Special Needs
- Special Needs Anyone have any success with vision therapy for treating strabismus and avoiding surgery? It’s going to cost a small fortune but I desperately want to avoid surgery if I can....(more)
- My ds had strabismus and we did the surgery. It helped but didn't 100% resolve it. What did resolve it was the right rpescription for glasses from a great pediatric ophtho. She...(more)
- Special Needs Protective and Stylish Security Doors In Sydney | SP Shutters...(more)
- Special Needs Frantic summer camp scramble, any thoughts (NYC)...(more)
- And on a separate note, we are on the cusp of getting OPWDD Self Direction approved....(more)
- What about Yomi?
- Is it normal to attend the summer after 5th ends and they're transferring schools?
- I wasn't sure. I think it depends on the age of the kid and the age that the school normally serves...(more)
- Agree with poster, check out Yomi.
- Yomi is $7100, there is a 7 week commitment, and no refunds if they have to go virtual....(more)
- Where does it say 7 week commitment, my kids usually go for four weeks. It is a bit pricey but unfortunately that's all the camps around here.
- Yomi is $7100, there is a 7 week commitment, and no refunds if they have to go virtual....(more)
- Agree with poster, check out Yomi.
- I wasn't sure. I think it depends on the age of the kid and the age that the school normally serves...(more)
- And on a separate note, we are on the cusp of getting OPWDD Self Direction approved....(more)
- Special Needs Looking at 3 schools for mild ASD/ADHD sixth grader. Need to remediate academic delays connected to attnetion issues, and building social skills due to ASD-like...(more)
- Honestly, I'd apply to each and see where it goes. For my ds with similar profile it was where he felt he "fit" and it became clear to everybody.
- He's in the first 2 and probably will get in the last. Will do 1-day visits. It will probably come down to a gut feel, but I was just wondering if anyone has BTDT with a similar...(more)
- Number two or public school with a solid IEP.
- Honestly, I'd apply to each and see where it goes. For my ds with similar profile it was where he felt he "fit" and it became clear to everybody.
- Special Needs Parents of high functioning ASD kids. I've been informed that my 3rd graders are subject to NYS exams. Would you opt out? Why? It's been such a sh*t show with pandemic learning....(more)
- they're gonna need to take them sooner or later
- Do they need additional service in ELA? Do you know if they get AIS? If you think they will do poorly they are then qualified for additional intervention.
- I opted mine in. I'd like a better sense of how he's doing, and am happy to have him practice taking a standardized test that doesn't affect him. If he does as poorly as...(more)
- Mom to high school ASD kiddo who came through NYC publics all the way—just take them. It’s NBD unless you make it so.
- Special Needs Any of you ever feel like throttling your dc. WHY can't you just do this or understand this or handle this. it's so frustrating.
- sometimes, yeah. Not often though, I like them a lot. Now ask me about DH.
- One of my DCs causes so many problems we are on the verge of divorce due to it
- of course.
- Special Needs DS 13 has been on adhd meds since he was 6. combined type and pretty severe. He is recently protesting taking his meds. He is upset about his appetite and his size (he is small...(more)
- Ugh, I'm sorry. MY ds is younger and sounds like he has a more mild case but I do worry that he is not gaining enough weight. Can you talk to his doc? Any other ways to get him...(more)
- we've been taking about it a long time. He's also just a smaller kid. Dh is 5'9" and I am 5'3". He refuses to eat breakfast beyond a few bites and then barely eats lun...(more)
- yep. i let my 14yo back off and he willingly takes them on school days. that said, he is just now functional off meds and at 13yo he would not have been. also i would try to...(more)
- this is good to hear. I think maturity is a big piece. he has been unwilling thus far to join the conversation with docs. he really needs to be a part of it at this age. he...(more)
- talk to doc, figure out how to up calories. involve him in the coversation.
- this is the key. I have been managing him since he was 3. he is so nuts and hyper all the time leading up to meds and as soon they wear off. He needs to join the conversation...(more)
- He needs to get into competitive swimming or something.
- I couldnt agree more. he was playing tennis well 3x a week before covid and he was good. this year really threw him off track on everything... and add in middle school attitude
- track
- He needs to get into competitive swimming or something.
- this is the key. I have been managing him since he was 3. he is so nuts and hyper all the time leading up to meds and as soon they wear off. He needs to join the conversation...(more)
- Yes, it is tough. We give ds a choice to take or not on weekends. We make sure to feed him avocado and things like that, and a second dinner. Height is likely not related to...(more)
- agree. his stature is not due to the meds. my dh is 5"9" and 150lbs
- Take him off that poison.
- :(
- google raising lions and maybe consider a short consult and course with the guy...(more)
- Yes. It's pretty common for teens to want to go off their meds. Let him go off on weekends if you can.
- Ugh, I'm sorry. MY ds is younger and sounds like he has a more mild case but I do worry that he is not gaining enough weight. Can you talk to his doc? Any other ways to get him...(more)
- Special Needs Has anyone heard anything about Bergen Tech HS in Paramus? My son has an IEP and is not the most academic and someone recommended this school.
- I have heard it’s a very good program - good luck!
- Thanks. I can’t find anywhere their acceptance rate. I know the Teterboro one igives them a test and is harder to get into
- Typically the NJ Tech schools are the county magnet schools and are very competitive.
- I have heard it’s a very good program - good luck!
- Special Needs Got iep draft today- not a single mention of the crippling dyslexia my child is operating with.
- So, add that in.
- So?
- Oh I plan to raise hell about the fact that the school didn’t.
- I wouldn't raise hell. I'd just ask that it be included. Are the educational issues addressed even though it doesn't specifically use the term dyslexia?
- ^IEPs are written by classroom teachers, and it's perfectly possible that the person writing it didn't get a copy of the report.
- Op- we literally had a meeting about the report.
- ok
- IEPs are most certainly not written by classroom teachers
- Who do you think writes them?
- ^I mean, it has to be a special ed teacher. but teachers write them.
- A classroom teacher is not the same as a SPED teacher. Related service providers also contribute to writing them and an initial is prepared by school pysch
- yeah, I work in a special ed program where everyone is a special ed teacher. I wasn't thinking about gen ed programs. no need to school me ;)
- A classroom teacher is not the same as a SPED teacher. Related service providers also contribute to writing them and an initial is prepared by school pysch
- Special Ed teacher--I was a SPED teacher in NYC for years and classroom teachers barely looked at them (which is another issue in an of itself)
- I meant that. I wasn't thinking about kids with IEPs who are in gen ed programs.
- are they classified with Learning Disabilities?
- the students with the IEPs?
- I meant what is OPs kid's classification?
- oh. gotcha.
- I meant what is OPs kid's classification?
- the students with the IEPs?
- are they classified with Learning Disabilities?
- sadly true
- I meant that. I wasn't thinking about kids with IEPs who are in gen ed programs.
- our heads of special ed writes them. teachers periodically update them.
- ^I mean, it has to be a special ed teacher. but teachers write them.
- Who do you think writes them?
- Op- we literally had a meeting about the report.
- Not really no.
- Ok, so attach a copy of your report, and state that you want the diagnosis included, and that you also don't feel like the reading deficits are adequately addressed.
- ^IEPs are written by classroom teachers, and it's perfectly possible that the person writing it didn't get a copy of the report.
- I wouldn't raise hell. I'd just ask that it be included. Are the educational issues addressed even though it doesn't specifically use the term dyslexia?
- I was mystified by the IEP sent for ds once. Then I realized they sent another kid's IEP!
- The DOE is such a shit show.
- Hey disliker, I have been waiting for 8 months for a hearing officer to take up my dc’s case regarding SN school. Public school failed dc massively. Shit show is an apt...(more)
- The DOE is such a shit show.
- Do you have a. Euro psych evaluation and diagnosis I to attach? You can send it to them so they can add the diagnosis. At least it is still a draft. What a headache!
- Yup. We spent so much $$$$ this year to get the diagnosis on paper and in the hands of the school.
- Who diagnosed the dyslexia? Does it mention learning disabilities in reading?
- A neuropsych. It skates over reading abilities- it reads as if “oh he has trouble reading” when the reality is that’s the whole basis of his issues.
- Are the goals reading? Do they mention a multi-sensory approach to reading?
- A neuropsych. It skates over reading abilities- it reads as if “oh he has trouble reading” when the reality is that’s the whole basis of his issues.
- why would that be mentioned in an IEP?
- you mean it's not part of their classification?
- NY has specific classifications and it should be classified as learning disabled.
- Why wouldn’t it be mentioned in the binding document about teaching a kid with a learning disability? It’s literallly why he has the iep
- lol, what? Do you know what is an IEP?
- In our district we will only classify learning disability in reading--any outside eval will be included in the document repository and goals will be formulated using...(more)
- This is exactly correct. LD is the classification.
- In our district we will only classify learning disability in reading--any outside eval will be included in the document repository and goals will be formulated using...(more)
- you mean it's not part of their classification?
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- The school didn’t dx Ds a neuropsych did.
- my Ds'a low muscle tone is included. that dx came from a neurologist, they added it to his IEP and attached the report.
- NP: My dc’s dyslexia and the recs associated to support his learning are an integral part of hisnIEP
- The school didn’t dx Ds a neuropsych did.
- what does it say?
- I find IEPs do not include a diagnosis. Did they give your schedule the LD classification. Both my kids have ieps for specific learning disorders
- They classified autism. Which fine he is on the spectrum but that’s not what impacts his education. He is impacted and needs services relating to the dyslexia. It’s like they are...(more)
- ask for OG or have them pay for outside OG tutoring
- Autism is a classification. Dyslexia is not. Look up classifications in NY and you will see what is included.
- LD is a classification. They possibly chose Autism because it is a stronger classification and is pervasive. OP is concerned because she feels its the LD that is affecting her...(more)
- Autism is also a classification
- I know, I did not think it was Op's kid that has autism. I was explaining that LD is a classification and so is autism.
- you said dyslexia is not a classification. The classification for dyslexia is "Learning Disability". Many kids meet the criteria for 2 classifcations. They usually choose the...(more)
- Autism is also a classification
- LD is a classification. They possibly chose Autism because it is a stronger classification and is pervasive. OP is concerned because she feels its the LD that is affecting her...(more)
- His IEP has to say LD, not dyslexia (which is an LD). In the goals it could be about reading.
- They classified autism. Which fine he is on the spectrum but that’s not what impacts his education. He is impacted and needs services relating to the dyslexia. It’s like they are...(more)
- So, add that in.
- Special Needs Any parents of ASD kids get frustrated by Autism Awareness Month stuff? Care of remote school I overheard the book being read to my 2nd grader's class -- my awesome autism or...(more)
- That's funny that she asked the teacher that. From the mouths of babes.
- no, she asked me since i was in the room. she would not have spoken about him to her class.
- Ohhh! Not easy
- I'm sorry. Teachers should be more aware esp, that there is so much variety
- There's a boy with AD in the class -- entirely possible his parents are promoting this. Sigh. I don't want to crap on their parade but this is not awesome at all.
- I'm sorry, it's awful and thoughtless
- There's a boy with AD in the class -- entirely possible his parents are promoting this. Sigh. I don't want to crap on their parade but this is not awesome at all.
- That's funny that she asked the teacher that. From the mouths of babes.
- Special Needs MMFS treatment of sexual harassment of female students...(more)
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- So far the official response has been that the matter will be discussed within the school, nothing mentioned about internal reforms...(more)
- This is horrible. I can’t believe I regretted not being able to afford MMFS over summit .
- Oh my gosh this is awful!
- Special Needs Does a local non-profit youth community program that gets funding from the county's real estate tax levy have to comply w/ Americans w/Disabilities Act?
- - no subject -...(more)
- I would think so.
- Enough. Your kid can't swim there.
- No reason why he can’t.
- What's this about
- Why are you asking this again - it is not the right place fro your child find a better fit. Unless you want to tell us the details of what kind of class it is you need to move on
- it's like my kids -- don't like the first answer so they ask repeatedly.
- This is BS. People shouldn’t just have to look elsewhere when businesses are skirting the law.
- your prior post provided no indication that any law was violated.
- Child is being denied based on his disability.
- Explain how. A child could be denied participation AND have a disability without there being a link. And a child can be denied for legitimate safety or behavior reasons.
- It was based on the disability.
- What is your proof of that? Did they tell you? Did they explain?
- call a lawyer there are certain firms that all they do is sue businesses over ADA
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- It was based on the disability.
- ADHD is not something that they can discriminate with - if they had a physical disability that would be different
- REad the ADA LAW...It is clear taht you can not discriminate on any disability be it vision, hearing, phsyscial or any mental or neurological etc etc.
- Explain how. A child could be denied participation AND have a disability without there being a link. And a child can be denied for legitimate safety or behavior reasons.
- Child is being denied based on his disability.
- your prior post provided no indication that any law was violated.
- The ADA does not cover a program not accepting a child when they did not even know he had ADHD.
- The law requires they must inquire what the disability is. They didn't bother because they didnt want any child w/ disability.
- Is this for swimming? which place is it?
- Lots of non-profits get partial govt funding. ADA applies, but you need a very clear case of a violation -- wht happened?
- ^also all orgs must follow ADA, private, non-profit or any other.
- privates dont have to like religious organizations
- ^also all orgs must follow ADA, private, non-profit or any other.
- np: let it go. You, OP, are way overboard on this. And if you can't find a lawyer who wants your case, it could be because you don't have one. Not everything in the world is or...(more)
- Special Needs Moms who conceived naturally after 43? Any complications?
- There was a mom who posted that she conceived at 46!
- Special Needs Cousin's 20mo was dx'd with a "global delay" - not walking or talking yet. Is this dx just a placeholder for now? Any experience with this?
- Yes, just a placeholder
- op-is this usually autism? The baby seems cuddly and smiles a lot but I only saw him briefly so I don't know how much turn-taking he does. My cousin had an emergency C-section and...(more)
- not necessarily autism, could have a genetic disorder or other disability
- Thank you. I do some early childhood work but this is out of my element and my aunt is asking me.
- ^ I would not worry about the autism label, sometimes given to get more services and not necessarily clear at that age
- The important thing is, your cousin is on top of this. Now that there is this dx they will have supports and someone is watching all the milestones. This will mean a...(more)
- Thank you. She is playing the waiting game saying "they don't see anything yet" but he was given the "gobal delay" dx.
- It is not usually autism. It's just a big unclear
- not necessarily autism, could have a genetic disorder or other disability
- op-is this usually autism? The baby seems cuddly and smiles a lot but I only saw him briefly so I don't know how much turn-taking he does. My cousin had an emergency C-section and...(more)
- My dd had a global delay. She was in special Ed hntil4ty grade. She is a straight a student with no services in 8th.
- Until 4th grade.
- What were her signs? Talking?
- She was 3. She couldn't really follow directions. She could draw a line, jump, cut. She just had a ton of delays.
- She spoke early but did not develop. She ended up needing glasses which helped. My son has autism and was diagnosed with autism at 2.
- She was 3. She couldn't really follow directions. She could draw a line, jump, cut. She just had a ton of delays.
- My ds had that dx and he did outgrow it. We thought for a while he would end up with an ASD dx
- My global delay kiddo didn’t get a definitive diagnosis until he was 8 years old. It was an uncommon presentation of mild cerebral palsy. Focus on remediation of symptoms for now,
- Yes, just a placeholder
- Special Needs Anyone have a neuropsych eval done before dc goes to college? Advice? In nyc
- Special Needs Had anyone seen or thought about seeing the off Broadway show Blindness?
- Special Needs Is 6000-7500 about right for a first neuropsychological evaluation for behavioral/possible ADHD?
- does it include educational testing
- Op. I’m not sure I’m totally new to this so didn’t know to ask! It’s parent consult,...(more)
- yes for full neuropsych i recently paid $6500
- Op. Thanks. Similar # of appts as I posted above?
- yes except we did it all online
- Op. Thanks. Similar # of appts as I posted above?
- depends. you dont need a full neuropsych for an adhd dx. for a full battery neuropsych eval with all cognitive, educational and projective tests, yes that's right.
- does it include educational testing
- Special Needs I wish I'd never had kids. It is just so hard. My older son turns 18 soon and his ADHD, anxiety and general rigidity make him unpleasant to be around and the prospects of him...(more)
- Sorry
- I’m sorry. No advice. But I feel you. My dc won’t be independent either
- sending you love and a hug. that's a lot, especially to manage on your own.
- I will add, that as my 2 ASD/ADHD teen mature things are looking up for them. I want to send you you kindness too. 💜
- Maturity is HUGELY important and often seems like it’s one of those things that will just pass your kid by. NP
- I will add, that as my 2 ASD/ADHD teen mature things are looking up for them. I want to send you you kindness too. 💜
- I hope somehow your older guy can live independently some day
- It gets better as they age
- I am sorry. And yes it will get better
- I am so sorry.
- I am so sorry! You're doing the best you can!
- I knew when she was 17 that my add, anxiety-riddled and unpleasant dd needed to get away. She got into a college she was happy to go to, and everything got SO MUCH BETTER. Just...(more)
- ^she wanted to to be independent and her self esteem was helped immeasurably by accomplishing stuff on her own, even working out doing poorly in a class, and switching to another...(more)
- what was her senior year like of high school?
- It was better than the previous 3 years in terms of grades, but hard in terms of squabbling/bad/attitude....(more)
- what was her senior year like of high school?
- ^she wanted to to be independent and her self esteem was helped immeasurably by accomplishing stuff on her own, even working out doing poorly in a class, and switching to another...(more)
- My nephew has ADHD and is very rigid and we were all very worried about him. He is now 20 and is working 30 hours a week and is doing really well. I hope things improve for you
- where does he work (what kind of job) and did he go to college?
- He tried college for one semester and it did not work out. He works in a warehouse lifting and moving things. He is thinking about returning to college part time next year while...(more)
- I wonder if there are still jobs at places like UPS which provide benefits and support and retirement places for people who dont go the college route.
- Np this is kind of random, but does cvs offer benefits at all? I only ask bc our local cvs has a few clearly sn adults on staff.
- np Wegmans also does
- Np this is kind of random, but does cvs offer benefits at all? I only ask bc our local cvs has a few clearly sn adults on staff.
- I wonder if there are still jobs at places like UPS which provide benefits and support and retirement places for people who dont go the college route.
- He tried college for one semester and it did not work out. He works in a warehouse lifting and moving things. He is thinking about returning to college part time next year while...(more)
- my bff's son is similar and he works in a vape shop which -- honestly - isn't what anyone would have hoped for 18 years ago, but now is a blessing.
- where does he work (what kind of job) and did he go to college?
- I'm so sorry. It sounds very difficult.
- I'm sorry. There's a real need for supportive housing for young adults like this. Does he get disability at 18?
- he won't qualify. there is no intellectual disability and we live in a red state that is extremely stingy even with kids much worse off than him.
- That sounds so hard. I'm sorry
- he won't qualify. there is no intellectual disability and we live in a red state that is extremely stingy even with kids much worse off than him.
- I'm so sorry. Your life is hard. I hope you have good friends and some family that recognize how much you do and treat you well.
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- glad your dh is doing well. my ex is not doing well and never has. He is a big part of the problem as he is extremely negative and punitive toward both kids.
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- glad your dh is doing well. my ex is not doing well and never has. He is a big part of the problem as he is extremely negative and punitive toward both kids.
- omg, that's a lot for one person to handle, I'm so sorry
- wow, I could have written this. almost exactly. it sucks. I constantly am wondering if I should just get covid. (I'm overweight)
- Special Needs Has anyone had success getting multiple day accommodation from ACT?
- There was that guy who could do it and get you a back door admission too.
- this is the SN board...
- Dc is a sophomore but he will need it so I hope it will be possible.
- There was that guy who could do it and get you a back door admission too.
- Special Needs Ds did it. he freaked a little but got through the shot without pitching a huge fit (just protestations, some shaking, tensing and making sure the nurse talked him through each...(more)
- Special Needs I really wish I could do everything with sn ds over. He's 15, many hospitalizations, residential . I really wonder how much of this could have been prevented . I think I went...(more)
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- Help others.
- who knows, right?
- the teen years can be really hard, but maturity helps
- You did the best you could based on what you knew or were advised at the time.
- I’m sorry you feel this way. I sometimes have regrets about my dd but then I think that I would second guess anything I did. I think maybe dd was going to struggle the way she is...(more)
- hindsight is 20/20. You never know how choosing other solutions would have gone. You do the best the can.
- He is still young. I doubt you made it worse. You care so he is far far ahead of the game. GL
- I know what you are saying. as kids get older and we think about all the years in the rearview mirror, it makes you worry that if you had done things different a kid would have a...(more)
- Special Needs This post has been deleted.
- You can sue
- No, because they may not have the staff to deal with that child safely
- And the location may not be accessible, or modifiable to accommodate a disability.
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- And the location may not be accessible, or modifiable to accommodate a disability.
- no, if they can't guarantee the child's safety
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- how do they even know though? Doesn't seem relevant
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- What did they ask? My kid has ADHD and I’ve never had to put that on any sports application
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- How do you know they booted him because of that?
- What did they ask? My kid has ADHD and I’ve never had to put that on any sports application
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- what is the program? is there a risk to having a kid with an attention issue in the water with the class? could be fair.
- If the ADHD affects his ability to pay attentions and be compliant then that could be an issue. My ds has autism and I could never have him in a regular program. He...(more)
- Maybe the program feels he requires 1:1 staff to ensure his safety, which they may not be able to provide.
- Right. If it’s six kids in a group, the instructor would not have the time to continually redirect one child.
- Maybe the program feels he requires 1:1 staff to ensure his safety, which they may not be able to provide.
- They can deny a child with behaviors they cannot manage. They aren't a public school that is required to find the resources.
- how do they even know though? Doesn't seem relevant
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- I think that depends on local law but seriously, if the nonprofit can’t help a disabled kid what can you do? Give them more money? Suing ruins it for everyone else
- the requirement is for "reasonable accommodations" - depends on the program and the disability.
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- you may not be the best person to assess safety etc. although with ADHD the behavioral issues could be a challenge for safety etc
- Why do they even have to know he has ADHD officially. Did they say they rejected him because of ADHD? That’s weird
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- How do you know it was from ADHD? I have never waved that flag outside the classroom
- If they did not know he had ADHD, then it's not why he got kicked out. He could have been kicked out because of his observable behavior. Outside of schools the reasonable...(more)
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- if you felt you needed to tell them about it, it is severe enough that he would need one-on-one training. you are literally putting your kid at risk
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- then why is he in swim lessons if he was on a swim team before?
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- no, private non profits that dont have the staff or accommodations to deal with the challenge dont have to hire them
- is there no other program?
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- most of these swim programs are staffed by kids with a 12-15 hour training certificate (with one or two supervisors). They are not in any way trained to deal with a disability in...(more)
- I don't think so. Their program and staff is not set up to deal with children with disabilities. When I sent my dc for swimming lessons, I chose programs where dc was welcome...(more)
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- Special Needs Ds is getting his first COVID vaccine tomorrow. He is deathly afraid of needles. I mean he pitches a big fit at the doctors every time. Tomorrow, a huge room full of people...(more)
- at the javits center the guy stood behind me and i didn't even feel it. sounds porno
- Yep - same. He moved in on me like maybe he would hug me and then, BAM, stabbed the back of my arm
- was he a beefy national guardsman? i'm swooning now lol
- that is so strange
- Yep - same. He moved in on me like maybe he would hug me and then, BAM, stabbed the back of my arm
- Have you talked with him about it?
- not yet. I need him to sleep tonight, so not bringing it up till tomorrow
- So he doesn't know yet?
- he knows we sch4eduled it, I told him. But he hasn't mentioned it at all this week. So either he blocked it out (he has ADHD and Anxiety) or he really forgot
- Good luck. You will both get through it.
- he knows we sch4eduled it, I told him. But he hasn't mentioned it at all this week. So either he blocked it out (he has ADHD and Anxiety) or he really forgot
- So he doesn't know yet?
- not yet. I need him to sleep tonight, so not bringing it up till tomorrow
- He will rise to the ocassion
- This. I think he will be okay, OP!
- Lidocaine and close your eyes
- at the javits center the guy stood behind me and i didn't even feel it. sounds porno
- Special Needs How many times I can postpone a CSE-IEP meeting?...(more)
- Doe cancels all the time, sometimes at the last minute. I wouldn’t worry about it
- There's no number of times limit. But you cannot expect anyone at DOE to be checking their email before Monday morning, and I would also call at 8am Monday if no one emails you...(more)