Search Results for "early intervention"

  1. Special Needs I am about to burst so please forgive me for sharing this here...(more) 2-14-2019 2:56pm (12 replies)
    My teen has ADHD and it is really frustrating a lot of the time because of his poor time management and executive function. He works very hard though and is self motivated. He was also a kid who had intensive early intervention up through age 5 (speech, OT, PT, play therapy, speech therapy, feeding therapy) and is still behind socially. But he has come a long way. He took the PSAT and because of a paperwork snafu just got his scores back. He is 99th plus percentile for everything. I can't fucking believe it. This from a kid who gets lost going to the bathroom and whom I am afraid to let drive. Thank God for all the therapy he had access to.
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    • Wow. You must be so happy and relieved. :) 2-14-2019 2:57pm
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      • I am actually pinching myself. He's had no prep or anything! I am just going to sit back and enjoy this happy moment 2-14-2019 2:58pm
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    • THIS IS AWESOME! So great, mama! Way to hang in there with him all those years! 2-14-2019 2:57pm
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    • congratulations! 2-14-2019 2:57pm
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    • woohoo!! he rocks! so do you! congrats! 2-14-2019 2:58pm
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    • Make sure he takes the psat that counts towards national merit scholarship 2-14-2019 2:58pm
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      • That's next year and he will. I just can't believe it. I cried when I first saw the results. When he was 5, I remember wondering whether he'd ever learn to read. 2-14-2019 3:00pm
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        • ^^i am going to call his old therapists and share this and thank them. We are still in touch. They were family to us 2-14-2019 3:01pm
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    • Whew. Ime, maturity makes a HUGE difference. My 21yo is the same. A different person from who she was from 12-17, which was loathsome. Now I’m trying to remember this lesson for...(more) 2-14-2019 3:02pm
      my ADD 17yo, who is far behind peers in every way. Thanks for post his success story!!
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      • This post has been deleted. 2-14-2019 3:50pm
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    • Gt and adhd arw not mutually exclusive, they often go hand in hand. 2-14-2019 3:02pm
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    • Thank you for sharing!! You have given me so much hope! 2-14-2019 7:23pm
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  2. Special Needs Re-posting in hopes someone can help: my dd is receiving tier 2 intervention under RTI-Response to Intervention--failing math and not meeting standards. only recently found out a...(more) 1-15-2019 5:08am (44 replies)
    TA (teacher's assistant) has been teaching extra help math to him in a small group before school, not a teacher. I thought under Tier 2 of RTI a child is supposed to receive "an appropriate education from a qualified teacher.'' school said this is ok because it's extra help in the morning before school. anyone know if this is valid? the core math my daughter is learning is very difficult for teachers to understand, I am beyond frustrated to learn that a TA is teaching my child when we had to hire private tutors to intervene...what tier 2 interventions are there then for children failing math in early grades?
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    • i don't know any of those terms, but what i do know is that your dd might be able to be pulled during math class by a specialist for one on one math. does she have an IEP? 1-15-2019 5:25am
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      • Thx. No 504 plan. 1-15-2019 6:20am
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        • Maybe you need to revise it or get an IEP to get more services in place for her. By law, they have to do more if this isn't working (which clearly it is not) 1-15-2019 6:26am
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        • 504 plans typically only qualify for accommodations, not services. No idea on your other questions. 1-15-2019 6:37am
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        • 504 is more behavioral and environmental accommodations. When a child is below grade level, you are eligible for an IEP which has an educational component 1-15-2019 8:32am
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    • I posted last night -- the state guidance just says "Levels beyond Tier 1 represent supplemental intervention/instruction provided in addition to the core instructional program...(more) 1-15-2019 8:29am
      provided by qualified staff", not specifically "qualified teachers". It seems that some wiggle room was left. There are lots of details on frequency of measuring progress and length of time in Tier 2 (9-30 weeks).
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      • Yes and thank you for this great resource. It says in tier 2 a child can get some individualized help. Our child prs...(more) 1-15-2019 8:46am
        Child does not but clearly needs it. How can we get that
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        • Tier 2 is meant to be tried after Tier 1 and when your child is the bottom ~10% of a class. 1-15-2019 8:47am
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          • Yes our child is in tier 2 1-15-2019 8:53am
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    • TA is either certified or on her way. This wouldn't bother me at all. I'm a long term sub - unless you are talking about calculus - anyone can help her in a small group setting. A...(more) 1-15-2019 8:31am
      TA is more than qualified for this - What grade is DD in?
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      • 'on her way' can mean takes 1-2 colleges classes per semester. 1-15-2019 8:34am
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        • What grade is dd in? 1-15-2019 8:34am
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        • and? she's in a school setting, under the guidance of a certified teacher, taking classes towards a degree. When you TA you are close to having your own classroom. 1-15-2019 8:35am
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          • I'm just clarifying that it doesn't mean someone who has a degree and just needs to finish up student teaching, for ex. And no, TAs aren't close to having their own classroom. In...(more) 1-15-2019 8:42am
            most states it's just a different term for a para.
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            • Then we should find out state and grade. If this kid is in elementary or MS, she needs to step back on her anger. A certified teacher most likely isn't going to get the kid back...(more) 1-15-2019 8:45am
              up to grade level just because she's certified. Math is repetition, practice, small group help. It will hopefully come in time but OP sounds like she thinks that the certification is a magic wand. It's not.
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              • I don't disagree - just trying to provide OP with facts. 1-15-2019 8:47am
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              • Op. Not at all. We just hired a private tutoe who is a teacher and she says our child has good math sense and got almostt all answers correct but Does NOT understan GO MATH...(more) 1-15-2019 8:51am
                methods. We told the school this 2 months ago. The fact thy a non teacher is teaching this very abstract math that our child is failing is a big concern
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                • Grade? 1-15-2019 8:52am
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                • Does tutor know Go Math method? Can you learn it to help dd? 1-15-2019 8:52am
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                  • Op. Yes but when dd gets answers correct using own method, the tutor is NOT showing her the GO MATH abstract confusing way to get the sam answer. On her test, she. Was mark...(more) 1-15-2019 9:02am
                    Marked incorrect even though she got the right answers because did NOT use GO Math method.
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                    • That's what happens in math and it sucks. My son (the dyslexic one below) can do mental math. He's in 11th grade now and still is told by teachers, "I need to see your work". In...(more) 1-15-2019 9:04am
                      addition, he has found his own way to do math that works but it's still marked down because it wasn't their method.
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          • This is not true. The TA has been in school 15 years and is not getting a collge degree. This is not NYC 1-15-2019 8:48am
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            • It's true in NYC as well -- I think the union term is just paraprofessional. 1-15-2019 8:50am
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            • Then she's a para pro - that's any mom who wants part time work. 1-15-2019 8:53am
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              • YES thank u for clarifying this 1-15-2019 9:04am
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      • ^are you talking about a paraprofessional? 1-15-2019 8:34am
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      • Op. Thank you but not true when it comes to Go Math. I have hired private tutor teachers whodont not understand the methology. Th principal said the TA is not a teacher 1-15-2019 8:44am
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      • Op. Im sure it would bother you if your child was failing and not meeting grade standards 1-15-2019 8:47am
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        • yes but this isn't how I'd approach things. My son was diagnosed with ADHD/Dyslexia at the beginning of 2nd grade. He had coping skills at school so his 'grades' were decent....(more) 1-15-2019 8:51am
          Teacher would read him quizzes and tests and he'd do well. The fact was he really couldn't read. I put him in private OG tutoring for 3 years - that extra help is what got him back to grade level.
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          • ^and I'm not trying to flame you but to help you help your dd. :) 1-15-2019 8:59am
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            • Op. Thank u Dd is in First grade 1-15-2019 9:08am
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              • you can help her! This is the best case scenario. It gets harder when she's older. Google is your friend. Google her concept and add go math to it. Have you tried Khan Academy?...(more) 1-15-2019 9:16am
                Not sure if that's their method but it's amazing!
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          • Op. Thanks so much. Our dd has adhd and cant read what extra help OG did u get? 1-15-2019 9:05am
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            • orton gillingham - it's a multi sensory approach to learning phonics and learning to read. They teach you physically in addition to orally. It helps. There are also lots of...(more) 1-15-2019 9:12am
              techniques the kids learn that stays with them for years - example: In trying to sound a word out they tap on their leg for each syllable. That slows them down, ties a physical move to it so they can identify every syllable. This is key for kids that it doesn't come naturally to
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              • Op: our dd gets Wilson at school is that good? 1-15-2019 9:50am
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                • It’s not as good imo but better than traditional 1-15-2019 10:04am
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    • Read whole thread and googled Go Math. There are lots of resources out there so you can help your dc. Ask school (and put it in 504) for a digital text book that they use. You...(more) 1-15-2019 8:56am
      need a user name and password.
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      • Op. Thx. Ive told the school arents dont understan Go Math and other schools offer parent training workshops. Our school does not offer parent help 1-15-2019 9:09am
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        • I have known people to get certified in different teaching styles in order to help their kids learn when they can't find or afford others to do it. You might need to learn it so...(more) 1-15-2019 9:14am
          you can help her.
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      • Op: what do u mean a digital textbook? 1-15-2019 9:10am
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        • textbooks are online now - You can go to the text book website, sign in an see (and hear) the actual text book they use in school. 1-15-2019 9:13am
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          • Op: thank u everyone for this great help and feedback. Truly appreciate it. 1-15-2019 9:51am
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          • Thank you to this poster..How come the teacher never told me this? My child has been struggling so long and you were right. Thank you so much 1-16-2019 10:50am
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  3. Special Needs It is amazing to me that so many kids born into povery, chaos, insecure situations etc are able to eventually manage, even thrive. My SN ds has basically every advantage...(more) 1-14-2019 3:17pm (20 replies)
    imaginable from nurturing parents, to the best healthcare, early intervention and continuous access to therapy, special needs school, etc. and often can’t get through the day without falling apart. The other day six adults - half with advanced degrees - spent an hour on a phone call trying to figure out how to help him let us know when he feels overwhelmed so we can help him before he becomes disregulated.
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    • I am happy for your child byt your first sentence in untrue. 1-14-2019 3:18pm
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    • What would have happened to him 100 years ago? 1-14-2019 3:18pm
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      • or 40 years ago 1-14-2019 3:19pm
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    • I think that helping my spectrum ds sometimes does more harm than good. 1-14-2019 3:18pm
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    • He should not have been born 1-14-2019 3:18pm
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    • It's because you are fighting to place your child in a less restrictive setting. Those other kids are just placed in a more restrictive setting. There is no battle. 1-14-2019 3:19pm
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      • The school is just trying to wear you out so that you give up or go elsewhere. 1-14-2019 3:20pm
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        • It's a circus act 1-14-2019 3:20pm
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          • they do. Smiles in the front, schemes in the back 1-14-2019 3:20pm
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            • Making mom quit her job is part of the stress they apply. 1-14-2019 3:21pm
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              • And that usually does the trick. 1-14-2019 3:21pm
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    • Everyone is different. 1-14-2019 3:19pm
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    • There is still stigma about mental health issues. If he was fighting cancer you would not be pondering all the amazing support and advanced degrees. 1-14-2019 3:20pm
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    • It;'s not an apples to apples comparison if you DC has an SN. It';s NOT a level playing field for your DC, what don't you get 1-14-2019 3:22pm
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    • I hear what you are saying. I feel this way too. I am a social worker and work with people who come from extreme circumstances and trauma, and they are struggling. But my...(more) 1-14-2019 6:04pm
      child, who had had every opportunity and resource and therapy and cpse and cse and then top sn private continues to struggle and act out and it is still so so hard, even with everything we have to offer. he has adhd/ld/anxiety. The only difference is that I dont agree that the kids coming from poverty eventually manage, most never had a fighting chance
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      • If your child had the same disability, but you had no high school degree and worked 2 minimum wage jobs...(more) 1-14-2019 10:42pm
        Your kid would never even been diagnosed and would be directly on the school to prison pipeline, or dead by now.
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        • - no subject -...(more) 1-15-2019 1:11pm
          AMEN!
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        • np This exactly! I had the same thought reading the OP. 1-15-2019 2:18pm
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        • I completely agree with you. That's why I said "The only difference is that I dont agree that the kids coming from poverty eventually manage, most never had a fighting chance". I...(more) 1-16-2019 4:26pm
          was just acknowledging that even with the resources, its a challenge every day.
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          • You’re comparing apples and oranges then. NT but in poverty vs SN with many supports and $$ 1-16-2019 7:57pm
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  4. Special Needs Help stop the closure of Early Childhood Direction Centers!...(more) 1-10-2019 7:13pm (11 replies)
    NY State has terminated the contract with the Early Childhood Direction Centers, and all of them will close as of June 2019. Note from Sarah Birnbaum follows: I just found out that NY State has terminated the contract with the Early Childhood Direction Centers, and all of them will close as of June 30, 2019. As any of you who have worked with an ECDC know, they offer help to families of children birth to age 5 - at zero cost. I got amazing support from them when my own children were young: they explained Early Intervention regulations to me, laid out the differences between the EI and CPSE systems, and helped me immensely through the misery that is Turning 5. Since then, in my talks and working directly with families, I have referred countless parents to the ECDC offices around the city. They have been helping parents like you and me for decades, at no cost to us, paid for by our tax dollars. And now they will disappear, leaving generations of stressed-out special needs families
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    • continued...(more) 1-10-2019 7:13pm
      stressed-out special needs families that much more bereft. So I am devastated to learn this news. And I am sure that those of you who, like me, have long relied on the ECDC for help and advice are likewise horrified and angry at the thought of watching helplessly as a wonderful institution goes away forever. But there is something we can do - and we have to act incredibly fast. I heard that the NYS Board of Regents is very concerned about the ECDC closure and the lack of transparency in the process. The Regents are meeting this coming Monday, January 14th. That means there's a very short window to make our feelings known! We need to tell them what the ECDC has done for us and what the lack of that support will mean for families of young children. Time is of the essence: we need to send emails to the Regents no later than tomorrow, Friday, January 11th. I am drafting my own email right now, talking about the ways the ECDC changed my life and the lives of my children,
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      • talking points...(more) 1-10-2019 7:14pm
        Forty years ago the NYS Education Department had the vision to fund Early Childhood Direction Centers to provide support and guidance to families about services for their young child with a suspected or diagnosed delay in development. Today, there continues to be a network of fourteen Early Childhood Direction Centers throughout New York that provide a coordinated system of information and referral services for children with diagnosed or suspected delays and/or disabilities, ages birth through five. We cannot not let this valuable neutral resource for families disappear. NYS must continue to recognize that the overarching need that families’ have for obtaining what is appropriate for their child remains the same – whether they live in Coney Island or in Cooperstown. The Early Childhood Direction Centers have been that link to help families navigate through the maze of services that support young children and their families from Birth through age five years. Since EC
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        • talking points 2...(more) 1-10-2019 7:14pm
          This is particularly acute in New York City where the myriad of systems can be overwhelming for a family to navigate. The local ECDC staff often speak with families over a several year span as they move through Early Intervention, Preschool Special Education and Kindergarten services. In addition to direct work with families, ECDC staff provides evidence-based workshops and individual guidance to professionals on issues and resources relevant to young children than enhance parents’ ability to be partners in their child’s education. The NYS Education Department Office of Special Education (OSE) is now in the process of creating a network of support for students with disabilities from birth through the post-school years. In doing so, this new Educational Partnership includes an Early Childhood Family and Community Engagement Center. However there is no clear role to support families delineated in the recently released RFPs.
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          • talking points 3...(more) 1-10-2019 7:14pm
            There has been no community stakeholder input into this decision to make a radical change in the ways parents, caregivers, medical professionals and early childhood providers have been assisted for forty years. We feel that it is prudent to keep the ECDCs in place through the end of their current contact June 30, 2020 rather than the recently planned abrupt termination on June 30, 2019. This will provide time to assess how families of young children will be supported by the Early Childhood Family and Community Engagement Center, or another entity.
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            • who to call --part 1...(more) 1-10-2019 7:15pm
              NYSED Board of Regents Betty A. Rosa Chancellor 12th Judicial District Regents Office, State Education Building, 89 Washington Avenue, Albany, N.Y. 12234 (518) 474-5889 Regent.Rosa@nysed.gov T. Andrew Brown Vice Chancellor 7th Judicial District 925 Crossroads Building, Two State Street, Rochester, NY 14614 (585) 454-3667 Regent.Brown@nysed.gov Roger Tilles Member 10th Judicial District Lorber Hall, Room 211 Long Island University Post, 720 Northern Boulevard, Brookville, NY 11548 (516) 299-3505 Regent.Tilles@nysed.gov
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              • who to call part 2...(more) 1-10-2019 7:15pm
                Lester W. Young, Jr. Member Member at Large 55 Hanson Place, Suite 400, Brooklyn, N.Y. 11217 (718) 722-2796 Regent.Young@nysed.gov Christine D. Cea Member 13th Judicial District 1050 Forest Hill Road, Staten Island, NY 10314 Phone (518) 474-5889 Regent.Cea@nysed.gov
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                • who to call part 3...(more) 1-10-2019 7:16pm
                  Wade S. Norwood Member Member at Large 74 Appleton Street, Rochester, NY 14611 Phone (585) 436-2944 Regent.Norwood@nysed.gov Kathleen M. Cashin Member 2nd Judicial District Regents Office, State Education Building, 89 Washington Avenue, Albany, NY 12234 Phone (518) 474-5889 Regent.Cashin@nysed.gov James E. Cottrell Member Member at Large SUNY Downstate Medical Center, 450 Clarkson Avenue - Box 6, Brooklyn, N.Y. 11203-2098 (718) 270-2331 Regent.Cottrell@nysed.gov
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                  • who to call part 4...(more) 1-10-2019 7:16pm
                    Josephine Victoria Finn Member 3rd Judicial District Regents Office, State Education Building, 89 Washington Avenue, Albany, NY 12234 (518) 474-5889 Regent.Finn@nysed.gov Judith Chin Member 11th Judicial District Regents Office, State Education Building, 89 Washington Avenue, Albany, NY 12234 (518) 474-5889 Regent.Chin@nysed.gov Beverly L. Ouderkirk Member 4th Judicial District 303 Main Street, Morristown, NY 13664 (315) 375-8596 Regent.Ouderkirk@nysed.gov
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                    • - no subject -...(more) 1-10-2019 7:17pm
                      Catherine Collins Member 8th Judicial District 508 Main Street, Buffalo, NY, 14202 (518) 474-5889 Regent.Collins@nysed.gov Judith Johnson Member 9th Judicial District Regents Office, State Education Building, 89 Washington Avenue, Albany, NY, 12234 (518) 474-5889 Regent.Johnson@nysed.gov
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                      • - no subject -...(more) 1-10-2019 7:17pm
                        Nan Eileen Mead Member 1st Judicial District 116 West 32nd Street, 6th Floor, New York, NY 10001 212-643-3039 Regent.Mead@nysed.gov Elizabeth S. Hakanson Member 5th Judicial District Regents Office, State Education Building, 89 Washington Avenue, Albany, N.Y. 12234 (518) 474-5889 Regent.Hakanson@nysed.gov Luis O. Reyes Member Member at Large Regents Office, State Education Building, 89 Washington Avenue, Albany, N.Y. 12234 (518) 474-5889 Regent.Reyes@nysed.gov Susan W. Mittler Member 6th Judicial District Regents Office, State Education Building, 89 Washington Avenue, Albany, NY, 12234 (518) 474-5889 Regent.Mittler@nysed.gov
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    • wow, are they proposing something else to take their place? 1-10-2019 7:14pm
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  5. Special Needs I am harboring so much bitterness about the lack of thoughtful care my son has received from high end doctors in fancy Fairfield County. He's been SN for ages. He was passed...(more) 11-12-2018 8:41am (6 replies)
    over for early intervention despite obvious deficits. Diagnosed privately at 4 with a full range of developmental delays but cleared for ASD. Diagnosed later for learning disabilities, cleared again for ASD. Sent to a specialist to be checked for Ehlers Danlos and cleared of that. Complained of bowel problems for years to be dismissed with low tone. Ultimately at 15 diagnosed with autism, IBS, and now I'm sending him back to be re-checked for Ehlers Danlos which may be co-morbid with ASD (and IBS is a major symptom). Why am I the researcher? I have paid so much for private evals which missed so much? Where is their culpability? He's lost so much time. I'm just bitter and angry. Thanks for reading all this.
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    • I am so sorry, I can imagine. D has a host of “non-dx able traits” and it is for this very reason I have not had a neuropsychologist. I just don’t trust them for kids who atent...(more) 11-12-2018 8:47am
      obviously one or the other.
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      • Ds I mean, has some traits. Not D has a host. 11-12-2018 8:47am
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    • I think a lot of doctors end up sliding on their reputations. I know our ADHD neurologist isn't great - I figure out a lot more online about medications than ds's doctor ever...(more) 11-12-2018 8:47am
      discusses with us, even though we ask
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      • That really stinks when you are steering the ship yet seeing doctors for their expertise 11-12-2018 9:52am
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    • Don’t blame you a bit. You trust the doctors will make the correct diagnosis. I know several kids who were told their DS not ASD only to be diagnosed years later by another...(more) 11-12-2018 9:51am
      practitioner. Very frustrating. But good for you that you kept pressing these issues and now finally are getting some answers and support.
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    • And those of us who did have those very same people diagnose our children at time of first referral/eval also have bitterness. We've spent a bloody fortune over the years on evals...(more) 11-12-2018 12:02pm
      all up/down the CT coast and into NYC. Our town is supposedly really good for sn but the reality is they're good for the "easy" manifestations. My dc's autism is not something they can handle so he's now outplaced. But, should we have had to suffer so damn much first? Hell f*****g no. But we did.
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  6. Special Needs Options for autistic three-year-old in Manhattan?...(more) 11-9-2018 12:57am (12 replies)
    Our son is three years old, and is autistic. He responded well to Early Intervention therapy, though began to regress at a certain point. He's very sweet and affectionate -- no tantrums, and seems to follow and engage when you speak to him, even if he doesn't necessarily cooperate. We're now sending him to Central Park Early Learning, and have been pretty underwhelmed by them -- he likes some of his therapists, but he hasn't shown much progress, and the school director literally told us, "Usually kids improve here, but yours hasn't." I'm curious: What are the best preschools for autistic kids in Manhattan? Has anyone sent their kid somewhere that seemed enthusiastic and engaged about helping kids, and like they knew what they were doing? Private, public, charter - we're open to literally any option, because my gut tells me CPELC is a bust. (Or even if you can recommend resources -- groups for parents of autistic kids in Manhattan -- that
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    • I would work with the preschool director to request a SEIT for ABA under early intervention programs. They push into the preschool setting. 11-9-2018 1:04am
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      • Sorry - I should've been clearer - we're looking for names of schools...(more) 11-9-2018 1:36am
        He's already 3 and in a preschool - he's past early intervention - we don't like the school he's at, Central Park Early Learning, and we're looking for suggestions of alternatives.
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      • np - do not do this. A SEIT is NOT enough -- if this child qualified for a CPSE school the child needs the entire day structured around language and commmunication 11-9-2018 9:39am
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        • ^Also, FWIW my ds went to CPELC and things really depend on the particular classroom teacher. We had one that was not working, got ds into a different class and things were much...(more) 11-9-2018 9:46am
          better. For other schools there aren't a ton of options -- Grammercy, CDC (but good luck getting in mid-year -- they are typically full and only want kids who are likely to stay two years). We looked at a Birch school farther uptown and were NOT pleased. QSAC runs a preschool in Midtown as well. Is your ds verbal?
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    • CDC or YAI - I would look into both immediately 11-9-2018 6:49am
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      • This post has been disliked 5 times. showI wonder if op doesn't know the words "thank you"? 11-9-2018 7:00am
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      • OP here -- thank you for the advice on CDC and YAI!...(more) 11-9-2018 8:33am
        It was very helpful, and exactly what I was looking for -- thanks!
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        • Good luck I hope that you find a better place for your child 11-9-2018 9:48am
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          • Look at Gillen Brewer too but it's not funded like CDC and YAI. And also unlikely to have space. But worth a call.... 11-9-2018 4:09pm
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    • NYCCD, they do floortime. Rebecca also takes 3 year old now 11-9-2018 4:51pm
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    • This post has been deleted. 11-13-2018 4:00pm
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    • CDC is great, also check MCC Crossbridge an unfunded ABA program on the Upper West Side * 11-13-2018 4:01pm
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  7. Special Needs DS just turned 8 and ADHD (ADD). He has been on Vyvanse just on school days. Seems to help him focus but I just worry about any long term effects. I hate that he needs this but...(more) 2-7-2018 10:51pm (11 replies)
    He’s had a history of SPD, early intervention, therapies, IEPs, I just wish we could be done.
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    • have you looked into cognitive remediation therapy? 2-7-2018 10:52pm
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      • NP: what is that? 2-7-2018 10:52pm
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        • Basically online training to improve attention, impulse control, etc 2-7-2018 10:54pm
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          • Thx 2-7-2018 10:54pm
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          • np: OP - before you waste your money - there's little evidence demonstrating that these programs (like Cogmed) actually translate into real life - basically the child just...(more) 2-8-2018 3:57pm
            improves playing the game/doing the on-line activities but no studies show this helping in the classroom. Per my neuropsych.
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    • if it makes you feel better, my anecdotal story is that ds has been on vyvanse for what must be 7 years now. he is 15, HS freshman back in mainstream school, b student, 2 sports...(more) 2-8-2018 8:12am
      teams, model UN, normal-ish life for a 15 year old boy. he's tall enough despite not eating much, takes melatonin to help w sleep on vyvanse days...sometimes he is a jerk to us but I feel like that's not anything to do with the vyvanse, just normal-ish 15 year old stuff.
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      • ^^the worry and concern is kind of neverending, but that's me, not him 2-8-2018 8:14am
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      • Thank you. He is like that now, at 8. His personality 3-14-2018 11:58pm
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    • He is just 8. He may not need to be on it forever. My DD was on it for a few years, now just takes it for when she has big assignments or tests. She has outgrown the impulsivity...(more) 2-8-2018 10:35pm
      part of her adhd.
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  8. Special Needs Do young kids (2y-3y) with Speech Delay and/or ADHD get ABA services through Early Intervention? Or ABA is only given to kids with a diagnose of Autism? 10-13-2017 10:57pm (59 replies)
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    • The latter. 10-13-2017 10:58pm
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      • Aba is is used on all sorts of people 10-13-2017 11:00pm
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        • Early Intervention does not give ABA as a service unless a child has an autism diagnosis through the system. That is what OP asked. 10-13-2017 11:03pm
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          • ^So OP - if you are concerned about this, tell your EI service coordinator you want a psych eval. One of your current therapists can write the justification. 10-13-2017 11:04pm
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          • No, ABA is given in response to behaviors. Insurance must cover ABA if a child has an ASD dx in most states. 10-13-2017 11:05pm
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            • OP asked "through Early Intervention!" I am answering THAT QUESTION. There is a specific procedure for getting ABA through EI. 10-13-2017 11:07pm
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              • It variesby state. 10-13-2017 11:07pm
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                • OP if you can tell us where you are, we can give you better advice about EI 10-13-2017 11:08pm
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                • ^For ex my ds got ABA without an autism dx in NY state about 4 years ago under EI. He later had an autism dx but those were the CPSE years (after age 3) 10-13-2017 11:08pm
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                  • We are located in NYC. Thank you 10-13-2017 11:24pm
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              • op asked if you can get ABA with speech delay or adhd through EI 10-13-2017 11:08pm
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          • Np aba can be used for all kinds of kids. 10-13-2017 11:07pm
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    • yes and even younger 10-13-2017 10:58pm
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      • ABA for speech delays? 10-13-2017 11:03pm
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        • if he has speech delays he will get services 10-13-2017 11:05pm
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          • not necessarily, no 10-13-2017 11:05pm
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          • if delayed beyond a certain percentage, yes. but that's speech services, not ABA 10-13-2017 11:06pm
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          • If the speech delay is at least 33% he will, but it's much better to try to demonstrate delays in more than one area because then the threshold is 25% 10-13-2017 11:06pm
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    • No 2-3yo has an adhd dx 10-13-2017 10:58pm
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    • You have to have the kid evacuated but ei is not just for kids with autism 10-13-2017 10:59pm
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      • op is talking about ABA which is primarily for autism 10-13-2017 11:04pm
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        • Aba is used for a lot of things. Why comment about something when you are very informed? 10-13-2017 11:06pm
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          • np - it's not exclusive for autism but in the vast majority of cases that is what ABA is for 10-13-2017 11:07pm
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          • why don't you go ahead and tell us when ABA is used? 10-13-2017 11:09pm
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            • It can be used for any child who needs help learning, increasing or decreasing a behavior. It is also used on adults for a number of reasons. 10-13-2017 11:10pm
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              • Give any example in which a person w/o autsim gets ABA 10-13-2017 11:10pm
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                • It is used on people at work to help with certain behaviors such as to increase productivity, it is used to teach kids who don't have autism to increase or decrease a behavior. 10-13-2017 11:11pm
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                  • What do you think aba consists of exactly ?^ 10-13-2017 11:12pm
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                  • autism and related language disorders 10-13-2017 11:14pm
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                    • If you are teaching a behavior but the aba therapist does not teach speech 10-13-2017 11:20pm
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                      • language included 10-13-2017 11:23pm
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                        • If there is a language related behavior but aba is not about teaching language it is about teaching socially valuable behavior. An aba needs to work with a speech therapist...(more) 10-13-2017 11:25pm
                          if they will be constructing and program to aid in teach speech related behaviors.
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                          • language was always already included in the programs i worked on 10-13-2017 11:28pm
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                  • you are thinking of other behavior modification techniques. Not ABA 10-13-2017 11:16pm
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                    • That is what aba is and nothing else 10-13-2017 11:20pm
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          • Have only used ABA with autistic patients 10-13-2017 11:17pm
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            • It is used in other areas 10-13-2017 11:23pm
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    • My ds had a PDD diagnosis and got ABA but it was through our insurance, not EI 10-13-2017 11:03pm
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      • PDD is another code for autism --- PDD-NOS (pervasive developmental delay - not otherwise specified) got rolled in with the rest of autism in the new manuals. 10-13-2017 11:04pm
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    • ABA is given for behavioral delays, not speech. It is given for specific symptoms. There is no such thing as a 2-3 year old with an ADHD dx. 10-13-2017 11:03pm
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      • It is given to change behavior and that is all 10-13-2017 11:08pm
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        • It can absolutely be offered to help with pragmatic language 10-13-2017 11:09pm
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          • If you are teaching a behavior sure 10-13-2017 11:10pm
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            • it is used for all areas of language with autistic kids 10-13-2017 11:20pm
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              • It is used to teach behavior so it can work in conjunction with speech but aba therapist do not teach speech 10-13-2017 11:22pm
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                • sure they can, have worked with many on the same language goals 10-13-2017 11:25pm
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                  • Yes this can aid in teaching a specific behavior but speech therapist teach speech. Get informed 10-13-2017 11:26pm
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                    • Speech language pathologist also teach language. 10-13-2017 11:29pm
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                      • They are the only ones who teach it , they can seek out an aba to help create and implement a program to teach a specific mouth movement of get word use to increase. look it up...(more) 10-13-2017 11:32pm
                        please. You lack of knowledge is so sad.
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                        • educate your self 10-13-2017 11:35pm
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                        • ABA programs include receptive and expressive language behavior. Call it what you want 10-13-2017 11:43pm
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                        • SLP below: that's actually not true. BCBAs program for language. It's caused a lot of tension at times between the 2 professions. Ideally, an SLP is involved. And there are even...(more) 10-14-2017 10:42am
                          SLP-BCBAs now, which is what I'm working towards. But ABA does include a language component. It's better for a BCBA to work with an SLP, but some don't, for a variety of reasons.
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          • with Autistic kids/ adults. 10-13-2017 11:18pm
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    • This post has been deleted. 10-13-2017 11:23pm
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    • Thank you all very much. So a young kid (2-3y) cannot be diagnosed for ADHD/ADD? 10-13-2017 11:28pm
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      • Totally inappropriate dx at that age. 10-14-2017 10:09am
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    • I work for an EI agency in a verbal behavior program. I'm an SLP, working toward becoming a BCBA. My group does ABA for a variety of children. No diagnosis is required. It's more...(more) 10-14-2017 10:20am
      about the behaviors observed during the evaluation and overall concerns that determines placement in our group. So a child with speech delay, etc. can be placed in our verbal behavior/ABA group without an autism diagnosis, if the child would benefit from this approach
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  9. Special Needs Seeking Study Coordinator for 2 Early Childhood Projects...(more) 10-11-2017 1:40pm (2 replies)
    one of New York State’s Early Intervention (EI) program, and the other of the national Learn the Signs/Act Early (LS/AE) program. All activities will take place at the Rose R. Kennedy (RFK) Children’s Evaluation and Rehabilitation Center (CERC) in the Bronx, NY
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    • Post this to both Teachers College Columbia and Columbia School of Public Health...(more) 10-11-2017 6:48pm
      Email msphocs@cumc.columbia.edu
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      • Also, if you want someone to apply for a job, you should list how they are supposed to apply...(more) 10-11-2017 10:05pm
        Such as a link to your website, an email address, or something.
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  10. Special Needs Job Posting:...(more) 10-11-2017 1:39pm (1 reply)
    We are seeking a full-time Study Coordinator for two early childhood evaluation projects, one of New York State’s Early Intervention (EI) program, and the other of the national Learn the Signs/Act Early (LS/AE) program. All activities will take place at the Rose R. Kennedy (RFK) Children’s Evaluation and Rehabilitation Center (CERC) in the Bronx, NY
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    • need more info 10-11-2017 1:40pm
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  11. Special Needs First IEP meeting... we're in nyc, finishing 4th, private/independent school, have private speech and neuropsychologist evals, doe sent their eval but no diagnosis....(more) 5-30-2017 5:47pm (6 replies)
    We feel she needs speech therapy/reading comprehension/writing help, as well as cognitive based therapy for anxiety. Any advice... had her eval'ed for early intervention, cpse, and now cse... they've always turned her away because she didn't have enough of a delay, but now its gotten deeper and she's struggling in school.
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    • Keep pressing and go with your gut. Those issues will just get worse as she gets older - puberty, peer pressure, etc. 5-30-2017 6:08pm
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    • disagree with DOE evals and request IEE. 5-30-2017 7:45pm
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    • I don't think schools ever provide CBT (and schools do NOT dx). What do the DOE evals recommend this time? 5-30-2017 7:54pm
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    • DOE doesn't make any clinical diagnoses. It stinks! 5-31-2017 8:11pm
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    • they sent me an eval they did, but im confused because she had the speech eval done over the summer and just recently finished the rest of the eval, but no diagnoses, which i...(more) 6-1-2017 12:18am
      guess means they believe she's ok. I have a neuropsych eval done privately last year which shows her as having some academic difficulties due to G.A.D more precisely social/performance anxiety and recommending CBT. It also shows within the scores that she struggled with abstract memory recall/recognition and that she learns best when things are concrete and meaningful.... then a separate private speech eval that shows expressive delays especially with inferences, word retrieval... she started doing therapy with that schools program that did the eval... shes also been receiving tutoring at her school with a private learning specialist, for 45 mins x2, mostly with her comprehension and writing. I dont know how much to disclose, or if theyve already set their mind to likely saying no, or if its a "conversation?" How pushy should I be, especially with them denying us everytime in the past, and now she's having issues in school.
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      • Push, it does not get easier. 6-2-2017 7:41pm
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  12. Special Needs I'm in desperate need of advice on the NYU Child Mind institute. I am so fed up and over the entire EI and CPSE process and the darkness we've been living in for the past almost 4...(more) 2-16-2017 1:39pm (10 replies)
    Years. I'm resentful that at first I was told my child was on the spectrum which turned out to not by the case. And I get it, early intervention helps bla bla and I'm grateful for the outcome. My child is a late talker with really sh*tty behaviors that are not getting any better. I've had SEITS from the top agency with BCBAs and they are one worse than the next. Extremely flakey, , constantly cancelling. My child is acting out in school and home with hitting/throwing etc and I'm praying NYU child mind can help me. I'm tired of all the therapists who suck and any time my child does something good, they credit themselves and their therapy. And the 26 year old speech pathologists who went to graduate school for 5 minutes and are saying my kid is on the spectrum after seeing her for 5 seconds. Its called a late bloomer and crappy behaviors. Any feedback on Nyu child mind greatly appreciated. It's truly such a flawed system.
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    • We can't do this now come back later 2-16-2017 1:39pm
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      • this. sticky 2-16-2017 1:41pm
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    • are you talking about NYU or Child Mind? They are separate places. 2-16-2017 1:43pm
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      • The child study center at nyu. 2-16-2017 1:45pm
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        • oh ok, that's not child mind 2-16-2017 1:46pm
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    • I don't have experience with Child Mind but have a lot of sympathy, and I hope you find some answers. It truly sucks when you feel that no one else in the world knows your kid...(more) 2-16-2017 1:43pm
      except you.
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    • It's very very expensive and hit or miss with the therapits 2-16-2017 1:46pm
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    • Take a deep breath - lashing out at therapists and at changing behaviors and diagnoses isn't going to help your child. Child Mind might help you and your child, maybe they won't....(more) 2-16-2017 1:47pm
      You have the right to be angry and frustrated. But don't let your kid learn the externalizing and degrading behaviors and understand that at some point, you and your D.C. need to not explain away his "shitty behaviors." Good luck.
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    • If you think all the therapists are inept, why do you want more? What are you hoping Child Mind can offer than others have not? And what are your dc's behaviors? 2-16-2017 3:45pm
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  13. Special Needs When your DC was in Early Intervention, did you give the therapists Christmas gifts? If so, what/how much? Dd has 2 behaviorists, an SLP, and an ot 11-22-2016 1:11pm (6 replies)
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    • Yes $25 GC 11-22-2016 1:14pm
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      • Thank you. That's what I was thinking. 11-22-2016 1:15pm
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      • No, me too. Therapists I paid privately I did not, however. 11-22-2016 1:25pm
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    • I baked cookies and gave them gift cards of $25-$30. 11-22-2016 6:57pm
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  14. Special Needs Hello! I am new here. 2 year old going on 3 obsessed with opening and closing doors, staring at ceiling fans, obsessed with elevator buttons. I called early intervention for eva...(more) 10-4-2016 12:13pm (18 replies)
    luation. Any advice? What do you suspect?
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    • nothing. That could just be a 2yo 10-4-2016 12:14pm
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    • Get the eval and go from there 10-4-2016 12:14pm
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    • Do you have any other concerns? Delays? 10-4-2016 12:15pm
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    • Any other delays? Speech? 10-4-2016 12:15pm
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    • It's impossible to say, but those are signs of ASD. On the bright side, you are getting evaluated very early. My ds wasn't dx'd until nearly 4 and he's thriving in a mainstream...(more) 10-4-2016 12:16pm
      setting (g&t) thanks to the wonderful therapists we received in early intervention. My best advice is to embrace the label, if there is one, and know that it will only help to get your child the help he needs. It's a tough pill to swallow, but ultimately, I feel like the dx was a huge gift. It taught me how to be a better parent and gave me a roadmap for how to proceed. I wish you the best of luck, whatever the outcome!
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      • Jesus. Calm down. 10-4-2016 12:17pm
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      • It's really amazing that you have come to this place on your journey. OP doesn't even know if she has a journey yet. I know your advice comes from a good place but it might be...(more) 10-4-2016 12:20pm
        a but much for now, just to know for next time
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      • I totally agree. This might be the "worst" outcome but it can be helpful to know ahead of time what the "worst" could look like. My dc was dx'd like this at this age for simil...(more) 10-4-2016 12:42pm
        issues and has been at a ms'd public school (in burbs) forever. Doing great at 10 w/minimal problems thanks to the wonders of massive early intervention. good luck!
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        • np: hearing the extreme I would say here when I posted many years ago kicked my butt into high gear to get evals and services, dc is doing so well years later, mainstreamed, but I...(more) 10-4-2016 9:14pm
          appreciate even responses that made me so afraid at the time, NEVER hurts to check thoroughly.
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    • Absent of other issues? I'm diagnosing you with a 2yo. 10-4-2016 12:16pm
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    • Get it checked out but part of me think fans are fun to look at and elevator buttons are bright 10-4-2016 12:16pm
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    • my grown LD/ ADD ds was like this. a little obsessive, a little rigid. Not autistic, but definitely quirky 10-4-2016 12:21pm
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    • what prompted you to get an eval? you must be suspecting something or it's a fake post 10-4-2016 12:35pm
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      • what prompted the eval is his weight gain is below the curve and the pediatrician recommended an eval 10-5-2016 12:52am
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    • This would not concern me unless it also presented with other concerns or delays. Lots of 2 year olds are obsessed with those things that you mentioned. 10-4-2016 12:38pm
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      • np: obsessed is very different and I assume the OP knows as a mom that it's outside the range of normal 10-4-2016 12:52pm
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    • book a Developmental Pediatrician, are you in NYC area? Jennifer Cross at Cornell 10-4-2016 12:50pm
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    • Calling for an evaluation was good. Try not to worry. If it is something, you will get help. And it is quite possible at this age that it is nothing if no other concerns 10-5-2016 12:56am
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  15. Special Needs So pissed. I work in early intervention and a mom today tells me that her coordinator had said that the ISFP will follow the child and that they would need to "fight" to get...(more) 8-9-2016 1:38pm (15 replies)
    their child declassified? Hello, absolute opposite. I almost felt like calling that person's supervisor stat.
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    • I bet the mom made that shit up. 8-9-2016 1:42pm
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      • Or heard it wrong. She's having trouble with the whole thing. And while I tried to talk with her I could see her kind of glazing over. 8-9-2016 1:43pm
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        • I guess. I just always feel like this is what people WANT to be the truth in order to avoid getting help. 8-9-2016 1:44pm
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          • I guess. She is however availing herself of the services but I feel it's a bit precarious. 8-9-2016 1:44pm
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            • well, it's good that she is using the services. But sounds like she's angling for an "out". I really doubt her coordinator said that. 8-9-2016 1:45pm
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              • Okay you are probably right. But I *do* think it's what she heard or believes. 8-9-2016 1:46pm
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                • I'm sure she wants to believe that her kid is "fine" and "doesn't need EI" but the "system wants to keep him there" 8-9-2016 1:47pm
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                  • or: exactly. this is what the new SN parents often say. Their fear of entering the system because their child with be "labeled" and it will be "on their record" 8-9-2016 1:49pm
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                    • Isn't it true though that a child that goes through CPSE/SN who would be fine at a mainstream school will unlikely be accepted at a top private school for kindergarten? That is...(more) 8-9-2016 2:55pm
                      why there is a hesitance to pigeonhole a child without knowing whether the child can manage at a mainstream school with services outside of school.
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                      • If the child has needs that make a top private school unlikely because the school could not support the child, the label is not going to matter one bit. 8-9-2016 2:58pm
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                        • The question then is whether the child has special needs. This may be difficult to assess at under age 3, or at least may not be so definitive at that young age. Hence, the...(more) 8-9-2016 3:17pm
                          hesitation.
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                          • Oh, of course I understand the hesitation. I felt it myself as a parent when we first called EI. That's why I could tell where OP's acquaintance was coming from. It's a very...(more) 8-9-2016 3:29pm
                            common anxiety. But that doesn't mean that it's reality or that these fears trump giving your child the help they need when they need it for fear of labeling them so that they're palatable to super picky private schools that might not be interested several years down the line.
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                            • Of course if the child needs services, the services should be obtained. But parents understanably want too keep all options available unless and until it is necessary to...(more) 8-9-2016 3:48pm
                              foreclose one.
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                        • If a child needs a SN/CPSE preschool then TT kindergarten should be pushed down the list of concerns. WAY down. The city would prefer NOT to give services, not the reverse. 8-9-2016 4:15pm
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        • np: literally what I started posting - I'm sure that's not what the coordinator said. Parents don't have all the lingo and they run it through the parent filter with wishful...(more) 8-9-2016 1:45pm
          thinking and "but my friend told me..."
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  16. Special Needs I am reposting from Toddler, from yesterday -- i take my young dc to a facility for physical therapy, and that's made a huge difference, good progress. Dh and I feel very lucky....(more) 7-21-2016 3:01pm (7 replies)
    Around when we started Early intervention services at this facility another dc around the same age began too. This child is not seeming to get better and I believe has a genetic condition which causes profound developmental challenges, and could prevent the child from walking and independent living. I SAH and believe the other child's mom works FT and have only seen this mom once while she was consulting with her therapist and I was talking with mine - I see the nanny a few times a month and we make friendly small talk. Giving full story because I have wondered if I could send a note with the nanny to try and arrange a weekend playdate or something because I have thought the mom of the other child might be isolated. I have found the experience pretty isolating though I have made one friend through the process. Any feedback about how to or not to reach out appreciated. I am not sure how our children woudl interact on a playdate but my dc seems to like hers. Thanks for your adv
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    • does the child share a therapist with yours? maybe worth asking your therapist to speak to the other one, would be better coming froma professional 7-21-2016 3:02pm
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      • actually yes they do share at times - that never occurred to me, thanks! 7-21-2016 3:03pm
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    • op again - dh thinks a playdate wouldn't go well and that i shouldn't try to set one up (more inside)...(more) 7-21-2016 9:49pm
      for those who know - if one child is not verbal or moving independently, both children are under 3, is it a bad idea to suggest a playdate?
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      • I told you last night that you were overthinking it and your dh is too. :) It's never a bad idea to suggest a playdate. It's not a PITY play date. The kids like one another....(more) 7-21-2016 9:58pm
        Someone can facilitate. Right?
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        • yes - more inside if you don't mind reading...(more) 7-21-2016 10:13pm
          i think my child likes the other child but can't get a read otherwise, but i'm going to snd a note or talk to her therapist next week. i want to at least try but not impose.
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          • How would it possibly be an imposition? The other child is a child - not a patient, not a sad sorry. Just a kid! Just keep thinking about it that way. 7-21-2016 10:28pm
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  17. Special Needs Not sure what to do about this... dc speech is not fluid, semantics are not always correct. He is 8, had early intervention with speech therapy and therapist said no need to...(more) 2-15-2016 10:38pm (3 replies)
    continue years ago (and I checked in in the fall). What could this be? He was adopted at nearly a year old from a foreign country, but I don't think that's the issue. Any thoughts on what we can do? What might be going on? tia
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    • Please get another independent assessment. 2-15-2016 11:18pm
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      • Has he had a broader assessment like a neuropsych? 2-16-2016 11:44am
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    • a friend went through this with adopted dc. finally diagnosed auditory processing disorder 2-16-2016 9:08am
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  18. Special Needs Need Speech Therapist recommendations for a 2 year old, possibly ASD, possibly apraxic in the city near the UWS. PROMPT certified and/or TALK tools preferred. Doesn't have to be...(more) 1-25-2016 9:48pm (4 replies)
    Through EArly Intervention but that would be good too. Tia!!!
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    • Jackie Dolson 1-25-2016 9:52pm
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    • Hah. My ds was "maybe ASD, maybe dyspraxic" for the longest time. Don't worry about the label, just treat the symptoms until he's old enough for the underlying issue to be...(more) 1-26-2016 7:31am
      clearer. PROMPT is awesome. GL.
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      • Jackie Dolson, Julie Silverberg or Trish--they are all prompt CERTIFIEd--highest level of certication for PROMPT and very experienced. They work out of the same office. My child...(more) 1-26-2016 3:25pm
        had severe apraxia and they gave him the gift of speech. He still sees Jackie for expressive language. They are the best of the best and I saw a bunch of crappy slps who touted they were apraxia experts!
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    • Not sure where you are, but if it is geographically an option for you, look into Stepping Stone for CPSE preschool. They have fantastic programs for kids on this profile. 1-26-2016 4:48pm
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  19. Special Needs My sister seems to be in denial about her 4 yo's developmental delays (I have one SN kid with very different stuff). Everyone in the family, neighbors, friends really encourage...(more) 1-5-2016 9:35am (25 replies)
    her to do evals and get some intervention, but she is really stubbornly saying his preschool teacher says "he is improving," that he is getting "so much better" (of course, with age). Cognitively he has skills, but he acts like an early 3 year old (perseveration, use of language, emotional and social delays). Even being very open with her about my own struggles with my SN kid and having to take a deep breath and hear things aI don't want to hear seems not to move her from her "everything is okay, he's just a little immature" stance. Should I say something directly, just once, or just keep it zipped?
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    • I would be direct with her. 1-5-2016 9:36am
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      • This is your niece, I wouldn't keep it zipped. What are your sister's concerns? 1-5-2016 9:38am
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        • Doesn't sound like the sister has any. Sounds like op has them. Stay. Out. Of. It. 1-5-2016 9:39am
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          • op: She says she can't handle him, and doesn't know how to parent him. She has a lot of paid help, but says she can't handle him alone. It's more the feedback from everyone...(more) 1-5-2016 9:41am
            else--like, even random other parents who say something like, "don't worry, my kid has special needs too, it gets better!" etc., but more so, absolutely everyone else in the family--notice that the gap is growing larger.
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            • Have you talked to her yet? What did she say? 1-5-2016 9:42am
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              • Broached it lightly, in the context of our own struggles/path. 1-5-2016 9:44am
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    • I think you want an issue here. Maybe he is late to mature. You don't know. Stay out of it. 1-5-2016 9:37am
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    • I think you can be direct. And tell her that the thing you regret most is waiting as long as you did to evaluate because you lost time. (Obvs if this is not true, don't say it,...(more) 1-5-2016 9:37am
      but I've never met an SN parent who didn't feel this way.)
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      • Thank you for your last parenthetical--because yes, I DO feel that way!! 1-5-2016 9:39am
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        • I think thats part of what you're reacting to here. That impulse to get it right, to prevent someone else from making the mistake we made. Maybe personalizing it that way might...(more) 1-5-2016 9:40am
          help?
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    • I find that family won't let you be vague 1-5-2016 9:38am
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      • Yes. And there are posters here who said that their family members had worries they didn't share and they were very upset when they found out later. 1-5-2016 9:38am
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        • I disagree. Let her sister parent. Can't fathom doing this. 1-5-2016 9:39am
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          • I can fathom it and so can a lot of other SN parents. I am VERY grateful to the people who helped me realize my child was delayed. 1-5-2016 9:40am
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            • Ok. Well it sounds like op has talked to her sister. At some point you have to back off and not go on a crusade. It's inappropriate. 1-5-2016 9:41am
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            • np but I was always on top of it but not sharing much and a lot of relationshis were daaged because people crossed boundaries 1-5-2016 9:41am
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              • I wasn't on top of it and didn't even know what EI was. If peolle hadn't clued me in, I would have listened to my idiot pediatrician even longer. I understand not wanting OP to...(more) 1-5-2016 9:43am
                lean on her sister but I think OP can share online sources with developmental milestones and red flags, for example.
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                • ok but if her sister never speaks to her again she need to accept that too 1-5-2016 9:47am
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                  • op: Honestly, I have to say that anyone who would "never speak to someone again" for having one honest conversation about concerns over the kid, is really extreme. 1-5-2016 9:48am
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                    • when it comes to my extreme situation I am extreme 1-5-2016 9:50am
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    • Zip it. 1-5-2016 9:38am
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    • A lot of pediatricians and preschool teachers do the "he's just a little immature" thing, and it can be confusing to parents. BTDT, my youngest-in-grade Aspie was originally told...(more) 1-5-2016 9:38am
      to us to simply be a bit immature, not dxed until mid-2nd grade. Upside is, if it's mild enough to be confused with immaturity he will be OK starting interventions a bit later, when things are clearer.
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      • Exactly. And some kids are late. 1-5-2016 9:38am
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    • 4yo acting like a 3yo is well within the normal range. 1-5-2016 9:41am
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    • Are the ds's teachers concerned? If they are, that can really be the tipping point. 1-5-2016 9:42am
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  20. Special Needs I posted before, my db has qualified for Early Intervention. The kickoff meeting will be soon. I did what I had to do to get help, I SAH and don't know how to 'make' my db...(more) 10-26-2015 11:26am (23 replies)
    develop well. I stepped up but now (baby sleeps) I can't stop crying. It may not even be a big deal but it's like a DF said to me, DB will be fine, just maybe not an Olympian. But I am not ready to give up the dream that DB can be anything. It is so painful, especially I think being SAH with first DB and living in an area extremely baby/kid focused where it seems every DC hits every milestone, and early. Thanks for reading.
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    • Aw honey, you need to stop thinking 20 years ahead. You have no idea (nor do any of us, even nuero tip moms) what will be. Take a breath and proceed one step at a time, just...(more) 10-26-2015 11:28am
      like you have been doing
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    • What were the findings in the evaluation? What does db qualify for? Waaaaaay too early to draw any conclusions about what db will be able to do in the long term. 10-26-2015 11:28am
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      • motor skill PT help, waiting for report. db is less than 1year. it IS early. when DF made the Olympics comparison it just hit me so hard. i don't WANT to draw conclusions...(more) 10-26-2015 11:31am
        about the future. I want to have innocence for me, for DB, for longer, and to be positive but am having a hard time TBH.
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        • OK, but she has NO IDEA what your child's issues are. news flash, her child won't be an olympian. Yours is geting the help he or she needs....that's the idea of early...(more) 10-26-2015 11:33am
          intervwntion. You haven't said what the issue is beyond needing PT, it's very possible that in a year or two you will be done and this will all be in your past and in 6 years your kid will be scoring goals on her kid. people say dumb stuff all the time. filter the noise. move on.
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          • i am just at the beginning of this and have NO idea of how to filter out the noise! it is good advice though 10-26-2015 11:34am
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            • np- Anyone who offers an opinion on what you child will not be able to do, unless they are an expert in that field should be filtered out 10-26-2015 11:36am
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        • OK - but you can unclench a bit too. Saying your kid won't be an Olympian applies to 99.9% of the population, not just kids getting EI. A reality check isn't a bad thing. 10-26-2015 11:37am
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          • Amen 10-26-2015 11:39am
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          • I listed it as an example of something someone said to me yesterday. Why even bother, seriously. 10-26-2015 11:42am
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    • i say this respectfully....early intervention is not a death sentence. Your child can still be anything. stop thinking about giving up, start thinking about how you can...(more) 10-26-2015 11:30am
      contribute to the help. the therapitst will give you ideas
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    • First, you can't make your db develop. Second, you are absolutely doing the right thing here! Early intervention is key on so many levels. The therapists will be able to give...(more) 10-26-2015 11:30am
      you a road map and will probably empower you with ways you can actively help your child. It can be so rough in the beginning, but remember that it's all about db and not about you, or what you had expected. You'll be so amazed by the progress you will see. Hang in there and (((hugs)))
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    • Take some deep breaths. This was me with my 2 yo, when we qualified for E.I. He is now turning 4 and has made HUGE strides. Therapies are wonderful, and can really help. And...(more) 10-26-2015 11:32am
      don't always think an evaluation is an "accurate" picture of your child. Often evaluators think they are "helping" by marking your child down as having more pervasive issues so you actually get EI.
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      • ^^but it is ok to grieve for a little while for having to "deal" with things your friends/peers don't need to deal with. . . but don't wallow in it. Get your therapists to help...(more) 10-26-2015 11:35am
        you and show you what to do at home. Once you start to see progress, you will get excited about what can be accomplished.
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        • thank you so much. i am on tenterhooks until meeting b/c i have to wait another 10 days. i am so eager to begin with help for db. 10-26-2015 11:36am
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          • Good luck - DS gets OT, PT, Speech and SEIT. I'm so proud of the progress he has made. Still delayed, but is closing the gap. Remember, you probably have it better than MANY...(more) 10-26-2015 11:39am
            other people out there. Find a way to be thankful that you are getting help this early since many people (like me) don't get it until kids are a bit older. Starting this young your DC can make huge strides.
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        • THIS. My ds started EI services at a year old, and the progress has been truly remarkable. He's 6 now. 10-26-2015 11:41am
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    • np: My ds has been in OT since age 3, and was diagnosed with developmental coordination disorder at 7. He is now a blue belt in Shotokan karate and the star of his grade's...(more) 10-26-2015 11:36am
      ballroom dance program in 5th grade. Interventions work.
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      • A little off topic but my dds are mad that they don't get to go to OT like some of their friends. They even figured out that many who go are twins. "They get to be a twin AND go...(more) 10-26-2015 11:38am
        to a fun class"
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        • LOL. Ds' OT sometimes does push-ins that include the class-like they'll all get to try the yoga that he does to help with sensory integration. 10-26-2015 11:39am
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          • They do that too. So now sometimes dd's will "play OT" and instruct each other in exercises. 10-26-2015 11:41am
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    • Lake Wobegon syndrome (where every child is above average) is everywhere. Ignore. No one knows how their child will turn out. 10-26-2015 12:11pm
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    • Another thing to remember -- whatever limitations or challenges your DB faces (and as others have mentioned, you really can't have any idea at this point how serious they will...(more) 10-26-2015 4:34pm
      be) will end up being an intrinsic part of who he is. For example, having a host of motor planning difficulties has made my 3-year-old a much less physical child than average. Which might seem like a purely bad thing, but I think it played a major role in him becoming an extremely observant child who would rather sit and look at a book and talk with me for an hour than run on the playground. Not saying one is better than the other, just trying to point out that his deficits have contributed to his personality, and because I love his personality, it makes the difficulties feel less dire. I wouldn't choose for him to have these challenges, of course, but everyone has their challenges, KWIM?
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      • This. My ds has crazy sensory stuff, and it has made him the creatively-inclined, sunshiny kid he is. 10-26-2015 5:35pm
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  21. Special Needs PSA: For parents who are going through the evaluation process for Early Intervention (EI) -- there is an amazing center-based program affiliated with Mt. Sinai. My son is aging...(more) 9-1-2015 10:04am (0 replies)
    out and the teachers there have been so wonderful and supportive. My son has made great gains there and the opportunities for socialization have been wonderful. Many service coordinators are unaware that the program exists so you really need to advocate for the program at your IFSP meeting. If you are interested, the program is called the Mt. Sinai Therapeutic Nursery and the director there is Dr. Mona Dreier (212-241-6878). You can call her and set up a tour/screening to see if the program would be appropriate for your child.
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  22. Special Needs Update: I posted a few months ago about my 7-8 month old dd being low tone and not bearing weight. Pediatrician wanted us to take her to a neurologist to rule out stuff but we...(more) 8-4-2015 11:11am (7 replies)
    decided to do physical therapy and wait. Well after 6 months of physical therapy, she just started walking at 14 months! (13 corrected). Therapist thinks she is doing so well all around she is being dismissed from Early Intervention!
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    • Yay! 8-4-2015 11:11am
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    • yay!! Congrats!!! 8-4-2015 11:12am
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    • Wonderful. 8-4-2015 11:13am
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    • Congrats, but stay watchful. (Mine with low tone/muscle weakness walked at 16 mos. with a ton of PT, but it didn't mean there was nothing there. He's 6 now and eventually...(more) 8-4-2015 11:13am
      determined to have mild cp.)
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    • is speech and fine motor all typical? make sure before they discharge, that is great news! my low tone db walked 13.5mo but qualified for speech at 18mo with only a few words,...(more) 8-4-2015 12:10pm
      OT shortly after, all worked out beautifully in the long run but make db is hitting milestones all around.
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      • This--why the rush to discharge? You're not quite old enough to assess OT or speech issues that commonly come with low muscle tone issues. 8-4-2015 1:14pm
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        • I'm not rushing to discharge. It was time for the 6 month evaluation and to recommend continued services if needed. The PT really feels she no longer needs PT, and I have to...(more) 8-4-2015 3:56pm
          agree. She is meeting all of her developmental milestones now. Fine motor is good, she babbles blow raspberries and makes a lot of speech sounds. No sensory stuff and she is very engaging. If she falls behind in something we can always call again and re-evaluate, but at this time we don't see anything.
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  23. Special Needs PSA: Sarah Birnbaum on aging out of EI...(more) 2-3-2015 10:56am (0 replies)
    Hi everyone, Parents of kids turning 3 this year are thinking hard about aging out of Early Intervention: What's the next step? Should we continue with therapies? What's the right kind of preschool setting? If we decide to transition to CPSE, what happens at the initial IEP meeting, and what's the best way to advocate for our child? I will be giving a talk covering these and other important topics on Tuesday, February 24, from 6:30-8:30pm. As always, the presentation will be free of charge. Information is below and on the attached flier. Life After EI: What's Next? Date: Tuesday, February 24, 6:30-8:30pm Location: The SMILE Center 171 Madison Avenue, 5th Floor RSVP: info@smileny.org "Thank you for the excellent presentation. It was truly informative, yet concise and clear, and it made a difference for many families." --Parent Feedback, Fall 2013 Seminar If you know anyone with a child in EI, please let them k
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  24. Special Needs Early Intervention New Jersey...(more) 12-3-2014 5:01pm (7 replies)
    Moving to Mercer County New Jersey and would like EI therapist referrals for PT, OT, SI and speech. What is the best agency to go through?
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    • Its not like NYC. You call EI and they assign you. There is a cost share. 12-3-2014 5:06pm
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      • - no subject -...(more) 12-3-2014 6:27pm
        I understand that there is a cost share and it is not like manhattan. That was not my question.
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        • As I stated, I it's not like ny. You can't choose the agency. You call, you get assigned. You can switch therapists but not agency's. Have a nice night + gl 12-3-2014 6:39pm
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          • ^in other words there is no such thing as a good or bad agency bc of the lack of choice. 12-3-2014 6:46pm
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            • First call and once you are assigned to an agency you can ask for therapists in that agency but local knowledge will be key, not many nj posters on here. 12-3-2014 6:49pm
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            • np: in nj, for each town, their is a primary, secondary, and tertiary agency. once your dc has an ifsp, his case goes out over the broadcast and the primary agency has the first...(more) 12-3-2014 8:24pm
              right of refusal, then second, then third. if you "want" the secondary agency but the primary agency agrees to take the case, there is nothing you can do.
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        • My kids were assigned classic rehab. I have names if you have classic but classic does a few counties and I know only our DI was willing to drive. My others only worked a 1/2...(more) 12-3-2014 7:14pm
          Drive.
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  25. Special Needs Early Intervention...(more) 11-1-2014 10:15am (7 replies)
    My son who just turned 2 is receiving speech, OT and PT through Early Intervention. Recently an EI psychologist also recommended a SEIT who would come to the nursery school for an hour a week and help my son engage with the other kids (he has a dx of significant social delays). The school is iffy about having another adult teacher thrown into the mix; they also seem to be gently encouraging my kid to interact and doing a nice job of building his trust. Should I push the SEIT?
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    • Yes. 11-1-2014 10:16am
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    • yes, you should. their staff is concentrating on all the kids. you need the adult who is focused on yours. 11-1-2014 10:16am
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    • Yes 11-1-2014 10:18am
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    • IME (which may be very different from yours, b/c my 2yo ds had an ASD dx), we got approval for a SEIT and his SN preschool was also not happy about it. They kept giving her other...(more) 11-1-2014 10:21am
      stuff to do when they determined that ds didn't really need someone to constantly refocus and redirect him all day. But we were doing a lot of ABA and they wanted to track things, like, how many words ds said all day (not so hard when the dc only says, maybe, 3 words all day!). So we kept the SEIT until the next IEP (or was it IFSP back then?) meeting. It was most helpful for all the tracking stuff that the ABA therapists wanted.
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    • School should be used this this. 11-1-2014 10:27am
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    • OMG, yes, yes, yes! It could do wonders for your ds. Any school not used to this isn't a very good school. Or, more likely, the school is "nervous" about having a SEIT in the room...(more) 11-1-2014 11:21am
      because they are worried other parents will think they take children with SNs.
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    • If it's done well, the other parents will have no idea who the SEIT is there for. My DS had one in his preschool before I switched him and none of the other parents knew....(more) 11-2-2014 8:10pm
      However, his school requested that someone come because he needed so much one on one attention.
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