Special Needs

  1. Special Needs This post has been deleted. 20 min ago (1 reply)
    permalink | log in or sign up to post a comment
    • I agree. The traffic girl onnNBC does this 20 min ago
      log in or sign up to post a comment
  2. Special Needs Has anyone done the genesight test to see which medication is best for someone? thinking of getting one for ds, but do you think it really works? 37 min ago (5 replies)
    permalink | log in or sign up to post a comment
    • It doesn’t tell you what medication works best. It tells you how you metabolize the medications. It can be useful when something isn’t working to see someone is a rapid...(more) 35 min ago
      metabolized and then you can feel confident pushing the doses up. But it really doesn’t tell you “this will work!” Who is recommending it?
      log in or sign up to post a comment
      • someone here 26 min ago
        log in or sign up to post a comment
        • so it's not that helpful then? 26 min ago
          log in or sign up to post a comment
          • There are rare instances when it’s helpful. Ask your kid’s psychiatrist. Not your kid’s psych NP. A real psychiatristZ 5 min ago
            log in or sign up to post a comment
            • the real one suggested a brain scan 13 sec ago
              log in or sign up to post a comment
  3. Special Needs I know this is a question for my lawyer but has anyone switched their dc from a non funded school to a funded school and still get tuition reimbursement. Thinking about switching...(more) 1 hr 24 min ago (0 replies)
    ds and but I'm not sure if it would be possible without it.
    permalink | log in or sign up to post a comment
  4. Special Needs Do any of your anxiety/adhd kids use an app to calm down? I think this could work for 12 yo ds but not sure which one. He's getting better at separating himself, going to his room...(more) 1 hr 54 min ago (6 replies)
    etc. Of course, it's another electronic thing for him.. but could be positive.
    permalink | log in or sign up to post a comment
    • I don't see screen time as postiive for my anxious adhd kid at all. sure he seems calm WHILE using it but the separation is awful - there's a rebound like thing. he goes to his...(more) 1 hr 52 min ago
      room and reads and that's the best
      log in or sign up to post a comment
    • You do realize that screens actually trigger anxiety and executive function responses in the brain? 1 hr 50 min ago
      log in or sign up to post a comment
      • Np. I think she's talking about guided meditation/mindfulness apps, while it's an electronic device, it's not exactly screen time. 1 hr 38 min ago
        log in or sign up to post a comment
    • Headspace, calm are both good. I’m using 10% happier and depending on his personality, it might be great. It has a little lesson before each meditation. 1 hr 50 min ago
      log in or sign up to post a comment
      • thanks I will try these. 1 hr 36 min ago
        log in or sign up to post a comment
      • Headspace has been great for my ASD child. It has also helped with sleep 1 hr 28 min ago
        log in or sign up to post a comment
  5. Special Needs Total brag ... 16 yo ds with ADHD who is a nightmare in the morning got up today at 645. He was downstairs at 7, walked the dog and then ate breakfast and was ready to leave at...(more) 1 hr 57 min ago (4 replies)
    725. Key was showering at night and fully packing his backpack the night before. Basic stuff but he often doesn't do it. Just amazing. Best school morning I've had all school year.
    permalink | log in or sign up to post a comment
    • YAY 1 hr 56 min ago
      log in or sign up to post a comment
    • excellent! 1 hr 51 min ago
      log in or sign up to post a comment
    • That's great! We're those the only changes? Is he on meds too? My ds showers at night and packs his bag - but still has trouble waking up. 1 hr 49 min ago
      log in or sign up to post a comment
      • Yes he's on meds and it could be a one-time thing but it was awesome. Separately, he is taking a psychology class and has a month-long project where he is supposed to change a...(more) 56 min ago
        behavior using incentives. His goal is to get 8 hours sleep a night with a frappe as a weekly reward. I told him he should make his goal to get out the door in 30 minutes so he can sleep in!
        log in or sign up to post a comment
  6. Special Needs Cross your fingers that ds does well at school today - first day on new meds. 2 hr 9 min ago (5 replies)
    permalink | log in or sign up to post a comment
    • Good luck! Which med? 2 hr 9 min ago
      log in or sign up to post a comment
      • he's been on strattera. we're now adding adderall. hasn't tolerated stimulants before but strattera not doing enough for attention at school for engagement with work 2 hr 8 min ago
        log in or sign up to post a comment
    • ^op: I feel so nervous about it, probably b/c I'm hopeful... 2 hr 8 min ago
      log in or sign up to post a comment
    • Fingers crossed! 🤞 2 hr 8 min ago
      log in or sign up to post a comment
  7. Special Needs Anybody have experience with residential treatment for psychiatric disorder in teens? Not therapeutic boarding school, but diagnosis and treatment? 13yo DD on second...(more) 2 hr 12 min ago (13 replies)
    hospitalization for self-harm and suicidal ideation. But these hospitalizations are just for stabilization, not for diagnosis or treatment of underlying issue. Live in NYC but I think we'll need to travel outside metro area. TIA
    permalink | log in or sign up to post a comment
    • Maclain, Belmont, MA 2 hr 11 min ago
      log in or sign up to post a comment
      • OP: Thank you! Not getting much direction from the hospital DD is in now. Think we may need to hire a consultant to help explore options. 2 hr 8 min ago
        log in or sign up to post a comment
        • are you working with your ped? 2 hr 8 min ago
          log in or sign up to post a comment
          • OP: See below. Ped retired and the new one is not very easy to relate to. 2 hr 7 min ago
            log in or sign up to post a comment
            • but they might have recommendation for the best place to take her. i wouldnt worry about personality right now. just see what they say about next steps 2 hr 6 min ago
              log in or sign up to post a comment
              • OP: I'll give the office a call. We've only seen her once, so I'm sure she has no idea who my kid is. But hopefully she can give us some guidance. 2 hr 5 min ago
                log in or sign up to post a comment
    • Westchester Medical Center has one. It’s very well known. Let me see find specific info for you. 2 hr 9 min ago
      log in or sign up to post a comment
    • your pediatrician should have a list 2 hr 9 min ago
      log in or sign up to post a comment
      • OP: Our pediatrician retired last summer and I don't care for the one who took her place (it's a group practice). 2 hr 8 min ago
        log in or sign up to post a comment
        • we have one ped in our group who handles the psych care for kids who need it, she works with our therapist as a team, really makes a difference. we all discuss med dosing etc 2 hr 7 min ago
          log in or sign up to post a comment
    • Here’s the one in westchester...(more) 2 hr 6 min ago
      • OP: Thank you! 2 hr 5 min ago
        log in or sign up to post a comment
    • sheppherd pratt in baltimore, one of the best in the country 1 hr 58 min ago
      log in or sign up to post a comment
  8. Special Needs Can you share your experiences with seeking reimbursement for a unilateral placement in NJ? just starting the process. TIA! 3 hr 35 min ago (3 replies)
    permalink | log in or sign up to post a comment
    • Get them retarded churn out of there 3 hr 33 min ago
      log in or sign up to post a comment
    • partial reimbursement in CT. they would pay the full ticket to a day school. We insisted on residential. We basically [ay the residential component. 3 hr 26 min ago
      log in or sign up to post a comment
      • we are doing residential too. can I ask what your child's issues are? 3 hr 22 min ago
        log in or sign up to post a comment
  9. Special Needs Has anyone tried cod oil for their anxious teen? almost 15 y/o ds has not had success with meds and his anxiety is completely interfering with his life. His doc is not a fan of...(more) 3 hr 45 min ago (11 replies)
    the blood work and dna testing but curious if anyone has had success with that either. I feel like we have tried every class of drug at this point anyway. any BTDT?
    permalink | log in or sign up to post a comment
    • he has been to a real CBT therapist and been fully evaluated? what is his diagnosis 3 hr 44 min ago
      log in or sign up to post a comment
      • yes, he is in CBT but he is sort of like groundhogs day. He takes it in and the next day it is like he never had the conversation - nothing really sticks. He is very motivated...(more) 3 hr 42 min ago
        and eager but is starting to get very down on himself. Lots of LDs, processing, motor planning...
        log in or sign up to post a comment
        • i would do tons of research bc idk if those oils have been studied enough, developing brains are affected in different ways by different substances. and i am not being cavalier,...(more) 3 hr 39 min ago
          my dd is on a medication for issues she is suffering from
          log in or sign up to post a comment
          • I know - I agree. I would only do it if the doc prescribes and it is medical grade. He has the double MTHFR mutation and takes prescription deplane -- I won't even fool around...(more) 3 hr 38 min ago
            with that.
            log in or sign up to post a comment
            • sorry, this is so brutal! just want to make sure they can get the most out of life that they want. my dd is similar, not sure she sees the benefits of her therapies but she still...(more) 3 hr 35 min ago
              agrees to go, as she matures she might appreciate it more
              log in or sign up to post a comment
    • Try CBD oil, it's worked wonders for ds. 3 hr 39 min ago
      log in or sign up to post a comment
      • really? that's so great to hear. do you have a script or you buy OTC? Did a doc prescribe? 3 hr 39 min ago
        log in or sign up to post a comment
        • No Rx needed, it's considered a supplement. 3 hr 37 min ago
          log in or sign up to post a comment
          • I know, just wondered if you worked with a doc to start it. 3 hr 37 min ago
            log in or sign up to post a comment
            • I didn't. I stubbled on the info because I was at the end of my rope. 3 hr 33 min ago
              log in or sign up to post a comment
          • Do a search on it, you'll find amazing stories about it. Just try it. My friend thanked me for telling her about it, it got her dd's epilepsy to almost entirely disappear. And...(more) 3 hr 34 min ago
            works way better than meds for my ds anxiety.
            log in or sign up to post a comment
  10. Special Needs I am incredibly depressed and lonely. Dh just got up and walked away when I sat down and started complaining again. I have no friends and I fought with my teen daughter so now...(more) 17 hr 58 min ago (11 replies)
    she is mad at me too.
    permalink | log in or sign up to post a comment
    • meds! 17 hr 58 min ago
      log in or sign up to post a comment
    • Can you get something going just for you? Job, hobby, new good habit? 17 hr 57 min ago
      log in or sign up to post a comment
      • I work full time and cook and clean though I do have help. Right now all my time is spent trying to help my ds pass his classes let alone do ok, and dd is also doing badly in...(more) 17 hr 54 min ago
        achool all of a sudden and is on meds for depression and afraid to tell me she’s gay which I already know, and other dd also has so much going on.
        log in or sign up to post a comment
    • Basically someone else just won a contest dc was desperate to win. It sounds stupid and whiney I know. But I feel like I have only lost in life. Everywhere I turn lose lose l....(more) 17 hr 56 min ago
      Lose. Dc can’t remember to hand in hw and can’t tie shoes and is a mess despite coming across as pretty much ok. We are drowning and his future doesn’t look so great and everyone is looking st college and I don’t know how he will hold down a job or support himself.
      log in or sign up to post a comment
      • that is very hard. honestly get on meds. it will help! 17 hr 54 min ago
        log in or sign up to post a comment
        • Have tried so many meds in my life. Now I’m just old and bitter and enraged all the time. I know I am horrible to be around for my family and I feel like it is so justified. 17 hr 53 min ago
          log in or sign up to post a comment
    • I felt like I hadn't handled a conversation with my dd well this week and was so sad too--I felt like she wasn't going to share things with me anymore, felt like I had given her...(more) 17 hr 45 min ago
      bad advice, felt like I had somehow compromised our good relationship. I felt just like you do, and felt like I was horribly depressed and my whole life was irretrievably messed up. Well I talked to DD, apologized, straightened things out. I think you will feel better when you get over this little tiff with your DD. When you feel this shitty, try to understand what has gotten you down right then and there
      log in or sign up to post a comment
      • I am down because I dc worked so desperately hard for 2.5 years and I thought had a good chance of winning something even if not a top prize and it would be a small affirmation...(more) 17 hr 40 min ago
        that he can do well if passionate about something and works hard but then others came who are almost three years younger and just started in this area an won the top national prize and once again I lost my dc lost and someone else won.
        log in or sign up to post a comment
        • I am so sorry. It's hard when you start measuring your kid against others. It's best not to 17 hr 28 min ago
          log in or sign up to post a comment
          • Thanks. Dh gets this but I can’t. 16 hr 58 min ago
            log in or sign up to post a comment
    • Teens are hard it feels like you lose them. 17 hr 15 min ago
      log in or sign up to post a comment
  11. Special Needs I need to vent. Being a special needs mom sucks!!! We could not do anything this long weekend because my 12 year old ASD ADHD all around pain decided to act like a brat and ensure...(more) 22 hr 4 min ago (3 replies)
    everyone was miserable. I love the kid, but seeing my friends have fun with their kids, and us staying home and not being invited to anything because my son is too much to handle hurts. This is so NOT what su thought motherhood would be. Life can be joyful, but this weekend is f@&$ miserable.
    permalink | log in or sign up to post a comment
    • I'm sorry. Can you leave him home alone yet? 21 hr 56 min ago
      log in or sign up to post a comment
      • I have, but no more than 30 min. 20 hr 18 min ago
        log in or sign up to post a comment
    • I’m sorry 17 hr 49 min ago
      log in or sign up to post a comment
  12. Special Needs Ds tried Ritalin and it was a disaster. just tried Adderall and it seems good. anyone else have this experience? [in both cases is a time release generic version] 2-18-2019 11:22am (0 replies)
    permalink | log in or sign up to post a comment
  13. Special Needs Need advice son is a junior autistic spectrum trying to figure out which would be better taking SAT or ACT? Thinking of him just going to community college but I know if he takes...(more) 2-18-2019 6:20am (8 replies)
    ACT maybe he might get a scholarship to Local college. My son is already stressing over the pressure to take 2 tests.
    permalink | log in or sign up to post a comment
    • I’m not sure how to answer this because 1. I’m a college professor. 2. Have had students who were definitely on the spectrum. 3. Have a child on the spectrum. So here it goes:...(more) 2-18-2019 6:30am
      have him take one, but with the understanding that there is no rush. Personally, I think most college freshman should have had a year in between to mature a little. I also think community college is great to get gen ed credits out of the way and get used to college. It’s also a hell of a lot cheaper scholarship or not
      log in or sign up to post a comment
      • Ditto. Also prof wth spectrum students and kid. 2-18-2019 9:42am
        log in or sign up to post a comment
    • If gets extra time dontye act. Content easier but time...(more) 2-18-2019 7:33am
      Pressured. So, if can take away time pressure will be easier
      log in or sign up to post a comment
      • My son does get time and a half for sat or act test 2-18-2019 9:08am
        log in or sign up to post a comment
    • You can also look at test-optional schools. 2-18-2019 7:46am
      log in or sign up to post a comment
    • Would he be open to taking a practice test and seeing if one feels better than the other? 2-18-2019 8:30am
      log in or sign up to post a comment
      • I didn't think of that. It can't hurt to at least ask him. 2-18-2019 9:07am
        log in or sign up to post a comment
    • Probably the best thing to do is to take practice tests of both before he decides. However, does he have time and a half for both? For the ACT, you actually have to register...(more) 2-18-2019 11:26am
      before they will let you know if he is given the accommodation. The ACT is more flexible so some students might get 50% extended time but a smaller number could get 50% extended time over multiple days. In which case, if he qualifies for that accommodation, it might be the better test for him.
      log in or sign up to post a comment
  14. Special Needs How do I help my DS with dyslexia on reading/writing. Applies to SN schools but has felt like trying to win the lottery with his profile. He is medicated but comes across as...(more) 2-17-2019 8:21am (22 replies)
    Either anxious and/or highly distractable during the admissions visits/assessments even though he is generally fine (thanks to meds) I’m familiar settings like school. He is 8. I will re apply again, revisit OT and look into OT. But in the meantime - do I hire an OG tutor for several hours a week (he already has a tutor 2x a week for 1 hour each), send him to Lindamood Bell for the summer, Windward summer school? Would appreciate hearing what has worked the best to close the reading/writing gap for others in the absence of a SN school. TIA.
    permalink | log in or sign up to post a comment
    • ^^ look into CBT 2-17-2019 8:23am
      log in or sign up to post a comment
    • We went to a learning specialist that really helped define what we need to do to support him. some is OG, some is extra support in class (which school already gave), but because...(more) 2-17-2019 8:26am
      ds has issues with writing, some is also getting him to type.
      log in or sign up to post a comment
      • Which learning specialist and how did you go about the OG - hired a tutor? And is he in ms private or public?...(more) 2-17-2019 8:31am
        DS struggles the most with writing.
        log in or sign up to post a comment
        • We went to one in NJ (the ped's and neuro's office had a list ). we found out that school had a special OG session that ended up being part of our ds's 504. And he gets tutoring...(more) 2-17-2019 8:36am
          1x a week at the learning specialist's office but it's more for organization of writing (it's hard to explain). I found that the fb groups for dyslexia and dysgraphia were really helpful.
          log in or sign up to post a comment
          • OP here - How old is your dc? When did he start typing? 2-17-2019 8:40am
            log in or sign up to post a comment
            • he's 9 and we got diagnosed at 8, so he just started typing and it's helped because it's taken off the burden of writing. He has dyslexic dysgrahia so OT doesn't help. but his iss...(more) 2-17-2019 8:44am
              ue is not just the actual writing (which is so painful to watch) but organizing his thoughts and remembering what he thought of and then writing it down. so for some assignments, he will dictate to me and i will write and then he has to edit. this is going to be a very long road. but with the support we have now, he went from hating school and failing to liking school, thinking he can do the assignments and getting b's and the occasional A.
              log in or sign up to post a comment
              • Thank you. This is my son - trouble with organizing, getting thoughts on paper, as well as great difficulty with spelling. 2-17-2019 8:56am
                log in or sign up to post a comment
              • OP - He dictates to you and then you type it for him, and then he edits what you have typed? Is that correct? What about work during school hours - does he have a SETSS who can...(more) 2-17-2019 9:14am
                do the same, or does he try to type on his own. We have requested an assistive technology eval for my ds but haven’t heard anything yet about it and it’s been 3 months.
                log in or sign up to post a comment
                • oh found that out the hard way. you need to ask in a very specific way to trigger the law. and yes, for longer assignments, he dictates (but it's not good). i type without editing...(more) 2-17-2019 9:18am
                  or judging (which is dh does not do it), and then we talk about each sentence and the paragraph. For school hours, he's a bit on his own, but if he really can't get started (which is normal for him) she will prompt him. He really really really wants to do good in school, so he's very motivated there. And he types on his own.
                  log in or sign up to post a comment
                  • OP - I didn’t realize re: assistive tech. Did you consult a lawyer? How exactly does it need to be worded. Thank you! 2-17-2019 9:55am
                    log in or sign up to post a comment
          • Does anyone know of a learning specialist similar to what OR is describing in Manhattan? 2-17-2019 8:44am
            log in or sign up to post a comment
            • here is one from Google - but you should get a recco from your dr's...(more) 2-17-2019 8:47am
              • OP - dc’s neuropsych has failed us many times, most recently with a delayed recognition of dyslexia despite my expressed concerns that essentially eliminated my son from early...(more) 2-17-2019 9:01am
                consideration for SN schools. We stuck with him because he is highly regarded and we thought schools would listen to him. So I am trying to get recos from this group. Have avoided signing up for FB but it seems like I need to now.
                log in or sign up to post a comment
                • Was it Salzburg’s Troy 2-17-2019 9:07am
                  log in or sign up to post a comment
                  • <sorry group not Troy 2-17-2019 9:10am
                    log in or sign up to post a comment
                • that stinks. this whole process of trying to figure out what's wrong, has been so difficult, i can't even image in the Dr was not on our side. Our issues have been with the school...(more) 2-17-2019 9:21am
                  admin. that middle layer.
                  log in or sign up to post a comment
    • You can hire a tutor who is trained in OG. There is a branch of the International Deslexix Association here is NYC and they keep a list of OG tutors that you can call. Their...(more) 2-17-2019 8:45am
      number is (212)691-1930. Dd was diagnosed with dyslexia many years ago, and this is the route I chose rather than LMB. My reasoning is that since LMB is a chain, i had no control,over the quality of the tutor, plus it was very expensive. The tutor was great and OG method worked very well for dd. This was a long time ago, though. She is now a hs senior.
      log in or sign up to post a comment
      • Thank you. I will definitely look into this. The dx is very recent so still getting up to speed. 2-17-2019 9:04am
        log in or sign up to post a comment
        • It took me awhile to gather information too. I see above that you are not on FB, but I think some groups can be helpful. Dds dx occurred way before FB so hard to find resources. 2-17-2019 9:06am
          log in or sign up to post a comment
          • How is she doing now? 2-17-2019 9:10am
            log in or sign up to post a comment
            • Actually great! But all kinds of things, some of which resolved themselves- stuttering, difficulty with mechanical writing, difficulty organizing thoughts in order to structure...(more) 2-17-2019 12:53pm
              the writing, difficulty with sequencing. The other thing that was key, was getting her a tutor in 5th grade who worked with her on note taking skills (I found this tutor through teachers college, Columbia). I believe that, along with the OG tutor in 1st grade, this laid the foundation for later success. She's a bit different than your son (she has no anxiety). Weirdly she tests remarkably well. She will be attending Northwestern in the fall.
              log in or sign up to post a comment
              • Great to hear! Thank you for sharing. 2-17-2019 8:20pm
                log in or sign up to post a comment
  15. Special Needs First day 10yo on zoloft. I hope this was the right decision. 2-16-2019 10:06pm (8 replies)
    permalink | log in or sign up to post a comment
    • you'll know in time. good luck 2-16-2019 10:06pm
      log in or sign up to post a comment
    • Best of luck 2-16-2019 10:10pm
      log in or sign up to post a comment
    • A bad decision if youbstand by and see your dc suffer. You are a good moom, best of luck 2-16-2019 10:20pm
      log in or sign up to post a comment
    • What’s the profile? On fence with 10yo ds re meds. 2-17-2019 9:09pm
      log in or sign up to post a comment
    • we just upped 13 yo Abilify from 7.5 mgs to 10 mgs. 2-18-2019 5:21am
      log in or sign up to post a comment
    • Short-term, Maybe. Long-term, most likely not. Best wishes. 2-18-2019 5:49am
      log in or sign up to post a comment
      • Horrible thing to say 2-18-2019 10:04am
        log in or sign up to post a comment
  16. Special Needs My first-grader w/ adhd is struggling w/ reading. He isn't meeting grade standards, says the school, because he is about a year behind on reading level. They give a phonics...(more) 2-16-2019 3:36pm (16 replies)
    reading program help nearly every day...child dislikes reading & when we ask why he says it's too hard...is the phonics program necessary or is it making our child dislike reading because it is constant sounding out words and no reading of books or stories? are there other reading interventions the school can do instead--child has 504 plan? Are there any outside centers/programs that offer reading intervention for adhd children?
    permalink | log in or sign up to post a comment
    • Google Orton Gillingham 2-16-2019 3:37pm
      log in or sign up to post a comment
      • Thx but my child gets a form of that in school and either it's not for him, or it's not working... Think he's bored of it and they do no reading of stories or books in this Orton...(more) 2-16-2019 3:38pm
        Gillingham-based pull out at school.
        log in or sign up to post a comment
    • have you done a full neuropsych? I also have a first grader with adhd. he does not have trouble with reading. b/c it is not uncommon for dc with adhd to also have lds, I think...(more) 2-16-2019 3:39pm
      it's really important to figure out sooner rather than later whether the slow reading is JUST about the attentional piece or if there is more.
      log in or sign up to post a comment
      • Thanks...Is a neuropsych covered by insurance? we haven't had one 2-16-2019 3:40pm
        log in or sign up to post a comment
        • I'm actually not familiar with the particulars - I think sometimes it can be done through the school but if not people go private and it seems not to be covered and costs...(more) 2-16-2019 3:44pm
          thousands unfortunately. a more focused evaluation to see if your dc has dyslexia should be much cheaper
          log in or sign up to post a comment
        • Depends on your policy. DOE and other Districts are supposed to pay for neuropsych, but you have to know how to navigate. 2-16-2019 4:21pm
          log in or sign up to post a comment
    • Do you read to him at home? 2-16-2019 3:41pm
      log in or sign up to post a comment
      • op: yes. he likes being read to but says reading for him is too hard and he doesn't like it 2-16-2019 3:43pm
        log in or sign up to post a comment
        • Does he learn sight words easily? 2-16-2019 3:43pm
          log in or sign up to post a comment
          • op: for spelling tests, yes--he seems to be doing much better consistently gettting 90 to 100 percent correct...(more) 2-16-2019 3:45pm
            He has really improved.
            log in or sign up to post a comment
            • Then my suggestion is to stick with what you and the school is doing. It’s not fun to do something that doesn’t come easily, but often learn8ng to read is a developmental process...(more) 2-16-2019 3:59pm
              That clicks later for some than others. First grade is still in the realm of normal. He is improving and things all clicking together into a reader should happen soon. I’ve taught first grade for 15 years
              log in or sign up to post a comment
              • Op: thx. The head teacher didnt give any books to take home for the break when asked. She also gives one book per day and children must bri g nack the next day. Can she not give...(more) 2-16-2019 4:43pm
                my child more books if we ask?
                log in or sign up to post a comment
    • I dunno but I had a similar 1st grader - not on grade level at all for 1st grade. She was diagnosed with dyslexia and adhd. She hated reading. We did phonics programs and...(more) 2-16-2019 3:42pm
      Orton-Gillingham but we also did TONS of read alouds - just to help her seee reading and stories as something fun and entertaining not just a chore.
      log in or sign up to post a comment
      • Np. Same exact story for my DS, except Wilson instead of OG. He's in 3rd grade now and much improved after a lot of tutoring. 2-16-2019 6:39pm
        log in or sign up to post a comment
    • Does he know his letter sounds? Diagraphs? Ou, oi, ee, ar, or, er etc? 2-16-2019 3:43pm
      log in or sign up to post a comment
  17. Special Needs Does anyone have experience using a special ed advocate in Suffolk County? 2-16-2019 7:31am (0 replies)
    permalink | log in or sign up to post a comment
  18. Special Needs Anyone have an anxious teen dd? do they refuse to go out with you? mine is pretty busy with sport and school but refuses to go to stores and has no social life. has one friend....(more) 2-15-2019 4:17pm (7 replies)
    refuses therapy. i dont push her because she is fairly busy but when she has down time she just sits in front of the tv. i dont see this changing. she's a sophomore
    permalink | log in or sign up to post a comment
    • Is she unhappy? 2-15-2019 4:18pm
      log in or sign up to post a comment
    • yes. therapy and meds are not optional. he's so much better now (at 19) 2-15-2019 4:18pm
      log in or sign up to post a comment
    • what about team mates? 2-15-2019 4:19pm
      log in or sign up to post a comment
    • yes. she was same age. she was not given a choice to go to her ped. he talked to her about options and said she had to agree to meds until she found better ways to manage it. got...(more) 2-15-2019 4:19pm
      her a counselor that was also helpful. this is not her choice - you have to take charge or it will spiral.
      log in or sign up to post a comment
      • THIS... with one of my DD I thought it was just a thing but is spiraled into an EDD 2-15-2019 4:21pm
        log in or sign up to post a comment
      • OP the thing is she is not unhappy. I'm not sure about forcibly medicating her - will have to think about that. i hear that in Junior year lots of kids become more social,...(more) 2-15-2019 6:40pm
        hoping this will pass.
        log in or sign up to post a comment
  19. Special Needs DS is home from his residential school (therapeutic) for a long weekend. I'm so torn because I love my son, but he's very overwhelming for me too. And DH is gone the entire time...(more) 2-15-2019 6:53am (7 replies)
    too. I'm trying to work up as many activities for him as I can (which he loves) but I'm still anxious.
    permalink | log in or sign up to post a comment
    • Tough timing for DH to be gone. Just keep reminding yourself you love him. The time will pass. Hugs 2-15-2019 6:54am
      log in or sign up to post a comment
      • Thanks. DH had been planning on taking him for a mini-trip but had to cancel because of work. Sucks. 2-15-2019 6:59am
        log in or sign up to post a comment
        • np: I am sorry. Are there other kids at hime or would you be able to do the mini trip? Is it easier with him on a trip or just easier for DH dynamic =wise, or do you have your...(more) 2-15-2019 7:09am
          hands full with other kids also -- sorry it is so hard. Sounds like with the activities it might go better than you expected. How old is ds?
          log in or sign up to post a comment
          • He is 15. My dd does not have break at the same time as he does, so he'll just have to go back to school early, which is fine, but I'd hoped he could go away with DH. 2-15-2019 8:13am
            log in or sign up to post a comment
    • My dd is coming home too. I have low expectations and our plans include meals she enjoys, a new movie coming out . Letting her sleep in. Her little sibs are busy tomorrow so...(more) 2-15-2019 7:18am
      she can chil and I’ll tentatively ask what she’d like to do but she will probably bite my head off. I miss her but the transition to and from school are so rough for us.
      log in or sign up to post a comment
      • I have to admit that I don't totally miss my ds. Life with him is so chaotic and difficult. I love him dearly and miss the closeness/bond we had when he was little. But it's...(more) 2-15-2019 8:19am
        been over a decade. I wish he would sleep in!
        log in or sign up to post a comment
    • I'm so jealous that your school lets them come home for long weekends. Mine does just three breaks at home during the school year, each is a week plus. The christmas one overlaps...(more) 2-15-2019 9:28am
      with local schools so that works well for the family but the fall and Easter ones don't always overlap with anything for the rest of us. I wish we had more long weekends so that the family could have more time together. I fully understand that our school has kids from very far away, and it makes sense. But, I'm jealous!
      log in or sign up to post a comment
  20. Special Needs I think my husband is on the spectrum. Very rigid, not good during transitions, and truly has no self-awareness (will say embarrassing things in front of people he doesn’t know...(more) 2-14-2019 7:26pm (10 replies)
    well, and has alienated friends). Anyone else have a spouse like this?
    permalink | log in or sign up to post a comment
    • yes and he finally got some testing done in his 50s 2-14-2019 7:26pm
      log in or sign up to post a comment
    • Has it gotten worse or was it always like this? 2-14-2019 7:27pm
      log in or sign up to post a comment
      • Always very rigid. Never spontaneous. OCD when it comes to scheduling. Because MUCH worse after we had kids. Also worse when he’s exhausted or when under a lot of stress. 2-14-2019 7:34pm
        log in or sign up to post a comment
    • Yes. Mine actually would’ve had an ASD dx as a kid had he been a kid nowadays. 2-14-2019 7:30pm
      log in or sign up to post a comment
    • Half my friends and family have mild ASD. Try books by Jennifer Cook O’Toole. A lot easier to get along with them when you understand how they experience the world, what causes...(more) 2-14-2019 7:30pm
      the behaviors.
      log in or sign up to post a comment
      • I will check it out. What are some of the symptoms you see in (adult) family and friends? 2-14-2019 7:35pm
        log in or sign up to post a comment
        • Socially awkward, intense particular interests and inability to gauge their audience re: going on about it, difficulty varying from rigid routine... 2-15-2019 8:19am
          log in or sign up to post a comment
    • there's a book called Asperger's In Love 2-14-2019 7:32pm
      log in or sign up to post a comment
    • Me too. Mine completely falls apart in unfamiliar situations where there are unwritten rules. Doesn't understand social cues. I always thought he was just very quirky, but since...(more) 2-15-2019 11:31am
      .my DS has lots of the same problems I think it's probably more than that.
      log in or sign up to post a comment
    • Yes though now he's an ex. It got worse with age and he couldn't deal with the dynamics and unpredictability of teens. He also deals with depression and anxiety, which I think...(more) 2-15-2019 11:33am
      often correlate to spectrum.
      log in or sign up to post a comment
  21. Special Needs Currently in evaluation to get 12 yo dd an IEP. Have a dx of ASD and ADHD....(more) 2-14-2019 6:54pm (6 replies)
    Yesterday some little horror at her school told a teacher she planned on shooting people. She didn't say that. Or anything like this. This isn't the first time the other kids have targeted her--she's called names daily. School just sent a letter home to everyone saying there was "no credible threat," which I guess means she's exonerated... BUT... we can't go on like this.
    permalink | log in or sign up to post a comment
    • ^^^ I don't know what to do. 2-14-2019 6:54pm
      log in or sign up to post a comment
    • put this back on them... "what do you plan to do about this?" "what is your policy in handling cases of bullying such as this?" 2-14-2019 6:56pm
      log in or sign up to post a comment
      • Yes! This is exactly what you do. Sorry you are going through this. 2-14-2019 7:19pm
        log in or sign up to post a comment
    • Can you switch schools? Class? Fresh start? 2-14-2019 6:56pm
      log in or sign up to post a comment
      • Go to the school administration first. Ask them to address and ask what they’ll do to punish the girl who did this. Her behavior was unacceptable. 2-14-2019 7:20pm
        log in or sign up to post a comment
    • is the child who fabricated the threat being suspended? if not, why not? 2-14-2019 6:59pm
      log in or sign up to post a comment
  22. Special Needs How can a neropsych possible be $5500? It’s insane! 2-14-2019 6:35pm (26 replies)
    permalink | log in or sign up to post a comment
    • Worth every penny 2-14-2019 6:35pm
      log in or sign up to post a comment
      • hardly, done it twice and didnt get that much value out of it 2-14-2019 6:36pm
        log in or sign up to post a comment
        • Bummer! Maybe you need a new one. 2-14-2019 6:36pm
          log in or sign up to post a comment
      • Not in our case. 2-14-2019 6:36pm
        log in or sign up to post a comment
    • B/c it takes up to 6 months to see one, supply and demand 2-14-2019 6:36pm
      log in or sign up to post a comment
      • where are you, in NYC not th case 2-14-2019 6:36pm
        log in or sign up to post a comment
      • So, they are unethical? 2-14-2019 6:36pm
        log in or sign up to post a comment
    • It’s a lot of information. I read them for a living- they’re paid per word lol m 2-14-2019 6:36pm
      log in or sign up to post a comment
    • That's a little under market rate :( 2-14-2019 6:37pm
      log in or sign up to post a comment
    • It's crazy. That said, the neuropsych had to see my ds a total of 5 times, speak on the phone to other providers and the school, and some things related to the DOE. They also have...(more) 2-14-2019 6:37pm
      to score the tests and write the reports! That's a lot of time.
      log in or sign up to post a comment
    • OP: In yiur opinions, is it still worth it if I am not trying to find a school or get funding? 2-14-2019 6:38pm
      log in or sign up to post a comment
      • np= i got a formal dx from a shrink and they wrote our school and did the rest of the evaluations -- i was happy with that but didn't have heavy needs (mild ADHD) 2-14-2019 6:40pm
        log in or sign up to post a comment
      • Are you going crazy because you can't really figure out how your dc learns? It will definitely give you peace of mind and direction. It's a lot easier to swallow if it's also a...(more) 2-14-2019 6:40pm
        financial investment towards funding, but it can be life changing in other ways.
        log in or sign up to post a comment
        • OP: No, nothing to do with school/learning at all really. Just a complex kid with had to define/dx smatt ring of issues that may or may not be spectrum-related and may or may not...(more) 2-14-2019 6:43pm
          be psychological. Trying to make therapy as effective as possible. Don’t want to be “treating” one thing when it is really another. Dc is very nuanced and hard to define.
          log in or sign up to post a comment
          • A good NP can really tease stuff out for you and stop you spinning your wheels and spending $ ineffectively. 2-14-2019 6:43pm
            log in or sign up to post a comment
            • Thanks. That is kind of what I am hoping. But I am a pretty broke single mom 2-14-2019 6:46pm
              log in or sign up to post a comment
    • np: I am currently trying to cheap out and have the school do the psycho-educational part. Not sure that's the right choice. 2-14-2019 6:43pm
      log in or sign up to post a comment
    • I paid more than that, and I agree, it's a lot. 2-14-2019 9:00pm
      log in or sign up to post a comment
    • MY atty just got DOE to reimburse me $6000 out of $6500 for a Salsberg evaluation. 2-15-2019 8:05pm
      log in or sign up to post a comment
    • Because think of how many hours your child is tested. Then the tests need to be scored and the emulations need to be written. It’s very time consuming. If you break it down to...(more) 2-15-2019 9:00pm
      an hourly rate it doesn’t seem as crazy
      log in or sign up to post a comment
    • it has to do with how much time is spent on the matter. Like with all professional services, it is hard for a layperson to understand how they are priced. But like with legal se...(more) 2-16-2019 11:51am
      vices, this seems to be a time based service.
      log in or sign up to post a comment
      • We got two quality neuropsychs for a grand total of $30....(more) 14 hr 48 min ago
        One was an in-Network doc (extreme wait, but possible; could have done Center for Autism and the Developing brain too, also takes insurance); and one was part of the Healthy Brain Network Study at Child Mind Institute (free). We were “lucky” to be deferred to CBST and landed in a funded school, so I don’t know if they’d help in a lawsuit, and they didn’t come with school recommendations, but in my view the testing was just fine, diagnoses and treatment recommendations fine, and good enough to get Medicaid waiver process rolling and also be deferred.
        log in or sign up to post a comment
  23. Special Needs My 12 year old HFA son does not want to socialize. He does not believe is important to have friends, but I so want to help him in this area. Any social groups for teens/tweens...(more) 2-14-2019 5:37pm (6 replies)
    which anyone recommends?
    permalink | log in or sign up to post a comment
    • Is he happy without them? I'd leave him be. 2-14-2019 5:40pm
      log in or sign up to post a comment
    • My ds is 14, HFA as well, he is now taliking about having interpersonal experiences. Before now, no interest. If he likes a social group great. If not, let it be. 2-14-2019 5:42pm
      log in or sign up to post a comment
    • I'd focus on getting him involved in groups that focus on his interests. What is he into? 2-14-2019 8:42pm
      log in or sign up to post a comment
      • I agree with this. 2-15-2019 11:50am
        log in or sign up to post a comment
  24. Special Needs Anyone have a situation where dc whiffed SN school interview due to nerves and school let dc come back for a second try? This school already did a classroom observation and the...(more) 2-14-2019 4:23pm (2 replies)
    director acknowledged he was fine then but was non commits about inviting him back. Apparently he was so distracted that they couldn’t finish the assessment. He has ADHD but is medicated and doesn’t present this way in class with medication. I’m devastated for him.
    permalink | log in or sign up to post a comment
    • that sucks...but OTOH, what kind of SN school makes kids pass an interview to get in? When we lived in manhattan and DC was about to start a 2s program, I felt the schools that...(more) 2-14-2019 4:28pm
      best understood kids were the ones that didn't have to interview the 2 year olds before letting them in-don't tell me you are a great school and great at working with kids if you have to hand select the kids you work with
      log in or sign up to post a comment
      • By interview I mean the learning assessment portion of the visit 2-14-2019 4:47pm
        log in or sign up to post a comment
  25. Special Needs Are there any day camps similar in population to Summit in the NYC area? Maybe NJ or Long Island? 2-14-2019 4:17pm (4 replies)
    permalink | log in or sign up to post a comment
    • there is camp sunshine/camp snowflake in ridgewood, NJ 2-14-2019 4:22pm
      log in or sign up to post a comment
    • Day camps similar in population? 2-14-2019 4:27pm
      log in or sign up to post a comment
    • Harbor Haven 2-14-2019 5:52pm
      log in or sign up to post a comment
next page »