Special Needs

  1. Special Needs My 13yo was diagnosed with ADHD (inattentive) in 2014. He has executive function issues, and sometimes says impulsive things, but otherwise is sweet, easy to have around, does all...(more) 14 hr 47 min ago (15 replies)
    of his work without being asked, and is a straight A student. Do you think the dx could be wrong? I haven't medicated him.
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    • Sounds like he’s suceeding despite it. It’s been 5 yrs since tested. Could retest. Or this might rear it’s head in high school. My ds was dx in 4th grade but it interfered years...(more) 14 hr 45 min ago
      Later. Good luck
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    • both of my kids have this dx we don't medicate either. Having said that we go about our bunds as usual and could not care less what their dx is...does it really matter? 14 hr 44 min ago
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      • Well, it matters if I'm not doing what I should be doing to help my child. My other child has ASD and yes, the dx matters. 14 hr 38 min ago
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    • Does he forget or lose things? Does he remember his schedule -- it's Tuesday so I have baseball practice? 14 hr 43 min ago
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      • He loses things (water bottles at sports practice, for example).He doens't forget when he has practice or games, though. 14 hr 38 min ago
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    • My DS was diagnosed around 9 yo (same type) and we have done medication. It's been a game changer for us. Now he is 15 yo and we don't take it when not in school. The school...(more) 14 hr 43 min ago
      We privately tested him at 9 yo and then the school tested him on their own when he was in middle -- he's due to be retested at school next school year (sophomore year).
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    • It’s such an arbitrary diagnosis, of course it could be wrong. But what would be different? Does he have a 504? 14 hr 41 min ago
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      • He has a 504 for extra time testing but doesn't need it, or so he says. He's not a great standardized test taker. 14 hr 36 min ago
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    • I have bad ADHD but at 13 I had straight A's. I liked school and felt pressure about grades and was bright so I was able to hyper focus. Behind the scenes I had my notes for...(more) 14 hr 40 min ago
      English in my history spiral, was doing my science report at the last minute, would sometimes leave homework home.... I was okay until adulthood.
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      • op: I'm the same. I had undiagnosed ADHD and still have it now. I'm a mess now, but workeed extra hard in high school and college to get straight A.s 14 hr 37 min ago
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        • Yes. Are you really smart? I came up with the accommodations like sitting up close (although I always lost my glasses so I still couldn't see), writing things down and teaching...(more) 14 hr 35 min ago
          them to myself at home, leaving things in one place (even though I have no memory of doing so)...
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          • op: I'm more academically successful than I should be. I'm bright, but come from an extremely intelligent family so don't feel that smart. I was superstar academically. BUt now I...(more) 14 hr 34 min ago
            leave things in taxis, lose things once a week or so, put keys in the refrigerator, etc.
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            • OP. I am better than I was with that but would mess up expense reports, boring tasks... at work and got fired. I like school so do better there. I have to get it together...(more) 14 hr 30 min ago
              because I am too dependent on DH.
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              • op: I feel you. My DH takes care of anything money -related, planning, etc. 14 hr 22 min ago
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                • Yes - that's how we are. He does help me but it creates a slightly weird dynamic. 14 hr 6 min ago
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  2. Special Needs My ADHD teen is going to do me in. Seriously. 23 hr 29 min ago (4 replies)
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    • damn, they don't outgrow it by teens? 23 hr 26 min ago
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      • Some of us still have it as adults 23 hr 24 min ago
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    • Try to remember the positives too. It's not always easy 23 hr 25 min ago
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    • Sing it. At times it seems like laziness because dd can take extra steps for things that are important to her at that moment 23 hr 23 min ago
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  3. Special Needs Anyone heard of this company? Offers classes that include social and emotional skills. Wondering if it could be good for 13yo ds....(more) 4-21-2019 8:13pm (0 replies)
  4. Special Needs I need to stop having expectations for things and I will be happier. 4-21-2019 2:08pm (1 reply)
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    • be. happy. now. 4-21-2019 2:10pm
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  5. Special Needs Mil is always telling ds that I will give him my phone to occupy him when he is acting out in public. He has autism and is non verbal. 4-21-2019 1:18pm (28 replies)
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    • is what she's saying untrue? 4-21-2019 1:19pm
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      • She is deciding that I need to give him my phone. 4-21-2019 1:20pm
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        • Sounds like she is getting it to him before you do 4-21-2019 1:21pm
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          • I have the phone so that is t possible. 4-21-2019 1:23pm
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        • sounds like you two need to discuss a plan ahead of time. Giving a phone as a self regulating strategy can be helpful, but perhaps you follow a different protocol and she needs to...(more) 4-21-2019 1:23pm
          know it
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          • Dh won’t talk the her and I won’t because she isn’t my mother and will think I hate her. 4-21-2019 1:24pm
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            • sounds like a whole history of conflict here and this is the least of it 4-21-2019 1:25pm
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              • It’s a whole history of conflict and this is a big part of it. 4-21-2019 1:26pm
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                • By not communicating how you handle ds, you are setting MIL up to make the wrong suggestions 4-21-2019 1:27pm
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                  • She has been told not to handle it. 4-21-2019 1:28pm
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    • That sounds like a good solution 4-21-2019 1:20pm
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      • It isn’t. 4-21-2019 1:21pm
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        • What is a better one? 4-21-2019 1:21pm
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          • We work with him on his frustration tolerance. We need to teach him how to behave and not give into him. 4-21-2019 1:22pm
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            • OK, and how do you do that? MIL needs to know too. It's stressful when acting out happens. 4-21-2019 1:26pm
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              • Giving him reinforce the for good behavior and not attention for bad behavior. She has been told over and over that he is on a program and to let us handle it. 4-21-2019 1:27pm
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                • good information to include in the OP- we were confused 4-21-2019 1:32pm
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        • Np if she gives it to him as a result of him acting out, then he’ll keep acting out. It’s got to be given at times when it won’t be reinforcing unwanted behaviors 4-21-2019 1:22pm
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          • This 4-21-2019 1:22pm
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          • I dont find that autistic kids think this way- they arent trained dogs. They often act out because they are overstimulated or confused. 4-21-2019 1:24pm
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            • Op this is how you teach a kid. 4-21-2019 1:25pm
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              • excuse me? 4-21-2019 1:25pm
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                • This is how you teach a kid with autism. We also use verbal behavior but Aba is also important. 4-21-2019 1:28pm
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                  • There are many ways to teach kids with autism. In fact, ABA would not have one way (reward/ignore) of addressing this particular behavior. I hope the protocol you are using...(more) 4-21-2019 1:31pm
                    works for ds and MIL gets out of your hair.
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            • do you have an ASD child? They are humans, and indeed the respond to reward systems. 4-21-2019 4:33pm
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              • I specialize in working with autism children and adults. I have extensive training and consult with many home based programs. 4-21-2019 8:14pm
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    • I will come yell at her on your behalf. Sorry you have to deal with this. Hugs! 22 hr 9 min ago
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  6. Special Needs ACT with multiple day testing - dd had day 1 this weekend and proctor asked for SSN. Is this normal? Anyone btdt? Tia 4-21-2019 10:15am (1 reply)
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    • They use procedures like this against fraud 4-21-2019 10:19am
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  7. Special Needs Are malls in Westchester open today? 4-21-2019 9:25am (6 replies)
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    • no 4-21-2019 9:26am
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    • I would guess yes. I looked up Palisades mall and it is open 4-21-2019 9:27am
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      • the Westchester is closed 4-21-2019 9:28am
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      • np: it's closed 4-21-2019 9:29am
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    • Everything is open in downtown scarsdale hahahaha 4-21-2019 9:30am
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      • This post has been disliked 3 times. showFucking Jews 4-21-2019 9:39am
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  8. Special Needs Any Pinnacle School parents on the board? I'm considering it for my ASD son. Would love feedback. 4-21-2019 9:22am (0 replies)
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  9. Special Needs Losing over Ds's deteriorating executive functioning skills at 15. thinking it is more about impulsivity than anything. meds aside, has anyone done anything that has been helpful? 4-21-2019 8:12am (8 replies)
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    • is he medicated? not judging in any way, I'm just wondering if meds are helping or hurting or not relevant 4-21-2019 8:15am
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      • we have been on a two year medication hell path. trying stimulants again but in very small dose. 4-21-2019 8:17am
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        • Ugh, I get it and sorry. 4-21-2019 8:18am
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          • Yeah, it sucks. feel like he has lost 2 years of his life. 4-21-2019 8:18am
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            • ^^ and thanks:) 4-21-2019 8:19am
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              • I didn't find this helpful ages ago when it was recommended to me on the SN Board, but when ds was struggling in k-1st grades and we were unable to get the school to help us (this...(more) 4-21-2019 8:23am
                was impulsivity/behavior stuff, based on ADHD) and instead they were counter-productive by punishing him all the time, we finally pulled him out and found a small private school for 2d grade. It wasn't my fantasy of bustling public school or leafy, preppy private school, it was just a small school that was supportive. So, I throw that out there with the understanding that changing schools and putting a kid in private, or finding a niche school, just isn't possible for most folks
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                • ours is in a SN school - but should have made the move earlier... 4-21-2019 9:44am
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    • Math tutoring helped there. Then also we sent her to a adhd coach. Did u ask yesterday? Because i deacribed that in detail. Nothing magical except it was an understanding retired...(more) 4-21-2019 9:11am
      teacher who wasnt Mom. She got her and kept her on track that year
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  10. Special Needs Relative moving to NYC- dc in high school with hearing impairment. Is there a resource at the DOE they can speak with to determine which schools may meet need. They can then move...(more) 4-20-2019 8:59pm (1 reply)
    based on school.
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    • DOE will say needs can be met in any school. Not helpful, I know. What is useful...(more) 22 hr 5 min ago
      Is a 504 plan or IEP or audiological evaluation that states what accommodations and modifications (if any) need to be in place to support productive learning, eg visual supports, explicit written instructions, etc. Class sizes in NYC publics can reach 35 students in high school, though an Integrated Co-Taught (ICT) class has a special education teacher and a gen ed teacher and sometimes are slightly smaller. However not all schools offer ICT services in an honors level or AP level class.
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  11. Special Needs Toddler My dd needs assistance any time he uses the bathroom. This alone makes me life so hard. He has autism. 4-20-2019 5:34pm (10 replies)
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    • How old is dd? 4-20-2019 5:36pm
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      • Ds not dd. He is 13. 4-20-2019 5:37pm
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        • What part does he need assistance with? Do you have OT/ABA support to work with him on toileting? 4-20-2019 5:38pm
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          • Wiping or just to wipe of the seat. He has all of that. 4-20-2019 5:39pm
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            • But have they been working on it? I'd throw a lot behind that b/c it's a quality of life issue for you. Signed mom of ASD ds who took a long time to learn toileting skills. It was...(more) 4-20-2019 5:40pm
              icky but we got OT support. Tons of practice.
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              • Yes they are working on it. 4-20-2019 5:41pm
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                • You'll get there. It will just be a distant bad memory at some point :) 4-20-2019 5:45pm
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    • People were being nice on toddler 4-20-2019 5:36pm
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    • Can you brainstorm any little thing DS could do that would make it one iota easier...(more) 22 hr 2 min ago
      For you? Bringing you a picture of a flower to indicate the need to go, ripping off some toilet paper to give you, waiting with you while you check toilet to see if seat needs wiping, helping put seat down afterward? It is so hard for them to focus and be present if it isn't a preferred task, I know. Sending hugs and strength and patience!!!
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  12. Special Needs Also any experience in sleep studies for child? Mine is 8 with ADHD, ASD. I can’t imagine a sleep study would be successful and yield much useful data. 4-20-2019 1:41pm (3 replies)
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    • I wanted to rip my face off. Can’t imagine my sad kids 4-20-2019 1:42pm
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    • what are his issues? 4-20-2019 1:42pm
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    • Had two. Showed nothing meaningful. Waste of time and money....(more) 4-21-2019 6:08pm
      Was hoping I would learn DC simply had apnea to explain various developmental and attentional issues. Kid would snore very loudly. Always needed more sleep than an average kid since birth. Nothing helpful
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  13. Special Needs Anyone’s child had adenoids removed? Any change in behavior or sleep? My child has many signs of sleep apnea - mouth breathing, bed wetting, restless sleep, teeth grinding? 4-20-2019 1:40pm (5 replies)
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    • yes... sleep is a bit better. otherwise the same 4-20-2019 1:42pm
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    • Yes and everything is better post surgery. Go for it 4-20-2019 1:44pm
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    • See an ENT to check adenoids, turbinates before going further 4-20-2019 1:45pm
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    • we had adenoid issues when ds was young, and he outgrew his adenoids by age 5 4-20-2019 1:49pm
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    • Is bed wetting a sign of sleep apnea? 4-20-2019 9:01pm
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  14. Special Needs Anyone see an improvement in executive functioning after vision therapy? thinking my ds sees utter chaos around him which is contributing to his disarray. we are starting vision...(more) 4-20-2019 1:21pm (7 replies)
    therapy and just wondering if that may be an improvement we will see. we have already done the testing and he has convergence and tracking issues (severe LDs too)
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    • DD did it. maybe a tiny bit. What helped more than anything was an awesome OT who focuses on exec functioning issues. Amazing progress. 4-20-2019 1:23pm
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    • No, but IME vision therapists will tell you it solves everything. 4-20-2019 1:24pm
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    • drugs were the only thing. That and google classroom! 4-20-2019 1:26pm
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    • No, but I think it's helping with reading and sports. 4-20-2019 1:28pm
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      • really? how old? 4-21-2019 1:08pm
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    • no 4-20-2019 1:32pm
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    • I went to see a vision therapy guy. He painted this completely dire picture, told me to come back for another $400 in testing before committing to about $4000 in therapy. Then...(more) 4-21-2019 3:35am
      went to a fabulous ophthalmologist who had specialized in my kid’s eye issues and was chief resident at Johns Hopkins, and she was like — this is all bullshit, he literally just needs a stronger prescription. And he did.
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  15. Special Needs Parent Presentation this Tuesday, April 23rd in Hoboken...(more) 4-20-2019 10:06am (0 replies)
    This will be a great presentation for parents sponspored by Hoboken Public School District's Passport to Adult Learning Speaker Series on Tuesday, April 23 at 7 pm. Michael Delman, CEO of Beyond BookSmart, will share insights with parents from his new book, Your Kid's Gonna Be Okay. Proceeds go to fund after school activities for students. Tickets here: http://bit.ly/2TPql8V
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  16. Special Needs My speech/language impaired dc has discovered the Rocket Languages app. He’s wandering around the house repeating phrases in French. We’ve created a monster. 4-20-2019 8:51am (0 replies)
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  17. Special Needs 12 year old ASD kid told me 'Mom, stop that, you are embarrasing me.' For other moms, this would be disrepectful. For me, I was surprised and totally happy. This is a kid that...(more) 4-20-2019 7:59am (32 replies)
    missed EVERY developmental milestone during his 7 years of life. To hear him say a totally age-appropriate thing, made me smile on the inside. Yeah for these little steps than can 'normalize' this crazy life.
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    • Like I was thrilled when ds started lying! Annoying but normal! 4-20-2019 8:00am
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    • You should write this down so you remember to share it with him when he's older. 4-20-2019 8:02am
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      • Not sure that our kids want to be reminded they are different 4-20-2019 8:04am
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        • if you think that's how it would be taken, then don't. 4-20-2019 8:05am
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        • Really? (NP.) I think it helps my son a lot. It's obvious he's different and I think we have to acknowledge that. 4-20-2019 8:09am
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          • or: that's how things are in my household, too, but if the OP feels like that's a sore spot, whatever. 4-20-2019 8:11am
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          • That's a leap. You can embrace your kid's differences without taking notes on each delayed milestone 4-20-2019 8:13am
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            • Wait, I didn't say that I would "take notes on each delayed milestone." That's different that acknowledging that his brain works differently. My child is noticeably autistic, even...(more) 4-20-2019 8:16am
              with his high cognitive and verbal abilities. He's different.
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              • No one is saying our kids aren't different or that we should tell them they arent different 4-20-2019 8:17am
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                • Right, and I was not saying that we should "take notes on each delayed milestone." The reality is ASD kids aren't typical kids. They're different. 4-20-2019 8:18am
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                  • Just let it go. Parents can decide what is best for their kids. 4-20-2019 8:20am
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                    • LOL, okay. 4-20-2019 8:22am
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                    • or: I really don't get why people are arguing about this. 4-20-2019 8:23am
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                      • I think there is a miscommunication and best to move on 4-20-2019 8:28am
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                        • I don't know. Even the SN board on here can be a quagmire. The idea of writing down a funny incident to share with a kid later hardly seems like a shocking suggestion. 4-20-2019 8:36am
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                          • It's fascinating how people cant just disagree and move on 4-20-2019 8:39am
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            • or: JFC. If that's how you see things, that's how you see them. In my household, this would be a warm story I would share later. It's about progress. And it's funny. 4-20-2019 8:22am
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              • ITA. OP seems defensive. 4-20-2019 8:22am
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                • I don't even know if it's the OP, but someone sure is. 4-20-2019 8:24am
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                  • Maybe it's one person, and maybe it's not the OP. 4-20-2019 8:27am
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                    • No clue. But I a with you--I was really surprised by the strong reaction. I mean--it can be easy to forget things like this if we don't write them down. 4-20-2019 8:28am
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          • My nephew is ASD and hates to be reminded of it. No need to keep poking him about it. 4-20-2019 8:14am
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            • I think you are misunderstanding what I'm saying. Acknowleding one's autism and how their brain works differently, is not "poking" him about it. 4-20-2019 8:16am
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              • That's up to the person with autism to decide, right? 4-20-2019 8:18am
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                • No, it's not. As parents, we talk to him about his autism and how his brain works differently. How the child then deals with it as an adult is his choice. You are mixing up the...(more) 4-20-2019 8:24am
                  idea of autistics advocating for themselves and parents acknowledging ASD children's differences. Which is not "poking them". There is a level of defensiveness in this thread that is suprising to me. Then again, there are so many people who hide their child's ASD dx, call it something else, etc. Which is not about the child, of course, it's about the parent's own insecurities and fears of stigma.
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                  • No one is saying we should hide diagnoses from our kids, but if someone with autism says you are bugging him with comments about how his brain is different, lay off 4-20-2019 8:31am
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                • or: instead of trying to have some rule or prove who is the most woke about autism, why not just let parents figure out what works. I suggested it because my kids love stories...(more) 4-20-2019 8:25am
                  like that. Hers apparently will be butthurt. What the fuck ever.
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                  • 100 percent 4-20-2019 8:27am
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                  • butthurt? woke? Are you a Trump supporter on sn? 4-20-2019 8:38am
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                    • *blink blink* 4-20-2019 8:40am
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    • That's great. My 15yo ASD would never be embarrassed. :( 4-20-2019 8:08am
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    • That's awesome:) 4-20-2019 1:24pm
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  18. Special Needs Question-- our NP recommended that my son get Executive Function support from a tutor. If you have a medical report that calls for that support, is there any way that insurance...(more) 4-20-2019 7:59am (22 replies)
    or anything covers the tutoring costs?
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    • Not in my experience 4-20-2019 8:01am
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    • Coverage depends on the medical code for services. In our case, no similar codes were covered. 4-20-2019 8:02am
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    • Your best bet is probably to call therapists who take your insurance and ask if they can work on this with him. 4-20-2019 8:03am
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      • what kind of therapist would this be? 4-20-2019 8:05am
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        • I would think any therapist could work on this stuff. It's just learning to have some structure to support functioning. If it's only affecting academics, you probably can't make...(more) 4-20-2019 8:07am
          it be paid by insurance.
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          • There are executive function therapists. But they won't be covered by insurance. 4-20-2019 8:11am
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          • No, most therapists have no training in this 4-20-2019 8:16am
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            • This. They know about it. But it’s very specific skills working with kids who know every trick to avoid doing what causes so much distress. 4-20-2019 8:21am
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      • There is a place in Brooklyn called Brooklyn learning center, I think. They have psychologists who do this- call it homework therapy. If you have good coverage for therapy, it may...(more) 4-20-2019 8:26am
        Work.
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    • I doubt it, because the usual scenario is the executive dysfunction is causing the kid to have bad grades, but still passing. A tutor is not a medical necessity, period. 4-20-2019 8:03am
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    • stickying and hope you get helpful answers. Since parents in the know will be responding- can someone describe what this kind of support looks like? We also just received this...(more) 4-20-2019 8:06am
      rec on 13 yo dd's NP report. Many tutoring services offer this "service" but I don't know how to figure out if they really know what they're doing.
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      • I used a woman rec’ by dd’s shrink. She was a retired public school teacher with an affinity for “reaching” kids w exec function issues and also had an adult dd w similar issue...(more) 4-20-2019 8:15am
        16yo dd went to her house 1x week, and they went over schedules online and in her agenda book, diacussed due dates and made sure dd was definite on what needed to be done and when, and then some hw right their, so the tutor could see where she was having trouble. Tutor also was the point person for contacting teachers, not me. Much of what went on was exactly what I had been doing with dd for 2 years, unsuccessfully. She said that was typical. But taking the parent out of the mix seemed remove the emotional component that shuts down some kids before they even sit down at a table. In our case, dd would cry when I said “how about a snack, relax, and at 4:00 let’s start looking at the week’s HW”. Dd was eager to please this woman and grades/attitude/self-esteem soared.
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      • Definitely get recommendations from other people- it can be a waste of time 4-20-2019 8:23am
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    • No 4-20-2019 8:11am
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    • One idea is to find a SLP that specializes in this. We are lucky to have very comprehensive out of network benefits and our insurance covers speech therapy very well. 4-20-2019 8:25am
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      • What has that got to do with speech?! Why would a speech pathologist have a sideline in executive dysfunction coaching? 4-20-2019 8:27am
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        • There are a lot of SLP who do language tutoring (reading and writing). I think there are some who have also become interested in EF and developed competency in this area....(more) 4-20-2019 12:58pm
          Honestly, what does a teacher know about this either? I don't think most learning specialists even know that much.
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          • ^^^^Meaning that people can come from diverse backgrounds and do well at this (and SLT is one area that is reimbursed by insurance). 4-20-2019 1:00pm
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    • You can get at home SETSS support. 4-20-2019 12:46pm
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      • how?? 4-20-2019 12:57pm
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      • Through an impartial hearing. If your ds cannot do homework on his own, he is not accessing the curriculum. 4-20-2019 1:22pm
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  19. Special Needs Speaking of autism...what do you think about the movement that seems to be happening celebrating autism, and not seeing it as a bad thing? My older ds has autism, and it is...(more) 4-19-2019 12:44pm (28 replies)
    defini8tely NOT a good thing. I would give anything to have him not have it.
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    • i think parents want what is best for their kids. which should include in large part celebrating as much as possible, including whenever possible, advocating for our kids,...(more) 4-19-2019 12:47pm
      teaching them skills in a way that builds confidence.
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      • True, but this doesn't require celebrating autism, imo. Autism sucks, at least for my ds. 4-19-2019 12:47pm
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        • you play the hand you are dealt. and yes while things are difficult, children still want to feel nurtured and important. 4-19-2019 12:48pm
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          • np - of course you do. but if ds was bipolar i wouldn't be celebrating that either. i'd celebrate things specific to my child's accomplishments -- learning to ride a bike, playing...(more) 4-19-2019 12:49pm
            piano, being good at math....
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            • i dont know if autism and bipolar are directly comparable for a lot of reasons. 4-19-2019 12:51pm
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              • they are both diabilities i would not choose for my child, but would deal with if they came -- no different than if he had CP, intellectual disability, cancer, etc. 4-19-2019 12:53pm
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    • I like it. What else can we do. We ha e to live with it. 4-19-2019 12:48pm
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      • But it's kind of like celebrating deafness, or blindness. No, those are NOT good things! Yes, we help the person with them all that we can, but they are disabilities. 4-19-2019 12:49pm
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        • We are celebrating uniqueness. 4-19-2019 1:06pm
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        • actually to the people who are deaf or blind they may not see it as a bad thing but a part of them 4-19-2019 5:05pm
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        • I disagree. Many in the deaf community are anti-cochlear implants because they celebrate their deafness. When discussing a potental cure for my daughter's visual impairment she...(more) 4-20-2019 7:33am
          said she hoped no one wanted to "cure" her since there is nothing wrong with her.
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    • I'm with you. I'm not celebrating something that has made life harder for ds, his sister and the rest of our family. 4-19-2019 12:48pm
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      • THIS. Maybe if your kid has high functioning autism like Bill Gates - where they do great in school, but have slight social problems - it's not such a big deal. But my kid is...(more) 4-19-2019 12:50pm
        supper aggressive and violent at times.
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        • Bill Gates is not autistic. I have a kid who would be considered low functioning although that term means little who I celebrate. i think the movement especially its involvement...(more) 4-19-2019 5:11pm
          with autistic adults is great
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    • I think the celebration of “differences” across all parts of civilization has swung to some ridiculous extremes. But it’s still a minority who thinks that imo. There are things...(more) 4-19-2019 12:53pm
      that are detrimental to have and praising them as some kind of achievement is patronizing. I’m thinking of Deaf culture extremists, etc. And fat acceptance - obesity isnt a moral failing but it’s also not a wonderful thing for anyone to have, especially young people. It’s a tightrope kind of thing too. Acceptance doesnt mean something is great. That’s my 2¢.
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      • I agree. Acceptance, yes, but not celebration. 4-19-2019 12:54pm
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    • good question. my niece has autism. i wouldn't say my sister "celebrates" it but she recognizes and is proud of her unique strengths (i.e., her unique view...(more) 4-19-2019 12:54pm
      of the world).
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    • People are just trying to cope. 4-19-2019 1:04pm
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    • Autistics (and others like parents) who are a part of the movement or support it are not saying everything is perfect or that they don't need support. They just do not want to be...(more) 4-19-2019 5:08pm
      seen as tragedies or be told what they are must be removed
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      • IMO, it is a tragedy. 4-19-2019 5:30pm
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        • This post has been deleted. 4-19-2019 5:38pm
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          • People who have been marginalized and stigmatized often have developed a “pride” movement...(more) 4-20-2019 8:31am
            This is no different from LGBTQ pride, Black pride, etc. It is a part of the disability rights movement. People are accepting themselves as different and highlighting the positive aspects of something which others define as a negative. Those of us on this board who are neurotypical have absolutely no right to comment on it.
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            • I recommend following The Thinking Person’s Guide to Autism and #actuallyautistic 4-20-2019 8:59am
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              • I tried #actually autistic, and hated it. I know it's different for everyone, but in my world (with my ds) it is absolutely horrible (for him and for us) and is NOTHING to...(more) 6 hr 29 min ago
                celebrate.
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            • It's very different -- being black or a lesbian isn't a disability. 4-20-2019 10:57am
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    • in my early years in this world I thought it was a tragedy that my dc has asd. Back then I was very firmly in the Light It Up Blue world. But, as the years have gone by, I've been...(more) 4-21-2019 10:46am
      able to see more and more that is amazing in my dc and some of that is entirely due to autism. Sure, asd sucks. Big f'ing time. We've been through some serious crap as a family thanks to asd. But, my dc is a person who will eventually be an adult with all sorts of characteristics, not all of which are mainstream acceptable. As I've come to accept this, I've switched to the RedInstead world of autism acceptance, not awareness, as we need our asd kids to be accepted not viewed as waiting for cures. That said, if I could wave a magic wand and make my dc totally nt, hell yes.
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  20. Special Needs Does anyone know what's going on with Rebloggingdonk? 4-18-2019 11:02pm (0 replies)
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  21. Special Needs DF's son just got diagnosed with childhood leukemia. Can anyone suggest any resources that I can put her in touch with for support? tia 4-18-2019 10:29pm (10 replies)
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    • Anderson. Cleveland. Childrens Hospital. 4-18-2019 10:31pm
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    • I am so sorry. I wouldn’t try to tell her where to look for support unless you have personal knowledge. Hope dc will be OK. 4-18-2019 10:31pm
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      • OP: I am a psychologist by profession but don't have experience with leukemia 4-18-2019 10:33pm
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        • every oncology ward has a team of people to support her. social work, support etc. let them guide her. you stay out of it. 4-18-2019 10:34pm
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          • Ita. This day and age, unless she doesn’t speak English or something, not sure why you would need to insert yourself. 4-18-2019 10:36pm
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    • this would depend on what type of leukemia. some have great survival. Others dismal. wouldn't want to put her in the wrong support group. 4-18-2019 10:32pm
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      • OP: It is the most common form and prognosis is very good. 90 percent survival rate. Still there are no guarantees and the chemo is brutal 4-18-2019 10:33pm
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        • if she just got diagnosed like within days, they don't have all the information yet to give prognosis. prognosis of the most commone type can vary wildly depedning on genetics of...(more) 4-18-2019 10:36pm
          the leukemia and day29 bone marrow results. only then can prognosis be given. riht now they are just quoting general. more information has to come. genetics usually takes 7-10days.
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    • There’s a listserve on pediatric leukemia...(more) 4-18-2019 10:39pm
    • Where is the family? What hospital are they going to? 4-21-2019 1:19am
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  22. Special Needs Adolescent ER's that can handle diabetes? NYC Thanks. 4-18-2019 3:40pm (9 replies)
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    • cornell 4-18-2019 3:40pm
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      • Do you mean Payne Whitney? Do you think they could manage the diabetes part as well? 4-18-2019 3:42pm
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        • you need psych? cornell can handle psych too I think. 4-18-2019 3:43pm
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    • There are ERs just for adolescents? 4-18-2019 3:41pm
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      • NYU comes to mind 4-18-2019 3:42pm
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        • Have they got one? They didnt used to. We’re downtown and even though all our drs are at NYU, peds said Beth Israel or St Vincents for ped ERs. Neither exists anymore! 4-18-2019 3:44pm
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          • NYU has one 4-18-2019 3:45pm
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            • Thanks, all. Sorry not to be clear: pediatric ER for psych reasons, but ds also has diabetes. 4-18-2019 3:57pm
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    • columbia has a diabetes center - maybe start there? 4-18-2019 4:30pm
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  23. Special Needs Anyone read Gary Shteyngart's Lake Success? He describes the emotions of the parents of an ASD kid so vividly, but he says it's not his situation. 4-18-2019 11:15am (2 replies)
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    • No, but I want to read his “Little Failure” 4-18-2019 11:29am
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      • Enjoyed that one. 4-18-2019 11:46am
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  24. Special Needs Parent Presentation in Hoboken on Tuesday, April 23rd at 7 pm...(more) 4-18-2019 10:29am (0 replies)
    This will be a great talk for parents: Hoboken Public School District's Passport to Adult Learning Speaker Series on Tuesday, April 23 at 7 pm. Michael Delman, CEO of Beyond BookSmart, will share insights with parents from his new book, Your Kid's Gonna Be Okay. Proceeds go to fund after school activities for students. Tickets are here: http://bit.ly/2TPql8V
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  25. Special Needs Has anyone used a "crisis intervention team" in your home? Like YAI or Bellevue. Dc is 17 and we are on the brink. 4-18-2019 9:09am (7 replies)
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    • zucker hillside is known for mental health crisis center. 4-18-2019 9:10am
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      • ^^^ and yes, but for my adult SIL. she refuses treatment though. 4-18-2019 9:11am
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    • Yes. Two friends I know. One took the son directly to a posh rehab center (he attempted suicide) and the other sent daughter to a light in house rehab. It was the right move...(more) 4-18-2019 9:11am
      fo both. The girl was taken in the middle of the night by force.
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    • One thing to keep in the back of your mind is you can use Children’s psychiatric services at Bellevue until age 24 - rather than with adults. 4-18-2019 9:19am
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      • I know that I cannot convince dc to go. He will resist treatment and become aggressive. If they come, and provide in home services, it might work. 4-18-2019 9:23am
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    • we did, in westchester. my son was over the age of 18, resistant to any kind of treatment, we thought this would help. it did not. but that's not to say that it wouldn't help you. 4-18-2019 9:28am
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    • we haven't but I'm sorry you are going through this. It could happen to us in a few years... 4-19-2019 5:50pm
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