Special Needs

  1. Special Needs Reading these blogs about severe autism cases......(more) 42 min ago (8 replies)
    Makes me feel panicked and nauseous. My 3.5 ASD boy is not a mild case. Not sure just how severe yet but am picturing things getting worse as he ages. I feel frantic and anxious. Watching my 1 year old DD for signs since she isn't saying words or pointing or waving. Just feel sick to my stomach.
    permalink | log in or sign up to post a comment
    • stop reading them! 41 min ago
      log in or sign up to post a comment
      • I just can't! Reading about ASD kids that seemed to improve but became violent and more severe with age. 38 min ago
        log in or sign up to post a comment
        • is your son violent now? 32 min ago
          log in or sign up to post a comment
          • Kind of. Hits with tantrums, pushes sister, throws things....(more) 21 min ago
            He's a baby so it's manageable but what about the future? As me and DH age? Some comfort is that his worst behaviors (biting, hitting is head against wall/floor), punching himself) stopped for now around age 3.
            log in or sign up to post a comment
            • Already my parents are too old and weak to handle him alone. He somehow knows and preys on those who can't control him. 18 min ago
              log in or sign up to post a comment
    • breathe, mama. we are here for you. 40 min ago
      log in or sign up to post a comment
    • Agree, don't read them, but also can you enroll your dd in a sibling study? That could really ease your mind and/or give her help. 38 min ago
      log in or sign up to post a comment
      • I was waiting to have her evaluated bc signs are not obvious like they were with DS and she's only 1....(more) 35 min ago
        But then I read about girls showing autism by age 2!! I'll be panicked for another year.
        log in or sign up to post a comment
  2. Special Needs Winston Prep application just changed. It now includes the question: "Has your child been diagnosed with any medical or mental health conditions? Please explain." Are they trying...(more) 57 min ago (9 replies)
    to weed out ADHD kids and/or spectrum kids? Their previous application didn't ask this. The assistant told me "the Board" just ordered this change, so those of us who submitted the previous year's application (which was online until only a few weeks ago), have to redo the application. Interesting.
    permalink | log in or sign up to post a comment
    • in my mind, winston is majority adhd/spectrum kids 56 min ago
      log in or sign up to post a comment
      • op: It's a notable addition, though, the question, don't you think? I've applied to 4 other schools and not one school has asked any similar question. The schools do ask for...(more) 55 min ago
        medication dosages, though, and Winston Prep's previous app. asked that (and still does).
        log in or sign up to post a comment
        • I'm torn. on one hand, it seems sort of inappropriate, but I might wonder if they've had parents being not-entirely-upfront about their kids' diagnoses. 50 min ago
          log in or sign up to post a comment
    • I am very upfront with my kids stuff, but in this case I would leave the answer blank. Or I would write "I think this question is inappropriate" 54 min ago
      log in or sign up to post a comment
      • op: Well, considering I received a call saying that I had to redo the application because there are additions to the app, and after a comparison of the 2 apps, the only change of...(more) 52 min ago
        note is this question, I have to answer it. I'm not hiding anything, I just think the question should have been left off the application.
        log in or sign up to post a comment
        • And I would write that, still. You answer the question. It is not appropriate to ask that on an admission application. 51 min ago
          log in or sign up to post a comment
          • op: I agree with you. I don't want to tank my kid's chances by seeming difficult, though. It's BS. He had a dx from ages 2-4. He no longer has one, but it's in his neuropsych that...(more) 45 min ago
            he used to have a PDD-NOS dx. And the wording doesn't ask if he currently has a dx, but if (in effect), he's ever had one. BS.
            log in or sign up to post a comment
            • np: PDD-NOS is not a medical or mental health condition - I think you are totally in the clear. Autism is a neurodevelopmental condition, totally different. 38 min ago
              log in or sign up to post a comment
              • Not according to the WebMD and Autism Society websites. 9 sec ago
                log in or sign up to post a comment
  3. Special Needs Advice please. 11 yo ds with ADHD keeps forgetting to...(more) 1 hr 42 min ago (2 replies)
    attend afterschool tutorials or any changes to his schedule -- including things he wants to go to. We have tried putting a post-it in his notebook, and switching his watch to his other arm. But he can't remember. He does not have a cell phone/smart phone yet. He has a digital watch but doesn't want to wear it becuase he has to take it off for gym and is afriad he will lose it.
    permalink | log in or sign up to post a comment
    • changes in the sched are so fucking hard for us... can you call the school and have him get a note in the last class of the day, or ask the teacher to remind him before dismissal? 1 hr 39 min ago
      log in or sign up to post a comment
    • Can he have a note in his locker, or somewhere else he will reliably see at the end of the day, that says "check schedule: any changes today?" So eventually it becomes part of his...(more) 1 hr 28 min ago
      routine, and then a reflex?
      log in or sign up to post a comment
  4. Special Needs Do teachers of elementary and middle school assume that all children have their own computer or general access to a family computer? 3 hr 44 min ago (10 replies)
    permalink | log in or sign up to post a comment
    • depends on the demographics, but these days yes 3 hr 43 min ago
      log in or sign up to post a comment
      • this. unless it's a poor school (like Title I), the vast majority of kids have this. 3 hr 42 min ago
        log in or sign up to post a comment
      • ^^^^ I'll add that my Guatemalan housekeeper has a computer and internet for her DC 3 hr 42 min ago
        log in or sign up to post a comment
        • Is her kid SN with poor safety awareness? 3 hr 41 min ago
          log in or sign up to post a comment
    • At my DC school, yes, but it is a catholic school 3 hr 41 min ago
      log in or sign up to post a comment
    • not in dc's school-it is a mix of extreme wealth and extreme poverty. teachers make classroom time for computer projects 3 hr 39 min ago
      log in or sign up to post a comment
    • Does your SN child have access to a family computer? Unmoderated access? 3 hr 38 min ago
      log in or sign up to post a comment
      • mine was keyboarding so he had a laptop - that was a million years ago. lol. 3 hr 27 min ago
        log in or sign up to post a comment
      • Np: we use k9 as our web browser. When I go on I switch the user and that has full Internet. K9 is free and allows kids to google naked cowboy (the guy in time square) and no...(more) 3 hr 8 min ago
        naughty stuff comes up. It also filters you tube ect. Our computer is in family room so everyone can see everything. No iPads are allowed in rok
        log in or sign up to post a comment
    • yes because they are told to go to the school's website and practice 3 hr 13 min ago
      log in or sign up to post a comment
  5. Special Needs Earliest age for ADHd meds? I'm sure our neuropsych will end up dx ing 5 year old... 3 hr 58 min ago (7 replies)
    permalink | log in or sign up to post a comment
    • too young. most start 7 or 8. 3 hr 56 min ago
      log in or sign up to post a comment
    • I would not use drugs till grades really matter or learning is sacrificed. Try all other methods, including sleep studies, at those young ages. But this is me. 3 hr 53 min ago
      log in or sign up to post a comment
    • a good neuropsych shouldn't dx before 7 or 8. 3 hr 51 min ago
      log in or sign up to post a comment
    • 4.75 3 hr 40 min ago
      log in or sign up to post a comment
      • It was that or NP was going to label him as ED. On meds he "passes" for typical. He is the poster child for a kid who needs meds, NOTHING else worked 3 hr 39 min ago
        log in or sign up to post a comment
      • Ditto. 3 hr 38 min ago
        log in or sign up to post a comment
    • we went to NP at 4 and went back at almost 8 where it was suggested to try meds 3 hr 12 min ago
      log in or sign up to post a comment
  6. Special Needs So frustrated. Worried about dd, have been trying to book a time with a therapist she saw last year. We have been playing phone tag, and I need to tell her what is going on with...(more) 4 hr 4 min ago (0 replies)
    dd, and she keeps calling back at dinnertime, when I can't go someplace to talk to her, and I can't talk about it in front of dd. Not mad at therapist, just annoyed in general.
    permalink | log in or sign up to post a comment
  7. Special Needs Thinking about Kelli Stapelton. I remember one therapist who he met with for help with our ds who was very violent at the time. I said I was getting my but kicked (and I was) and...(more) 4 hr 11 min ago (4 replies)
    she said "you wouldn't say that if your child had colick and was screaming all the time. You have to picture him as a baby with colic." I remember feeling so dismissed and shut down. I think dealing with issues can be so isolating even when you do have help.
    permalink | log in or sign up to post a comment
    • so sorry you had to go through that, and the invalidation of someone who is supposed to help. how is ds now? 4 hr 7 min ago
      log in or sign up to post a comment
      • He is doing much much better. We are very lucky. It was a horrible moment. When you are sitting there bruised and scarred and someone is telling you to be more compassionate......(more) 4 hr 4 min ago
        It's important don't get me wrong! Of course I am compassionate. But you are starving for that compassion too. For someone to tell you it's ok to be exhausted, and worn out, and wonder if you were meant to be a parent at all. I don't know what Kelli was like prior to this but dealing with violence from your child is exhausting in ways you can't imagine. And what she went through was major!! Major.
        log in or sign up to post a comment
        • wow. I'm very glad he is doing better now. I can't imagine what the Stapletons have gone though with Issy... 3 hr 59 min ago
          log in or sign up to post a comment
          • I can't either. I really can't. My situation wasn't even a fraction of being beaten unconscious and while unconscious. I feel for her immensely. The funny thing with the therapist...(more) 3 hr 55 min ago
            comment was both my mother and two close friends had babies with colic and they all said they felt like they were going nuts at that time! The therapist as it was, had no children. Thank you by the way. He is an amazing boy and we are very lucky. I have many friends not so lucky and it is heartbreaking.
            log in or sign up to post a comment
  8. Special Needs Today is our 12 yr wedding anniversary. dc 1 spent 3 hours out of classroom today due to behavior dysregulation. dc 2 has emotional regulation issues and cried at school 5 times...(more) 4 hr 25 min ago (3 replies)
    today.
    permalink | log in or sign up to post a comment
    • Are you in NYC? There is a monthly parents-of-kids-with-mood issues support group if you are interested. 4 hr 4 min ago
      log in or sign up to post a comment
    • Sorry you are having a shitty anniversary :( Still time for a glass of wine?! 2 hr 38 min ago
      log in or sign up to post a comment
      • OP: thanks! having a glass right now. only saving grace is dh and I going away this weekend alone to celebrate 1 hr 22 min ago
        log in or sign up to post a comment
  9. Special Needs What do I need to put in the letter to the DOE to request a AT evaluation 4 hr 51 min ago (2 replies)
    permalink | log in or sign up to post a comment
    • That you wish to request an evaluation for AT. After years of fine motor struggles. Don't have to give a huge background, if memory serves. 3 hr 9 min ago
      log in or sign up to post a comment
    • FYI - the OT in the school can do the AT evaluation - they don't have to go to the Central AT office. We found this out after asking for one. But know that many...(more) 1 hr 47 min ago
      OTs have never done them before.
      log in or sign up to post a comment
  10. Special Needs What does your school or district provide for garden variety AS? Not the barely-register on the ADOS Nest kids, but not needing something as restrictive as a SN private school? 5 hr ago (8 replies)
    permalink | log in or sign up to post a comment
    • In burbs we work with a bcba 1x a week (had home visits at one point), ot, pt, st 4 hr 44 min ago
      log in or sign up to post a comment
      • Age? I've never seen BCBA given for school-aged. 4 hr 38 min ago
        log in or sign up to post a comment
        • Dc started in preschool with bcba and has worked with the same one since and will continue to until he graduates HS. He had an aide at one point. That became a shared aide then...(more) 4 hr 34 min ago
          phased out. The bcba works on teaching social skills and generalizing those skills in the school / playground setting + helped a home when he was younger. The bcba ran a lunch bunch then trained the social worker to do it. I know a few AS kids in the district and honestly they all get Ot, PT, ST and bcba. What is different is the amount if they are ms or CTT have aide or dont go into the aba (self contained) room or resource. It really is individual.
          log in or sign up to post a comment
          • ^there were years when my dc has ST 5 x a week. As dc's age services are generally decreased if they stay in MS. Now all my dc gets is social skills and speech. 4 hr 32 min ago
            log in or sign up to post a comment
            • Pretty much ditto here including home visits with bcba and para 2 hr 45 min ago
              log in or sign up to post a comment
    • We have a para and OT. 4 hr 38 min ago
      log in or sign up to post a comment
      • We also had a behavioral plan when ds was younger, but not this year (4th grade). 4 hr 37 min ago
        log in or sign up to post a comment
        • Ah, and counseling, which is basically social skills. 1 hr 36 min ago
          log in or sign up to post a comment
  11. Special Needs Long shot - but any one know a CBT therapist for my 7 yo LD DD in boston? Bonus points if they take Tufts EPO insurance and are accepting new patients 5 hr 23 min ago (0 replies)
    permalink | log in or sign up to post a comment
  12. Special Needs Open house for prospective parents at Shefa School...(more) 5 hr 46 min ago (0 replies)
    Open House for Prospective Parents
    Thursday, November 13, at 9:00am
    RSVP to admissions@shefaschool.org
    permalink | log in or sign up to post a comment
  13. Special Needs We've tried everything for 6yo's ADHD including meds and therapies. He does fine for a few weeks, then he bombs for a few weeks. We switch it up...(more) 7 hr 25 min ago (51 replies)
    (Doctor switches it up); he behaves, then back to bad behavior. The only thing left for him is Intuniv. Why does this scare me so much?
    permalink | log in or sign up to post a comment
    • oh god this is so me. Did you do the time release concerta? Because I'm convinced maybe the dose just wasn't high enough. They only did 5mg for my son. 7 hr 24 min ago
      log in or sign up to post a comment
      • ^^but essentially I just think my son can't function in a large classroom. It is impossible for him. We are hiring an educational consultant to find him a school and we are going...(more) 7 hr 21 min ago
        to move based on his needs.
        log in or sign up to post a comment
      • We use the Cadillac of stims now, quillivant... And it's doing shit lately 7 hr 21 min ago
        log in or sign up to post a comment
        • this is what they want to move mine to as well!! I feel like pharm companies are pushing this drug. Why do I keep hearing about it?! 7 hr 19 min ago
          log in or sign up to post a comment
          • It's amaxing (until it's not). It's long lasting and you can really measure the dose precisely to your kid's needs...(more) 7 hr 17 min ago
            Also the highs and lows are a lot less
            log in or sign up to post a comment
            • I hate the come down from concerta and the other one...Strattera 7 hr 11 min ago
              log in or sign up to post a comment
          • how bad is his ADHD? Medicating a 6 yo seems harsh...is he still in K? 7 hr 16 min ago
            log in or sign up to post a comment
            • Goodbye troll 7 hr 14 min ago
              log in or sign up to post a comment
            • He is in 1st grade. He was labeled sensory seeking at 3yo and hasn't napped since 11mos. When your kid is having daily melt downs and tantrums with the teacher and going to the...(more) 7 hr 13 min ago
              principals office weekly, you look into medication. He also has tics, that stop with the meds.
              log in or sign up to post a comment
              • all- yep. this is my kid 7 hr 12 min ago
                log in or sign up to post a comment
              • This post has been disliked 5 times. showI didn't mean to upset anyone...I would just want to look into something else other than an ADHD diagnosis....just seems young...about 80% of 6 yo boys have "attention" issues 7 hr 9 min ago
                log in or sign up to post a comment
                • You're so transparent. I will send my neuro your permalink. Seems he has a lot to learn from you. I think we all have much to learn from you. 7 hr 7 min ago
                  log in or sign up to post a comment
                • oh brother 7 hr 7 min ago
                  log in or sign up to post a comment
                • you obviously have no clue what you are talking about here. You are on the special needs board. My kid clicks and blinks uncontrollably and hums. He repeats words over and over...(more) 7 hr 6 min ago
                  while he works. This is beyond lack of focus. His brain is wired differently. It is a lifelong problem. He isn't growing out of it. His father has it as well and has been medicated since the 70's.
                  log in or sign up to post a comment
                  • ^^he covers his ears when he hears a loud noise, but he is the loudest in the room, he talks incessantly, he has fine motor problems, he still has problem standing on one...(more) 7 hr 4 min ago
                    leg....do you know anything about sensory, adhd issues??
                    log in or sign up to post a comment
                    • Op: I love your son! He is my son! 7 hr 2 min ago
                      log in or sign up to post a comment
                      • haha. they are tough these guys. probably why we are finding it so hard to medicate them. 7 hr ago
                        log in or sign up to post a comment
                • wow. Sn attracts trolls now? I thought it was safe here 7 hr 4 min ago
                  log in or sign up to post a comment
            • np: do you realize where you are? please withhold your judgment on this board. 7 hr 13 min ago
              log in or sign up to post a comment
    • don't be scared by it, but don't' expect a "magic pill." they all work great for a few weeks and then, for some, it peters out. What is sometimes missing is the focus on skill...(more) 7 hr 23 min ago
      building and appropriate school placement and structure
      log in or sign up to post a comment
      • We are working on all of that . When I say all, I can't even list it all it's so much :( 7 hr 20 min ago
        log in or sign up to post a comment
    • if he's 6....you can't have cycled through that many meds yet. What have you tried? 7 hr 22 min ago
      log in or sign up to post a comment
      • Everything but intuniv. And pardon me for saying so, but please get off my post with your attitude. I honestly don't need it now. 7 hr 19 min ago
        log in or sign up to post a comment
        • My experience was that it took months to try one thing. I'm not giving you attitude...I'm just trying to understand. 7 hr 18 min ago
          log in or sign up to post a comment
          • and? When do you think we got on this roller coaster? This September? The September before that? September of 2012? Tell me? You seem to know 7 hr 14 min ago
            log in or sign up to post a comment
            • Well...I started medicating my ds when he turned 6. Which is typically the minimum age at which psychiatrists recommend starting...so I was presuming similar? 7 hr 12 min ago
              log in or sign up to post a comment
              • And all children are identical and your presumption was awesome for nobody but you 7 hr 10 min ago
                log in or sign up to post a comment
                • OK, I'm out here. I was trying to have a conversation. But this has just degraded. Good luck. 6 hr 53 min ago
                  log in or sign up to post a comment
              • np: I started at age 4, and your literature is out of date. 7 hr 9 min ago
                log in or sign up to post a comment
                • No, it really isn't. 6 hr 37 min ago
                  log in or sign up to post a comment
              • Typically? What does that mean? Omfg 7 hr 8 min ago
                log in or sign up to post a comment
                • Typically means that this is what is often (though not always) done. 6 hr 40 min ago
                  log in or sign up to post a comment
    • does he have anxiety as well? My dc is 11 and we've tried 4 different meds, 3 different therapists...I'm throwing in the towel with both at this point and making them enforce...(more) 7 hr 21 min ago
      his 504 at school and providing extra support/reassurance for him at home...it is exhausting for me but I've come to the conclusion that this is what helps him the best. The meds don't work and the therapists who see him for 1 hour a week don't really get the whole picture
      log in or sign up to post a comment
      • np: Different situation with an anxious, difficult 8yo and I'm already starting to think this is the path, and that meds/therapy are just a sinkhole of time and money. But I'm...(more) 6 hr 42 min ago
        having a bad day. :-)
        log in or sign up to post a comment
    • dont be scared. It is exhausting but he is still so young. For one thing, he could respond differently to meds by next school year, and though that FEELS like it is too hard to...(more) 7 hr 20 min ago
      wait, it is still so young to be catching and addressing. I just met someone on something like Quillivant and Intuiv, (her ds) who had tried so many things before that, but now working for them well for a couple years. You'll get there.
      log in or sign up to post a comment
      • This is where we'd be if we green light the intuniv (he's already on quillivant). Is her child suffering any side effects that you know of? I'm so scared of sedating him 7 hr 18 min ago
        log in or sign up to post a comment
        • Intuniv is not a sedative. It's a blood pressure medicine. (np) my son does better on Tenex. The release pattern of the Intuniv made him excessively sleepy in the afternoon. 7 hr 14 min ago
          log in or sign up to post a comment
          • It has a sedative effect 7 hr 6 min ago
            log in or sign up to post a comment
    • You're scared of Intuniv? It's just a slow release Tenex. Or you're scared that nothing will work? 7 hr 15 min ago
      log in or sign up to post a comment
      • Op- both. Intuniv/tenex does have a sedative effect and I feel like I'm sunk if that doesn't work 7 hr 11 min ago
        log in or sign up to post a comment
    • Why is everyone getting up in arms over this post? People are getting way sensitive on this board. 7 hr 6 min ago
      log in or sign up to post a comment
      • You mean the people who are telling us out kids shouldn't be medicated? Or that perhaps our dds are wrong? Or saying whT is "typical"?...(more) 7 hr 3 min ago
        Which post are people too sensitive about?
        log in or sign up to post a comment
        • I just feel like one comment sends everyone over the edge. I would comment about my dd but really fear it'll rub someone the wrong way. This board is just saying what we feel and...(more) 6 hr 59 min ago
          everyone now takes things very personal. What happened to ignoring trolls?
          log in or sign up to post a comment
          • I prefer to show them the door. If you have something legitimate to say, you have nothing to fear. If you tell parents it's a shame that they're medicating their kids so you g,...(more) 6 hr 57 min ago
            you need to leave. Simple.
            log in or sign up to post a comment
            • Your entitled to how you treat trills u just see a lot of long fighting on threads now. 6 hr 54 min ago
              log in or sign up to post a comment
              • Eh, that's not new either. 6 hr 54 min ago
                log in or sign up to post a comment
                • seems more frequent than before. 6 hr 52 min ago
                  log in or sign up to post a comment
      • It's never been a good idea to troll the SN board with faux concern about protecting our kids from overdx and whatever other imaginary things the parents of NT kids think we're...(more) 7 hr 1 min ago
        doing to them. That's not new at ALL. Don't troll the SN board or you will get a righteous and deserved smackdown from SN parents who know it and live it!
        log in or sign up to post a comment
      • oh shut up 6 hr 59 min ago
        log in or sign up to post a comment
    • We also bounced around with stimulants. Dcs issue was getting emotional after a few weeks of each stimulant. Dr added intuniv but it didn't really do much, what did help was...(more) 2 hr 25 min ago
      lexapro!
      log in or sign up to post a comment
  14. Special Needs Just started the process to assess dd for adhd or executive function issues. Until we get into our first appt, could someone recommend a book that would help dh and me...(more) 7 hr 35 min ago (3 replies)
    understand what might be going on?
    permalink | log in or sign up to post a comment
    • Smart But Scattered 7 hr 35 min ago
      log in or sign up to post a comment
    • Driven to distraction 7 hr 34 min ago
      log in or sign up to post a comment
  15. Special Needs Dear teachers - please say SOMETHING nice about my kid at conference. Love - me 8 hr 28 min ago (14 replies)
    permalink | log in or sign up to post a comment
    • aw. they should. they should say a few positives first. 8 hr 27 min ago
      log in or sign up to post a comment
      • and then pull out the knives 8 hr 25 min ago
        log in or sign up to post a comment
    • God, it makes such a difference, doesn't it? 8 hr 26 min ago
      log in or sign up to post a comment
    • I say the same prayer. And when they do say nice things they sound forced and I don't believe them. :( 8 hr 24 min ago
      log in or sign up to post a comment
    • OP: at the end, while I was crying, they said, "why are you upset? We said he was adjusting well to the new class, but these are the things we are all working on together." NO,...(more) 8 hr 23 min ago
      bitch, you didn't.
      log in or sign up to post a comment
      • are you sure you just didn't hear that? I always bring dh with me because I always miss that kind of stuff 8 hr 4 min ago
        log in or sign up to post a comment
        • You are right on. I focus on the negatives. It is first year in SN school after 3 years of MS preschool where he was essentially the mascot. I have school PTSD from this process...(more) 7 hr 59 min ago
          and find myself alternating between wishing I had never had a DC and thinking he;'s fine and they can a lll f--k off.,
          log in or sign up to post a comment
    • I feel you...two yrs Go ds teacher at a ms preschool had nothing nice to say and made him it to sound horrible...but he's in a SN private and when I had my first conference and...(more) 8 hr 1 min ago
      all they could do is say good things and positive things...I started to cry. Happy tears
      log in or sign up to post a comment
      • This was first SN conference and I was expecting your scenario. Oops. not so fast. 7 hr 59 min ago
        log in or sign up to post a comment
        • I hope next conference things will be better for you! 7 hr 57 min ago
          log in or sign up to post a comment
          • Thanks. I so wanted this to be a "quick fix." It always starts with how adorable and handsome and smart he is, BUT>>>>> 7 hr 56 min ago
            log in or sign up to post a comment
            • On the other hand, be careful of "snow jobs." I got that last year with my SN school, but by Jan,Feb, they were singing a different tune. Out of nowhere. It was a total shock....(more) 3 hr 3 min ago
              Good luck to your son in school, though. They are works in progress.
              log in or sign up to post a comment
              • Thank you. This is a great perspective. Sorry that happened to you - jeez, this is exhausting. 2 hr 49 min ago
                log in or sign up to post a comment
  16. Special Needs Have you ever tried massage therapy to help ADHD dc? 8 hr 32 min ago (2 replies)
    permalink | log in or sign up to post a comment
    • I never heard of that as a therapy. My ds is almost 15 and I've been treating his ADHD for 9 years now. 8 hr 31 min ago
      log in or sign up to post a comment
    • Never tried or heard of it. But currently doing something called play attention. Someone mentioned it here. 8 hr 29 min ago
      log in or sign up to post a comment
  17. Special Needs Feeling down and frustrated. Moved states and have been trying to just get a refill for my dc's Zoloft. Had to see a new psychiatrist, found a psychiatric nurse in network. We...(more) 8 hr 54 min ago (20 replies)
    need the refill b/c we are talking about weaning dc off over the next 6 months (depending on how other therapies go), and we came out of the session with new psych nurse saying dc probably has Borderline and we should add Clonidine to the Zoloft for tics/impulsive backtalk. Oh! and I only got a 30-day refill and won't get another until we submit bloodwork and an EKG and report back for another appt. I feel so frustrated and confused and just generally icky.
    permalink | log in or sign up to post a comment
    • I personally wouldn't use a nurse for this 8 hr 53 min ago
      log in or sign up to post a comment
      • I only wanted to see a nurse as a stopgap b/c (1) they're the only one who takes our insurance across the county, and (2) we are going into an intensive 4-month therapy program...(more) 8 hr 50 min ago
        starting next week, where the practitioners will get to know dc and make referrals and recommendations. So we really just need a scrip renewal for 4 months, after which I'm happy to pursue a better solution.
        log in or sign up to post a comment
        • I understand. Sorry if I sounded judgey. 8 hr 43 min ago
          log in or sign up to post a comment
    • they are being thorough. better than not doing anything and just giving refills. gl. 8 hr 52 min ago
      log in or sign up to post a comment
      • np: not sure why the nurse is saying her DC needs Clonidine 8 hr 51 min ago
        log in or sign up to post a comment
        • op: She said it's good for tics and impulsive behavior. Dc has some tics and can backtalk in a way that can be impulsive. 8 hr 50 min ago
          log in or sign up to post a comment
          • I wouldn't medicate for backtalk! That's treatable with therapy. The tics are another issue though - and even then I wouldn't medicate unless they really significant. 8 hr 48 min ago
            log in or sign up to post a comment
            • That's the thing -- the tic is picking mosquito bites compulsively, which has now stopped with the end of mosquito season. The backtalk is an example of some things she do that...(more) 8 hr 46 min ago
              can be perceived as impulsive or intentional -- it's really hard to tell. I'm basically going to refuse the Clonidine. I feel like we're headed down a slippery slope of interpreting everything as a symptom that can be controlled medically.
              log in or sign up to post a comment
              • Ah - does DC have OCD? Have you tried CBT therapy? Some of these behaviors can be helped by it. 8 hr 43 min ago
                log in or sign up to post a comment
                • No, no OCD. The mosquito bite picking is her only "tic" (although she will do it to the point of the bites getting infected). We did CBT for a while with no discernible results,...(more) 8 hr 41 min ago
                  which is why we tried the Zoloft. She's starting a program based on DBT in the next week, which I hope will be more successful. That's why I'm frustrated: I just wanted a refill to get us through this next phase of therapy, to see if it works, not a whole new dx out of nowhere.
                  log in or sign up to post a comment
                  • fwiw, if she has anxiety, best results come from meds plus CBT...maybe keep her on the meds until the program is effective 8 hr 37 min ago
                    log in or sign up to post a comment
                    • ^^and I agree with you - I wouldn't start jumping down a new rabbit hole with this nurse 8 hr 37 min ago
                      log in or sign up to post a comment
                    • That's all I wanted -- to keep her on her existing meds through the next 4 months of therapy, then reassess. But it has been hell trying to get this f'ing refill. Old psychiatrist...(more) 8 hr 35 min ago
                      won't answer emails/calls, new ped refuses to fill the scrip, now this nurse saying we should add more meds and only giving a 30-day refill . . .
                      log in or sign up to post a comment
                      • I would just tell the nurse that at this point, you do not want to change anything with DD's meds, and that you'd just like to keep her on the zoloft. If she only gives 30 day...(more) 8 hr 29 min ago
                        refills, that's not abnormal for the meds - when the time comes for a refill again just ask her to call it in.
                        log in or sign up to post a comment
                        • Thanks, I agree. She said she won't give the next refill until we submit all this lab work and then come back in 30 days, but maybe she'll lay off after that. 8 hr 27 min ago
                          log in or sign up to post a comment
                          • The lab work is not a horrible idea and I think any new dr. would probably want to see that - partly as a CYA/liability thing. It's reasonable to want to be sure that stuff is all...(more) 8 hr 21 min ago
                            good when prescribing meds. Also just be sure that it's still needed if you aren't going to do the Clonodine
                            log in or sign up to post a comment
                            • Yes, I think the EKG is just for the Clonidine, so I might push back on that. The bloodwork sucks, but ITA, there no drawback in doing it except that my dd will HATE me. 8 hr 19 min ago
                              log in or sign up to post a comment
    • MD mom here: call your old MD in your prior state and ask for a referral. Honestly, you should have done that before you moved. No doctor will just give a refill without blood...(more) 8 hr 9 min ago
      work and an EKG. That is standard of care medicine - maybe your prior MD can fax these things to your new provider.
      log in or sign up to post a comment
      • I did ask psych for referral before we left, and he said he didn't have any. Thought we'd figure it out once here, but then we needed a refill (I thought we had more time on it),...(more) 7 hr 59 min ago
        and psych was non-responsive to both phone calls and email. No psychs are in network in our new location, and honestly, we can't pay the $$$ intakes they are all requesting right now. So I thought a psych nurse (in network) would be a good option for getting a simple refill.
        log in or sign up to post a comment
  18. Special Needs Advise please...(more) 9 hr 2 min ago (6 replies)
    Can somebody give me any advise on how to get an approval of funding from the New York City Department of Education or local school district for my son, who is en Special Ed. since K-8. We are not satisfied with his progress at school, we are looking for a private school for his high school years? How do I start? Thank you!!!
    permalink | log in or sign up to post a comment
    • Do you have a neuro-psych eval? 9 hr 1 min ago
      log in or sign up to post a comment
      • Advise please.....(more) 8 hr 54 min ago
        I have just requested to the school.
        log in or sign up to post a comment
        • - no subject -...(more) 8 hr 47 min ago
          I meant the psychoeducational eval which include the educational eval and social history.
          log in or sign up to post a comment
    • Call Advocates for Children and Resources for Children with Special Needs, tell them what is happening, ask advice. They are free advocacy organizations and can give you good...(more) 8 hr 34 min ago
      direction at no cost.
      log in or sign up to post a comment
      • - no subject -...(more) 8 hr 23 min ago
        Thank you. I was about to ask you for their phone number but I have just searched in google and found it. Thank you!!!
        log in or sign up to post a comment
        • YW! They are two separate organizations so definitely call them both! 8 hr 21 min ago
          log in or sign up to post a comment
  19. Special Needs NJ mom of AS DC here. I dont know why people think NJ is the holy grail of public school sn services. We live in a "good" district and the CST is full of idiots all around... 9 hr 39 min ago (17 replies)
    permalink | log in or sign up to post a comment
    • That's pretty universal. Signed, mom of AS dc in NYC. 9 hr 38 min ago
      log in or sign up to post a comment
      • this 9 hr 36 min ago
        log in or sign up to post a comment
      • We are in NJ with AS dc and pay high taxes for great schools. We are filing Due Process for out of district placement for the same reason you stated. 9 hr 35 min ago
        log in or sign up to post a comment
    • it is all relative 9 hr 34 min ago
      log in or sign up to post a comment
    • from my experience, even in a good district there is a pecking order of political influence that allows kid a to get services without a fight while kid b doesn't get them as...(more) 9 hr 27 min ago
      easily. unless you are in the top 25% income level of your town AND networked in the town politics. it's no sure bet.
      log in or sign up to post a comment
      • op - We have a solid IEP and a good relationship with the CST, but they are just limited in their ability to individualize his program. 9 hr 25 min ago
        log in or sign up to post a comment
    • I am also a nj mom with AS dc and have nothing but great things to say. 8 years in this district with a bcba who specializes in AS. 9 hr 13 min ago
      log in or sign up to post a comment
      • ^ there have been years where we've had different priorities and had private fba's but I consider that to be expected. We always work it out without lawyers. 9 hr 11 min ago
        log in or sign up to post a comment
      • where? 9 hr 6 min ago
        log in or sign up to post a comment
        • I don't feel comfortable saying. It would be outing myself 9 hr 3 min ago
          log in or sign up to post a comment
    • There is no such thing as a perfect school. I am an advocate in nj. There are good districts, bad districts and good and bad parents. There are parents who want perfect and...(more) 9 hr 4 min ago
      that is not possible ever. It's about weighing the pros and cons of different programs and matching those to your needs.
      log in or sign up to post a comment
      • this is so true 8 hr 41 min ago
        log in or sign up to post a comment
    • This is true everywhere. And FWIW, SN privates aren't a holy grail per se either! Nowhere is perfect 8 hr 42 min ago
      log in or sign up to post a comment
      • Anyone know how or bad Summit is for HFA. Are There programs in NJ similar to ASD Nest? 7 hr 43 min ago
        log in or sign up to post a comment
        • Hijack- What is the ADOD test? 7 hr 23 min ago
          log in or sign up to post a comment
          • Screening test for spectrum. 7 hr 15 min ago
            log in or sign up to post a comment
  20. Special Needs Putting on sticky. Seeking feedback from people whose dc have taken zoloft with a stimulant. Did it help reduce anxiety? Did dc gain weight? 9 hr 39 min ago (0 replies)
    permalink | log in or sign up to post a comment
  21. Special Needs Has anyone used Marie Pense center? If so do you recommend? 10 hr 27 min ago (0 replies)
    permalink | log in or sign up to post a comment
  22. Special Needs Moms with kids in ASD Nest programs: Are they crazy high functioning? Met a mom whose ds is in one yesterday, and she was describing the ASD kids in the class (including hers)...(more) 10 hr 29 min ago (17 replies)
    as pretty much all borderline diagnosable. WTH is the point of the program if they don't take aspies who are more usually symptomatic?
    permalink | log in or sign up to post a comment
    • I've only spoken with 2 moms who had kids in the Nest program and neither of them said their child was on the spectrum. they said their kids were not asd but something else and...(more) 10 hr 23 min ago
      they loved the nest program.
      log in or sign up to post a comment
      • I have yet to meet any moms with kids who clearly had Asperger's or HFA who were in that program. Know a bunch who applied and got rejected, though. 10 hr 22 min ago
        log in or sign up to post a comment
        • It's not realistic to hope for a spot for a kid with classic AS. 10 hr 21 min ago
          log in or sign up to post a comment
          • it really doesn't. I was thinking about how much I longed to get my kid into that program and how it was sort of my holy grail. and then my kid got into parkside and I spent a lot...(more) 10 hr 17 min ago
            of time warding off the Nest people so we wouldn't like we were jerking them around. it was very weird. my kid lost her asd dx at age 4.5, which probably made her perfect for Nest.
            log in or sign up to post a comment
          • That is also not who the program is designed to serve 10 hr 4 min ago
            log in or sign up to post a comment
            • It was originally promoted as serving HFA/AS. It doesn't really anymore, 9 hr 50 min ago
              log in or sign up to post a comment
        • Most dc I've met who got in have some global delay, but not ASD. 9 hr 46 min ago
          log in or sign up to post a comment
      • just like the G&T program in NYC, mission creep sets in and end of serving the population of upper middle class quirky kids who would do just fine in the burbs in gen ed. it's all...(more) 9 hr 20 min ago
        DOE kabuki therater
        log in or sign up to post a comment
    • Ds is in ASD Nest. He was initially dx'd as PDD-NOS. They tend to be higher functioning, but at least in ds's class, they all have their specific challenges, too. I would call...(more) 10 hr 5 min ago
      maybe 1 of them borderline, but I am not a diagnostician and I have a very limited view. They are all very intelligent and social, but mine struggles with attention. Last year was a rough start, but this year has been great. His behavior is much better now.
      log in or sign up to post a comment
    • My advice is to stop listening to word of mouth and take a tour. That will tell you more than the anecdotal tales from ybm or elsewhere. IMO there are many parents who are not...(more) 10 hr ago
      in tune with their child's needs in terms of a classroom. "high-functioning" is a term that is tossed around and many times inappropriately. Several of the families that I know that thought their child was a nest kid were much more suited to the horizon program. It's a very specific program for a specific kind of child and for those kids, it is wonderful. Are there more kids that would be suited to it than it can serve, absolutely, but part of it is being on the ball and applying early. The other part is really knowing your child,
      log in or sign up to post a comment
      • In ASD Nest terms, "too behavioral"=acting like an ASD kid who is struggling in a setting without appropriate supports. You're not getting a spot if you apply older than K,...(more) 9 hr 44 min ago
        because you will be "behavioral" from your frustration in ms.
        log in or sign up to post a comment
        • also depends on school. 9 hr 3 min ago
          log in or sign up to post a comment
      • THIS. Yes it is for a small part of the population and yes it could be a larger program, but the children in that program do...(more) 7 hr 33 min ago
        have needs and are on the spectrum.
        log in or sign up to post a comment
    • I have three friends with kids in the ASD Nest program. Every one was so borderline that they basically scored on the ADOS by one point. 9 hr 2 min ago
      log in or sign up to post a comment
      • run of the mill aspies. Most SN schools are too restrictive/low functioning, but they flounder in 30+-kid classes. 7 hr 30 min ago
        log in or sign up to post a comment
        • Computer ate part of my post. Started "there really isn't anything for run-of-the-mill aspies..." 7 hr 28 min ago
          log in or sign up to post a comment
  23. Special Needs Lack of formal dx annoys me, because a dx gets the DOE to respond so much better/more effectively. Neuro and dev ped have ruled out a bunch of stuff, and simply said everything...(more) 10 hr 31 min ago (8 replies)
    else possible is treated the same, don't recommend the sort of $ and onerous testing necessary to seek definitive dx (and even then, you might not get a definitive dx).
    permalink | log in or sign up to post a comment
    • can't you get like...LD - NOS or something catchall like that? They know you need a diagnosis. 10 hr 30 min ago
      log in or sign up to post a comment
      • We're fudging it with a "working label" right now, but I feel like we'll never know whether it's dyspraxia or mild cp. 10 hr 29 min ago
        log in or sign up to post a comment
        • What would you call a kid with upper body and oral hypotonia, horrible motor planning, intentional tremors, intermittent exotropia, SPD including profoundly poor proprioceptive...(more) 10 hr 26 min ago
          and vestibular, muscle weakness in the hands and face such that he can't use a fork and still drools a fair bit at age 5? Cognitively normal.
          log in or sign up to post a comment
          • Oh, and symptoms present from birth, no birth injury, some family history of similar motor/tremor problems. All metabolic and progressive disorders ruled out. 10 hr 24 min ago
            log in or sign up to post a comment
    • the good news is a vaguer dx means possibly a better outcome in life. IMO. 10 hr 29 min ago
      log in or sign up to post a comment
      • Huh? Symptoms and challenges are the same, no matter what one calls them. 10 hr 19 min ago
        log in or sign up to post a comment
        • I have found htat if the real dx is less clear (not what a school system needs to call it for services) it is b/c there is wiggle room 10 hr 18 min ago
          log in or sign up to post a comment
    • trust your neuro. it's a political chessboard you need to play to get appropriate services. holding the diagnosis for a few years to see what shakes out will likely result in your...(more) 8 hr 38 min ago
      dc getting a better fit in the end. i know it is a miserable place for you to be as a mom in the meantime. i'm sorry. i know exactly how you feel.
      log in or sign up to post a comment
  24. Special Needs Friend in NJ needs a low-cost DP eval for her dd. I know I've seen recommendations here in the past but can't seem to find them. Ideas for her? Thx! 10 hr 41 min ago (2 replies)
    permalink | log in or sign up to post a comment
    • Maybe tell her to call SPAN for a referral if they give them?...(more) 10 hr 20 min ago
    • depends upon her insurance. I like Dr Alosio at K Hovnanian Childrens Center. I also have seen some good ones at Childrens Specialized. Dr Janvier is great at dx ing but awful...(more) 4 hr 38 min ago
      bedside manner and no help with services.
      log in or sign up to post a comment
  25. Special Needs I love the kids and parental nudity posts. the range of attitudes and people jumping on each other - fun is had by all! 11 hr 37 min ago (2 replies)
    permalink | log in or sign up to post a comment
    • I love that you posted this on SN board. 11 hr 36 min ago
      log in or sign up to post a comment
      • op: freudian slip! 11 hr 35 min ago
        log in or sign up to post a comment
next page »