Special Needs
- Special Needs Sign the Petition against GOP health bill!...(more)
- Special Needs The risperdal has made our slender, beautiful son into a husky uncomfortable kid; the SSRIs are too activating, the Ritalin is only OK. FML. I'm so over it all!!!!!!!!!...(more)
- Special Needs I'm trying to come up with some realistic and reasonable limits for our dc's smart phone usage. It's been creeping up and up; now it seems like he wants it constantly. He's 12...(more)
- We hold onto it when it's not time for him to have it.
- I think it's all fine but would ask that he choose one activity and then help prepare dinner (or whatever you need) before the Spotify time
- We are working on this too. Recently found this and it makes sense......(more)
- none after 7
- The school psychologist recommended we give our dc an appropriate amount of screen time and let her decide how to spend it- on the bus, at home watching tv, on her phone. I'm...(more)
- 2 hours is not much i that includes the bus
- the only person who can decide too little or too much is you, seriously.
- ourpact.com limits usage
- Special Needs CO Parent Here? Recently I saw a posting from a CO parent. I am looking for info regarding Denver Academy and Therapeutic Support in the Denver area. Can anyone help?
- Special Needs This board has gotten more troll ridden and nasty since I started coming here 4 years ago....disappointing.
- NFW
- Special Needs School bus driver and matron end of year tips? How much? Thx so much.
- Oh, crap. I totally forgot
- Fifty each
- This post has been deleted.
- I gave $25 each. I couldn't do anymore.
- Special Needs So psyched, guys. Just found out that the division head for ds' age at his day camp for this summer is a para at a school known for good special ed during the year. (DS is one of...(more)
- Special Needs This post has been deleted.
- of course.
- Special Needs Anyone know? I had ds's annual 504 meeting in May. For a list of reasons, I didn't sign and return it before school ended. I know with an IEP, prior one remains in place if new...(more)
- Special Needs If we're in NYC private ms school with recently approved IEP, can she get transportation to her school?...(more)
- They don't
- I don't think they do unless it is busing to a SN school.
- Special Needs Anyone have a tween who is struggling with growing up and the weight of it?
- My 15 is still struggling. I think by sheer willpower and not wanting to grow up she has nearly reached her full height of 4'11"
- My DS is 12 and really is anxious about being an older kid and growing up and what that change will be like. He is really anxious and since he has SNs it is magnified
- My 15 is still struggling. I think by sheer willpower and not wanting to grow up she has nearly reached her full height of 4'11"
- Special Needs How and where do you keep your DC's medications in the house? We had an incident this am where our DS's medication was done, and my husband, who has been giving it to him every...(more)
- I always just kept them in a cabinet. But, that makes sense if you have a concern.
- Do it. Sitters? Friends? House cleaner?
- Yeah, exactly. That's the list I'm going through. The only thing I can think of is that maintenance guys from our builidng were in the house yesterday fixing a window and i left...(more)
- It's probably the last scenario you outline, but I'd be cautious, too
- Yeah, exactly. That's the list I'm going through. The only thing I can think of is that maintenance guys from our builidng were in the house yesterday fixing a window and i left...(more)
- In our kitchen upper cabinet.
- It is such an enormous hassle to get my 7yo to even take his medication I haven't even considered that he might take it on his own.
- I don't know but ds's ADHD pill somehow got swept off the breakfast table onto the floor, so glad the dog didn't get it, jesus
- what is the medication?
- Focalin XR
- I keeo benign things like DCs inhaler on the bedside table. Keep things like ativan in a shoebox in my underwear drawer.
- When caring for my very aged parents i saw my mom had no idea if she taken one of her dozen pills or not. Visiting nurse said to get a compartment-type dispenser, fill it Sunday...(more)
- OP here... confirmed that it was my DH who didn't realize he had given the last pill to DS yesterday. WTF?! I was able to trace back the prescription and figure out that we were...(more)
- But I will be getting that pill organizer thing. For my own sanity and to help DH along.
- We lock it up because our 7-year old can open the childproof bottles and he has poor impulse control.
- I use a lock box and a weekly pill dispenser. Fill it every week. No mistakes.
- ^except the week where I was crazed and put my progesterone in teen ds' dispenser...he said is this a new med??
- Pills are among the first things stolen from homes, especially opioids and amphetamines including adhd meds. We had a cocktail party of people we knew and got cleaned outfit was...(more)
- Special Needs I need advice pls. It's long. Dc has been in same camp or two years it's not sporty he's not sporty. It's far and takes 2 hours of my day back and...(more)
- Should I pull him out or take a risk he will have a probekm
- He has ADHD Impulsivity.
- is he medicated?
- and how old is he?
- 7
- OK, and not medicated? That's tough because you know how easy it is for them to get triggered in a larger environment. I would say yes (for your sake) let him try the closer...(more)
- ^^^and btw, once the far-away camp starts and he's having fun, he won't be crying anymore. My 8yo adhd impulsive kid was crying with anxiety all weekend over a new camp and it...(more)
- ^^^the other thing you can do is try the closer camp and pay by the week. If he gets kicked out, go right back to the far-away camp
- He is medicated he had a great year at school.
- OH! then I go back to my last statement. Let him try the closer camp, but just pay by the week. Let the far-away camp know he wants to try something different, but if...(more)
- This post has been deleted.
- what did this say?
- He far one is monday start date near Thursday and I work so should I just put him there Monday and see what happens...(more)
- I would put him in the far one M, Tu & Wed and start him with all the kids at the near place on thursday. it's hard to start camp once everyone is established.
- This post has been deleted.
- OH! then I go back to my last statement. Let him try the closer camp, but just pay by the week. Let the far-away camp know he wants to try something different, but if...(more)
- ^^^and btw, once the far-away camp starts and he's having fun, he won't be crying anymore. My 8yo adhd impulsive kid was crying with anxiety all weekend over a new camp and it...(more)
- OK, and not medicated? That's tough because you know how easy it is for them to get triggered in a larger environment. I would say yes (for your sake) let him try the closer...(more)
- 7
- and how old is he?
- It sounds like the sporty camp is a bad fit for him. I would stick with the one you paid for. I bet when he gets there he will be happy.
- i agree. if they are good with him, that is important. if he goes to the other one, you'll be a nervous wreck the whole time.
- I know :( but there is no talking about it with him he's very hyper focused on it
- poster above. I have an adhd/impulsive 8 yo. What he was like at age 5 is so different from what he was like at age 8. You owe it to yourself to try to save some driving time...(more)
- Thank u would be amazing and they have bussing!!! And it's cheapsr but I'm traumatized from the bad camp which was similar makeup and ratio of staff
- it wasn't the camp. it was ds's age. and if we're wrong, the small camp sounds like your saving grace
- Proboem is the song and dance to get my money back distance and program may prevent him from being taken bakc if I need them I will be screwed
- if you need them, they will take your money, don't worry. I hope you can get it back
- Thank u
- I'm scared I will be anxious with other camp every day waiting for. Acall and I just finished a...(more)
- if you need them, they will take your money, don't worry. I hope you can get it back
- Proboem is the song and dance to get my money back distance and program may prevent him from being taken bakc if I need them I will be screwed
- it wasn't the camp. it was ds's age. and if we're wrong, the small camp sounds like your saving grace
- Thank u would be amazing and they have bussing!!! And it's cheapsr but I'm traumatized from the bad camp which was similar makeup and ratio of staff
- poster above. I have an adhd/impulsive 8 yo. What he was like at age 5 is so different from what he was like at age 8. You owe it to yourself to try to save some driving time...(more)
- I know :( but there is no talking about it with him he's very hyper focused on it
- It's mixed age very creative and he said he wants kids his age and that particular one
- i agree. if they are good with him, that is important. if he goes to the other one, you'll be a nervous wreck the whole time.
- is he medicated?
- He has ADHD Impulsivity.
- that's tough. my guess is that at this late date you can't get a refund for the far away camp.
- Well technically I can because they changed the program and asked me if I want to still send....(more)
- How much less sporty than the first experience is this suggested camp?
- So the less sporty is zero sports lol
- The mom said half the kids are not sporty they talk and sit around
- I don't think the sportyness is the factor here. I think her 7 yo isn't a 5 yo anymore. ages 4, 5 & 6 were hell for ds behavior-wise. It's really a lot better with each year,...(more)
- So the less sporty is zero sports lol
- send him to the one he will be happier at since you haven't paid yet AND its a schlep
- He's basing his happier on one kid he likes
- That's enough along with his feeling about going there
- He's basing his happier on one kid he likes
- Should I pull him out or take a risk he will have a probekm
- Special Needs JBFCS therapist told DS that he is leaving in the fall, because JBFCS is making massive cuts. Supposedly losing $1m/year. Any clinic suggestions for child health plus. Line in...(more)
- Try the LIJ- Northwell Climic or Bellevue or Weill Cornell...
- group practice in Woodside...near the Big 6 apartments. Some good therapists there. See if they take your ins....(more)
- Special Needs My 1st grade son has an iep for reading. his reading teacher told me over a month ago she would give me summer books and games to play with my son, i followed up once and still...(more)
- follow-up again. this time of year is crazy for teachers.
- so start now. He's young...you've got time and he will be fine.
- ^Oh, just reread your post. You can still get him stuff without her help.
- On the other hand, how hard is it to read books to your kid ok your own? The library has a large selection to choose from
- np: you can also check pinterest or teachers pay teachers fo ideas
- Not really helpful if OPs ds has a strong aversion to reading.
- She should have followed up, but you are still responsible for your own child. Did you try to look for anything on your own?
- op: of course i will figure it out on my own but i am just shocked about how she just leaves it totally unresolved
- this is really not shock worthy
- Is it so hard to get books for your kid? There are tons of read alouds on YouTube, also alphablocks on YouTube are great
- Go to library. Pick out books. Read together.
- Our school has an ELA coach, who is an untapped resource and really more available than the classroom teachers at this point. If your school has a similar person on staff, I'd...(more)
- Special Needs Progress isn't linear. Progress isn't linear - ugh, 8yo was doing really well. Waiting to take a new class andna baby started screeching. He got really upset and started talking...(more)
- ^class and all the kids in that class. Sometimes I get so frustrated.
- it's ok, my 8yo (NT) still cries. Kids that age don't care.
- You yelled at him for "talking back to the baby"???
- I told him he couldn't yell at the baby for making noises or make a big deal of it. It's a baby....(more)
- I think you overreacted. Babies are annoying.
- Maybe and yes they are. But sn or no, he was being rude imo. And you have to learn to suck it up - the world is noisy
- •ugh! Be quiet!" "That is so loud!" "Stop!"
- Well....keep the baby quiet. I'm on 8 yo's side here.
- Wasn't my baby- and babies make noises, they screech and scream. No mom can control that
- Oh, sorry - I thought he was yelling at your baby.
- Lol - I was unclear. Anyway I wrote it down and we are to discuss with his therapist next week to see how we can both modify our Shavuot
- ^behavior. What a weird autocorrect!
- Lol - I was unclear. Anyway I wrote it down and we are to discuss with his therapist next week to see how we can both modify our Shavuot
- Oh, sorry - I thought he was yelling at your baby.
- Wasn't my baby- and babies make noises, they screech and scream. No mom can control that
- Well....keep the baby quiet. I'm on 8 yo's side here.
- I think you overreacted. Babies are annoying.
- I told him he couldn't yell at the baby for making noises or make a big deal of it. It's a baby....(more)
- My 8yo did this exact same thing, except it was a 2yo and we were in the OT waiting room, so a more forgiving crowd. I had to take him outside to calm down, and give him ideas for...(more)
- ^and I totally understand your reaction. I did something similar recently when he had an inappropriate reaction and made him cry even harder and made a huge scene. Some days are l...(more)
- Assume uyour child may overreact when you correct him in public--live and learn. Work out a strategy that defuses his feelings. It probably very loud to his ears and he is...(more)
- TY for this response. It was helpful to me. NP
- op: This was an incredibly helpful response. Thank you so much. I am especially taking the part about overreacting to heart because we have been talking about it in therapy. i...(more)
- Assume uyour child may overreact when you correct him in public--live and learn. Work out a strategy that defuses his feelings. It probably very loud to his ears and he is...(more)
- ^and I totally understand your reaction. I did something similar recently when he had an inappropriate reaction and made him cry even harder and made a huge scene. Some days are l...(more)
- ^class and all the kids in that class. Sometimes I get so frustrated.
- Special Needs I wouldn't appreciate recommendations for a psychiatrist to review my DC's medication, treatment recommendations. DC is seeming tI struggle with some depression and I think mess...(more)
- A second opinion? You could go with one of the big places, like Child Study Center at NYU. Or ask your led for a name, he or she should have a bunch on hand.
- ^PED, not led^
- A second opinion? You could go with one of the big places, like Child Study Center at NYU. Or ask your led for a name, he or she should have a bunch on hand.
- Special Needs Those who go down the shore (to the jersey shore) for a day, when do you leave you house, which beach, do you bring food or eat out and where?
- SN?
- You understand the sentence, bitch
- SN?
- I think she's asking why you posted it here, albeit in a hostile way.
- You understand the sentence, bitch
- If we do sea streak ferry to sandy hook, we bring food. If we do NJ transit train to point pleasant, we get food on the boardwalk
- Don't typically go for the day, but when I do, I either go to Sandy Hook and buy food there. There's also Avalon which has some really nice restaurants
- Special needs beach?
- Wtf is wrong with you people?
- how are you getting there and I can give suggestions.
- Car
- ok, so parking is something to consider on weekends and Point Pleasant has most capacity, plenty of food options on boardwalk or right off. You could drive further down to...(more)
- Thanks
- ocean city, bring food then have pizza on boardwalk.
- I live 5 miles from sandy hook. I bring food. Get sea bright beach pass
- SN?
- Special Needs What is growing in your yard right now?
- Weeds. Bumper crop this year.
- Lemon tree, pygmy palms, cacti
- Live in an apt. Don't have a yard, but have a small raised bed for gardening. Tomato, pepper, egg plant, swiss chard, radish, scallion, beans, nasturtium, basil, rosemary, mint
- So much! peppers, tomatoes, squash, ground cherries, apples, cherries, raspberries, asparagus, rhubarb, beans, peas, corn, garlic,onion, strawberries, spinach, carrots, kohlrabi,...(more)
- Wow
- It's a lot of weeding, but I love it. If I could afford it, I'd change my whole yard into a garden.
- Wow
- hosta, lilies, azaleas, rhododendrums, hyrdangea, pachysandra, ferns and the peonies just died.
- My balcony garden is out of commission this year because they're working on the front of the building. :(
- No backyard. Joined a CSA.
- dh has all kind of herbs growing on the balcony
- Special Needs Ugh. Not sure if it's end of year and new camp nerves or puberty or both but DS is so disregulated . I need this phase to end!!
- How old?
- Almost 13
- How old?
- Special Needs Maybe Incan talk here, mil says dd can't come over anymore because he jumps and dh is very hurt and angry. I am not sure how to get past this.
- Just stop it. Just fucking stop
- Jumps?
- Yes, not a lot but her downstairs neighbors complain still
- NP few she just did this on Toddler. She's fake and an asshole and also she's mixing up which kid has sn
- I am talking , can you just leave me alone
- Seriously, troll posting on the sn board is beyond horrible
- I jus want to talk about this and am I hurting you somehow?
- This post has been disliked 3 times. Actually, you are. With your stupid bullshit you minimize what we go through every fucking day. You're an embarrassment and should be ashamed
- I am not a troll
- Yes, trolling is one thing, trolling on the sn board is sick.
- This post has been disliked 3 times. Actually, you are. With your stupid bullshit you minimize what we go through every fucking day. You're an embarrassment and should be ashamed
- I jus want to talk about this and am I hurting you somehow?
- ita on sn board she should not get hated
- Thanks you
- Seriously, troll posting on the sn board is beyond horrible
- I am talking , can you just leave me alone
- NP few she just did this on Toddler. She's fake and an asshole and also she's mixing up which kid has sn
- This post has been disliked 3 times. Ignore. It's a troll and now she is bringing her bs to the sn board, which is awful, even for a troll
- This. On the other post it was her son, now it's her daughter?
- I have both, I typed wrong, please stop
- Bullshit asshole
- She is fos and I hate when people troll the sn board
- So leave an let the people who want to talk to me do that
- I have both, I typed wrong, please stop
- This. On the other post it was her son, now it's her daughter?
- Yes, not a lot but her downstairs neighbors complain still
- This post has been disliked 4 times. Go suck a dick
- is op trolling? what's up? NP
- Yes, check out her post on the toddler board
- is op trolling? what's up? NP
- It will take time, but it really sounds like your MIL is in need of education. Maybe send her the book "Reasons Why I Jump" (no pun intended). It's a great book, and perhaps some...(more)
- She has read many books and even taken courses, things were fine until yesterday
- Don't engage the faker
- how do you know she's a faker?
- Go read her other op
- Jesus, I like to give people the benefit of the doubt. What is the harm in a reply? If someone truly is going through something maybe it helps. If not, I'd rather choose kindness...(more)
- Carry on then. I was just trying to save you the time
- how do you know she's a faker?
- Faker gonna fake...(more)
- Special Needs My ADHD kid with a writing diability did fine in 5th grade and the middle school is saying we should "wait and see" to see if he needs a 504 (to get extra time on tests, etc.)....(more)
- My dc has all the same. Get the 504s in place now. He doesn't need to use the extra test time if he doesn't need it (mine hasn't) but it's there if he does. Better this way...(more)
- Thank you!
- op: I do worry that the middle school, who I spoke with today, will think I"m not a team player, by refusing to wait and see (the rep suggested I give it 4 weeks at the new school...(more)
- You have to be the advocate for your child. You can do it nicely, but you have to be firm. You don't want to have to prove he is struggling and then move to put plans in place...(more)
- op: Thank you!
- I can't believe they pulled that. With your kids' profile, wait and see...please. I would be ready to...(more)
- op: Thank you!
- You have to be the advocate for your child. You can do it nicely, but you have to be firm. You don't want to have to prove he is struggling and then move to put plans in place...(more)
- This is tough. If there is no valid academic proof, it is hard to fight for. That said, I would politely push with this.
- Np. Agree with above posters to get it in place
- My dc has all the same. Get the 504s in place now. He doesn't need to use the extra test time if he doesn't need it (mine hasn't) but it's there if he does. Better this way...(more)
- Special Needs Therapy center near UES in Manhattan that offers speech/occupational/SETTS services to 5th grader with reading/writing delays
- A public school
- You should move to the suburbs
- unfortunately, for the time being, she is in a school that does not have these services on hand. Don't mind driving, or perhaps they can come to our house.
- Especially important would be finding an independent SETSS for afterschool Reading/Writing.
- Are you looking for providers who take RSAs or private pay? What age/grade. There really aren't centers, you need to find individual providers
- I just started the IEP process. I was told that I should try to find someone that takes Payments from them. But to keep a good log of my attempts jut in case I can't find anyone...(more)
- Special Needs Anyone familiar with the CD PAP program to pay someone you know for child care? Trying to decide if I want my nanny to receive money through this program. 6 yo son has Medicaid...(more)
- Special Needs If dc started risperadol or ability and it worked or did not work how did you know and how long did it take to say yes it's great or no its not working get off it...?
- talk to their doctor
- why are they on abilify
- rages.
- basically. no self control and angry so easily. he has calmed down somewhat. at school is more receptive to following direction but still...
- rages.
- I took abilify for a week. It made me feel soooo good, like manic. I couldn't sleep. Like I didn't sleep literally for a week. But I thought I was the smartest most beautiful...(more)
- yeah doesn't sound like a good fit
- I don't think it's a good fit with anyone. ALSO, everyone I came in contact with said "what is wrong with you?" "are you okay?" I think my jaw was twitching or something
- np. It works well for me.
- that's good. i guess it's all body chemistry
- np. It works well for me.
- I don't think it's a good fit with anyone. ALSO, everyone I came in contact with said "what is wrong with you?" "are you okay?" I think my jaw was twitching or something
- thats crazy!! that's definitely not happening with dc! he is more moody and down and rude and defiant than ever. gets super hyper and anxious before bed but then crashes. feels...(more)
- how long has he been on it? that sounds like the risperadol
- he's on ability. we tried rxsperadol for almost 2 weeks but he had blood work done and they said wasn't a good match, so switched to ability. that was about 4-5 weeks ago?
- I'm sorry. I think those two drugs are the devil. Have you tried lamictal? The seizure meds? It had very little side effects and talked me off the ledge
- how long has he been on it? that sounds like the risperadol
- yeah doesn't sound like a good fit
- I take Abilify and noticed a difference very quickly. No side effects.
- abilify was the only medicine that seemed to help me but it made me gain weight
- It can definitely cause weight gain, like most of the atypical antipsychotics. Compared to Zyprexa or Seroquel it's pretty benign, though
- how does it help you?
- I use it with Lamictal and the combination keeps my bipolar depression and anxiety from becoming severe
- abilify was the only medicine that seemed to help me but it made me gain weight
- op-also when he starts getting frustrated he will start shaking and flapping his arms and whole body really, like bouncing and shaking like he's coming out of his body. it's...(more)
- is he in therapy? it sounds like learning self-regulation, distress tolerance, and mindfulness could be very helpful
- we have a pysch is just checks in and a therapist who comes once a week and does not much. he used to have someone in school who was a godsend and he was doing zones of regulation...(more)
- i'm sorry, that's so hard. maybe check to see if there is a pediatric DBT program where you live
- there is you have to apply and be accepted and pay out of pocket. god forbid our kids get help if you aren't rich :(
- that's terrible
- there is you have to apply and be accepted and pay out of pocket. god forbid our kids get help if you aren't rich :(
- i'm sorry, that's so hard. maybe check to see if there is a pediatric DBT program where you live
- we have a pysch is just checks in and a therapist who comes once a week and does not much. he used to have someone in school who was a godsend and he was doing zones of regulation...(more)
- is he in therapy? it sounds like learning self-regulation, distress tolerance, and mindfulness could be very helpful
- My ds has been on both and we knew that it was working (with each one) when we tried taking him off of Abilify and off of Risperidone. He was a mess. No impulse control. But both...(more)
- It took my DD a month or so. Started with a tiny dose and increased very gradually. It was a miracle drug for her. She said it gave her space to "think" before she acted out. She...(more)
- My dc has been on Risperadol and abilify. We knew that the Abilify was increasing dc's irriability and anger within two weeks. We also tried a low dose of risperdol. We also...(more)
- Which one? I am wary because I see how bad his urritabikity is but the dr keeps saying it takes time to take effect etc am deathly he's not raging or freaking out so fast and so...(more)
- It is a med often used for anger and irritability. However no med works for everyone so keep an eye on it and if it doesn't help you'll move on.
- Our next step with the GeneSight test. While waiting for the results we tapered the risperdal...(more)
- Which one? I am wary because I see how bad his urritabikity is but the dr keeps saying it takes time to take effect etc am deathly he's not raging or freaking out so fast and so...(more)