:03am
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      • i have lived in buildings where you can't and buildings where you can. you just got lucky 1-4-2020 9:04am
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      • op: thx. you can hear everything. very thin walls...old building. they renovate everytime someone moves out but the upstairs apt. hasnt been renovate 1-4-2020 3:13pm
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    • You know white noise machines are really effective for exactly this. Try the white noise app on your phone for a few nights before you try to break your lease. 1-4-2020 9:19am
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    • If the upstairs neighbors are compliant re floor covering percentage and aren't making noises above and beyond normal, then you have no case. 1-4-2020 9:26am
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      • Have you talked to the neighbors? Maybe if they wear fluffy padded slippers it could help....(more) 1-5-2020 9:44am
        There is also a new invention called QuietOn Sleep which supposedly blocks low frequency vibration/noise like foot thumping.
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  6. Special Needs Tween DD dx SPD runs stomping back and forth across our bottom floor several times a day and literally bounces off the opposite walls (to "get her energy out") - we may be moving...(more) 12-15-2019 7:05pm (10 replies)
    in the spring and would like the option of a higher floor with another unit below. Any ideas for alternative movements that might be less disruptive to neighbors?
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    • get her a rebounder 12-15-2019 7:06pm
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    • Mini trampoline 12-15-2019 7:06pm
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      • Op, thanks, I think I need something for the side movements too, but maybe there are accessories for that... 12-15-2019 7:17pm
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    • Tell her knock it off and go outside to do that. 12-15-2019 7:07pm
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    • does she like swinging. my dc like the hugglepod 12-15-2019 7:07pm
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      • Will look into that, thanks. 12-15-2019 7:17pm
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    • So she's stimming? 12-15-2019 7:08pm
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      • Right, she needs a lot of that gross motor movement apparently 12-15-2019 7:18pm
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    • Maybe she needs a swimming or gymnastics or dance class every day. 12-15-2019 7:16pm
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    • DOn't assume behavior will change just because it's more convenient to you. Maybe find a building with a gyrm that allows kids over 12 with adult supervision 12-15-2019 9:04pm
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  7. Special Needs Do you think a good burb could educate a kid with the following dx: mild ASD, severe ADHD-I, dyscalculia, extremely slow processing (like, 1%). Score scatter with half the scores...(more) 10-5-2019 9:17pm (16 replies)
    N the 80-90% and the other in the 1-3%. I’m afraid that the supports that have gotten him through elementary on grade level-ish are not going to be enough for middle school. Factor in also: food allergies, asthma, extreme low muscle tone, sensory processing disorder, tics, and now possibly narcolepsy.
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    • Omg please look into pandas/pans 10-5-2019 9:17pm
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      • What about it? He has an underlying chromosome deletion which is believed to be at the heart of all this. 10-5-2019 9:20pm
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        • It sounds like there’s more going on. I really think you’re missing something. 10-5-2019 9:22pm
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          • I’m open to hearing what you have to say. But I will say that most of these issues—or their precursors—were present at birth, along with congenital heart defects....(more) 10-5-2019 9:25pm
            He’s also never had strep throat or even a sore throat3.
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            • The tics he had at birth? 10-5-2019 9:25pm
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              • No but the low muscle tone, the coordination delays, the food allergies, etc 10-5-2019 9:27pm
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                • This post has been deleted. 10-5-2019 9:28pm
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                • What tics does he have?! Two of my kids had tics 10-5-2019 9:31pm
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                  • He’s had different ones over the years. A sound iwth his tongue, clearing his throat. Lately he’s doing a thing where he puts his cup of milk on his head 3before each sip which is...(more) 10-5-2019 9:34pm
                    Driving me crazy.
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                    • The OP asked about education in the burns for her kid. Why does the PANDAs mom have to hijack every single post?...(more) 10-5-2019 11:45pm
                      Honestly, please know that the vast majority of kids discussed on this board did not develop OCD or tics due to a strep infection. I have seen PANDAMom post so many times on here, constantly shifting a useful discussion into non scientific discussions which lead parents to waste time explaining that their kids have a genetic issue and not PANDAs. PANDAs is rare, genetic based neurological conditions are not. Will you please stop making everything about PANDAS???
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    • What do you mean by a “good burb?” What he needs is a burb that gives resources to children with SN as opposed to focusing mostly on getting top students into top colleges. A 10-6-2019 12:56am
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      • Look at burbs like Pelham and Mamoroneck. Contact the SEPTAs at schools you are considering - those parents should be familiar with what the district offers or put you in touch...(more) 10-6-2019 12:58am
        with a parent who would know.
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      • Did OP say anything about college? She was specifically asking about a school system in a burn that could accommodate her DC’s needs? Why are you chastising her? 10-7-2019 7:36am
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    • Ardsley or Mamaroneck, yes. I think they can do as good a job with SN kids as NYC special ed privates. There are downsides (e.g., you may not have many friends for your children...(more) 10-6-2019 6:49am
      because once you remove your child from a SN setting, there aren't peers like him/her.)
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    • NO. BTDT, and my dc is not ASD. IMO burbs are good with a singular learning issue but when there are multiple issues, things go downhill and fast. We are in a top burb wound up...(more) 10-6-2019 11:54am
      in sn private for middle school
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    • This is my response to every inquiry of this sort: there absolutely are many burbs that do well, sometimes even very well, by kids with profiles such as this. And yet, within each...(more) 10-6-2019 3:15pm
      of these burbs there are also families of kids with profiles such as this who think their kids are not being well served. There was a time when we were in the 'happy' camp and now we are in the "not very happy" camp. I think that this is a very individualistic question and it all boils down to the personality fit of the parents, the kid, and the school team, and whether the needed resources are truly available vs. are already used so intensively that it'll be hard for the last kid into the school to get what he/she wants. Good luck.
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  8. Special Needs Anyone move from a SN school to NEST in NYC, for 4th or 5th grade?...(more) 10-4-2019 10:43pm (4 replies)
    My DC is at a private SN school focusing on language-based LD but DC has mild ASD, ADHD, sensory processing disorder, and social anxiety. DC is in 4th grade and 2 grade levels behind in reading and math (due to the curriculum of the SN school primarily). DC was rejected from NEST for kindergarten because DC had more serious behaviors then. Now, due to Abilify, DC's behaviors are much more manageable. Has anyone successfully transitioned to NEST, maybe after intensive tutoring to get up to grade level, for later grades like 4th or 5th? It might be a stretch, going from such a tiny school to a larger class size and more integrated environment but I always thought more integrated is better if the supports are there.
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    • I have not done this but have a dc in Nest. There are some kids who entered in 3rd/4th but I haven't known many toenter in 5th (in part b/c there are few spaces in that year...(more) 10-5-2019 3:37pm
      typically). It's definitely worth trying since Nest is more supportive in elementary than middle so it would give your dc a year (or more -- you might be able to enter mid-year -- contact Nest schools in feasible distance directly to see if there are any spaces -- I happen to know a 3rd grade in Nest awaiting a SN school placement for ex so this can happen mid-year)
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    • Try these boards...(more) 10-5-2019 6:57pm
  9. Special Needs My 7 yr old ds has adhd & SPD. His new teacher says she notices he hums and sings a lot...what could this be? is this a symptom of adhd? Child isn't on meds does have many sensory...(more) 9-10-2019 8:35pm (22 replies)
    seeking behaviors.
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    • He's musical 9-10-2019 8:36pm
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    • my DD does this it feels like anxiety 9-10-2019 8:37pm
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    • Eh my ADHD DC went through a humming phase for a while. I dunno why a joyful 7yo humming seen as a pathology. The teacher just needs to give a tap on the shoulder and give the shh...(more) 9-10-2019 8:38pm
      sign and it will go away.
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      • this. it's a mild irritation. provided he stops when it's pointed out, nbd 9-10-2019 10:14pm
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    • Sounds like a tic 9-10-2019 8:38pm
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      • FFS stop 9-10-2019 8:39pm
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        • What? My kids have tics and one of them hums 9-10-2019 8:40pm
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          • Humming is not a tic. A self soothing method? Sure. That is not a tic. 9-10-2019 8:40pm
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            • It can be a tic according to the cdc. You obviously aren’t educated about tics....(more) 9-10-2019 8:42pm
              • I know all about tics. 9-10-2019 8:42pm
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                • It's an area of research that is still poorly understood. 9-10-2019 8:42pm
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                  • There is very little research on tics. They haven't figured it out yet. 9-10-2019 8:43pm
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                    • Unlike seizures. 9-10-2019 8:43pm
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                    • It’s often due to infections and inflammation. See PANS/pandas 9-10-2019 8:44pm
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          • I honestly think there are too many NYC parents who have outsourced commonsense to "professionals" with no common sense. 9-10-2019 8:41pm
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    • FWIW, Paul McCartney whistles constantly. Nobody called it a symptom. 9-10-2019 8:41pm
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    • humming is very calming. 9-10-2019 8:49pm
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    • Mine hums when he is concentrating 9-10-2019 9:13pm
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    • mine did this in preschool when he was bored, or just not paying attention, or both... 9-11-2019 4:27pm
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    • My ASD son hums. It's a stim for him. 9-12-2019 4:38pm
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    • Sounds like a stim. Common with SPD. Mine does too (he's also musical--sings in choir and plays instruments). 9-13-2019 1:08pm
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  10. Special Needs You guys! My super restrictive eater with SPD and oral motor issues ate most of a salmon filet! He has never willingly eaten fish in his life, he’s 9. 2-9-2019 8:40pm (0 replies)
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  11. Special Needs Is Abilify only for ASD? It’s the only thing that’s worked for DS 6, with adhd, spd and horrible meltdowns. 12-25-2018 7:19pm (15 replies)
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    • Thinking he is HFA, and has just flown under the radar because while he has a tough time with transitions, he’s very social, has a lot of empathy and so forth. 12-25-2018 7:22pm
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      • Diagnosis is irrelevant. Celebrate that something is helping him be his best self..... 12-25-2018 7:28pm
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        • Trying. :) I should probably add that it only works maybe 80% of the time. The other 20% is horrifically bad. 12-25-2018 7:31pm
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    • No. I know adults who take it. 100% not ASD or anything close 12-25-2018 9:11pm
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      • True. It's an anti-psychotic that also aids in self-regulation. Not a med specific to ASD at all, though it may help some w/ASD. 12-26-2018 1:48am
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    • Ability is also an approved mood stabilizer for kids with bipolar 12-26-2018 5:00am
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    • Who dxed the ADHD? HFA is often confused with ADHD at that age, especially if dx is based heavily on subjective surveys by teachers. 12-26-2018 11:13am
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      • This! 12-26-2018 11:41am
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      • Two psychiatrists and a neuropsych. (I would NEVER listen to teachers for this. I think so many take liberties in “diagnosing”. 12-29-2018 4:10pm
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    • Maybe your child is truly ASD? Because your list of issues could be that. 12-26-2018 11:41am
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      • Then how do you explain the empathy and sociability? 12-29-2018 4:08pm
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    • This post has been deleted. 12-26-2018 1:37pm
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      • This post has been deleted. 12-26-2018 1:38pm
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    • No it’s an antipsychotic used for various disorders 12-26-2018 1:39pm
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      • True. It helped my child with self-regulation. 12-28-2018 8:57pm
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  12. Special Needs Guys, I was just checking my email and there was an email from my 9th grade ds to his learning lab teacher (it's an academic support period he has) and 2 of his teachers asking...(more) 12-20-2018 10:11am (1 reply)
    them for help to remind him about some work he forgot and to make sure he gets it in. He has ADHD and ANxiety and SPD, and this has been a huge ongoing issue with him forgetting, the teachers not checking in (per his IEP). HE TOOK THE FIRST STEP this time. HE DID! I AM DANCING THE HAPPY DANCE PEOPLE.
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    • Yay!!! This is fantastic!!! 12-20-2018 10:13am
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  13. Special Needs We were at an event last night. Ds who is 14yo and has ADHD, SPD, and anxiety, looked at the food being served (it was buffet) and chose not to eat. We were at a table with older...(more) 12-16-2018 1:21pm (8 replies)
    people (it was a fundraiser, and it was where we ended up, I knew most of them), all were questioning why ds wasn't eating, and why wouldn't he at least try the food. I choose not to make food a battle with him because it's not worth it. JUST SHUT UP and stop questioning him and me about it.
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    • I think people are just making small talk personally 12-16-2018 1:22pm
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      • no it wasn't small talk. Small talk is asking a 14yo about school, classes, etc. this was picking on him 12-16-2018 1:22pm
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    • Parents of NT kids do not get it. I'm sorry it was an issue. 12-16-2018 1:22pm
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      • it was older people (some have grandkids or grown kids and they don't get it, because they don't remember or didn't have kids like this 12-16-2018 1:23pm
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      • This is true in my experience. I actually think most parents don't "get" parenting issues that are different from their personal experience (e.g., if your kid is a fabulous...(more) 12-16-2018 1:46pm
        sleeper, you tend to assume that another kid isn't because of X,Y or Z, when really it could be anything).
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    • older people seem so very invested in having kids conform. My kid never does up his shoelaces and I'm tired of arguing with him about it, but my god EVERY old person we pass...(more) 12-16-2018 1:26pm
      seems to have something to say about it.
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    • Was the food bagels and lox? 12-16-2018 1:27pm
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      • LAUGH OUT LOUD no, it was chicken in a cranberry sauce (which wasn't that great) a veggie thing, potatoes, and some under roasted veggies. THe food was not great by my standards...(more) 12-16-2018 1:31pm
        anyway, so it was fine with me if he didn't eat
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  14. Special Needs My first-grader has ADHD and SPD...his new school is doing everything to help him with a 504 plan...special ed teacher told me he needs constant redirection (there are many...(more) 10-19-2018 2:59pm (16 replies)
    supports in the classroom, so, thankfully, he gets lots of help...Can a child outgrow this, or will he always need re-direction with adhd? is there anything we can do now that he is young to help?
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    • Of course outgrow. So many 6 yo need redirected 10-19-2018 2:59pm
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      • op: thanks, but Ive been told my child is below and they are giving him lots of supports to catch up 10-19-2018 3:00pm
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    • Kids who get a lot of support typically learn strategies to control themselves. 10-19-2018 3:00pm
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      • Some, not all 10-19-2018 3:01pm
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      • op: he has attentional difficulties and has very difficult time focusing 10-19-2018 3:01pm
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        • IME, kids really improve once they hit about 7th grade. Elementary school can be rough. 10-19-2018 3:02pm
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        • Every child matures and improves. Will he still need help? Maybe. Will it be as "bad" as now? No 10-19-2018 3:04pm
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    • Some do, some don't. You can't predict the future. 10-19-2018 3:01pm
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      • But it is highly likely that he will not need as much redidirection as he gets older 10-19-2018 3:02pm
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        • or: Fair enough. 10-19-2018 3:02pm
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    • Have you considered auditory processing disorder? Screening questionnaire below....(more) 10-19-2018 7:38pm
      • This post has been deleted. 10-19-2018 9:16pm
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      • op: he fits almost all of these... 10-19-2018 9:19pm
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        • If he hears unclear speech then of course he needs constant redirection. APD can be remediated. 10-19-2018 11:16pm
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        • np: a lot of these are also markers for ADHD. Very hard to tease out which is which. You would need to see an audiologist for an APD screening 10-20-2018 8:58am
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  15. Special Needs Iím not sure if I handled this well. I have a 1st grade ds and he is an odd duck. He has been diagnosed with anxiety and SPD and has mild low tone. We are having him evaluated...(more) 10-8-2018 9:02am (5 replies)
    for adhd. He has friends at school. He pals around with one little girl who is a square peg too. He told me today that, at the lunch table, he blows kisses at some of the boys and they laugh and hide from him. I asked him if they were upset about it and he said that he and they were all laughing. No one was upset. He also told me that he wore his friendís pink jacket on the playground to see what these boys would say. The boys didnít care or react. Iím not sure whether I should discourage him from doing these things. I donít want him to make him even more of an outsider. I also donít want to be a control freak who makes him feel bad over little things. Heís obviously trying to get these boys attention, but this isnít the best way
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    • I think both those things sound pretty benign. He didn't invade anyone's personal space, and he wasn't confrontational. 10-8-2018 9:05am
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      • Ok. I am just afraid of him being bullied. 10-8-2018 9:05am
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        • i am down with not making a big deal except the blowing kisses part. I think you need to tell your kid that most other children would feel uncomfortable about this and to find a...(more) 10-8-2018 9:09am
          different way to engage with them
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          • blowing kisses is inappropriate and he should be taught this. When my don was very little he fid inappropriate things and zi put ghe brakes on it immediately. i dtill fo when he...(more) 10-8-2018 10:56pm
            foes something off.
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    • I think you might want to discuss what the likely results of this behavior will be. You can do it in a neutral and not shaming or controlling way. But for some kids (and I have...(more) 10-8-2018 10:58pm
      one) I think it's almost cruel to just act like their behavior, which alienates them from their peers, is normal.
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  16. Special Needs NEVER EVER go by mail from the camper. Got one great letter, one bad letter. Was up at camp today to pick up younger son from camp. Older son has ADHD and anxiety and SPD and is...(more) 7-6-2018 1:15pm (3 replies)
    part of an inclusion program at this camp (they have social workers, inclusion counselors who are trained etc). Well, they pulled me aside to tell me how awesome ds is doing, how great he is and the reason they haven't called is he just isn't on their priorty list (YEAH) and the letter was written in a bad minute. IN fact, all my anxiety was worthless (I wish I could not let it ramp up) the other night, there was a social at camp and ds was having a tough time because of the space/crowd/noise and so he found 2 girls who were playng cards off to the side and went to join them, then another kid came over and joined them. When a song came on they wanted to dance too, they would go over and dance, then come back to playing cards. He is socially appropriate and everyting.
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    • yay! 7-6-2018 1:17pm
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    • my heart is full. so happy for you 7-6-2018 1:18pm
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      • Thanks. The clsoer I got to camp the more concerned I was I was going to see his bags packed up too ready to come home, but nope. he is having a great tiem 7-6-2018 1:20pm
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  17. Special Needs I am having an anxiety attack. Got a letter from 13yo at ds which follows a letter saying he was happy. The new letter says he is unhappy, has not friends and wants to come home....(more) 7-5-2018 4:16pm (51 replies)
    I have not heard from the camp AT ALL. So I am going with it's just a moment he was having a bad moment. Ds is in an inclusion program, has ADHD, SPD, anxiety (yes, I get it, it's from my side, we are both in therapy). Last year when he was really in dire straights I was getting call after call. it has been a full week and a half and I Have heard NADA from camp. So I know things are better. I have to go up tomorrow to pick up his brother (who is only staying a week). I don't want to be sprung that he is coming home too (NOT GOING TO HAPPEN). Last year, when he came home early, I had phone call after phone call, behavior plans etc put in place first. None did any good. So I should calm down, but why can't I? I sent a quick email to camp checking in and now I am panicked about what that email will say. I hate this shit.
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    • This post has been disliked 5 times. showif this isnít the perfect ďapple, treeĒ example I donít know what is. 7-5-2018 4:17pm
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    • Take a deep breath. Whatever has transpired has transpired. You worrying about it will not affect the outcome. Wait to hear from the camp, and then deal with it. 7-5-2018 4:18pm
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      • I know. I just know that deep down if there was a major issue I would have gotten a call because this is not my first rodeo 7-5-2018 4:19pm
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        • Ok. That is good. So, sit down and write down the two responses you may get: 1) everything is fine or 2) he is struggling. So--will you believe them? Do you think ds's letter was...(more) 7-5-2018 4:21pm
          just one written and sent in a moment of panic and he's fine?
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          • that is my hope. I think (no, I know) if he was TRULY struggling my phone would be ringing 7-5-2018 4:22pm
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            • Ok, so that is good. We all have those times when we are a little low. Your son can have those. 7-5-2018 4:22pm
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    • What camp. 7-5-2018 4:18pm
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      • it's a JCC one 7-5-2018 4:18pm
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        • ^^it's his 5th year. 7-5-2018 4:18pm
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        • Calm down. Don't worry til u get a call. 7-5-2018 4:19pm
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          • I think It's that I am worried they are going to spring it on me tomorrow that he is going home without so much as a phone call 7-5-2018 4:20pm
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            • NP Call them now. You are better off knowing vs perseverating on it. 7-5-2018 4:26pm
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    • is this a specialized camp? 7-5-2018 4:18pm
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      • no, it's a regular camp 7-5-2018 4:18pm
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        • Can you check in with counselors? You might consider a different kind of program next year for kids with some needs- more to find his social niche 7-5-2018 4:21pm
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          • he already is 7-5-2018 4:25pm
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            • is what? 7-5-2018 4:25pm
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              • in a program with kids with needs 7-5-2018 4:34pm
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    • If there is a problem the camp will reach out to you, otherwise just keep writing supportive letters, "you can do it..." ect 7-5-2018 4:19pm
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      • doing that. sent one just yesterday (so he got it today) 7-5-2018 4:20pm
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        • just continue in this vein, remind him how he's gotten through tough stuff before, he will be home soon, he will feel good about himself if he hangs in there, ect 7-5-2018 4:21pm
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    • I don't understand why people force sleepaway camp on their children...and I have one dc (out of 3) away for 7 weeks. If he had issues last year, why not find something different...(more) 7-5-2018 4:20pm
      for him to do this summer?
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      • because HE LOVES IT. Last year he had a horrific school year and was begging to go to camp, he just couldn't manage his anxiety. He begged to go back this year. Is in a bunk with...(more) 7-5-2018 4:21pm
        his friend from out of state, was at his bar mitzvah this year. it's not like I forced him
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        • he loves it but he went home early last year? 7-5-2018 4:22pm
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          • he is a complex kid. He was having major anxiety issues last year, we spent a year in therapy. He had a way better year in school and was so excited to be back at camp. He...(more) 7-5-2018 4:23pm
            couldn't get away from us fast enough at drop off. First letter I got was how happy he was and had friends, the pictures I have gotten are so different from last year, he is with groups of frineds, he is smiling
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            • sounds challenging. Maybe he takes on a bit more than he can chew. 7-5-2018 4:25pm
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        • Loves it? He left early 7-5-2018 4:23pm
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          • Sigh, he was sad he had to go but that was because his anxiety was overwhelming. Why is that hard for you to understand? He loves going there, he talks non stop abou tit. he...(more) 7-5-2018 4:25pm
            wanted to make sure everythign was going to be okay this summer. He worked with his therapist, we made sure the camp put him with his friend from out of state who he saw a few times and they both wanted to be together, the camp knows him.
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            • Something is very, very strange about this story. It's like watching a horror movie and getting little flashes of "something is off" but can't put your finger on it when the film...(more) 7-6-2018 11:39am
              starts.
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              • The child knows the parents want him to go to camp and make friends. The child tries to act the part but internalizes and keeps hidden the suffering. Mom, dad, therapist are all...(more) 7-6-2018 11:45am
                pushing him to do it and he feels he has no choice. Not good. This is not ordinary nervous about first day of camp stuff just be encouraging. The child has ADHD and SPD.
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                • when did sn get full of this kind of trolling? so much projection and bullshit in your armchair analysis. 7-7-2018 1:30am
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        • OK, well...I have heard that many kids have one bad summer...so I think you need a game plan...if he isn't happy this year either...it just means he likes the IDEA of sleepaway...(more) 7-5-2018 4:25pm
          but not the actually reality of it....if I were you I would call the camp today and ask what is going on...if they want him out, take him out and don't send back...they either want him out or don't...you have a right to know what to expect when you go up there....springing it on you that they want you to take him home like that is NOT ok....
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          • Id on't think they would, because of last year. they don't want to send anyone home, he is in a social program there. They know how to work with him and kids like him 7-5-2018 4:26pm
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    • I have a similar profile kid and we do day camps. Sleep away camp is not a good fit. They are targeted as the kids to kick down at sleep away camp. 7-5-2018 4:21pm
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      • damn! they don't stop that? 7-5-2018 4:22pm
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        • No, they do not because it's Lord of the Flies. It takes too much effort to try to stop this dynamic in children. 7-5-2018 4:22pm
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          • My 13 yo is doing a la cart half day camps in activities he likes and he is with kids similar in interest to him. You can do this for your DC too. 7-5-2018 4:24pm
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      • Crushes their sense of self. 7-5-2018 4:22pm
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        • children need to learn how to cope in social situations, and in this day and age every camp is clued into bullying issues and work to shut that down 7-5-2018 4:23pm
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          • They do that from September through June. Summer does not need to be that way. 7-5-2018 4:25pm
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          • They do not shut it down. Bullshit. 7-5-2018 4:25pm
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          • kids with sns and otherwise at risk for bullying do not need to learn to cope with bullying.... 7-5-2018 4:26pm
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            • Thank you 7-5-2018 4:27pm
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            • who said that? 7-5-2018 4:33pm
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              • She said he has ADHD and SPD. 7-6-2018 11:45am
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      • I'm afraid this can happen at mainstream camps 7-5-2018 4:23pm
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      • I do too...he did 2 weeks at a camp but went with friends from home...but they'd have eaten him alive at a regular sleepaway camp 7-5-2018 4:27pm
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    • you can't calm down because you feel helpless and powerless. you have an urge to do something, your fight or flight is kicking in and all you can do is...nothing....(more) 7-5-2018 4:30pm
      first thing to realize is that this letter was written at least three days ago. so whatever mood he was in, it's long over. second thing is that, even if it's all true, and he's miserable, he's not in a dangerous situation, he's not in harm's way. you will learn from this experience and you can make changes or different decisions in the future.
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      • good point. it was postmarked on the 2nd of july. The first happy letter we got was on the 29th, so it probably was just a moment in time. 7-5-2018 4:35pm
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    • I wouldn't be worried about him getting kicked out, but I would worry about his being unhappy. Even if it's just a bad week, that can totally stink when you are stuck at camp. So...(more) 7-5-2018 4:44pm
      I would relax about him getting kicked out - the camp would have alerted you to issues. But that doesn't mean it's going great and he's happy. I would make sure he's OK as well. He might love the idea of it but the reality is a whole other story, and the dynamics at camp and friends at camp change rapidly in this age group.
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  18. Special Needs I'm trying to get a 504 and I emailed the school saying that we need to have a meeting to discuss my child's sensory and emotional issues. Should I have not used the word...(more) 6-21-2018 6:28pm (17 replies)
    emotional l issues? He has mild SPD and anxiety. I don't want to make him sound even worse off than he is. I'm new to this
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    • Movie kid? You will need medical documentation for the 504. Get all your paperwork in order and think about the accommodations you want to see for him. 6-21-2018 6:30pm
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      • Yes. I plan on doignt hat this summer. I just wonder if I'm making things worse for him by using words like "emotional issues" in emails 6-21-2018 6:31pm
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        • It is what it is. He has issues regulating his emotions. I would use specific description though. 6-21-2018 6:32pm
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          • Well, I just kind of wanted to put the issue on the table. I really need to have him seeing the OT and counselor and get a diagnosis 6-21-2018 6:33pm
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            • Just be as specific as possible. I've been seeing your posts, and you're doing a great job with advocating for your dc. Just be clear with what you (and his therapists) believe...(more) 6-21-2018 6:35pm
              is necessary to help him be successful.
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    • Go to wrightslaw.com they have sample emails and such. But really you should get a full evaluation. Donít pre suppose what the issues are. A 504 requires challenges with...(more) 6-21-2018 6:33pm
      activities fr daily life, such as learning, but there is a whole list
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      • I know he had SPD. It's obvious he has anxiety too. But, we need a diagnosis, yes 6-21-2018 6:34pm
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      • np: She definintely needs to get an evaluation before the 504 meeting or she's wasting her time. 6-21-2018 8:22pm
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        • My biggest concern is that she is convinced she knows for sure what he has and what he needs absent an evaluation. She may very well turn out to be right, but I think she needs to...(more) 6-21-2018 8:41pm
          WAIt and see
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          • I completely agree. 6-22-2018 6:39am
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    • I worried about this at one point when we were getting an IEP. I understand your worry but I think they generally minimize anywayóin an effort to save money/do less. No matter how...(more) 6-21-2018 7:05pm
      Dire you make it sound, they tend to make up their own mind and IME, they usually take a more positive look anyway. I would try to describe accurately but NP reports etc often sound a little worse and the school knows that
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    • I have to be honest with you, your insistence that he has SPD is going to annoy the school. They aren't going to give him accommodations for SPD. It's not viewed as a "real"...(more) 6-21-2018 8:22pm
      thing in school districts.
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      • Bigger issues is asking for a 504 absent medical documentation. Zero point in meeting to discuss without that. 6-21-2018 8:38pm
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        • Right. They will give her nothing. 6-22-2018 6:39am
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    • Your best bet is to have the schoo/district do an eval OR do your own...(more) 6-21-2018 9:46pm
      Privately so you present a report with a diagnosis and recommendations. Spend the summer getting things in order so you can start the year with a solid plan of what you want and documentation to back it up. Also helpful if your evaluator can be part of the 504 team meeting.
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      • She should get a private evlauation. 6-22-2018 6:40am
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  19. Special Needs So sad that my ADHD SPD kid is so unlikeable. No friends, no playdates. But I get it. DS often says horribly rude things, criticizes,...(more) 6-19-2018 2:52pm (8 replies)
    complains, insults and is just overall very unpleasant to be around. He did well in a social skills playgroup but was back to the same stuff the minute he was out (and none of the kids wanted to do anything with him anyway). Anyone else have a kid like this?
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    • not yet but mine is only 6. He so far is not rude but the complaining, moodiness, unpleasant rigidity are all there so I fear it will come. 6-19-2018 2:54pm
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      • ^also if you're in nyc, do you have a social skills group you'd recommend? 6-19-2018 2:55pm
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        • Meeting House and Gopi Patel at leapyearseducation.com 6-19-2018 2:58pm
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    • Mine has some of those issues. We are trying but he keeps alientating the people who were once his friends 6-19-2018 2:58pm
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    • What is SPD? 6-19-2018 3:13pm
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      • sensory processing disorder. aka sensory integration disorder 6-19-2018 5:07pm
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    • Honestly, I've never heard of anyone talk about SPD after their child is 3 or 4. Usually it's something more going on. 6-19-2018 6:11pm
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  20. Special Needs Risperdal, yes or no? For ASD/ADHD/SPD/anxious 8 yo...(more) 6-16-2018 9:49am (17 replies)
    Obviously I am getting advice from a child psychiatrist and 2 psychologists and not just YBM, but I am trying to get firsthand reports from parents who have BTDT. Our DC has meltdowns on a 3-4 times/week basis with screaming, crying, occasionally knocking down chairs. Not self injuring or malicious to others but it limits our life hugely. DC canít fly on planes, eat in restaurants, or go to birthday parties. Most play dates end in crying. Problems in a SN school. Was rejected from an ASD school because had a meltdown on school tour (in other words, more behavioral issues that kids who go to a school for autism). However, we have NOT had a chance to give ABA or CBT a fair shake. Would you do risperdal now, or give behavior therapy a few months first?
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    • My ds does very well on ability which is a long acting form of it. Similar profile. He's also on tenex and Zoloft. 6-16-2018 9:51am
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      • ^^^ and lithium. 6-16-2018 9:51am
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        • We are most concerned about side effects (weight gain, growing breasts, tardive dyskinesia). Did you encounter that? 6-16-2018 9:53am
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          • no. none of it. 6-16-2018 9:53am
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          • Also what age did you start? And how has it benefitted your kid? 6-16-2018 9:53am
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            • Similar age. he doesn't throw furniture any more! that's been great. much less labile emotionally, less dangerous. 6-16-2018 9:54am
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    • It's a pretty hardcore antipsychotic. Can they try something lighter like abilify (as poster says above) 6-16-2018 9:54am
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      • ^and the side effect profile is much better 6-16-2018 9:54am
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        • DCís psychiatrist actually said risperdal had fewer side effects 6-16-2018 9:55am
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          • or: That is not true. 6-16-2018 9:55am
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          • Also abilify is in the exact same class of atypical antipsychotics, as risperdal? 6-16-2018 9:56am
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            • or: It's 2nd gen, yes. But it's not as hardcore as risperdal and the side effects are less off-putting. 6-16-2018 9:58am
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              • ^and it works on different receptors 6-16-2018 9:58am
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          • I just posted below. It was the case for my dc. Developed tics in ability and was very agitated on it. He has absolutely no side effects on Risperdal and heís been on it for 11...(more) 6-16-2018 5:53pm
            Years. There was some initial weight gain but that was leveled out after the first hear
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    • My dc is 20. He has been on a low dose of dispersal since he was 9. Itís been a miracle drug for him. Not ASD but adhd and anxiety. 6-16-2018 5:51pm
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    • Risperdal got our ds to where he was accessible to cbt and counseling. Slight weight gain, but he was skinny to start with. 6-16-2018 9:50pm
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    • You are me. We went to Abilify because nothing, and I mean nothing, touched the meltdowns. Hunger is slightly increased and DC is super tired, but the meltdowns have improved 90%....(more) 6-16-2018 10:27pm
      Sadly, we tried every other drug for over a year, and this is the only one that helped with meltdowns. Nothing else even came close. Iím so glad we did it.
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  21. Special Needs My ds has had some issues this year in school, relating to SPD and anxiety. Next week is the last week of school. Is there any benefit to me having a conversation with...(more) 6-15-2018 8:54am (3 replies)
    the principal and cousne
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    • ^^sorry for the repeat post 6-15-2018 8:55am
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    • a conversation about what? 6-15-2018 8:55am
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    • Is there an IEP or 504? 6-15-2018 9:00am
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  22. Special Needs My ds has had some issues this year in school, relating to SPD and anxiety. Next week is the last week of school. Is there any benefit to me having a conversation with the...(more) 6-15-2018 8:50am (1 reply)
    principal and counselor before school ends? Mainly, about things that upset and embarrass him and about accommodations he should have had this year. Or, should we work on getting a diagnosis this summer and just reach out before the fall?
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    • Ah, I asked on the other thread what about. The only thing I would say to them is perhaps that you're going to work toward a diagnosis and getting accommodations in place. 6-15-2018 8:58am
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  23. Special Needs Emotional dysregulation and meltdowns (ASD/SPD/ADHD/anxiety)...(more) 5-27-2018 8:28pm (6 replies)
    Our 8 year old keeps having meltdowns. I know the triggers but we havenít been able to find good interventions to help self regulate. DC would spend 10 hours a day watching TV because excursions to places that are a little too loud or too crowded, where we might hear annoying noises, or that require waiting trigger meltdowns. What treatments have helped reduce meltdowns in your kid? We are starting ABA (again). CBT didnít work (too hyper, though we may try again); we didnít find OT to help with regulation much. Self calming techniques needed.
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    • Not the point of yor post but why does it have to be all day tv watching Bc the child can't go anywhere. There is more to life than excursions vs TV 5-27-2018 8:32pm
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      • Iím just exaggerating a bit. Excursions to my DC include walking in the park or going to a playground...(more) 5-27-2018 8:45pm
        The sensory issues have actually gotten worse to the point that we canít eat in restaurants. Playgrounds are sometimes OK but when there are more than 20 kids, there can be meltdowns. Today the swimming pool had a few loud toddlersómeltdowns. Our world is shrinking.
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    • I have a similar kid, and we got some relief from an ssri for the anxiety. We also used CBT techniques for flexibility and anxiety. At 8 he couldn't engage with...(more) 5-27-2018 8:50pm
      the therapist, so we worked on those things at home. He is 10 now and we are trying CBT again, with a therapist who has experience with asd. Time and a little maturity help too
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    • Coping Cat Intervintion...(more) 5-27-2018 9:29pm
    • Same meltdowns but DC is sensory seeking, so we take him to places he loves and considers a treat. Is there anywhere your son loves to go? It can even be a toy store or ice cream...(more) 5-27-2018 10:00pm
      place, as long as it gets them out of the house. As he gets comfortable going to ďhisĒ places, he may be comfortable branching out. Also, the headphones/listening therapy could be helpful. Lastly, medication. Speak to a highly-recommended psychiatrist. GL.
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    • For now 18 yo ds, it was Abilify from age 12...sorry to say 5-28-2018 8:05am
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  24. Special Needs 13yo ds. ADHD, SPD. Very much a rule follower. Kid in his class has been vaping ds is reporting him for it. The other day he didn't see it, but his friend did and he went with her...(more) 5-17-2018 8:21pm (22 replies)
    to the office ot report it even though he didn't see it. Today, ds reported this kid again because he saw him with a small black box and he was hiding between to trash cans during gym class. This kid is a known bully and has been in trouble multiple times. I am worried for my ds safety because this kid is 2x the size of my ds and not a nice kid. If he even thinks it was my ds he will go afte rhim. not sure even where to start with this.
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    • tell your kid to swim in his lane 5-17-2018 8:21pm
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    • Id advise my kid not to report anyone unless he sees a person violating another person 5-17-2018 8:22pm
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      • SAME. Don't let your kid be BBQ Becky. 5-17-2018 8:22pm
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      • I have told him that. he says this time he saw him so he needed to say something 5-17-2018 8:23pm
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        • He sounds OCD. Is he in therapy 5-17-2018 8:24pm
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          • yes 5-17-2018 8:24pm
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            • it's something to discuss with his therapist. Not for any other reason than it sounds like it's an impulsive. I'm a mom of an ADHD kid who can't control his impulses and we work...(more) 5-17-2018 8:25pm
              on those in therapy
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        • "If you see something, say something" applies to things that will harm others 5-17-2018 8:24pm
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          • Vaping IS harmful 5-17-2018 8:28pm
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            • Not to others 5-17-2018 8:29pm
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              • A culture of tolerance for smoking encourages others to smoke. 5-17-2018 8:32pm
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    • it might be good to advise your DS to MYOB, he does not have to be the one to report on others kids 5-17-2018 8:23pm
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      • I have said it. many times 5-17-2018 8:23pm
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        • he may have to suffer the consequence of being known as a tattler before he gets it 5-17-2018 8:24pm
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          • plus I alway say to my DD who can be the same way, just worry about what you are doing that is wrong and work on that, you don't need to solve others problems 5-17-2018 8:25pm
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    • This post has been disliked 7 times. showtell your kid to keep his fucking mouth shut and mind his business. what the fuck is wrong with you 5-17-2018 8:23pm
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    • OMG, tell your dc to mind his own business.....nobody likes a tattle tale 5-17-2018 8:24pm
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      • you don't think I have? you realize this is SN right? 5-17-2018 8:25pm
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        • yes, and everyone is saying to tell him MYOB. Tell him if this kid wants to vape himself to death, let him. 5-17-2018 8:27pm
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          • yes I understand that and I have. many times. 5-17-2018 8:28pm
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    • I think at this point you can tell your son that he reported this kid enough, let the school handle it from here, even if your son sees it again. 5-17-2018 8:24pm
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      • thanks this is proabbly a good way to at least try to get him to change 5-17-2018 8:25pm
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  25. Special Needs Has anyone had an ADHD diagnosis with a child and found it was sensory processing disorder? 4-25-2018 2:24pm (5 replies)
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    • Mine has both. Could this be possible with yours? 4-25-2018 2:37pm
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      • I honestly don't know anymore 4-25-2018 2:37pm
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        • How was your child diagnosed with either? 4-25-2018 2:39pm
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    • Mine has both + APD= Trifecta! 4-25-2018 8:23pm
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    • I think SPD tends to present alongside another diagnosis? 4-25-2018 9:04pm
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