Search Results for ""speech delay""

  1. Special Needs Am a speech pathologist working with a family who is very resistant to an ASD diagnosis. They have been told several times that their ds exhibits signs, red flags, etc. but...(more) 10-21-2019 10:07pm (30 replies)
    they either discontinue therapy or insist he just has a speech delay. I'm now working with this family and they ask me at EVERY session whether I think he has autism. If you were this parent, what would you want from me? I've dodged the question twice but I don't think it's right or ethical to continue to do so. When they ask I just tell them that right now let's focus on improving social communication, we'd be doing the same intervention regardless of the label, etc etc. but eventually I'm going to have to give them my professional opinion.
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    • How old is he? 10-21-2019 10:08pm
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      • 3.5 10-21-2019 10:09pm
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        • Why don’t you tell her to see a developmental ped? 10-21-2019 10:09pm
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          • she's resisted this referral or an autism evaluation (which our district can easily do and has asked to do) several times 10-21-2019 10:10pm
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            • That must be very hard. I’m sorry for you, the parent, and the kid. 10-21-2019 10:11pm
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              • It will ultimately be ok. They are good, responsive parents and he's getting social language intervention. He's not a candidate for ABA right now due to some other health issues,...(more) 10-21-2019 10:16pm
                so really they're doing all they can do, even if they resist the label.
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          • that's my point. she doesn't want to have him tested and wants me to reassure her, but I can't. at the same time I want to keep the relationship and dialogue open so we can...(more) 10-21-2019 10:11pm
            eventually get there.
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            • Np you definitely shouldn’t reassure her. It is in his best interest to be tested. You can tell her that. 10-21-2019 10:14pm
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              • That's something good I can say. Thank you. I've just never met a parent this rigid before. 10-21-2019 10:15pm
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    • What do you think? What are his symptoms? 10-21-2019 10:09pm
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      • very little joint attention or reciprocal play/conversational exchanges, little sense of social boundaries, flapping, sensory, tantrums 10-21-2019 10:10pm
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      • he definitely has many characteristics 10-21-2019 10:10pm
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    • Tell them he does have some red flags for it, but you aren’t qualified to diagnose by any stretch. I think it would be fine to tell them they should seek that evaluation since...(more) 10-21-2019 10:11pm
      they obviously are concerned.
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      • they're NOT concerned! that's my point! 10-21-2019 10:12pm
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        • They are or they wouldn’t be asking you about it. 10-21-2019 10:13pm
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          • they are because they want to be told he doesn't have it...if I recommend evaluation they're going to cut off this relationship too, and he won't get any services. he'll be in...(more) 10-21-2019 10:14pm
            preschool after christmas so tempted to wait and see what feedback they get from the school that will hopefully back me up
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            • Are their ethics guidelines for your profession about this? Do you really think it is making that much of a difference to have therapy with you when he has these other issues and...(more) 10-21-2019 10:17pm
              parent in denial? Honest questions, things to consider.
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              • np - dx or no the kid needs speech therapy. op's responsibility is to provide services and recommend seeking dx's that relate to symptoms she works on, nothing more. 10-21-2019 10:23pm
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        • It sounds like they are concerned, but they can’t accept it. 10-21-2019 10:13pm
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    • You tell them that in your professional opinion only someone trained to adminsiter the ADOS can make that call. 10-21-2019 10:22pm
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    • Your professional opinion isn’t valid. You aren’t a Doctor/Psychologist. I doubt you administered a GARS and so your answer is “I focus on speech” 10-21-2019 10:27pm
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    • I think you continue with the answer that an autism dx wouldn’t change the therapy you give him. This might help them accept the inevitable diagnosis. But, another tactic would be...(more) 10-21-2019 10:33pm
      Answer a question with your own question. “This is the 3rd time you’ve asked me. Is there a reason you want my opinion?”
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      • As a psychologist, my perspective on this is that people accept what is happening at their own pace. Here, the child is not in danger or neglected, and he's getting what he needs....(more) 10-22-2019 9:48am
        They will eventually be confronted by whatever it is that he needs, and they will have to add more services to help him. But in the meantime, a diagnosis doesn't really help them, and they can't handle it yet. Deflect and support them praise them for getting the help he needs right now with speech therapy. That way they have positive experiences with service providers as the move forward in this journey.
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        • In the meantime the kid's self esteem erodes. 10-22-2019 10:13am
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          • I don't think you can necessarily assume that. There are plenty of people who are not ready to accept labels but are providing the support their kid needs right now. If this was...(more) 10-22-2019 10:28am
            still going on in a year from now, I'd worry. This is a process and they may be very close to getting there- it sounds like they are to me.
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            • This post has been deleted. 10-22-2019 12:05pm
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            • A three year old likely can’t grasp the concept of an autism diagnosis so how does this affect self esteem? 10-22-2019 12:06pm
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          • Why is his self esteem being affected. He’s getting therapy 10-22-2019 8:41pm
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    • I would be blunt "frankly you should WANT this label initially to get more services and insurance cover. I see enough here to warrant - IMO - a forma eval. Nothing to be...(more) 10-22-2019 8:09pm
      afraid of" ..
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    • My best friend and her dh went through this. I knew their kid was autistic at 2yo... it was very clear without a medical background. They were in denial and I didn't push. When he...(more) 10-22-2019 8:44pm
      got to Kindergarten (public school) the school insisted on testing him. They finally got a neuropsych exam and found out. They weren't ready and you can push it if they aren't ready. My suggestion is that you tell him that if they want to know for sure, to get a neuropsych exam and trust those results. If they have already had the exam but are reluctant to accept it, tell them that they should trust the results.
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  2. Special Needs Toddler My 4 (almost 5) yo is having a really tough time. He's pretty explosive at home. If he doesn't get his way he instantly cries and yells I hate everyone. He recovers quick but...(more) 10-15-2019 9:59am (12 replies)
    his reaction is instantaneous and so extreme. This isn't happening at school but he is very impulsive there. Smacks other kids, throws things. It's like he acts without thinking- all the time. I know teachers are frustrated by this. He also has a speech delay so I think part of this is that he acts out instead of speaking out... but these things don't always happen when he's upset. Sometimes it just seems like he's looking for trouble. He loves to do everything he's not supposed to do. SO, help me out mamas. I know he needs further evaluation. Pediatric neurologist? Neuropsychologist? Developmental pediatrician? It's all so confusing.
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    • Structure, structure structure, and follow through. To start 10-15-2019 10:04am
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      • Clear directives 10-15-2019 10:04am
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        • op: Yes, we're on it with this. His class is very very structures and I'm providing structure at home. He resists; he wants to do what he wants and can easily throw a tantrum...(more) 10-15-2019 10:06am
          when I tell him no to certain things.
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          • Minimize the no’s when the structures are in place. Also trade, reward and pay for good attempts. Everything but firm gentle structure 10-15-2019 10:08am
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            • But Always .... 10-15-2019 10:08am
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    • This was my dd from ages 0-10. It was anxiety, we finally figured out. She went through the day with a very rigid idea of how things were supposed to go, and anytime things...(more) 10-15-2019 8:11pm
      deviated by .00001%, she flipped out. Maturity and meds have transformed her into a different person.
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      • Ditto, in our case play therapy was helpful. Older dc are able to do cbt which isn’t thentx if choicen for a younger dc. 10-15-2019 8:16pm
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        • OR: Ross greene’s The Explosive Child was a good resource too 10-15-2019 8:22pm
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    • I’d see an OT. You’ll get good advice & theyll tell you if you need full neuropsych. Don’t wait. 10-16-2019 6:24pm
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    • What does SLP say 10-16-2019 6:25pm
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    • You need a full evaluation for sure. This isn't just a speech delay, obviously. Neuropsychologist or developmental pediatrician. 10-17-2019 8:35pm
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  3. Toddler My 4 (almost 5) yo is having a really tough time. He's pretty explosive at home. If he doesn't get his way he instantly cries and yells I hate everyone. He recovers quick but...(more) 10-15-2019 9:59am (25 replies)
    his reaction is instantaneous and so extreme. This isn't happening at school but he is very impulsive there. Smacks other kids, throws things. It's like he acts without thinking- all the time. I know teachers are frustrated by this. He also has a speech delay so I think part of this is that he acts out instead of speaking out... but these things don't always happen when he's upset. Sometimes it just seems like he's looking for trouble. He loves to do everything he's not supposed to do. SO, help me out mamas. I know he needs further evaluation. Pediatric neurologist? Neuropsychologist? Developmental pediatrician? It's all so confusing.
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    • Start with your ped and go from there 10-15-2019 10:00am
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    • I feel for you. My just turned 5 yo is SO difficult. It's like he just looks for things to whine and complain about. He's not explosive but the whining is unreal. His own...(more) 10-15-2019 10:00am
      grandmother doesn't want to come visit until he outgrows this, can't say I blame her. We've been waiting for years though.
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    • developmental ped! 10-15-2019 10:00am
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    • is there anything going on at home that he may be reacting to? does he get enough sleep? exercise? are there any healthy/dietary issues? 10-15-2019 10:01am
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      • ^the fucking 4s were really hard with my ds too and now at 9 he has really turned a corner 10-15-2019 10:01am
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    • He is a little kid. Also, how much time does he spend on screens? Does he get enough outdoor play? 10-15-2019 10:01am
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      • op: He doesn't get technology except for some TV when he first wakes up and before bed. He's in school full time during the week. On weekends he's outside for hours and hours....(more) 10-15-2019 10:03am
        He's very active and loves to play. But even outside he gets nuts. He'll throw sticks, threw a rock at dh's truck, will throw dirt and stones up in the air. No real sense of this being dangerous or inappropriate and then shocked when he's corrected. He has an older brother who is his opposite- gentle, low key, really sensitive.
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        • ^^^he probably needs more sleep but if we get him in bed earlier he's up at 5 a.m. I think the school day is very long for him but he doesn't nap there. Teachers complain that...(more) 10-15-2019 10:04am
          he's noisy and active at rest time.
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        • maybe comparing them (which is of course what we do because it is all we know) is part of the problem? most of these behaviors are normal for some boys 10-15-2019 10:04am
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          • op: I hear you and I try not to compare but this isn't normal. I'm getting pulled aside every day at preschool pickup. He's a real problem there. At home his tantrums are so...(more) 10-15-2019 10:07am
            extreme he'll hit me and dh, he scratched my face the other day. He screams so loud I can't imagine what the neighbors think. Thankfully he recovers quickly. But man it's wearing on us all and we keep waiting for the phase to end but it started at 2 and he's almost 5.
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            • i hope you get some answers from the ped and i hope that it is just an issue of maturity 10-15-2019 10:10am
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          • i trust mom's instincts here, not to mention the fact that she's said that the teachers, presumably used to the gamut of 4yo behavior, are frustrated. 10-15-2019 10:07am
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            • there are unfortunately too many teachers who really struggle with normal boy behavior but i think you make a good point about instinct 10-15-2019 10:09am
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              • op: It's a class of 20 kids (which I think is too big for this age) and she has 20 years of experience so I know her concerns are justified. They're not all acting like this....(more) 10-15-2019 10:10am
                I'm thinking about searching for a preschool that's smaller where he'd get more attention but I'm not sure that exists for my needs.
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                • maybe he is not ready for school? i think we rush some kids 10-15-2019 10:11am
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                  • op: He's almost 5. He could have started kindergarten. Are you suggesting we skip preschool? 10-15-2019 10:13am
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                    • maybe? i don't think it should be 1 size fits all, maybe a half day would be better for him, some districts/schools offer flexibility, just something to consider 10-15-2019 10:15am
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                      • ^sounds like you are doing everything "right" i hope you are not beating yourself up 10-15-2019 10:16am
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                      • op: 10-15-2019 10:18am
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                        • ^^^I need him in school because I work and I think if he were home all day with a nanny then kindergarten next year would be a disaster. I think the structure of school is...(more) 10-15-2019 10:19am
                          important to get him prepared. I'm also worried about his readiness skills. I do beat myself up but mostly I just want to find a solution. Anything that will work for him.
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        • There should be no tv before bed. Also, he needs fresh air after school, not just on weekends. Nap for an almost 5yo should not be mandatory. 10-15-2019 10:09am
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          • op: He's in school from 8-4 and we usually go right to the playground and pickup. He also gets playground time twice during the school day. He's wiped out when we get home so I...(more) 10-15-2019 10:12am
            let him chill out at home while I make dinner. He's super hands on and likes play doh, kinetic sand, painting, while I'm in the kitchen. Bed time is just a show after dinner. Before the bed time routine of bath, teeth, and books. How many books he gets depends on his behavior getting ready for bed. I hate to take books away because they're such a positive thing but if he's resisting getting into pajamas or brushing teeth and being belligerant he doesn't get as many as he wants.
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    • At that age, with similar challenges, play therapy helped my ds immensely. Like night and day. I’m not even sure how it works but he met weekly with this therapist and they...(more) 10-15-2019 10:04am
      played and he just really blossomed and improved. GL!
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      • op: I'll ask ped about this. TY. 10-15-2019 10:07am
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    • On the bright side the kids I’ve known who behaved similar at that age grew up and out of it. One is the nicest teenager I’ve met. I’m going through this at 3. The recovery time...(more) 10-15-2019 8:01pm
      is a key factor. If he bounces back in a reasonable time- 3-5 minutes, it’s a phase.
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  4. Special Needs I have a 5yo who has some spectrumy behaviors -- speech delay, repeating words, perseveration on trains and maps, often awkward socially. But ASD has been ruled out. While he...(more) 8-15-2019 11:52pm (10 replies)
    does have these behaviors often, he can often seem completely typical. He can be typical for a couple hours and then "spectrum out" for an hour. I don't know what to make of it. Our NP says the spectrumy stuff needs to be more dominating and more of a compulsion to be ASD. But yet it remains that he seems unusual. Is he just a "normal" kids who is quirky? Anyone else have a kid like this?
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    • Is there much rigidity? DS (14) was dx under DSM-4 and ADOS and ADI were...(more) 8-16-2019 1:15am
      Used. At the time he was VERY rigid. Now he is still spectrumy but more flexible after years of intensive social skills training. Has the
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      • Ctd. Has the sensory piece been looked at? Could be sensory-seeking and...(more) 8-16-2019 1:17am
        Those behaviors might seem spectrumy but in fact stem more from sensory issues. Good luck and hang in there! You’re doing the right thing to get an evaluation at this point.
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    • The spectrum should be pictured as someone that fades out along the edges. The exact boundary between ASD and NT is unclear at the margin. 8-16-2019 8:51am
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      • Ruled out by who? My DC was not diagnosed until age 5. Many kids are skipped if it’s not obvious 8-16-2019 8:55am
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        • Ruled out when we did our neuropsych eval at age 4. 8-16-2019 1:21pm
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      • But what does this mean as far as a diagnosis goes? 8-16-2019 1:21pm
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        • that sometimes marginal cases will be unclear and open to interpretation. An MD does their best. It's imperfect and that's ok. 8-16-2019 1:45pm
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          • But does it matter from the perspective of therapies? Right now my child gets speech, OT and PT. But if we had an ASD diagnosis perhaps he would get other therapies that could...(more) 8-16-2019 10:58pm
            be more on point? Or is that because he's the margins, the therapy is also somewhat ambiguous and we just give him whatever therapy he needs to his specific issues regardless of whether we label them ASD?
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            • Therapies are targeted at behaviors and specific delays. Not every kid with ASD gets the same speech therapy for ex. My kid with ASD has never needed PT and at different points...(more) 8-18-2019 12:00pm
              needed different areas of speech targeted. ABA is the only thing you might care about that an ASD dx usually makes easier to obtain. But your dc doesn't sound like a kid (caveat: based on on the tiny amount if info in this post) who needs ABA. It sounds more like he needs speech pragmatics and social skills. Not sure if this was helpful, but...
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    • My Language-based disability dcs can appear spectrum-ish, but it's SLD in written expression and reading, language disorder, dysgraphia, APD, ADHD. 8-16-2019 4:07pm
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  5. Toddler Does anyone have a kid with a speech delay who outgrew it and didn't struggle too much in school? DD is 2.5 and very hard to understand, not speaking in full sentences, often...(more) 8-12-2019 3:47pm (29 replies)
    babbles with a few real words mixed in. We're doing speech therapy and she's making progress but is far behind her peers. Her hearing is fine but seems like she might have some receptive issues. Anyone been there, how did it work out?
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    • I am a reading specialist and want you to know that she is at higher risk for reading development issues. Focus hard on getting her with phonics as early and often as possible. I...(more) 8-12-2019 3:48pm
      learned this firsthand with my own son.
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      • Thanks for weighing in. She is starting a preschool where she will have speech support 3x a week. When do kids start phonics, around 5? 8-12-2019 3:50pm
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        • Yes, so you should start at 4. 8-12-2019 3:53pm
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        • np I think speech issues are more related to cleft palate and low tone at this point than phonics 8-12-2019 3:53pm
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          • OP: Yes she can be really off with pronunciation. For example she says 'raisins' like 'meenees' but says other things like 'you're welcome' perfectly. 8-12-2019 3:56pm
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            • example of nasal emission 8-12-2019 3:57pm
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              • Really? Can you tell me more? That's not how the speech therapist explained it to me. 8-12-2019 3:58pm
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                • how did the speech therapist explain it to you? 8-12-2019 3:59pm
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                  • She made it seem like because she say the "p" sound pretty well and doesn't have hypernasality that it's not nasal emission. 8-12-2019 4:01pm
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                    • what did she bring up hypernasality? 8-12-2019 4:04pm
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                      • Because you talk about it with cleft kids. 8-12-2019 4:05pm
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                • What was her follow up after surgery? 8-12-2019 4:01pm
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                  • Not much to be honest. We saw them 6 months later and have been in touch but have not had a thorough follow-up. 8-12-2019 4:02pm
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                • sounds like hyper nasality secondary to velopharyngeal incompetency 8-12-2019 4:02pm
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                  • OP: Okay I am going to schedule a follow-up, you guys are making me think this is a bigger issue than I thought. 8-12-2019 4:05pm
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                    • make an appointment with an ENT 8-12-2019 4:05pm
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              • OP: Are you the reading specialist? Can you tell me more about why you think this is the issue. She doesn't seem to breathe out through her nose while talking. 8-12-2019 4:25pm
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    • My ds outgrew his delay and has no problem at all now at 15 8-12-2019 3:50pm
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    • 2.5 is still pretty young.How is her eating, oral motor skills? 8-12-2019 3:50pm
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      • She was born with a cleft palate so she is a little low tone in her mouth, does work with a straw but basically eats totally fine. 8-12-2019 3:51pm
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        • nasal emission with sounds? 8-12-2019 3:52pm
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          • No not at all 8-12-2019 3:52pm
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            • What did they do for the cleft palate? 8-12-2019 3:55pm
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              • She had surgery at 10 months. It was just soft palate so no lip/bone reconstruction luckily. 8-12-2019 3:57pm
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    • on her way to college, 4.0 student, all on her own. therapy is the best thing, she had it till 6th grade 8-12-2019 3:50pm
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    • yes about to turn 16. I held him back. September 1 deadline here and his birthday is late August. I consulted with many experienced educators and they all said same thing. 8-12-2019 3:58pm
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      • ^and the differences are not always apparent in K and 1st. It's when they get to 3/4/5 that the differences really start to be apparent. 8-12-2019 3:58pm
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    • It’s great that you are doing the speech work now. Pay close attention bc OR above is right that early speech 8-12-2019 4:29pm
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      • issues are a red flag of someo other learning differences later. Early and aggressive intervention helps immensely as opposed to playing catch up after a delay/problem plays out...(more) 8-12-2019 4:30pm
        for a year or two at school.
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  6. Special Needs 4 yo ds has a speech delay, he's unruly in his preschool class, and he's really uncoordinated. He didn't qualify for OT and the district says he doesn't need a SEIT. He has one...(more) 5-30-2019 2:22pm (9 replies)
    more year of pre-K. Just let this go and hope for a lot of growth in the next year or fight for more services?
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    • I would look for a private therapist. 5-30-2019 2:23pm
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      • op: For OT? It's all sensory stuff for him, not fine motor. I asked for summer speech and they said no to that too. Maybe I should be happy they think he's doing so great but...(more) 5-30-2019 2:24pm
        I see him compared to his peers and he's so far behind!
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        • The reason I say that is because I had two dds that needed speech therapy and wouldn't qualify for the school to give it to them. I could have fought it, but in the meantime they...(more) 5-30-2019 2:28pm
          wouldn't have been getting help. It was more important to me to help, because one of them was really bad...even I couldn't understand her. The other one was getting older and I felt like we didn't have time to waste.
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    • Please don't let this go. I would seek out a private evaluation. 5-30-2019 6:46pm
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    • I would hire private therapy 5-30-2019 6:46pm
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    • I would get a private evaluation with a developmental ped. My ds was evaluated for EI and CPSE and had variable findings for OT, Speech etc. our private evaluation always...(more) 5-30-2019 7:13pm
      indicates
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      • <<indicated he needed services. They were right, he is in a. Special Ed setting now at age 9 and thriving. All the way through we were told the evaluation didn’t indicate one...(more) 5-30-2019 7:15pm
        thing or another and then the next year it would be severe. I have no trust in school evaluations.
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        • ITA. BTDT 5-31-2019 9:29pm
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          • Agree with all. Try to get a private eval if you can....(more) 6-1-2019 5:07pm
            The school has $$ incentive to reduce services. Trust your mom gut and push like hell for services ata younger age.
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  7. Special Needs I just spoke with a representative from Lindamood-Bell at the sn camp fair in NYC. My dc has severer speech and language deficits and is a junior at Cooke Academy. The...(more) 1-26-2019 3:14pm (5 replies)
    Lindamood-Bell program is both very expensive and very intensive. Has anyone with a child with a severe speech delay found this program beneficial? Has any Cooke parent on this board used it and has it been beneficial? Has anyone gotten any reimbursement for the cost of the program and if so, how percent of the cost? TIA.
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    • ~~by reimbursement, I mean from the DOE, in connection with the annual lawsuit for tuition. 1-26-2019 3:15pm
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      • That's going to be tough. LMB should be able to answer that for you. 1-27-2019 3:11pm
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    • I suspect you'll have better luck asking at Cooke -- staff there may know of families that sent kids and could ask to pass your info along. 1-26-2019 3:44pm
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      • OP: I did email Cooke. Asking here as well. 1-26-2019 9:38pm
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    • This post has been deleted. 1-26-2019 5:58pm
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  8. Toddler Anyone btdt? Almost 4 yo has a major speech delay (mostly articulation). Heís also terribly behaved. Punches, kicks if he doesnít get his way. So unruly. Iíve read the books, we...(more) 10-15-2018 6:23pm (28 replies)
    do 123 Magic with the time-outs but holy hell does he have a temper. Iím wondering if Iím missing something here.
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    • have you gone to a developmental pediatrician to look at entire picture? 10-15-2018 6:24pm
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      • Op: No, but he had a psych eval when testing for Speech. Nothing came up other than the S/L delay. 10-15-2018 6:26pm
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        • yes, you need to see a dev ped privately 10-15-2018 6:28pm
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          • Op: Curious but what other diagnosis might I expect? 10-15-2018 6:29pm
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            • the best thing that will come out of it is advice on treatment, therapy etc. sometimes you don't get answers. we did not get a diagnosis but great information/treatment, got...(more) 10-15-2018 6:30pm
              help/support in school and any therapy that the school offered on the IEP.
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            • np adhd 10-15-2018 10:06pm
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    • speech delay can fuel frustration. he is in speech therapy? 10-15-2018 6:24pm
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      • Op: Yes, he is. I think he used to get frustrated and that led to acting out. Now the acting out (aggression) is like his ďgo toĒ reaction to everything. Just now he had a...(more) 10-15-2018 6:26pm
        meltdown over something that had nothing to do with not being understood.
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        • Np: itís an age where some kids really are jerked around by their emoti 10-15-2018 10:20pm
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    • he needs to learn to manage his emotions - distract, don't let it escalate. reward good behavior. ignoring will not work. 10-15-2018 6:26pm
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      • Op: I donít ignore. He goes into time out when he tantrums or hits. The problem Iím having is that he goes from 0 to 100 in a second. He just blows up. So distracting isnít...(more) 10-15-2018 6:28pm
        possible. When heís getting his way heís very pleasant but as soon as I say no to him he loses his shit.
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        • can you grab his hands and whisper to him? 10-15-2018 6:30pm
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          • Op: Iíve tried. He becomes a screaming banshee, totally unreasonable. I need to keep trying though. 10-15-2018 6:31pm
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    • how is he in preschool? 10-15-2018 6:29pm
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    • He may be angry because of his frustration in communicating. Ask your ped for recommendation to a functional behavioral specialist. This is your best bet for getting this under...(more) 10-15-2018 6:31pm
      control in a way that will last a long time. Also, my ds with serious speech issues improved not from speech therapy (articulation) but from trying to talk to Siri. Siri has been a gift no speech therapist could provide.
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      • Op: Tell me more. Alexa canít understand a word he says. He talks a lot and I know what heís trying to say but no one else does. 10-15-2018 6:32pm
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        • First, have you seen an actual oral motor specialist? One who has excessive training in oral motor, not just a speech therapist? That's helpful. I like Siri because they can...(more) 10-15-2018 6:35pm
          take the device and repeat themselves over and over. As for the FBA, you need someone who can evaluate his behavior real time and come up with actual strategies that work for the two of you. It's not so cookie cutter as 123 magic or Power of Positive Parenting.
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          • Op: How do I find an oral motor specialist? 10-15-2018 6:37pm
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            • Where are you? If you are tristate, Lori Overland in Norwalk CT is one of the best. 10-15-2018 6:40pm
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      • lol, there was no Siri when my little mushmouth began speech therapy about 17 years ago. But yesterday we watch old home movies and everyone, including the college boyfriend, was...(more) 10-15-2018 6:36pm
        amazed at how incomprehensible her speech was. I had forgotten it was that bad. Fwiw, she had low tone, a very long tongue, and a high palate. No wonder she couldnt speak clearly!
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        • Op: Interesting! How did you find all that out? 10-15-2018 6:37pm
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          • We knew she was low-tone from birth. Lots of gross motor delays. Then the speech therapist noticed the tongue/palate combo. In the middle of kindergarten, the teacher called and...(more) 10-15-2018 6:46pm
            said "Eureka! She tried to sound out 'that' and guessed it was spelled 'dat'. That means her speech is affecting her academics, and that means the DOE will pay for therapy during school!" Anyway, she is 20.5yo, and has no speech impediment!
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            • Op: He didnít walk until he was 18 months old. This must all be connected. 10-15-2018 6:51pm
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              • hey, OP. I was the person who mentioned oral motor above. My ds didn't walk until 18 mo either. Has your child been seen by a developmental pediatrician? This is something to...(more) 10-15-2018 6:53pm
                consider.
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                • Op: No he hasnít but I think itís time to do this. I just looked online and I donít see any here in the suburbs. I guess NYC? This has never been mentioned to me by his doctor,...(more) 10-15-2018 6:58pm
                  his therapists from EI or the SLP he sees now (or the CPSE committee). Should I be surprised?
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                  • nothing surprises me. where are you? 10-15-2018 6:59pm
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                    • Op: Long Island. I donít know anyone whoís gone to one. Doesnít seem to be a thing to do around here. 10-15-2018 7:02pm
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                      • The McCarton Center is one to consider. NYC. We went from CT to NYC. You don't have to go often. 10-15-2018 7:17pm
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  9. Special Needs Iíve been relieved that my 4yo DS has made a best friend at school. He has a speech delay and poor social skills and he gravitated to a child with a similar profile. Today he told...(more) 6-15-2018 11:04pm (3 replies)
    me he befriended this child because they ďhave no friends. No one wanted to play withĒ this other child. It makes me so sad but also so proud of my DS. I had no idea he even had this level of social awareness or empathy.
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    • :-( 6-15-2018 11:04pm
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    • Sometimes dc with speech delays eventually catch up and then social skills bloom. It sounds like your little guy is way ahead on empathy! 6-15-2018 11:13pm
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    • This post has been deleted. 6-15-2018 11:21pm
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  10. Toddler My 2.5 year old with a speech delay said "vitamin spilled" tonight. It made me happy. 6-10-2018 12:15am (6 replies)
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    • lol...those really are big words!!! ;-) 6-10-2018 12:16am
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    • doesn't sound like a speech delay. and i had two kids in speech therapy for years 6-10-2018 12:17am
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      • If you heard the way he said it (unintelligibly "aninan peeled") you'd see what I meant. But that's nice to hear. Apparently has an expressive and articulation delay 6-10-2018 12:18am
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        • my kids despite 7 years of speech therapy can't pronounce the r sound. they sound british but are new yorkers. they can say forgetabboutit like a new yorker, though 6-10-2018 12:21am
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          • They sound cute! 6-10-2018 12:24am
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          • My 11yo dd just finally finished speech therapy for the exact same thing 6-10-2018 12:59am
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  11. Special Needs Which ongoing private schools (not SN) are good for a child with speech delay and possible executive functioning delay? Already have a list of SN schools so looking for ongoing...(more) 4-16-2018 4:56pm (20 replies)
    private schools.
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    • Stephen gaynor 4-16-2018 4:57pm
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      • that is a SN school, she asked for private ongoing, I believe. also gaynor isn't ongoing, it ends at 8th. 4-16-2018 5:00pm
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    • NYC? Age? 4-16-2018 4:57pm
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    • Is there a 504 or IEP? Why not public? 4-16-2018 4:59pm
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    • conventional wisdom is Birch and York, sometimes Dwight. York and Dwight both have programs which act as stopgaps for these kids. they cost an additional tuition. People used...(more) 4-16-2018 4:59pm
      to say Trevor, but it's really really not the case anymore at all, nor LREI. If your child really has a delay and would do well at SN school, the only ongoing schools that are remotely appropriate pre-remediation are Birch, York, and Dwight. And after your child is accepted, please be up front with them about your child's issues, to see if they really can be supported there. JMO.
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      • And York doesn't start till 6th grade 4-16-2018 5:01pm
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        • I know. she didn't say what grade she was looking for, but reading her post again, maybe she means kindergarten. hard to know. 4-16-2018 5:02pm
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      • OP here: I would be upfront about her needs even during the admissions process. DC has a lot to offer notwithstanding delay (and yes DC has IEP). With Dwight being IB, I would...(more) 4-16-2018 5:58pm
        think that would be too rigorous or traditional? Looking for a little more flexibility given DC's needs. Also can you explain what a program that acts as a stopgap means? TIA!
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        • Np: I am not an expert but I think IB is progressive rather than traditional. I donít know a lot about Dwight, but it is known for working well with kids who have LD. 4-16-2018 7:38pm
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          • Also, I would think twice about being tooooo upfront during the admissions process. Even schools that are supportive can be competitive for admissions purposes. 4-16-2018 7:39pm
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            • His. Let her get admitted or not based on her grades and scores and then discuss before you sign a contract. Also, if she is in k, there is so much time ahead of you. So much...(more) 4-16-2018 10:07pm
              Can change.
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        • if you have a K kid I would not look too far ahead, ie IB...that is high school. work on now. Also Dwight has 2 tracks, IB and non-IB, if that makes you feel better. 4-17-2018 3:22pm
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    • OP here: sorry, I meant for K. And I meant any non-SN privates - can go through 5th, 8th or 12th. Neuropsych recommended smaller classes so no public. Thanks! 4-16-2018 5:54pm
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      • Try Caedmon, Birch, Trevor, Cathedral 4-16-2018 9:55pm
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        • OP: Cathedral as in the one at St. John the Divine? 4-17-2018 6:23pm
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          • yes, bit of a stretch, but worth checking out 4-17-2018 8:39pm
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            • Definitely not Cathedral. They are not "issue" friendly at all these days. It would be a terrible fit assuming you can even get in. 4-20-2018 6:33pm
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    • OP again. And, yes NYC. For K. With IEP. 4-16-2018 6:00pm
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      • I would look at Leman downtown. I thought they seemed extremely supportive when I visited. 4-16-2018 7:43pm
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    • I say this gently, but none of them, really. Maybe Dwight and York. The mainstream privates don't want kids with issues and will counsel them out. Move to the suburbs with good...(more) 4-18-2018 11:12am
      publics and you'll be fine.
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  12. Special Needs 4-year-old Suspended from Bus...(more) 3-16-2018 5:31pm (33 replies)
    My DD attends CPELC. She has Social Communication Disorder & a speech delay. Yesterday, we had our parent-teacher conference & it went really well. It followed a great quarterly report from CPELC. Today, she was suspended from riding the school bus. DD does not do well with transitions and they have a hard time getting her on the bus.The Bus Matron does not speak English & DH does not speak Spanish & now the director of the school is going to have a translator find out if anything is happening on the bus. Note, we do not have a hard time putting her on the bus but she has a hard time getting off of it. We were attributing that to low blood sugar, as she gets motion sickness & we give her a tiny breakfast in the morning to help prevent, well, the vomit. Teacher compensates by having a snack for DD when she gets off the bus. However, the director says until she can get on the bus easily, DH is to deliver &PU DD. They gave us a storyboard to help us fix the issue.
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    • a storyboard? 3-16-2018 5:34pm
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      • This post has been deleted. 3-16-2018 5:41pm
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    • if she is vomiting every single time she gets off the bus, then it is reasonable for them to ask her to not ride the bus 3-16-2018 5:35pm
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      • reading comp 3-16-2018 5:37pm
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        • it says you feed her to prevent the vomit. If she is vomiting that is an an issue. 3-16-2018 5:41pm
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          • but she says she feeds her! So she's not vomiting! 3-16-2018 5:44pm
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            • It seems to be something isn't right. She has a hard time getting off the bus. So why is the director complaining about her getting on the bus? 3-16-2018 5:47pm
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              • 4-year-old Suspended from Bus...(more) 3-16-2018 5:49pm
                She has a hard time getting off the bus when she gets to school--I suspect due to low-blood sugar and she has a hard time getting on the bus at the EOD.
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                • 4-year-old Suspended from Bus...(more) 3-16-2018 5:51pm
                  I don't know why she gives them a hard time at the end of the day. Important to note this behavior is new--two months ago she was fine. And nothing has changed that we (DH and I) are aware of.
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    • She is refusing to get off the bus, or on the bus? 3-16-2018 5:38pm
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      • 4-year-old Suspended from Bus...(more) 3-16-2018 5:45pm
        They have a hard time getting her on the bus at the end of the day. 85% of the time, we have an easy time getting her on the bus. She does't get motion sickness on the bus any more, as we feed her very little in the morning to prevent her from getting motion sickness. So the vomiting isn't the issue, the low-blood sugar that causes her to be cranky when she gets off the bus is the issue. So now they give her a snack (yogurt) when she gets off the bus.
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        • 4-year-old Suspended from Bus...(more) 3-16-2018 5:46pm
          and I don't know why she gives them a hard time at the end of the day.
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    • Seems to me that a primary requirement for a bus matron is that she should speak English. 3-16-2018 5:43pm
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      • Many of them don't 3-16-2018 5:43pm
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        • That is criminal. Honestly, someone needs to be major attention to this issue. It is a safety issue. 3-17-2018 11:55am
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      • yeah, i think this is hopeless. 3-16-2018 5:45pm
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        • 4-year-old Suspended from Bus...(more) 3-16-2018 5:53pm
          It does feel hopeless to me! but I was hoping someone would have some tips.
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          • FYI: it's easier if you post in the subject line. 3-16-2018 5:57pm
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            • thank you--I am new 3-16-2018 6:13pm
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      • At that rate of pay it's not that common. 3-16-2018 11:19pm
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    • I think that not giving your DD sufficient breakfast may be problematic. Most preK kids don't handle things well when hungry. Have you tried getting her up earlier and feeding her...(more) 3-16-2018 11:23pm
      earlier? I know the early timing sucks (we also bused to CPELC), but they can't have a kid refusing to get off (or back on) the bus every day. While in theory she is 4 and they could physically carry her on/off that is not a trauma they or you want to sign her up for. And the bus can't wait long. Is it the bus company of CPELC that is saying your DD cannot take the bus?
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    • I would start eith the Matron needs to be replaced. It is criminal to have a matron who cannot communicate with kids in their language. What if there was an accident and she had...(more) 3-17-2018 11:53am
      to give instructions to the kids, let alone communicate clearly with parents and teachers regarding the behavior and well being of SN kids. This is really outrageous. Honestly worth a call to local reporters.
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      • This is par for the course in NYC. In 6 years, we have had exactly 1 matron who spoke English well on the SN bus. These positions don't pay well. Until they do, this will...(more) 3-21-2018 1:43pm
        continue.
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    • My dc also attended cpel and also has motion sickness. We tried everything,...(more) 3-17-2018 11:04pm
      but because dc still became sick (nauseous, vomited), we parents decided ourselves that it's better to take dc ourselves, it's a subway commute. Even though your dd may not vocalize it, she may be having difficulty getting on the bus because of anxiety and stress because she knows how riding the bus makes her feel, physically. If we grownups were asked to do something on a daily basis that we know will make us sick, even 1/2 the time, we'll also be hesitant.
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    • Also, the bus has to leave by a certain time because there are many families...(more) 3-17-2018 11:13pm
      who will be waiting at certain times to pick up kids. It's difficult for families if a bus is chronically late. As for non-English speaking matrons, the truth is that the pay itself is a crime, leading to high turnover. The city (doe?) pays as little as possible to the bus companies. But the main thing I found with a kid who gets bus sick is that for dc's health, and our concern of dc possibly choking on vomit, we decided it was better to make our own arrangements to drop off & pick up dc by subway.
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      • Thanks everyone--I was able to get a partial answer...(more) 3-20-2018 12:02pm
        We wrote down our questions & concerns & had someone at CPELC translate it it into written Spanish & we sent it as a text to the bus matron. She responded in Spanish and we had that translated by Google translate.
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        • Several things are happening here...(more) 3-20-2018 12:04pm
          1) the school doesn't want to fight to get her on the bus in the afternoon
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          • 2) she goes to sleep once on the bus, so she is probably fighting to avoid going to sleep 3-20-2018 12:05pm
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            • 3) in the morning, we get her on the bus just fine but probably because of...(more) 3-20-2018 12:06pm
              low blood sugar, she climbs out of her seat and crawls under the chairs--not safe
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              • 4) communication is an issue as the bus matron should have told us right away...(more) 3-20-2018 12:08pm
                but maybe not an issue as she isn't riding the bus now
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                • Anyway, thanks for the suggestions 3-20-2018 12:09pm
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              • how would low blood sugar have her crawling out of her seat? 3-21-2018 1:44pm
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  13. Toddler This post has been disliked 4 times. showIím so upset. Just found out Iím having a boy after just discovering my first boy has a speech delay and so worried Iím going to have to deal with this twice. Canít stop crying 3-13-2018 6:57pm (22 replies)
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    • that's irrational. truly. 3-13-2018 6:57pm
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    • awww speech delay is fixable. xxxx hang in their momma things will be ok 3-13-2018 6:57pm
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    • calm down, jesus. first of all having a speech delay isn't the end of the world and secondly this kid is a TOTALLY DIFFERENT INDIVIDUAL 3-13-2018 6:58pm
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      • ^you guys with your meltdowns over kids who are not 100.000% perfect really annoy me. 3-13-2018 6:58pm
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    • you probably won't. What was the outcome of your first child's speech delay? 3-13-2018 6:58pm
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    • Ummmm a girl could have a speech delay too. This makes no sense 3-13-2018 6:58pm
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      • Yep, mine did. 3-13-2018 6:59pm
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      • or could have cancer. OP needs some fucking perspective 3-13-2018 6:59pm
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      • Because the post is fake 3-13-2018 7:00pm
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        • i truly hope so and someone so awful isn't reproducing again 3-13-2018 7:01pm
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          • np: it's fake. She plants the bomb then walks away to see the damage 3-13-2018 7:02pm
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    • Please be fake. A speech delay is not a big deal 3-13-2018 6:59pm
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    • Relax. It's a speech delay, not a terminal genetic marker. Congrats; you'll love having 2 boys. 3-13-2018 6:59pm
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    • Get a grip. 3-13-2018 6:59pm
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    • girls have speech delays too, mama. and of all the kids I know who had speech delays, including mine, they are all totally fine 3-13-2018 7:00pm
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      • np: OK well this isn't always the case. That said, it's not the end of the world either. 3-13-2018 7:00pm
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        • Even the kid I know with Prader-Willi is on grade level and fine with speech. Seriously, if you get interventions almost 100% of humans will speak proficiently. Even kids with...(more) 3-13-2018 7:03pm
          Down Syndrome. Even kids with worse. We over diagnose speech delay these days, as well - which is fine, as it's better if more kids get services than fewer. But among things to be concerned about it's extremely minor and this lady is sobbing over her fetus's potential imperfection. Grinds my gears.
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    • Oh ffs. You are totally overreacting. A speech delay will resolve on itís own. My first child was diagnosed with autism and even thatís not too bad 3-13-2018 7:01pm
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      • this is a fake post - notice how she's no longer responding... 3-13-2018 7:01pm
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    • i hate you 3-13-2018 7:01pm
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    • You are stupid. 3-13-2018 7:03pm
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  14. Special Needs Any parents out there of kids who seem like they should have an ASD diagnosis but fell just short of the criteria? My 5yo DS has a lot of the behaviors (speech delay,...(more) 3-8-2018 10:00pm (61 replies)
    perseveration,stimming) but apparently they aren't severe enough for an ASD diagnosis (a neuropsych ruled out ASD). Example: He will sometimes spin wheeled toys right up close to his eyes. Or he will repeatedly poke himself in the cheek. He will obsess over certain toys and not play with any others. But in all of these things he is pretty easily redirected. But the behavior persists over the long term with me always redirecting. One therapist told me, "he doesn't have ASD, he's just quirky." Just wondering what the longer term outlook is like for kids with this profile. What will the adolescent and teen years look like? Just "quirky"?
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    • Mine was like that. All sorts of ASD like qualities but related and therefore no diagnosis. He has ADHD/OCD and anxiety/ 3-8-2018 10:02pm
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      • How old is he and how is he doing now? 3-8-2018 10:05pm
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        • he's 13. Ist grade through 6th were really tough. The famous Nick Seivert was his therapist and he sees Boorady at child mind. The right medicine and therapy took a long time but...(more) 3-8-2018 10:08pm
          he is great. Still quirky but amazing. straight A's, friends and most importantly HAPPY. he's on concerta/buspar/risperdone.
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          • That's awesome! I'm totally fine with quirky and in fact I love it. But I know the world can be unkind to the quirky kids. I'm glad your son is happy. 3-8-2018 10:10pm
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            • Thank you. One of his spectrum-y qualities is that he doesn't really care what people think. He's very empathic but literally lacks a snarky or sarcastic gene. SO he doesn't see...(more) 3-8-2018 10:12pm
              it in others. He is so comfortable in his skin. He's my hero.
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              • My son, too. ADHD. Sensory. But social with friend and no speech delays or repetitive play. I still wonder, though. 3-8-2018 10:16pm
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          • This sounds exactly like my son (9). Did your son suffer from meltdowns? Trouble with transitions? Is he at a mainstream school? 3-8-2018 10:13pm
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            • omg. the meltdowns. And the rages. transitions are still hard. he is at ms. 3-8-2018 10:15pm
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              • What school is ms? 3-8-2018 10:16pm
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              • YES. The meltdowns and rages are devastating. And the medication and therapy thus far have not touched them. We are always considering Risperdal. Did it help with the meltdowns?...(more) 3-8-2018 10:20pm
                Were you bothered by the side effects? Sorry for so many questions!
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                • please. happy to help. Have you done the genetic test that sees how your child metabolizes drugs? Turned out my son's body was terrible at metabolizing SSRI class. Zoloft cause...(more) 3-8-2018 10:25pm
                  HUGE rages. or rather ramped up what we had. Risperdone in conjunction with Buspar (anti-anxiety) has saved our lives.
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                  • I will look into this again. So far, my son has had horrible experiences with stimulants and amphetamines. While they helped with his adhd, they made him anxious to the...(more) 3-8-2018 10:31pm
                    pointofnot being able to function. And then Guanfacine made him violent. Considering Strattera, Clonidine and then Abilify or Risperdal. So frustrating and heartbreaking not to have hit on the ďrightĒ meds.
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                    • its horrible. Ability was ok for us. the kicker was changing the anxiety meds. 3-8-2018 10:32pm
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                      • *abilify 3-8-2018 10:32pm
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                        • Thank you! My last question. What do you think was most helpful for the meltdowns? Drugs? Therapy? For us, I have a feeling it will be for the drugs because years of different...(more) 3-8-2018 10:35pm
                          therapies (PCIT, CBT) have done nothing.
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                          • drugs. we were on the waiting list for a bed for Rogers in Wisconsin. It was bad. Boorady never gave up. By the time we got the bed Boorady had found the right cocktail. It took...(more) 3-8-2018 10:38pm
                            time. And i cried. a lot.
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                            • I am crying a lot. And I was told to hospitalize my son after one particularly bad therapy session. I didnít, but the experience shook me to the core. I will get the rest done,...(more) 3-8-2018 10:46pm
                              and am glad to hear Boorady is so good. Iím also glad your son is doing so well. Youíve given me a lot of hope for my very challenging, complex, meltdown-heavy kid.
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                              • I promise it will get better. It is so hard. In the worst of times I tried to think about parents dealing with nonverbal children - something that was far more challenging and...(more) 3-9-2018 10:20am
                                it helped me take a beat and reset. SO much is out of our control. But I know there is hope.
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                • np: Mine had horrid reactions to stimulants, did well on low-dose risperdal with no serious side effects, also did OK on guanfacine. With CBT, OT for sensory integration and...(more) 3-9-2018 12:01pm
                  social skills counseling was able to wean off meds totally after about 4+ years on them.
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          • What did you think of Boorady? Do you think he is worth the high price? 3-8-2018 10:17pm
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            • Iím a NP. My ds see Boorady. Heís been with him for 9 years. Totally worth the price because prior to him we saw so many that sucked in one way or another 3-8-2018 10:18pm
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              • Im the one who goes too- couldn't agree more 3-8-2018 10:19pm
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              • NP-new poster or neuropsych? 3-8-2018 10:21pm
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              • I have seen so many, and agree. So many have sucked. Particularly disappointed with the ones at Weill Cornell. 3-8-2018 10:23pm
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                • Yes. Saw one at Weil, one at NYU child study, 2 independent psychs that had very good reputations. None of them could get a rapour goign with my kid, who by the way is nit that...(more) 3-8-2018 10:26pm
                  complicated. Boorady just has a great way about him with dc, great with parents, is very knowledgeable and heís so responsive
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            • I WORSHIP HIM. ds was raging, therapist wanted him hospitalized. Boorady stepped in and did it with medicine. He is so vested in his patients. I cant say enough about him. 3-8-2018 10:18pm
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            • Opening poster here. So you all recommend Boorady for ADHD? For figuring out meds? Taking notes for what I expect will be our future. 3-8-2018 10:21pm
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              • Yes! Absolutely 3-8-2018 10:22pm
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              • YES. run don't walk. and have him test dc for how they metabolize medication 3-8-2018 10:26pm
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                • Ok. DS is 5. What is the age that we should go see him? Also does he do neuropsych evals? 3-8-2018 10:28pm
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                  • they do them there. he doesn't. I love dave anderson. Actually Nick Seivert hooked me up with him. Incredible therapist. 3-8-2018 10:31pm
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              • I am so happy to read this. We see him next week, after MONTHS OF ďtop shrinksĒ who, in my option, sucked. They didnít get my kid, didnít even try or were SO wishy washy with...(more) 3-8-2018 10:32pm
                medication advice.
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                • Yes so many ďtop onesĒsuck. Boorady is above and beyond all of the, 3-8-2018 10:34pm
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                  • Thrilled to read this! And they DO suck. Iíd name names, but theyíd probably know it was me because Iíve let them know to their faces how unhelpful they were. Onward from here....(more) 3-8-2018 10:39pm
                    Thank you so much.
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                    • Yep. I have a lot of names too! 3-8-2018 10:49pm
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                • zoloft made my ds rage. Boorady looked him in the eye and said "remember that little white pill I gave you for worry? Well. It didn't work. And I want to apologize. That was my fa...(more) 3-8-2018 10:40pm
                  ult." My son had such lows after the rages were over. Boorady took a huge burden off my son'd 5th grade shoulders. I owe him so much.
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                  • Wow. I cannot believe a shrink in New York (or anywhere) would admit to having made a mistake. The meltdowns are just devastating. Vi If Boorady can tame them, he can do anything. 3-8-2018 10:49pm
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                    • ^^and I say this having a son who has violent, rage-fueled sensory and non-sensory meltdowns that can last up to thirty minutes. 3-8-2018 10:51pm
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                      • Dr Boorady h=gave me his cell phone. My ds would rage and I would hide in the bathroom and call him. DS would be screaming for 30 to 45 minutes. I can not say enough about his...(more) 3-9-2018 10:18am
                        empathy and skill.
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    • Have you ruled out SPD, APD and ADHD? 3-8-2018 10:02pm
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      • Our neuropsych said he was too young to diagnose with ADHD, but yes he does have some issues with attention. Some sensory behavior has also been identified but no SPD diagnosis....(more) 3-8-2018 10:05pm
        It's frustrating because there are a lot of symptoms but none of them seem to fit anything.
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        • Did you look at auditory processing disorder? Noy ever examiner diagnoses at 5, but some do. 3-8-2018 10:30pm
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          • Ok I just looked it up. It does sound like my son could have APD but it also seems like he could have ADHD-inattentive. The symptoms seem so similar. His speech development has...(more) 3-9-2018 12:03am
            been somewhat unusual with a lot of articulation problems. Articulation is functional now but his speech is unusual sounding. Which I would think would go along with ADP. I'm going to look into this. Thanks for the suggestion.
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    • Well dx or not he should have therapy. Itís great if he is easily dorected. Means he may be very receptive to therapy 3-8-2018 10:03pm
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      • He's getting it and doing great. But there are still deficits. 3-8-2018 10:05pm
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        • Thatís great. Heís still young. 3-8-2018 10:05pm
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    • My ds tested very mild asd, he is the pickiest eater alive, sometimes has behavior issues at school (talking too much) and his friends are a lot like him. They love Minecraft,...(more) 3-8-2018 10:07pm
      not the best social skills. He's not easy to talk to, not great with eye contact, gets good grades (6th grade). Used to have a lot of tantrums when he was younger. Really doesn't now. I worry about him.
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    • I have a 9yo with anxiety, OCD, social communication disorder dxs, and lots of internal distraction. He didn't meet the criteria for ASD. What has helped is lots of different...(more) 3-9-2018 6:28am
      types of therapies - pragmatic speech, OT, social skills groups and CBT. He perseverates, he used to stim. He is still a very quirky kid (psych also used that word) and very bright. CBT and a bit of maturity calmed the meltdowns around age 8, and then zoloft finished them off. Zoloft isn't working anymore for his anxiety, so we are going to have to try something else. He has needed a ton of intervention and therapy over the years, compared to my ds with straightforward ADHD dx.
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      • It sounds as if he may have met ASD dx with a different doctor? He sounds exactly like my ASD kid. 3-9-2018 1:21pm
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        • I think you are right, but we have been able to get him the right supports for now anyway. I might pursue a dx later 3-9-2018 4:49pm
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    • Sow who are these "top shrinks," that did NOT work. I don't want to start a bashing session, but these folks are VERY expensive and I don't have money to waste. No out of...(more) 3-9-2018 8:40am
      network benefits and unemployed, but my kid needs to see a good psych.
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    • Yes. Though I continue to question it because the symptoms donít have to be severe to have mild ASD. Still same quirks now that he is older but he has always been very well...(more) 3-9-2018 9:08am
      behaved s never had meltdowns
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    • My lid. He is dx ADHD and he ďfits the neuropsychological profileĒ oF NVLD 3-9-2018 10:19am
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    • My 13yo had the PDD-NOS dx and it was taken away at 4. We figured out very quick that removal was in error. He's clearly on the spectrum, we treat him as such with therapies, etc. 3-9-2018 1:20pm
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      • ^^ And the adolescent years for my child, who lost the PDD-NOS (spectrum) dx have been extremely difficult. He's not "Just quirky". He's difficult. Very difficult. Intense...(more) 3-9-2018 1:24pm
        therapy, interventions, medications. It's much harder now than it was at age 5, at least for us.
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    • np: I would not go by a NP's view re: ASD. I would go with a dev. ped. I suspect that your child may well be ASD by what you are saying and it might well affect how you treat him...(more) 3-9-2018 1:22pm
      as he ages. I would go see a top dev. ped to see if he meets the dx. NPs are not the best source to get ASD dx.
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      • NPs are definitely qualified to diagnose ASD though IME at age 5 lots of shades of gray with this 3-9-2018 8:36pm
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  15. Toddler Any OTs or PTs on? Explain this: DS had speech delay and subsequently got screened for OT. Qualified for OT services at school and had some fine motor skill issues worked on. Has...(more) 1-7-2018 1:15pm (12 replies)
    always been super musical - piano, guitar, voice - from a young age. Yet he has always had trouble with buttoning buttons and other things.
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    • how old is ds? waas he playing complex guitar and piano? or just hitting the right keys? PLUS buttons are very small 1-7-2018 1:16pm
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      • ^^how was his cutting skills? writing? 1-7-2018 1:17pm
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      • true 1-7-2018 1:17pm
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      • He is now 14. His writing used to be very good but has gotten less so since middle school (smaller and more boy looking - used to be perfect because he went to Montessori and also...(more) 1-7-2018 1:19pm
        did the handwriting without tears curriculum.
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        • OK this isn't unusual. Not sure what you need explained 1-7-2018 1:19pm
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          • I'm just wondering why it's so hard for him to do buttons but he can do other tasks with his hands just fine. 1-7-2018 1:21pm
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            • maybe it's just a different form of manipulation but it sounds like he's doing just fine 1-7-2018 1:31pm
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        • when did he qualify? I am confused about the timeline. Does he still have trouble? is he playing complex guitar? 1-7-2018 1:20pm
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          • he qualified back in preschool for a couple of years when he was 4 . 1-7-2018 1:22pm
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    • and he has never had a problem manipulating the strings of the guitar? 1-7-2018 1:17pm
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      • need an age here because there is manipulating strings of a guiatar and just strumming 1-7-2018 1:18pm
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        • I'm thinking mroe of manipulation of the strings for hitting notes - that would require decent fine motor strength to push down hard enough, finger placement,e tc. 1-7-2018 1:19pm
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  16. Toddler NPS Feedback for Kindergartener with Speech Delay, severe ADHD, previously dx with Autism but CPSE said no longer meets the criteria. I could push the Autism dx but not sure how h...(more) 1-4-2018 7:45pm (10 replies)
    he would be best served. Schools suggested for him by the Preschool:
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    • Learning Speing, SLCD, Hallen, Variety, ASD Horizon 1-4-2018 7:46pm
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      • can you add Reece? 1-4-2018 7:46pm
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        • Is Reece more geared to behavioral? Heís very regulated with a high ratio, more just Speech, learning and attentional 1-4-2018 7:48pm
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          • similar to LS so visit and see 1-4-2018 7:48pm
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            • ^^add Parkside 1-4-2018 7:49pm
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    • get whatever classification helps gets you school covered 1-4-2018 7:46pm
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      • Exactly sorry pressed enter befor I wrote the list as a comment. Do you know anything about any of those or have suggestions? 1-4-2018 7:47pm
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    • try special needs. they are always super helpful 1-4-2018 7:46pm
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      • Yikes thought I did thanks 1-4-2018 7:48pm
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        • your welcome and best of luck! 1-4-2018 7:49pm
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  17. Special Needs Best towns in the suburbs for ICT classes and good support for services on IEP?...(more) 11-20-2017 11:44am (4 replies)
    I have heard that some towns are much better than others in terms of being supportive (to authorize ST, PT, OT as needed), nurturing schools with good ICT classes where a kid with some speech delay, slow processing would thrive. Any recommendations? Many thanks!
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    • I guess it depends. Our district actually has inclusion and self contained, which some people prefer so it depends on the deficit. 11-20-2017 11:45am
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      • Thanks. What would be that district? 11-20-2017 12:04pm
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    • In Westchester, Ardsley, Pelham, Pleasantville and Mamaroneck have good reputations but things change from year to year depending on the population so you have to know that...(more) 11-20-2017 3:18pm
      there's a possibility your child's needs cannot be met within the district and they will have to be placed OOD.
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      • I've heard Mamaroneck does not offer good support from specialists. So pretty though. 11-20-2017 3:20pm
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  18. Special Needs Do young kids (2y-3y) with Speech Delay and/or ADHD get ABA services through Early Intervention? Or ABA is only given to kids with a diagnose of Autism? 10-13-2017 10:57pm (59 replies)
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    • The latter. 10-13-2017 10:58pm
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      • Aba is is used on all sorts of people 10-13-2017 11:00pm
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        • Early Intervention does not give ABA as a service unless a child has an autism diagnosis through the system. That is what OP asked. 10-13-2017 11:03pm
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          • ^So OP - if you are concerned about this, tell your EI service coordinator you want a psych eval. One of your current therapists can write the justification. 10-13-2017 11:04pm
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          • No, ABA is given in response to behaviors. Insurance must cover ABA if a child has an ASD dx in most states. 10-13-2017 11:05pm
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            • OP asked "through Early Intervention!" I am answering THAT QUESTION. There is a specific procedure for getting ABA through EI. 10-13-2017 11:07pm
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              • It variesby state. 10-13-2017 11:07pm
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                • OP if you can tell us where you are, we can give you better advice about EI 10-13-2017 11:08pm
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                • ^For ex my ds got ABA without an autism dx in NY state about 4 years ago under EI. He later had an autism dx but those were the CPSE years (after age 3) 10-13-2017 11:08pm
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                  • We are located in NYC. Thank you 10-13-2017 11:24pm
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              • op asked if you can get ABA with speech delay or adhd through EI 10-13-2017 11:08pm
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          • Np aba can be used for all kinds of kids. 10-13-2017 11:07pm
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    • yes and even younger 10-13-2017 10:58pm
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      • ABA for speech delays? 10-13-2017 11:03pm
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        • if he has speech delays he will get services 10-13-2017 11:05pm
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          • not necessarily, no 10-13-2017 11:05pm
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          • if delayed beyond a certain percentage, yes. but that's speech services, not ABA 10-13-2017 11:06pm
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          • If the speech delay is at least 33% he will, but it's much better to try to demonstrate delays in more than one area because then the threshold is 25% 10-13-2017 11:06pm
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    • No 2-3yo has an adhd dx 10-13-2017 10:58pm
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    • You have to have the kid evacuated but ei is not just for kids with autism 10-13-2017 10:59pm
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      • op is talking about ABA which is primarily for autism 10-13-2017 11:04pm
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        • Aba is used for a lot of things. Why comment about something when you are very informed? 10-13-2017 11:06pm
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          • np - it's not exclusive for autism but in the vast majority of cases that is what ABA is for 10-13-2017 11:07pm
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          • why don't you go ahead and tell us when ABA is used? 10-13-2017 11:09pm
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            • It can be used for any child who needs help learning, increasing or decreasing a behavior. It is also used on adults for a number of reasons. 10-13-2017 11:10pm
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              • Give any example in which a person w/o autsim gets ABA 10-13-2017 11:10pm
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                • It is used on people at work to help with certain behaviors such as to increase productivity, it is used to teach kids who don't have autism to increase or decrease a behavior. 10-13-2017 11:11pm
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                  • What do you think aba consists of exactly ?^ 10-13-2017 11:12pm
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                  • autism and related language disorders 10-13-2017 11:14pm
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                    • If you are teaching a behavior but the aba therapist does not teach speech 10-13-2017 11:20pm
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                      • language included 10-13-2017 11:23pm
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                        • If there is a language related behavior but aba is not about teaching language it is about teaching socially valuable behavior. An aba needs to work with a speech therapist...(more) 10-13-2017 11:25pm
                          if they will be constructing and program to aid in teach speech related behaviors.
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                          • language was always already included in the programs i worked on 10-13-2017 11:28pm
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                  • you are thinking of other behavior modification techniques. Not ABA 10-13-2017 11:16pm
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                    • That is what aba is and nothing else 10-13-2017 11:20pm
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          • Have only used ABA with autistic patients 10-13-2017 11:17pm
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            • It is used in other areas 10-13-2017 11:23pm
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    • My ds had a PDD diagnosis and got ABA but it was through our insurance, not EI 10-13-2017 11:03pm
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      • PDD is another code for autism --- PDD-NOS (pervasive developmental delay - not otherwise specified) got rolled in with the rest of autism in the new manuals. 10-13-2017 11:04pm
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    • ABA is given for behavioral delays, not speech. It is given for specific symptoms. There is no such thing as a 2-3 year old with an ADHD dx. 10-13-2017 11:03pm
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      • It is given to change behavior and that is all 10-13-2017 11:08pm
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        • It can absolutely be offered to help with pragmatic language 10-13-2017 11:09pm
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          • If you are teaching a behavior sure 10-13-2017 11:10pm
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            • it is used for all areas of language with autistic kids 10-13-2017 11:20pm
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              • It is used to teach behavior so it can work in conjunction with speech but aba therapist do not teach speech 10-13-2017 11:22pm
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                • sure they can, have worked with many on the same language goals 10-13-2017 11:25pm
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                  • Yes this can aid in teaching a specific behavior but speech therapist teach speech. Get informed 10-13-2017 11:26pm
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                    • Speech language pathologist also teach language. 10-13-2017 11:29pm
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                      • They are the only ones who teach it , they can seek out an aba to help create and implement a program to teach a specific mouth movement of get word use to increase. look it up...(more) 10-13-2017 11:32pm
                        please. You lack of knowledge is so sad.
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                        • educate your self 10-13-2017 11:35pm
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                        • ABA programs include receptive and expressive language behavior. Call it what you want 10-13-2017 11:43pm
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                        • SLP below: that's actually not true. BCBAs program for language. It's caused a lot of tension at times between the 2 professions. Ideally, an SLP is involved. And there are even...(more) 10-14-2017 10:42am
                          SLP-BCBAs now, which is what I'm working towards. But ABA does include a language component. It's better for a BCBA to work with an SLP, but some don't, for a variety of reasons.
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          • with Autistic kids/ adults. 10-13-2017 11:18pm
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    • This post has been deleted. 10-13-2017 11:23pm
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    • Thank you all very much. So a young kid (2-3y) cannot be diagnosed for ADHD/ADD? 10-13-2017 11:28pm
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      • Totally inappropriate dx at that age. 10-14-2017 10:09am
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    • I work for an EI agency in a verbal behavior program. I'm an SLP, working toward becoming a BCBA. My group does ABA for a variety of children. No diagnosis is required. It's more...(more) 10-14-2017 10:20am
      about the behaviors observed during the evaluation and overall concerns that determines placement in our group. So a child with speech delay, etc. can be placed in our verbal behavior/ABA group without an autism diagnosis, if the child would benefit from this approach
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  19. Toddler My youngest has a speech delay, some mild sensory stuff, maybe low tone in the core or upper body. Not thought to be autism, possibly adhd in future. His play is also a bit...(more) 8-25-2017 8:07pm (13 replies)
    delayed. Can anyone talk to me about these weird fall in the gap delays? Do they usually get a diagnosis of some sort? Or just need help catching up?
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    • how old? did you already have him tested? 8-25-2017 8:12pm
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      • He's had 2 evaluations, the second to a particular standard to detriment if neurological testing warranted. That was not, but doing speech & OT. He's very joint attention/ share...(more) 8-25-2017 8:15pm
        the moment, acts things out to communicate, more of a coordination/muscle problem, it seems. He's 2.
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        • sounds very similar to my dd who is 13 now. she did speech therapy for a little bit. was always on the very late side for milestones. she ended up ADD and has an IEP but is...(more) 8-25-2017 8:20pm
          needing less support in school. she does a sport. it all worked out
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          • thank you :) 8-25-2017 8:21pm
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    • my ds had very low upper body muscle tone and almost no expressive language at 2yo, his receptive language was excellent. he needed intensive articulation therapy and some OT/PT...(more) 8-25-2017 8:13pm
      and I signed him up for kiddie sports classes just to get him moving
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      • how did it work out? was there an age where it felt like it evened out? 8-25-2017 8:20pm
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    • how old? it gets better with age 8-25-2017 8:15pm
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      • 2, it's definitely improving, but you have hope/optimism and then worry you're not taking it seriously enough etc. 8-25-2017 8:22pm
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    • None of those things sound like ADHD. 8-25-2017 8:27pm
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      • he is very easily distracted with a short attention and a brother and possibly a father with it, and I probably did whatever mother things are to blame 8-25-2017 8:31pm
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        • You did nothing to cause ADHD or autism or whatever else is going on with your kid 8-25-2017 8:33pm
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    • Did you have any prenatal testing done? My ds has an array of mild delays, now learning issues and was dx with an XY variation before birth. You would think he was nt and many...(more) 8-25-2017 8:36pm
      of his issues were so subtle at first. Being really proactive has been a good thing and knowing what to look for helped. Without then"profile" from his diagnosis we'd be playing catch up all the time.
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      • we had testing done and saw nothing 8-25-2017 9:01pm
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  20. Toddler My 2yo has a speech delay, and spends much of his time trying to drag me around to give him things that he can't have, and then he cries and complains. Is this normal or does it...(more) 8-4-2017 7:41pm (52 replies)
    sound like a weird thing?
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    • He should point to the things he wants 8-4-2017 7:42pm
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      • he does 8-4-2017 7:42pm
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        • Then what's with the annoying dragging 8-4-2017 7:43pm
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          • to get me closer to the thing he wants to point at, or to pick him up to get closer to it 8-4-2017 7:43pm
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            • He has to be able to get your attention and point to things from a distance 8-4-2017 7:45pm
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              • he's been evaluated, pointing is not a problem 8-4-2017 7:49pm
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                • ^ joint attention etc. 8-4-2017 7:49pm
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                  • ^^ I'm talking about dragging me to kitchen to open a cabinet, or get something off the island 8-4-2017 7:50pm
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                    • show him how to get a stool and reach it? 8-4-2017 7:50pm
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                      • I can do that for the light switch etc. but no he can't have the things in the high cabinet or on the island 8-4-2017 7:51pm
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                        • Then say no - You can say that to a verbal child so you can say it to him. 8-4-2017 7:51pm
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                          • I do. I indicated that by cries and complains. 8-4-2017 7:52pm
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                            • That's normal and ok 8-4-2017 7:53pm
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    • sounds like he's frustrated that he cant communicate. 8-4-2017 7:42pm
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    • sounds like 2, actually 8-4-2017 7:42pm
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    • is he getting therapy? Is there some sort of more appropriate augmentive communication system he could use? 8-4-2017 7:43pm
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      • he is getting therapy, and he mimes stuff and has some words and kind of easy to get understand what he wants, but it's so effing annoying 8-4-2017 7:44pm
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        • hows his receptive language? Does he understand you? 8-4-2017 7:47pm
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          • yes, very well, two languages 8-4-2017 7:50pm
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            • so tell him its annoying, and that he needs to use a better way 8-4-2017 7:51pm
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        • What does therapist say? 8-4-2017 7:47pm
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        • Did he have a neuropsych done? 8-4-2017 7:47pm
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          • evaluation said it wasn't warranted at this time, possibly apraxia 8-4-2017 7:50pm
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            • Ask therapist best approach to him dragging you around 8-4-2017 7:51pm
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            • Who did the eval? Developmental ped? 8-4-2017 7:51pm
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              • he's been seen by two speech therapists and two occupational therapists, both work in practices with strong autism work, classes etc. 8-4-2017 7:54pm
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                • They can't diagnose autism or anything. All they can say is that the child is delayed in speech or motor skills 8-4-2017 7:55pm
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                  • THIS - Get him a neuropsych exam 8-4-2017 7:56pm
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                  • he had a full evaluation and determined he did not meet the criteria for an autism dx or warrant neuro YET 8-4-2017 7:57pm
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                    • Just get the Neuro - you won't regret it 8-4-2017 7:57pm
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                  • she's not "just" a speech therapist 8-4-2017 7:57pm
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                    • But she is. Even if she has been around kids with autism, she can not say if he is or he is not autistic. 8-4-2017 8:00pm
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                      • but this person is not, she runs a clinic for kids with autism 8-4-2017 8:02pm
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                        • ^ but you know, I just got this party started, and have already worked with like 5 or 6 different people, so I'm not ruling anything out 8-4-2017 8:03pm
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    • op also he doesn't really play much with toys. He has a lot of fun with his friends, likes water, and real life stuff. 8-4-2017 7:43pm
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    • Could be a a normal 2yo, could be speech delay, could be nvld, could be asd, really too soon to tell 8-4-2017 7:43pm
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    • The pointing is a *great* sign 8-4-2017 7:45pm
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      • Not if he is not pointing for joint attention to things on a distance 8-4-2017 7:46pm
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    • does he communicate in any way? 8-4-2017 7:45pm
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      • OP said he points, that's joint attention 8-4-2017 7:46pm
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        • Does he point to things in a distance and check back to see if op is looking? That's joint attention 8-4-2017 7:47pm
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        • Anything verbal? Grunting, making sounds for objects? 8-4-2017 7:47pm
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          • yes he has more and more words and some 2-3 word sentences, lots of environmental sounds, but not really there 8-4-2017 7:52pm
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            • np - It sounds like he's making progress though... it can be a long process! My ds was in EI starting at 7mo. He started speech therapy at 20 months and continued until he was 8yo 8-4-2017 7:54pm
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    • how much speech therapy does he get? does he get any other services too (OT, etc.)? 8-4-2017 7:46pm
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      • we're just ramping up, to 3 speech a week and OT TBD. He was doing both twice a week, but we moved practices based on ped feedback. 8-4-2017 7:55pm
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    • Did you post about this a few months back? 8-4-2017 7:49pm
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      • I have posted a few times. I've had two evaluations for speech and OT. They have to treat as if apraxia for 6 months, see where we end up. And some OT for... not really sure...(more) 8-4-2017 7:53pm
        exactly. Waiting for report back from second OT eval.
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        • You should get a developmental ped eval. He/she would check everything 8-4-2017 7:54pm
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          • that has basically been done 8-4-2017 7:59pm
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        • np - speech and OT go together really well. try to get him lots of both, like at least 3 times a week for 30 minutes for each. 4 times if you can get it 8-4-2017 7:55pm
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  21. Toddler I used to feel guilty that I redshirted my ds who has an august birthday and had a pretty significant speech delay. Our state's deadline is September. Since then I have met many...(more) 6-11-2017 4:18pm (19 replies)
    other families whose ds's have June or May birthdays and were redshirted. So...I don't feel as guilty and in the end...everyone is just trying to make the best decision they can at the time.
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    • I live somewhere where red shirting isn't allowed and that is the best way (and my ds is the youngest) 6-11-2017 4:20pm
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      • that is your opinion. 6-11-2017 4:20pm
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        • lol. No shit. 6-11-2017 4:21pm
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          • well you said "that is the best way" like you are some sort of authority. 6-11-2017 4:22pm
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            • Next time I will clarify that I am just a random person on ybm like everyone else 6-11-2017 4:23pm
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              • NP yes, we should say this every single time we comment 6-11-2017 4:36pm
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      • ^^ you never have more than a year gap in age and it's not a race to the bottom 6-11-2017 4:20pm
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    • I wish I had redshirted my June baby. Academically hes on track but was held to the standard of behavior of kids who were almost a full year older than him bc so many others...(more) 6-11-2017 4:20pm
      redshirted) He was ALWAYS "in trouble" and just felt like garbage
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      • terrible 6-11-2017 4:24pm
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      • OP. I read the studies, I read the articles,many of which recommend NOT redshirting. But the reason why people often do not red shirt is because they don't want to pay for another...(more) 6-11-2017 4:26pm
        year of preschool or childcare (or they can't afford to do this). I also consulted very experienced teachers and administrators. All of them said to redshirt given my circumstances. Someone studying something from an Ivory Tower is very different from someone who is in the trenches every day.
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        • or- I really didnt want to pay an extra year of daycare either, and tbh he was ready for kindergarten in its truest definition. But there are an overwhelming amount of redshirts,...(more) 6-11-2017 4:34pm
          Id say half the class was 6 by the end of sept. I think teachers need to be cognizant of this, unfortunately this one was not, and my son had an awful year. I recently rad an article saying that if kindergarten wasnt the new first grade, redshirting wouldnt be necessary. 5 year olds shouldnt be expected to do seatwork for extended periods of time, and my DS was constantly "in trouble" because he couldnt sit still. Hoping 1st grade is better.
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          • np redshirting isn't new, though. it's been going on since my kids were K age, and they're all grown up. K wasn't the new first grade then. 6-11-2017 4:37pm
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            • was it half the class at that time? 6-11-2017 4:39pm
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              • yes, a lot of kids, mostly boys. 6-11-2017 4:45pm
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            • nnp- its definitely more prevalent now than ever; it existed but maybe for a handful of kids, and for valid reasons 6-11-2017 4:41pm
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              • honestly, my experience is not what you're saying. most boys were redshirted. there were few kids in my oldest daughter's class younger than she was, with a july birthday, and...(more) 6-11-2017 4:45pm
                only one boy.
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                • interesting. Im a teacher and have seen a stark increase. Used to be a few kids with birthday very close to the cutoff, or kids wh were preemies. now its way more 6-11-2017 4:59pm
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        • Except the researchers have no bias at play- teachers and parents do 6-11-2017 4:37pm
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    • I have July twin boys and I was really torn over this. I ended up holding them and it was a good thing for them. And many kids with May-Sept were also held back, so they don't...(more) 6-11-2017 4:45pm
      feel different in any way. I consulted many on this and the majority of people (teachers, btdt, etc) said holding was def the way to go.
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  22. Toddler DH shut 2 yo DS's hand in sliding door this past Thursday. DS was hysterical for a few minutes then was fine, we checked his hand and no swelling or marks. Since then, however, he...(more) 5-23-2017 6:56pm (16 replies)
    has intermittently been keeping his fist closed to perform certain tasks (pushed baby carriage with fist, carrying things in crook of arm rather than hand) but! Then will use it fine for awhile (feeding himself with the injured hand, washing hands, using a crayon) and doesn't appear to be pained when I manipulate the hand. I took him to ped today, of course she didn't observe him with closed fist at all and said his hands looked fine. I felt a little silly and overreactive. But now he's keeping it closed again and I'm starting to really worry. Also my internet searches for closed hand keep turning up autism/SPD checklists and he has a slight speech delay so I'm coming close to going off the deep end as you might gather from this post. Anyone have a toddler "baby"/guard his hand after an injury like this?
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    • Just take him to the dr. 5-23-2017 6:56pm
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      • she did 5-23-2017 7:00pm
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        • I admit I stopped reading 5-23-2017 7:01pm
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    • divorce ASAP for child abuse 5-23-2017 6:57pm
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    • some of you are crazy 5-23-2017 6:57pm
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    • (Op) also, ped said to get x ray of it persists but I have to wait for DH to get back from...(more) 5-23-2017 6:57pm
      Business trip tomorrow (I'm 8 mo pregnant and can't go in with him/help to hold hands down)
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      • The nurse can help 5-23-2017 6:59pm
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      • yes you can, they will cover your belly with a lead drape. Lots of pregnant people need xrays for various things 5-23-2017 7:13pm
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    • sounds like fist cancer 5-23-2017 6:57pm
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      • or even worse, fist ebola 5-23-2017 6:58pm
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    • you need an X-ray, ped ortho 5-23-2017 6:58pm
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      • you can diagnose better on line than a ped did in person? moron 5-23-2017 6:59pm
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        • I can see your online addiction that makes you weirdly cruel to strangers so I am 2 for 2 5-23-2017 7:00pm
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          • it is obsene how much health care costs and you are part of the reason 5-23-2017 7:01pm
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          • Op- that wasn't me. Yes I'm going to call ped ortho in morning 5-23-2017 7:01pm
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    • No, but my 2yo crawls up the stairs using the back of her hand. And she is otherwise normal in every other way. 5-23-2017 7:00pm
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  23. Toddler Is it hard to request change from CPSE preschool to just related services?...(more) 4-28-2017 10:11am (2 replies)
    My son is aging out of EI. We had our first CPSE meeting and the IEP recommended placement at a CPSE school (12-2-1) and OT/PT/Speech 2x30. My son does not have a diagnosis; he has a speech delay and fine/gross motor weakness. After visiting the CPSE schools, we have decided that we want to keep him at his current private nursery school. Does anyone know if it will easy to request his IEP change to SEIT + related services? Trying to figure out if I can just call the CPSE admin and request or if I need to lawyer up and get an advocate and prepare for a battle with the DOE. Like to hear from parents who went through a similar situation. Thanks!
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    • It's probably easier to get related services than CPSE school placement, but generally it's difficult for a child to qualify for CPSE school. Has yours? If so, are you sure it...(more) 4-28-2017 10:15am
      wouldn't be the appropriate environment? My ds did two years of SN preschool, then mainstreamed completely, and I have to say it was MUCH better for him to have the small setting, special ed teachers, scaffolding, speech and OT at school for those two years. And many SEITs are, frankly, useless--my ds had one for a while in mainstream preschool and we got rid of her. My understanding is that a kid cannot qualify for CPSE preschool unless he or she needs play therapy and/or has cognitive delay--is that not true of your child?
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      • - no subject -...(more) 4-28-2017 10:30am
        Thank you for the reply. He does not have a cognitive delay and his receptive language skills are very good. But, he qualified for CPSE school because he qualified for 2+ services. He's improved so much in the last 7 months at his private nursery school which is why we want to keep him there. Glad to hear your son is doing great transitioning to general ed.
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  24. Special Needs Hi, my second child in entering EI and things seem to have changed a lot...(more) 4-4-2017 11:01am (18 replies)
    since my first child went through EI. My son has severe speech delay but they will not give us more than 2x30 without a private evaluation and diagnosis. Is this normal, his recent speech eval stated he was greater than 60% delayed. Is this even legal? We canít afford this. How can they force people to get a private eval?
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    • I'm an SLP for EI and my own dc is in it too. It depends on the state. I work in NJ, and at most, kids get 1x/week for 60 minutes. They then might get additional services from...(more) 4-4-2017 11:05am
      other disciplines (my own dd gets 9 hours a week of ABA, OT, speech). The actual SLPs are not brought in for more than an hour weekly, though.
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      • That is crazy low. What if you're talking about a nonverbal 3 year old?/ 4-4-2017 11:07am
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        • The model has changed a bit. They use DI to Target speech, as well. In my dd's case, the DIs are BCBAs but others are simply teachers. It's all about money. 4-4-2017 11:08am
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          • DI? 4-4-2017 11:09am
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            • Developmental interventionist. EI has changed a lot. My oldest was in EI 10 years ago and DI wasn't a thing. Now, they use them for play skills, imitation, ABA(when applicable...(more) 4-4-2017 11:12am
              and if needed). They bring the SLP in only to supplement DI or if there is a real reason (feeding, low tone, etc). Not just for a language delay. I have some who only qualify for once a month, which is useless, imo
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              • ah, my dc was in EI just two years ago and there was no DI. I wonder how much this varies by state (am in NYC) 4-4-2017 11:16am
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                • They call them teachers and other terms too, depending on the state. There's a marked increase in their use. I was skeptical at first, but they've been amazing with my dd and I...(more) 4-4-2017 11:18am
                  work closely with them on my cases.
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            • DI is a nj (maybe even other states) thing. My dc had one 10+ years ago. They can do the aba program....(more) 4-4-2017 11:45am
              Meaning follow the one the aba therapist creates for some. Depends on the dc
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          • And my dd has very low scores. 3 standard deviations below the mean. She will go to self-contained next year. Most of the kids on my caseload get fewer hours than she does. 4-4-2017 11:10am
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          • Yes I had a very positive experience with EI 5 years ago. Quite possibley change the direction of my older child's life. Now I can't seem to get anything, they are also slow...(more) 4-4-2017 11:18am
            difficult. What a change!
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            • I'm sorry that's happening :( I've been having a wonderful experience and dd is the bottom 1% of her age. But I'm not in NYC. And I love working in EI. I used to do that in...(more) 4-4-2017 11:20am
              addition to other jobs, but now I do it exclusively. I wish I could help you.
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              • Thanks. I do think perhaps I hit on a bad EI rep. 4-4-2017 11:27am
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    • That seems odd to me. But you can push for a re-eval after I think 3 months. And your insurance may also cover some ST. 4-4-2017 11:06am
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      • Yes we are getting reevaluated even though the most recent report from the SLP was pretty bad. The EI rep said we won't get an increase without a private eval....(more) 4-4-2017 11:14am
        So many people can't afford this. It seems very unfair.
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        • NYC EI speech therapist here: 2x30 is standard unfortunately. Start with that and after 30 days, you slp can request an increase in service/duration. Don't pay for a private...(more) 4-4-2017 2:59pm
          eval!!
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          • OP--I got a diagnosis of suspected apraxia with a prescription for PROMPT 5 times a week 6 years ago. I got 4--medical documentation is a great help here!...(more) 4-4-2017 7:37pm
            BTW, severe apraxia resolved at 4.3!!
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            • ps--from pediatric neurologist 4-4-2017 7:38pm
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        • rusk does evals and takes most insurance 4-4-2017 8:46pm
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  25. Toddler Do you think dorit's dc has a speech delay because of her mom's weird accent? 2-19-2017 8:37pm (7 replies)
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    • No, kids don't get speech delays because of the parents' accent 2-19-2017 8:38pm
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    • I thought that too and the nannies have weird accents 2-19-2017 8:39pm
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      • Ffs I have a foreign accent and both of my kids are very verbal and they don't speak with a foreign accent 2-19-2017 8:40pm
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        • Do you speak to them in English or in your native language?her English is barely understandable! 2-19-2017 8:42pm
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          • I speak English to them. They are monolingual 2-19-2017 8:42pm
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            • Just curious, why don't you speak to them in your native language? 2-19-2017 8:44pm
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              • My dh doesn't speak it. My parents are dead so there is no one left to speak it with 2-19-2017 8:45pm
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