Special Needs

  1. Special Needs You know how in mommy hood you are often friends with your kids parents. Or, that becomes your social circle. Well, my son is ADHD and immature and doesn't have many friends....(more) 39 min ago (17 replies)
    That's ok> BUT, I can't help but think we also don't have a big social circle. I hear about families on soccer teams and baseball teams all getting together for BBQ's and stuff. Our son is too immature and uncoordinated for many sports.
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    • if you were in Westchester we'd be friends 38 min ago
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      • I wish - I am in North Carolina, was in NYC. 38 min ago
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        • don't blame your dc.. 37 min ago
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          • I am not blaming him. I just noticed the shift this year. Less friends calling, less bday invite. Less me seeing people. 36 min ago
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        • he'll outgrow some of it. my ds is (slowly). He's almost 8 and I feel like we can do a bit more now than maybe a year and two years ago. 36 min ago
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      • how old is your son. Mine is 10. I've noticed in the last year he "lost" a lot of fiends b/c they became more into sports. 37 min ago
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        • Same. My ds is 9. Even my sweet neighbor so into sports and having less patience for my quirky kid 36 min ago
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    • I get that. But you will find your circles. And know thst in those circles is so much petty crap you are dodging a lot of drama 38 min ago
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      • This. You should thank your ds 34 min ago
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    • Try not to feel this way. I do not actually like 99% of my "mommy" friends but suffer through for my kids 38 min ago
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    • Do you want that? I hate events like that, do it occasionally because that's what people do but have maybe 2 moms I'd call actual friends. 37 min ago
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    • My social circle became all only SN parents because they were the only ones who got it. Can you seek some out? 36 min ago
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      • we have 1 SN parent friends. Other than that how do I find them. 34 min ago
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        • Where are the places SN families might gather near you? Speech therapy office, SN friendly afterschool classes, at school... 33 min ago
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    • Please. it is my adhd daughter that finally has the circle of friends and I love the moms. Is he medicated? Do you put yourself out there at school functions? 23 min ago
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    • Does your son do any activities or sports? My adhd and immature dd does activities and I do not think really brings us down socially. 22 min ago
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  2. Special Needs I would like to apply to Rebecca school. Anybody done this or input? 9 hr ago (2 replies)
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    • The admissions director is super nice, I would just call her tomorrow and ask about starting an application. 6 hr 41 min ago
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      • Yes call Liz. She is lovely and will help 5 hr 40 min ago
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  3. Special Needs Https://www.cascade.org/node/30514...(more) 9 hr 21 min ago (0 replies)
  4. Special Needs Anyone have a child who takes a very low dose of buspar or klonopin for anxiety if not able to use an SSRI? 20 hr 25 min ago (0 replies)
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  5. Special Needs Can someone please help me with meds question? I have an 8 year old DS and he just started ZOloft about three weeks ago. (ADHD + anxiety). He's gotten better with reglation but...(more) 22 hr 49 min ago (24 replies)
    worse with anger and defiance. We tried an ADHD med today per MD and that has been the worst disaster ever - anger, rage, etc. Is there a med that will help the irritability and the rage?
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    • What ADHD med? 22 hr 48 min ago
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      • amandatine 22 hr 41 min ago
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        • is that just for the regulation or should it help with the inattentive? i have an adhd kid but on diff meds. also, what sort of doctor is prescribing? dev ped, neuro psych, etc 22 hr 36 min ago
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          • psychiatrist. It's for regulation but the new med was for the inattentive and irritability 22 hr 32 min ago
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    • Get him off the meds, imo 22 hr 47 min ago
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      • Why? 22 hr 47 min ago
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      • op: why do you say this? 22 hr 41 min ago
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    • i don't know how it interacts with zoloft, but we use quillivant and it's really taken the defiance out of 7 yo. It's liquid concerta (ritilin) but formulated a little...(more) 22 hr 47 min ago
      differently so it stretches out over a long period of time and he gets a more even medication
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      • Interesting. 22 hr 40 min ago
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      • Does your DC have anxiety? 22 hr 36 min ago
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    • Is he hyper/impulsive or just inattentive or both? 22 hr 46 min ago
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      • He is inattentive and cannot regulate his body. 22 hr 41 min ago
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        • ^ earlier this year the anger started. It's very bad. 22 hr 41 min ago
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          • My DD had rages and abilify was what helped her regulate herself. She was older when she took it, though. 20 hr 34 min ago
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    • what's the adhd med? i would call the doctor asap to talk about this. i'm not sure zoloft is the right med for him and it's hard to tell with the ADHD med this early. 22 hr 39 min ago
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      • OK thank you 22 hr 37 min ago
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        • ^ it's amandatine 22 hr 37 min ago
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          • our dr has always asked us to call immediately if we feel there's an issue with a new med or dosage. good luck and please keep posting back about how ds is doing 22 hr 31 min ago
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    • Dd takes focal in and Zoloft. We had to try every ADHD med before we found that 22 hr 6 min ago
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    • A antacid is NOT for ADHD. Get a second opinion. 21 hr 36 min ago
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      • Oop- amantadine 20 hr 43 min ago
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        • This drug was meant for Parkinson's but has been helpful for ADHD in kids and adults w/adhd and some depression. Google it. Has been around a long time and considered quite safe...(more) 20 hr 35 min ago
          but that does not mean it is right for your child. Please tell dr. but don't panic.
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    • Abilify is a drug that addresses rage. My adhd child is very dysregulated as well. We waited years to try stimulants because we wanted to be med free. First stimulant made...(more) 20 hr 28 min ago
      things worse, second (vyvance) was the key. Added abilify @ 16 mos later when rage/defiance was out of control. Gave it tremendous consideration first, but has made a big difference. SSRIs can *activate*manic, aggressive behavior in some people. Find a psych you trust who is willing to try whatever needed until you find what works. GL.
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    • I would take him off Zoloft. That's a common side effect for young kids on ssris 10 hr 4 min ago
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  6. Special Needs Update on SAT with teenager who has anxiety:...(more) 7-23-2016 5:44pm (2 replies)
    My daughter got a 720 on history SAT 2 test—so happy. This is mom to teenager with anxiety who superscored 1350 on new SAT. Thanks for all your support; she is taking SAT again in October and will be applying to Georgetown this fall.
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    • yay 7-23-2016 5:44pm
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    • Congrats to her! 7-23-2016 5:45pm
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  7. Special Needs This post has been deleted. 7-23-2016 1:13pm (0 replies)
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  8. Special Needs Ds is off meds for summer - doing some testing next week to tease out any other LD's. Need to have on meds for testing. Who bad is it to be off meds for a month, go on for a week...(more) 7-23-2016 9:20am (4 replies)
    and then off for another month till school starts? Any advice? It's 10mg of Focalin XR.
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    • 10mg is such a low dose it isn't a big deal at all imo. My ds is on 20mg of Focalin Xr now, and that is still al ow dose. 7-23-2016 9:20am
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    • It wouldn't be for vyvanse, which is what my Ds takes. Is focalin in that same category? 7-23-2016 9:21am
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    • You can go on focal in and off day to day 7-23-2016 9:23am
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  9. Special Needs My ADHD 10 year old is doing so great this summer w/out meds. Takes Focilan 10mg. XR. He's doing a sport camp and doing great, calm in the mornings, etc...this child during the...(more) 7-22-2016 6:12pm (14 replies)
    school year is so hyper some mornings I can't wait to give meds. Maybe is growing up and out of being SOOO hyper a bit?
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    • I'm doing a med free summer with 14 year old ds, but I also understand that the things he does in summer are more enjoyable and active. 7-22-2016 6:13pm
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      • Yes, this too. Lots of swimming and playing. BUT, my child was so impulsive and hyper we had to medicate last two summers 7-22-2016 6:14pm
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        • Same. I also noticed he's sleeping better, which helps. I'm putting him back on next week, because school starts the first week in August. 7-22-2016 6:15pm
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          • op: sadly, i have to put on next week due to some testing for his LD. But then want to take him off again. Wonder if that's a bad idea to be on and off 7-22-2016 6:15pm
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    • It's school stress. Not ADHD 7-22-2016 6:14pm
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      • my child does have ADHD...for a fact. confirmed 7-22-2016 6:14pm
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        • np: I have it and so does DD but DD only medicated for school, not summer and weekends. I only take meds for big projects. People learn to deal with it and for many the hyper part...(more) 7-23-2016 12:58am
          goes away to a large extent. The distractibility/focus part usually remains but is mostly an issue at school/work.
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    • i know this isn't possible for everyone, but i get my adhd child up an hour early during the school year and we go for a run/walk/bike ride/walk dogs. really and truly helps him. 7-22-2016 6:14pm
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      • is he on meds? 7-22-2016 6:15pm
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      • ^^^and please, i didn't mean this to replace meds (we medicate) but it definitely helps us both and and super cruddy mornings where it's not possible, we notice a difference 7-22-2016 6:15pm
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        • I know what you meant. Some kids are mild hyper and a bit of working out before school can calm them. Not my child. 7-22-2016 6:16pm
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    • The absence of a stress-inducing thing like school cause my 2 to act utterly difference. Calm, cool, upbeat moods. And theyre teens. 7-22-2016 6:21pm
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      • academic demand can be very different than camp demands. Kids may be better able to attend at camp without rigorous academic curriculum 7-22-2016 7:21pm
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    • He is also active and not being asked to sit still and focus on something he isn't interested in....(more) 7-23-2016 12:55am
      However many kids do mature out of the impulsive/hyper part of adhd.
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  10. Special Needs This post has been deleted. 7-22-2016 6:06pm (4 replies)
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    • What skills in particular? Mine learned everything necessary in center based. 7-22-2016 6:08pm
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      • This post has been deleted. 7-22-2016 6:10pm
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        • This is the saddest fucking post. 7-22-2016 6:15pm
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          • What did it say before it got deleted? 7-22-2016 7:39pm
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  11. Special Needs Looking for present or past Cpelc parents? What's the school like? positives/negatives appreciate all feedback 7-22-2016 6:02pm (3 replies)
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    • Former CPELC mom: meh....(more) 7-22-2016 10:55pm
      Beth, the principal, is a piece of work. When we asked for a speech eval or more sensory OT she never responded, for months. They also removed PT from the IEP without asking us. And they stood in the way of a 12 month IEP, which we needed. Zero guidance was needed, and instead Beth obstructed us even when therapists told us DD needed more help. We had to ask our lawyer for help to make sure there was an IEP reconvene. Meanwhile our DD lost out on 1.5 years of speech therapy she should have received. Our signature was forged (yes, you read that correctly) on the IEP. Some people love CPELC, and there are some good teachers there, and DD did learn to like school from being there. But really, the principal is a piece of work. And I blame her for standing in the way of more intervention for DD which could have put her in a better place than she is now at age 6.
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    • We had a great experience both with CPELC and wth the director two years ago. Director offered to hold a pendency space for our dc (v. helpful since December birthday meant dc...(more) 6 hr 2 min ago
      would be among youngest + developmentally delayed in K, and had meant that dx came late enough that dc had only one year center-based). We didn't end up needing the spot. Beth was also very helpful in giving her assessment of dc's K-readiness. We knew our dc best but people with many years' experience in CPSE schools have seen way more kids that age than we have. DC had a great teacher experience. IEP was for 12:1:2 integrated but after a first very unsuccessful day there dc was moved to 8:1:2 for the summer --- which got dc ready for the 12:1:2 integrated class in the fall. Speech - we saw a lot of progress in the year+ dc was there. I can't speak as much about the O/T - it seemed fine but at the end we had someone inexperienced who didn't seem on the ball. DC didn't get PT, but did do the after school weekly soccer class which was really good. Kids get outside a lot in the summer program but much less so in main school year.
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    • My DS went to CPELC 9 years ago. We had a mostly positive experience there. His 1 teacher he had for 2 years was very good. Loved the the staff, great location, trips and...(more) 5 hr 34 min ago
      activities. I was not thrilled with the director and was promised an integrated class his 2nd year that never happened but all in all I was very happy there as was DS.
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  12. Special Needs How far in advance do most people book an extensive NP eval with someone popular, like Salsberg or Janine POllack or the like? TIA 7-22-2016 3:00pm (9 replies)
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    • Long 7-22-2016 3:02pm
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    • Pollack books up 6-9mo in advance and she is pretty alone in that. With the majority of other neuropsychs, you should be able to get them within a month of 6 weeks. It definitely...(more) 7-22-2016 3:06pm
      does get more crowded if you wait until the fall though. If you are talking about a kid who needs a report for spring 2017, there's no reason not to call around now and see how people are scheduling.
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      • thank you. 7-22-2016 3:21pm
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        • salsberg has ateam so you should be able to get in. I have used twice--like him and others in the office a lot! Wouldn't want anyone else testifying at a hearing if it becomes...(more) 7-22-2016 7:22pm
          necessary
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          • Dr Tagliareni in his office came to the IEP meeting and basically won a dererral. She was amazing! can't reccomend her highly enough. 7-23-2016 3:27pm
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            • Can you request one or the other? Do they test or post doc interns? DS is pretty complicates. He is really smart but has significant challenges that get in the way. I need someone...(more) 23 hr 15 min ago
              Who is excellent with getting the most out of the child to truly assess his strengths and not just the weaknesses. And to also get a more accurate idea of IQ. He has a lot of language processing deficits so all these language based assessments are not reflecting what he actually can recall
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              • My dc is similar. All testing fone by full PHds. Dr. T worled with my daughter with another associate who did some of the testing alone but got a fantastic read on my child and...(more) 20 hr 33 min ago
                was unbelievable with the school and DOE tried to refuse us services. She was literally the game changer and the way she advocated for dc at the IEP meeting could not have been stronger or more on target with regard to who dc is and using her test results to support her needs. You can ask them any questions and voice concerns. They are very open. Report was excellent and much more comprehensive then our previous NO, done by someone regularly recommended on this board.
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                • ^^^^oops....meant, previous one, not NO. 20 hr 15 min ago
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          • Np: what was the big difference seeing him when DC was older? Mine is now 9 and...(more) 23 hr 13 min ago
            And I think I was to do another.
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  13. Special Needs 2 more weeks until neuropsych feedback meeting and I'm driving myself crazy. 8yo ds, prone to emotional meltdowns, anxiety, depression, slight attention issues, lacks social...(more) 7-22-2016 2:55pm (11 replies)
    skills, so uncoordinated he can barely write. Such a quirky, yet very bright, kid. What on earth is she going to tell me???
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    • Sounds like my child. She has dyspraxia, dyslexia, ADHD 7-22-2016 2:57pm
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      • OP: Dyspraxia for sure. Super surprised if this isn't at least one of many dxs though. 7-22-2016 3:13pm
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    • Could be NVLD or aspie not ADHD 7-22-2016 2:57pm
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      • disagree. could be adhd 7-22-2016 2:59pm
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        • You can disagree. I said COULD BE. Sure, it could be ADHD. It also fits into the profiles I mentioned too. 7-22-2016 2:59pm
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      • OP: I thought NVLD too, but his school psychologist says that's "not a real dx", meaning not in the dsm 7-22-2016 3:10pm
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        • then could be mild ASD; could also be ADHD with some anxiety. Sit tight - you'll have answers soon. Nice to have a game plan once you know. 7-22-2016 3:20pm
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    • That pretty much describes my mild autism ds 7-22-2016 3:28pm
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    • I found it very very hard to see it all in back and white, even though it was all stuff I knew (just like you do). it could be lots of things. LD, ADD, anxiety. probably some...(more) 7-22-2016 3:29pm
      combo of multiple things.
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    • More important than the labels/diagnosis are the recommended interventions. Good luck!! 7-22-2016 3:33pm
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    • OP: Thank you kind people! Trying to prepare myself for what I might hear. He is already in OT, social skills group and CBT. Not even sure what interventions are left. 7-22-2016 10:24pm
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  14. Special Needs 13 yo DD is having lots of social issues related to adhd, poor impulse control, getting into conflicts over tween staff because she can't self censor when anxious over friendships...(more) 7-22-2016 12:38pm (43 replies)
    related things. A really sweet kid who is just having a very hard time. I know it is late in the season, but can anyone recommend a good social skills oriented day camp for tweens. We are in NYC. Thanks.
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    • I have no suggestions for camps. Have you looked into altering his diet? 7-22-2016 12:40pm
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      • her diet, it's DD, yes...another ongoing issue which we are not able to deal with at this moment. Struggling with other things. 7-22-2016 12:41pm
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        • I get it. And good luck! 7-22-2016 12:42pm
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      • np - besides the fact that she said dd, how does one alter the diet of a tween? especially an impulsive one? 7-22-2016 12:41pm
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        • Sometimes, removing certain foods can help. I was trying to weigh in how I cold. I respect OP to make whatever decisions she wants and needs. I have NO skin in this game. 7-22-2016 12:43pm
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          • What does DD mean? Thanks 7-22-2016 12:46pm
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            • dear daughter, not ds 7-22-2016 12:47pm
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    • The ones recommended to me were Josh Rosenthal (we did not love him) and Norma Doft. Don't know if they do one day things. You could ask NYU child study center for recs 7-22-2016 12:41pm
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      • why didn't you like Rosenthal? 7-22-2016 12:45pm
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        • It was a large group and he just seemed to work off a script. He gets recommended a lot though, so maybe he's better for other kids. 7-22-2016 12:52pm
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          • I didn't have him but someone else and they had a set series of classes. Many didn't fit my child's needs. Take a hard look at what it is and see if it fits your child 7-22-2016 1:49pm
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    • I'm not in NYC, but my now-8 yo attended saturday social skills in Mamaroneck. If you have a car, so worth the hike. I don't know if she goes all the way up to 13 yo, but...(more) 7-22-2016 12:42pm
      she's a life-saver. Call her and see if she can recommend anything closer to you. I can't say enough about how she helped my ds, who sounds so much like yours.
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      • ^^^^sorry...(more) 7-22-2016 12:42pm
        • Thanks! Will call today. 7-22-2016 12:43pm
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          • poster below w/ 11 y/o: If she recommends someone in NYC, will you post back? I'll sticky. TIA 7-22-2016 12:44pm
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            • Ditto. 7-22-2016 12:45pm
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            • actually - I'm the person who tried the social skills group. I was thinking of doing private sessions with the social worker at Rosenthal's office. Would you consider that? 7-22-2016 12:46pm
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              • You may as well do CBT with a real therapist (PhD). Social Skills needs another kid 7-22-2016 12:47pm
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              • Yes (mom of 11 y/o here): I met w/ someone in his office a few weeks ago and I think I'm going to try that route. I'm sort of at the end of my rope and have tried many therapists...(more) 7-22-2016 12:47pm
                and meds.
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                • would you consider doing a dyad? 7-22-2016 12:50pm
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                  • Op again - just saw this...you mean with 2 kids? I would consider? 7-22-2016 12:53pm
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                    • sorry...did not mean to add ?....yes - I would consider. 7-22-2016 12:53pm
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                      • hmm. Wonder if we can get our kids together. Mine is younger but likes older kids. Haven't found options for overly eager kids who need social skills 7-22-2016 12:55pm
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                        • I would give it a shot. My DD actually has a really good sense of social awareness but just looses it when she gets anxious. Really sweet kid and generally good with younger...(more) 7-22-2016 12:58pm
                          kids...although not much age difference. Let's figure out how to connect...
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                          • Cool. Wanna create a fake email acct and I'll write you from my real one? 7-22-2016 1:03pm
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                            • I was just thinking this! Ok - give me a few minutes.... 7-22-2016 1:04pm
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                              • Op here: Ok.....here goes......(more) 7-22-2016 1:14pm
                                albite33166@mypacks.net
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                                • just sent it 7-22-2016 1:41pm
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                            • Ok...posted below but in case it got lost.......(more) 7-22-2016 1:25pm
                              albite33166@mypacks.net
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                              • will write soon 7-22-2016 1:25pm
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                                • Great. I'll respond:) 7-22-2016 1:30pm
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                          • Mom of 11 y/o DD here: Seems there are 3 of us! My dd is great with adults, but can't connect with kids her own age. Also, her ADHD leads to a lot of compulsive lying which...(more) 7-22-2016 1:03pm
                            alienates people.
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                            • DS is adored by adults, tolerated by kids, but will be in a new scenario soon and I want to make sure he is prepared 7-22-2016 1:06pm
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                              • My DD too. Starting middle school. 7-22-2016 1:07pm
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                • OP here, This is our situation too. yes - I think lots of dd's issues are anxiety related. On meds...but trying to get the right ft. Has a therapist but is not very enthuastic...(more) 7-22-2016 12:52pm
                  about therapy, have been to many also. Sticky this and I will post back.
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                  • Np: all ADD's awful behaviors were due to anxiety. Generally sweet, quiet, friendly, social, considerate, obedient - except when anxious. Then, yikes! Vicious, cruel, angry,...(more) 7-22-2016 1:14pm
                    foul-mouthed, lunatic. Thanks to zoloft we dont see that much anymore.
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    • I don't know. We did the Manhattan Psychology Group group sessions and they are more designed for shy kids, not adhd type puppies 7-22-2016 12:42pm
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    • I could have written this (and have!) about my 11 year old. But I need something during the school year too. 7-22-2016 12:42pm
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    • I think that's a little old for social skills class if the dx is adhd (and I assume anxiety is part of the dx). Is she medicated? My older dd never had a social skills issue but...(more) 7-22-2016 12:43pm
      when her anxiety was bad, so was her impulse control, and as her shrink said "her first instinct is to enact a scorched-earth policy, and of course her peers arent very forgiving". Is your dd taking medication?
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      • OR above - sociable kidz in Westchester goes through middleschool. it's a tough age 7-22-2016 12:46pm
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        • That's good. Just saying if social skills are the root cause, and anxiety/impulsiveness is, a skills class may not be the thing. It's a heinous age! 7-22-2016 12:50pm
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          • ^dammit! "Are NOT the root cause", I meant to say^ 7-22-2016 12:51pm
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      • OP- I can totally relate to this. Posted above, very similar situation. Thanks for sharing:) 7-22-2016 12:59pm
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  15. Special Needs How many of you are reading this story about the ABA therapist shot while trying to protect his adult patient with autism with as much dread as I am? The police officer admitted...(more) 7-22-2016 11:46am (13 replies)
    he was trying to shoot the man with autism. For playing with a toy truck and not following his instructions.
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    • I have watched the video several times. He wouldn't have shot the therapist if he was white. 7-22-2016 11:47am
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      • are you saying that he saw a black man and deliberately shot him because he hates black people? 7-22-2016 11:51am
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        • np: it's more complicated than that. he was running on instinct and adrenaline. when that happens you rely on instinct and that is formed over years of bias and prejudices...(more) 7-22-2016 11:52am
          ingrained,
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          • i agree it's more complicated. i think all the people being quick to judge aren't giving enough credit to that. and honestly, i don't see anyone coming up with real suggestions...(more) 7-22-2016 11:57am
            on how to fix it. me sitting here in my own home, watching a video after the fact, when i have all the information before seeing it, it's very easy to judge.
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            • yep. because who would you not hesitate to call if you need help or are in danger? the cops 7-22-2016 11:59am
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    • he looked so non threatening. just sitting there slouched and playing with his toy truck, so obviously not a weapon. 7-22-2016 11:48am
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    • It is horrifying. His hands were up. What else can he possibly do short of shooting himself? 7-22-2016 11:48am
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    • Nothing about this story makes sense - including the fact that the shooter (cop) isn't white 7-22-2016 11:48am
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      • And that they were responding to a call for suicidal person. They shoot a suicide? 7-22-2016 11:51am
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      • it makes sense: police overreact and are too quick to shoot. 7-22-2016 11:54am
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    • This was nuts. It is clear that no one should have been shot. You can even see in the video it's not a gun. AND the guy clearly explains its a toy truck. 7-22-2016 11:53am
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      • that cop has no self control and like many of these racist brutes with very little intelligence, he needs to be fired without benefits asap. he should be charged with attempted...(more) 7-22-2016 4:06pm
        manslaughter.
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        • OP: I was actually thinking that horrifyingly, it's a lucky thing that this happened - to give him a reason to be removed from the force before he killed someone, because that was...(more) 7-22-2016 4:13pm
          close to a sure thing.
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  16. Special Needs If you give your Dc ADHD meds and you have time to talk pls respond to this post. I really need advice. 7-22-2016 11:23am (28 replies)
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    • i do. what's up? 7-22-2016 11:24am
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    • Here. Ask away. 7-22-2016 11:26am
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    • I do too 7-22-2016 11:26am
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    • Sure. Hit me. 7-22-2016 11:27am
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    • Go ahead - I'll help if I can 7-22-2016 11:27am
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      • Op- thx guys. I have posted before. Started trying stims for 7 yr old on dec, been a rough road. Now he's on Tenex 1 in am half in pm. We did Genesight maybe a scam no idea and dr...(more) 7-22-2016 11:32am
        Said he does not respond to ADHD meds. Now she added Dexedrine 5 in am. Said that's the most recommended with his genetics. So he seems a bit better. School was a shit show just switched him to small private with iep I finally got. Dr wants to raise Tenex to full - at night and raise the Dexedrine another 5. I hate meds she said of it doesn't work try stratter and I heard horror stories. Pls tell me your experiences and is Genesight bullshut? Any and all advice would help.
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        • What is brand name of Dexedrine? 7-22-2016 11:33am
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          • Hmm I think it's the short acting strattera. We tried methylphenidate, Focalin, adderall, 7-22-2016 11:34am
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            • What happened on them? How long did you try each? 7-22-2016 11:34am
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              • He was very angry, physical, aggressive. The Focalin gave tics and I freaked out and none of them really made much difference in school. I am doing pcit now as therapy and he's...(more) 7-22-2016 11:36am
                doing better with positive reinforcement I'm just really nervous for school.
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                • All of them made him angry/Aggressive? How long were you on each (in general)? 7-22-2016 11:37am
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                  • The adderall was one horrible weekend. The Focalin was about 5-6 weeks. Tenex been a few months. 7-22-2016 11:39am
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                    • I think you need a new opinion/dr and to start over. The fact is that if he has ADHD he will need a stimulant for school. If he has tics on stimulants, it makes things so much...(more) 7-22-2016 11:41am
                      harder for him in the long run. My son took focalin for years until his body adjusted to it. After that he tried a few things that didn't work. he's now on Ritilan LA. The others made him aggressive, irritable. Try a new Psychiatrist to see what works.
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                      • Thank you. I think based on my minimal reading here are only two stimulants Ritalin and adderall and the different ones are the brand names or formulas and no matter which dr I go...(more) 7-22-2016 11:47am
                        To they will make me try the different ones. She's really good she just said he has a pretty severe case and we have to keep trying. As far as stattera when I searched it on here I saw some scary stories. I'm going crazy thinking of the effects of these meds long term and how he's so little.
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                        • Continue to try everything because each stimulant works differently for each kid 7-22-2016 11:48am
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                        • np: not entirely true. There are two classes within the stimulants. Those in the Ritalin family (like Focalin or Concerta), and those like Adderall (like Vyvanse). And if your DC...(more) 7-22-2016 2:55pm
                          cannot tolerate any stimulant, then you go to the non-stims like Tenax or Strattera. Another option is if he has underlying anxiety, consider even an SSRI at microdose to see if it helps. Sometimes the anger or irritability is actually anxiety or depression in a child/tween/teen. I agree with the other OR - get a 2nd opinion from a new doctor.
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                          • ^^and if nothing else, another doctor's perspective based on children with your DC's profile can really be helpful. Find a doctor who is well versed with kids who are more than...(more) 7-22-2016 2:57pm
                            plain vanilla ADHD.
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        • Never heard of any of those meds except starterra 7-22-2016 11:33am
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        • I have never heard of Genesight - Is that a stimulant? 7-22-2016 11:34am
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          • I'm sorry Genesight is some new test where they do swab and medication profile and based on genetics they can see which meds would work best. It's fairly new. 7-22-2016 11:35am
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        • You need a 2nd opinion 7-22-2016 11:34am
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        • I just wanted to let you know that I read this and wanted to be supportive but I just don't know enough. We started 8yo dd on concerta and it worked so I don't have anything else...(more) 7-22-2016 11:35am
          to contribute. The genesight is the swab that helps predict which med will work? I have not heard of this for stimulants.
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          • Yes it does all meds even Benadryl or pain relief 7-22-2016 11:37am
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          • Glad you found what works 7-22-2016 11:39am
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        • What kind of dr are you seeing? 7-22-2016 11:36am
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    • We started, but stopped bc of tics. Trying to figure out next step. 7-22-2016 11:33am
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    • Just seeing this. I spoke with my psych about Genesight...not bullshit but he felt it gave info about sensitivities and did not think it was worth doing. We resisted meds for a...(more) 7-22-2016 1:41pm
      long time. They can really help. You need to see a ood psych and try different things. It is a long process. Tenex is a blood pressure med that sometimes works, sometimes not. Find a psych you really trust and hunker down and try what he/she recommends and be open to switching and giving time as needed. GL. Hang in there.
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    • If you're still following: unfortunately with more nuanced/complex kids, it can take a while to figure out what works best. If you are concerned that the testing was a scam, try a...(more) 7-22-2016 2:53pm
      consult with a new psychiatrist, and just have him do the regular consult, meet DS, checklists, etc. and give his/her opinion on what he would prescribe. If you don't relish the thought of seeing another doctor - then your other option is to try upping the doses. If that doesn't work, you wean off the tenex and you add the strattera. For every nightmare case, there's others where it worked and was helpful. Every child is different and this is more complicated if you have a DC with sensitivities or fast metabolization or other factors which impact how the medication impacts them. Good luck!!
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  17. Special Needs Omg did I dodge a bullet. DC hasn't been to the dentist in nearly two years. Only one teeny cavity and he drinks a bunch of soda. I totally dropped the ball and relied on...(more) 7-22-2016 10:50am (10 replies)
    reminders . I HATE the dentist and had dh take him. He's pissed about doing this, but I don't care
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    • mom of the year goes to...... this fake poster! 7-22-2016 10:51am
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      • Not fake. Special needs board. Be mindful 7-22-2016 10:52am
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        • sn or not, not taking your kid to the dentist because you hate it isn't good, nor is drinking a ton of soda 7-22-2016 10:53am
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          • ita. especially for a SN kid--cut out the soda. 7-22-2016 10:54am
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            • Wrong. ADHD too. Caffeine helps 7-22-2016 10:55am
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              • and sugar is horrible for adhd 7-22-2016 10:57am
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                • No it isn't. 7-22-2016 10:57am
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                  • This post has been disliked 3 times. showomg moron mom alert. 7-22-2016 10:58am
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                • You know the sugar=hyper thing is a myth, right? 7-22-2016 12:24pm
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          • Time got away with me. I thought it was last summer. 7-22-2016 10:54am
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  18. Special Needs Desperate for help! 6yo with asd wakes up multiple times a night. we have tried clonidine, hydroxyzine, melatonin. what has worked for your dc? 7-22-2016 10:27am (13 replies)
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    • Clonidine worked, but maximum kid dose. 7-22-2016 10:27am
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    • is it a side effect of the medication? friend has same problem. have you tried no meds? 7-22-2016 10:28am
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      • no meds is worse. he's on guanfacine and takes that in the am. he can't settle at night and then sleeps for 2 hours and is up. we put him back down, he's up again. some nights 5...(more) 7-22-2016 10:29am
        times!
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        • what does doctor say? 7-22-2016 10:30am
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          • have an appt next week. she's hesitant to put him on the stronger sleep stuff, but none of us are getting any sleep and it's awful. mind you, he's fine all day long! it's mom and...(more) 7-22-2016 10:31am
            dad who are grumpy :/
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        • Can you focus on working on teaching dc to entertain himself/ put himself back to sleep? Maybe a timer so he can get up, set it, do XXX, and then go back to bed once it stops? 5 hr 59 min ago
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    • Look into magnesium supplementation. I haven't used on my DC but it greatly helped me with insomnia. I use magnesium oil which you can spray on dc's feet at bedtime, there are...(more) 7-22-2016 10:29am
      many other ways to supplement though.
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    • Is he on stims during the day? 7-22-2016 10:30am
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      • guanfacine/intuniv 7-22-2016 10:32am
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        • That shouldn't affect his sleep that much, frankly. Have you been to a sleep therapist? 7-22-2016 10:32am
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          • we just saw a sleep dr who said we're doing everything right. we thought maybe apnea but doesn't seem to have that 7-22-2016 10:33am
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    • We tried everything, nothing really worked. But he's 12 now, and he sleeps much better than he did when he was younger. Have to drag him out of bed in the morning, like a typical...(more) 7-22-2016 10:30am
      teenager. So it does get better.
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    • melatonin. we don't have to use it anymore but it helped get through a rough patch. 7-22-2016 12:24pm
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  19. Special Needs This post has been deleted. 7-21-2016 10:08pm (0 replies)
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  20. Special Needs I'm not doing well. I want to abandon everyone 7-21-2016 9:59pm (13 replies)
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    • Me too. I'm a mess. Going to doc tomorrow. Wondering if menopausal 7-21-2016 9:59pm
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      • I hope not for me. I'm 36 7-21-2016 10:00pm
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    • Don't go 7-21-2016 10:00pm
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      • Go where? 7-21-2016 10:00pm
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        • Towards the light 7-21-2016 10:03pm
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          • She's not suicidal 7-21-2016 10:03pm
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          • god you're such a fucking asshole. i'm sure you think you're hilarious. take 5 seconds to think about why you're cunt enough to make a suicide joke on SN. 7-21-2016 10:06pm
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            • This post has been disliked 4 times. showPlease don't swear on here 7-21-2016 10:06pm
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              • You should be banned at the IP level for this. You're trolling SN and did it below. Fuck you. 7-21-2016 10:08pm
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                • Op: it's ok, I'm ignoring her 7-21-2016 10:11pm
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                • I'm truly sorry. it wasn't nice and I won't again. Sincere apologies. 7-21-2016 10:20pm
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    • So see if you can. For a few hours or a day. Set it up and make it happen. You need a break 7-21-2016 10:02pm
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    • Look into respite services. 7-21-2016 10:08pm
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  21. Special Needs I like Teresa Guidice 7-21-2016 9:56pm (3 replies)
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    • You're posting on SN 7-21-2016 9:56pm
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      • np: and that's ok 7-21-2016 9:57pm
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      • Oh, sorry 7-21-2016 9:57pm
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  22. Special Needs This post has been disliked 4 times. showThis post has been deleted. 7-21-2016 9:55pm (6 replies)
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    • you're horrible. 7-21-2016 9:56pm
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      • Um why? 7-21-2016 9:58pm
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        • no evidence of either. people who speculate like you are complete assholes. 7-21-2016 10:00pm
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          • This post has been deleted. 7-21-2016 10:03pm
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            • you're trolling SN. PG, please ban this asshole. 7-21-2016 10:06pm
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  23. Special Needs Which language-based disability dn schools have best boys' sports for middle school? Preferably Manhattan. tia. 7-21-2016 9:29pm (5 replies)
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    • I'll say it....you can't pick a school based on this. You get in where you get in. there aren't that many lang based LD schools to begin with. Windward, Gaynor, Churchill, they...(more) 7-21-2016 10:07pm
      all have teams. But you have to get in. if you don't like the teams, you supplement with outside sports. DS played soccer and basketball at Windward (westchester) FWIW.
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      • Thank you. Was wondering about York Prep Jump Start or others. 7-21-2016 10:27pm
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        • York prep has sports teams, it's not a SN school, Dwight and birch also have teams, also not SN schools 7-21-2016 10:45pm
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          • Sorry, I don't know. Just am wondering for options in case gaynor, churchill and WW don't accept ds. ds is currently at small ms private. dyslexic but no other dx. 7-21-2016 10:55pm
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            • I understand that for a lot of boys sports are really important, including my own, but you can't pick a school based on this, and we are very fortunate that in NYC there are so...(more) 7-22-2016 12:14pm
              many options for sports outside of school. My ds is now back at mainstream school and last year played on two school teams and one outside travel team, same as when he was at Windward.
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  24. Special Needs How much screen time does your dc have per day? 7-21-2016 9:05pm (11 replies)
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    • A lot, and he's only 4... 7-21-2016 9:06pm
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    • oh man, today like 6 hours. so ahrd while on acation & it being teh summer 7-21-2016 9:06pm
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      • Is he adhd? 7-21-2016 9:07pm
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        • hell no. he goes to hunter, grat kid but a gamer & geek 7-21-2016 9:07pm
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          • This is special needs board 7-21-2016 9:09pm
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    • way too much during the summer, like 3 hours. 7-21-2016 9:07pm
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    • Waaaay too much this summer 7-21-2016 9:07pm
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    • My 5 yo has 30 minutes, 3 year olds none. They are in camp for 6 hours a day though. 7-21-2016 9:09pm
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      • He wakes up super early and watches tv ( no screens allowed in morning during school) but after camp wants iPod or tv for another hour total 7-21-2016 9:11pm
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        • I just make them play together while I make dinner, then it's bath and bed routine. 7-21-2016 9:12pm
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        • I think that's fine if he is active in camp all day (np) 7-21-2016 9:15pm
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  25. Special Needs Anyone give dc combo of stimulant and non? Dr wants to add strattera but he can't swallow. So we are trying dexedrine. 7-21-2016 8:57pm (7 replies)
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    • Have you tried putting the capsule on a layer of yogurt or pudding? Works for my dc 7-21-2016 9:15pm
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      • He somehow finds it and spits it out 7-21-2016 9:17pm
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        • So does he know he needs to take it? That also worked for my kid 7-21-2016 9:20pm
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          • No he's little he thinks it's vitamins right now 7-21-2016 9:23pm
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            • Well that's fine too. Tell him he needs the vitamin to grow steong 7-21-2016 9:23pm
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              • I'm just a little discouraged I did the Genesight test and it said he does not respond to ADHD meds. I don't know how valid this test is 7-21-2016 9:25pm
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                • hang in there. My DS who gags at everything is willing to swallow even large capsules as long as they are buried in a layer of yogurt to help it go down. He takes a big gulp of...(more) 7-22-2016 2:59pm
                  water with it too. I told DS it is a vitamin as well.
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