Special Needs

  1. Special Needs Has anyone applied to Windward? I'm looking at their application now and it's daunting. Do I need to get advice on how to answer the questions? 1 hr 54 min ago (1 reply)
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    • Many have applied! What do you want to know? They are looking for bright kids they can remediate who can then go back to mainstream school. They are not looking for behavior...(more) 53 min ago
      problems.
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  2. Special Needs My ds was just dx as having an underdeveloped frontal lobe. He has adhd symptoms and behavior and emotional issues. We're still trying to figure out what it means in the long run...(more) 3 hr 50 min ago (25 replies)
    But I feel so happy to have an answer for him and I don't have to feel like I did something wrong. I can talk to his school and say he's not just a hopeless case now and family can be more accepting. It's a weight lifted. But I also feel devastated because I would get so upset with him from the time he was born until a few days ago. He's only 3.
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    • fwiw, nobody's frontal lobe is fully developed until they are in their late teens early 20's 3 hr 49 min ago
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      • op: we know this but his is very underdeveloped, it looks highly damaged as well. 3 hr 48 min ago
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        • from brain scan? 3 hr 47 min ago
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          • yes. 3 hr 47 min ago
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            • how underdeveloped was it/ Did they show you a "normal" 3yo brain? 3 hr 45 min ago
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    • Frontal lobe is last thing to develop in the brain. 3 hr 49 min ago
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    • how were you able to find that out? 3 hr 49 min ago
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      • full neurological workup and mri. 3 hr 47 min ago
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        • how underdeveloped is it? meaning, was he that far off base of a 3 yo for you to want to get this done? 3 hr 47 min ago
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          • It's not where it should be for his age. I'm a worrier and he was never a normal baby everyone said colic but it was bad. No one wanted to do tests because no other symptoms...(more) 3 hr 44 min ago
            were present. He has severe mood swings and behavior issues and I finally saw a doctor that would check him out as we went through evals.
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            • i'm sorry. good luck and glad that you are in the right direction now 3 hr 42 min ago
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              • Thank you. 3 hr 40 min ago
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        • Np: and btdt. A year from now you can do more testing to see how that area has improved. That should give you some guidance. Meds can help with the hyperactivity and the np...(more) 3 hr 42 min ago
          should be able to give you real life supports to help improve that area. My dc had a TBI to his frontal lobe -
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          • How well is your dc now? We aren't sure if we'll find out why it's messed up but some news is better than no news 3 hr 41 min ago
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            • Most of the brain damaged recovered. It's been 6 years sice the injury. He's still on meds for hyperactivity. Your dc is young and the brain is plastic and growing. The np...(more) 3 hr 34 min ago
              should give you tips on how to improve the functions that are week. My dc te
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              • I don't know how young we can be for the meds for the adhd but I hear they can be godsend which is what we want. It will be weird to see him not so hyper though. 3 hr 32 min ago
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    • I"m so glad you have this information now. It will make such a difference in how you experience the frustrations and pursue his treatment. I just want to say that brain issues...(more) 3 hr 45 min ago
      like this are something that can be devastating if undiagnosed but when it is known the possibilities are incredible with therapy and focused treatment. The brain is very plastic and his potential will be so much greater now that you are on the right track. wishing the very best for you and your ds.
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      • That's what we hope we'll get him therapy and he's going to have an evaluation by cpse. 3 hr 42 min ago
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    • I think I understand. My ds was just diagnosed with mild asd, and while I am worried about what it means for his future, I guess it helps to see the pattern in his behavior and...(more) 3 hr 43 min ago
      that there is an actual sense to it. He's got aspergers, and shares many behaviors with other aspergers kids.
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      • I feel like I understand him better now. 3 hr 42 min ago
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        • me too. not really sure what I need to do to help him or how he will be able to develop, but atleast I know what to look at now. 3 hr 38 min ago
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          • We'll try a bunch of things ultimately. 3 hr 34 min ago
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    • I'm glad you have info and do remember the brain in children is amazing in it's ability to compensate... Our son has severe adhd (causing behavioral and emotional issues) and...(more) 2 hr 48 min ago
      started meds at 4. We never had an MRI but from his psychiatrist and the level of adhd that he has, i would not be surprised if it looked very different than a NT child. When medicated his IQ is above average.
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    • you are so lucky you discovered this! my ds works in this area, and people are doing a lot of research in ways of developing frontal lobes. you are lucky and blessed and awesome...(more) 2 hr 45 min ago
      for catching this
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  3. Special Needs I know Dr. Amen does not have a strong reputation in the ADHD world and is considered something of a quack. But when I read his description of the "Ring of Fire", I thought "This...(more) 3 hr 58 min ago (2 replies)
    is my 8yo dd." She fits this description to a T, although she does not have an ADHD dx (yet). Makes me want to look more into his stuff. http://www.amenclinics.com/blog/a-very-busy-brain-week-6-of-7-ring-of-fire-add/
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    • He's not a quack. He's a person trying to come up with answers but it takes a very long time to prove stuff like this, get peer reviewed, etc. The future will tell. 3 hr 45 min ago
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      • Would you take your own kid to him/get the SPECT scan? 3 hr 28 min ago
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  4. Special Needs People coming over tonight and i just can't rally to make stuff. think i will cook up some frozen apps and then order in chinese. :( 8 hr ago (12 replies)
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    • get frozen egg rolls and pot stickers and grill ina's asian salmon 7 hr 59 min ago
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      • in nyc. no grill. 7 hr 58 min ago
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        • or- broil it. and broil it in a throw away aluminum pan so theres no clean up 7 hr 58 min ago
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    • that sounds lame. cant you make something? 7 hr 58 min ago
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      • Np: wouldn't bother me at all, but I can see how some people would mind/judge 7 hr 57 min ago
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      • No it's night. Sunday night is not a cooking night IMO. I would be happy with takeou 3 hr 16 min ago
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    • trader joes, tons of appetizer finger foods? make a buffet of it... 6 hr 16 min ago
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    • I'm going home, in that case. 5 hr 35 min ago
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    • don't order in chinese. Can you go to whole foods and get inspired? 5 hr 33 min ago
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      • Why should she 3 hr 15 min ago
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    • Sounds good to me 3 hr 16 min ago
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    • I'd love it! 2 hr 30 min ago
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  5. Special Needs I am failing sn parenting 101. i feel like i am not good at being proud of ds. he is very difficult (adhd/anxiety) and not a people pleaser. couple that with no impulse control...(more) 8 hr 17 min ago (8 replies)
    and low frustration tolerance, and he's not easy to be around. i find myself thinking and talking poorly about him and i don't know how to get out of this mindset.
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    • ditto..you're not alone. hey we're all human. in the end all those tings, if dc is on meds & improving, mean little. he sho;uld know what's right & wrong 8 hr 16 min ago
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    • I threw a tantrum at mine (and Dh) yesterday. I think this shit tests your limits every single moment. I know.... 8 hr 15 min ago
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    • :( I'm right there with you. I completely threw him under the bus in a parent teacher conference. I love him, but I don't know how to parent him. 8 hr 13 min ago
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    • this is my ds. is he on meds by chance? this has not fixed everything for us but has been life changing. also celebrate who he is. he has some great qualities somewhere, find them...(more) 8 hr 12 min ago
      and love them
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      • we are experimenting with some meds that have not really had a major impact. about to try a stimulant which i am very very nervous about but will give it a go... 8 hr 10 min ago
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        • or- again, this wont be your entire answer but its been a huge change for us. my ds is on vyvanse and it has been so good for him 8 hr 9 min ago
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          • ^i feel like i can function now. before, it was either they medicated him or i medicated myself. it was awful 8 hr 8 min ago
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    • this is me before and after his meds. I am good parent from 8 am to 8 pm, the rest of the time i lose my shit! 6 hr 15 min ago
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  6. Special Needs 8 yo ds just had neuro. we now know he is dyslexic. No other issues (no ADHD, etc). Above average IQ and "superior"...(more) 9 hr 3 min ago (28 replies)
    Perceptual reasoning and low average processing speed. Currently in private in NYC but we are going to move to SN in NYC. Where would u recommend? He's a very creative and motivated kid. Thanks so much.
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    • May I ask why are you moving to SN? BFF dd is dyslexic and was diagnosed at 8yr old but stayed at ms with tutoring after school. 9 hr 1 min ago
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      • ^^^ with that said BFF said when she contemplated switching schools she looked at a school in westchester that is supposed to be very good for kids with dyslexia. I'm sure someone...(more) 8 hr 58 min ago
        Will known the name.
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      • He's currently tutoring 4x per week and has no life outside of trying to keep up with school. Although he never complains, we worry about his long term confidence. 8 hr 58 min ago
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        • That's understandable. BFF dd was getting tutoring three times a week at 8 yr old...then it changed to 2x a week the. By the time she hit 7th grade it was once a week. Now in HS...(more) 8 hr 56 min ago
          the is no more Tutoring
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          • ^^^her dd also was involved in school sports from the time she was old enough to join 8 hr 55 min ago
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            • ^^ GL! 8 hr 54 min ago
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              • Thank u so much 8 hr 49 min ago
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    • I would rethink a sn school for a kid like this 8 hr 58 min ago
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      • Neuro reco's SN. 8 hr 56 min ago
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        • I know very few people who went to a near in NYC who did not recommend a SN school. Not 100 per cent but at least 80 per cent of the time....(more) 1 hr 3 min ago
          Obviously this is a random sample.
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          • Meant went to an NP. 55 min ago
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    • windward. 8 hr 55 min ago
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      • ^but i'm sure any of the language-based ld schools would be eager to have him if there are no other issues. gaynor, churchill.. 8 hr 53 min ago
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        • Thank you. Is this true? We have heard it's impossible to get a spot. 8 hr 51 min ago
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          • well, it is no guarantee there will be space (what grade are you trying to enter in?). but sounds like your dc would fit their profile. unfunded might be a bit easier than funded....(more) 8 hr 49 min ago
            you may want to speak with a special ed attorney. your neuropsych should help as well...
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            • ^and windward is the school in westchester you are talking about. they are opening a manhattan campus on the ues next fall. 8 hr 48 min ago
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            • Thanks. 4th grade next year. Can u reco any special Ed attorneys? I appreciate your help 8 hr 47 min ago
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              • Also, what exactly should we expect of our neuropsych in terms of help? Thank u! 8 hr 45 min ago
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                • regina skyer is the attorney most people on here recommend. we have had one meeting with her and she is fabulous (although we are not yet at a point where she is doing much more...(more) 8 hr 40 min ago
                  than advising). your neuropsych should be helping develop a list of sn schools they think would be a good fit, and should be prepared to testify at any doe hearings about placement, i believe. again, we are not at that point yet, but this is what i have gathered after years of reading about this on here.
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                  • You are too kind. ThNk you 8 hr 38 min ago
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                    • good luck. you may not see it now, but you are very lucky to have a clear diagnosis, a problem that can be well remediated, no behavioral issues, and caught young. gl. 8 hr 25 min ago
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              • Np: we use Neil Rosenberg and are at Churchill 1 hr 38 min ago
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    • Apply to Windward, Gaynor & Churchill. WW would be first choice as the other 2 may have a wider range of kids. But apply to all because it may be tough to get a spot. 8 hr 5 min ago
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    • We're at Gaynor and love it! 7 hr 35 min ago
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    • If you are Jewish, consider Shefa. 6 hr 13 min ago
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    • Absolutely Windward if you can. Specializes in remediating dyslexia and getting the students back into mainstream schools. Perfect for bright student without a lot of other...(more) 3 hr 41 min ago
      issues.
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    • The reason you hire a lawyer is to sue the DOE for reimbursement for the SN school. If you are not planning to sue you don't need a lawyer. In either case I'd advise a consult...(more) 57 min ago
      w/Skyer. She can advise if there are things you should do this year to machete more likely you can get a settlement from the DOE.
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  7. Special Needs Another df's friend dxed wtih HFA--in her late teens! So many of us in our circle, we constitute our own support group. 10 hr 6 min ago (0 replies)
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  8. Special Needs ASD Nest moms... holiday cards for dc's teachers and in-school providers - do you also include gift cards? We wanted to do $25 or $50 gift cards...(more) 10 hr 16 min ago (1 reply)
    What say the board on this subject? We did this in Pre-K, but not sure if there is a different protocol in elementary school.
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    • op - not Nest specific question I just realized. anyone in public school have experience with holiday tipping? 10 hr 1 min ago
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  9. Special Needs Dd craves, begs for, savors sugar all day long. Is this an sn thing? Or a kid thing? 12-20-2014 8:51pm (2 replies)
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    • Of its a sn thing than I must have sn because I am ot a kid 12-20-2014 8:52pm
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    • A kid thing and a "people" thing. 21 hr 33 min ago
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  10. Special Needs Ladies, second night in a row that anxiety-ridden dd has gone to sleep without a scene. So grateful I could cry. 12-20-2014 8:43pm (10 replies)
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    • YES! But once you are in fight club you don't talk about flight club - meaning the minute you start celebrating it too much it might end. So just go with it! 12-20-2014 8:44pm
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      • ? 12-20-2014 8:45pm
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        • I just mean, don't make it a big deal with her. Just act like this is the new normal. 12-20-2014 8:46pm
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          • OP: question mark wasn't me. But yes I won't make it a BIG deal but will say something positive because it is partially due to new technique she is trying with me based on...(more) 12-20-2014 8:49pm
            anxiety-workbook we have
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            • At least I hope so 12-20-2014 8:49pm
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            • so great! super happy for you. I know how tough this is! 12-20-2014 8:50pm
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              • Thank you. It has been a ROUGH month and although this is a tiny step, and may be temporary, at least I know we can do it. 12-20-2014 8:52pm
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    • So happy for you noth! 12-20-2014 8:45pm
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  11. Special Needs I wish people would stop using every tragedy as fodder for their political agenda. 12-20-2014 7:54pm (2 replies)
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    • Amen! Some ignorant beyotch on FB blames the NYPD killings on POTUS. What an asshat 12-20-2014 8:08pm
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      • I don't even know how that works. 12-20-2014 8:20pm
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  12. Special Needs Someone told me that people with aspergers are more likely to get schizophrenia, especially if a family member has it. Is this true? 12-20-2014 7:27pm (10 replies)
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    • there is a higher incidence of comorbidity but I think describing it as "more likely to get" is inaccurate 12-20-2014 7:29pm
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    • maybe or maybe not but schizophrenics are likelier than average to have autistic children 12-20-2014 7:30pm
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      • I ask because my father is schizophrenic and I am terrified of it showing up again. I am also suddenly wondering if he has aspergers himself. I always thought it was the paranoid...(more) 12-20-2014 7:32pm
        schizophrenia, but what if some of it is asd?
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        • ^^^my ds was just diagnosed with aspergers/asd 12-20-2014 7:33pm
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          • I know several young people who became schizophrenic and they did not have aspergers. Try not to worry. The odds are very much in your kids favor of this not happening, so try to...(more) 21 hr 30 min ago
            enjoy them and not worry if you can.
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    • This is something that may interest you. BTW brother with schizophrenia and autism, seems to have come down for generations through maternal side. link inside...(more) 12-20-2014 7:39pm
      • thank you. that does interest me. 12-20-2014 7:44pm
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        • np: thank you! it is hopeful to read about research that may lead to real help for mental illness. 21 hr 24 min ago
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    • We have both disorders in the family, but not in the same individuals. I do think the ASD trouble distinguishing "inner voice/outside voices" can get confused with schizophrenia...(more) 10 hr 9 min ago
      pretty easily. I can also see maladjustment stemming from anxiety/social skill problems triggering other mental health problems.
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      • FWIW, these days schizophrenia is often successfully managed. Usually just one short hospitalization to figure out the right meds when it emerges, and occasional tuneups. 10 hr 7 min ago
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  13. Special Needs NYC - so frustrating running around trying to fill ADHD scripts. 12-20-2014 4:10pm (14 replies)
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    • I know!! i went to CVS to fill my dd's scrip and they said it would take over a week to get the order. Give me a break! 12-20-2014 4:17pm
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      • Same here, except that it didn't come in and now they're saying they don't know when it will be. 12-20-2014 4:33pm
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        • what med is this?? 21 hr 35 min ago
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          • Daytrana 20 mg patches 21 hr 10 min ago
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            • that's tough, good luck! 18 hr 21 min ago
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    • You have people who abuse the drugs to blame. 12-20-2014 4:22pm
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      • No, I don't think so. They just don't stock it. 12-20-2014 4:33pm
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    • mail order is your friend. 12-20-2014 4:38pm
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      • Can't be done in NY. 12-20-2014 4:39pm
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    • I stick to Cherry's, they never fail me! 12-20-2014 4:40pm
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      • Where are they? 12-20-2014 4:47pm
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        • UES and they deliver 22 hr 40 min ago
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    • Our duane reade was great about keeping it in stock just for us and now our insurance made us switch to cvs... 12-20-2014 4:58pm
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      • what med is it? 21 hr 34 min ago
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  14. Special Needs I think cracker mom is my favorite post of the day. 12-20-2014 1:23pm (1 reply)
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    • ^^oops didn't mean to post here. 12-20-2014 1:24pm
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  15. Special Needs I'm giving a box of chocolates to our psych (we have an appt today). Should I include a holiday picture card of my dc or just give the candy? 12-20-2014 1:13pm (7 replies)
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    • keep the chocolates..just the card 12-20-2014 1:14pm
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      • really? no. 12-20-2014 1:14pm
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    • I like to give photos in nice frame that they can use for their own pics later on 12-20-2014 2:03pm
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      • ^^ as opposed to candy since you never know what people eat... 12-20-2014 2:03pm
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        • they can serve it to friends or use it as hostess gift if they don't want to eat it. 12-20-2014 2:08pm
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          • hah, if you gave it to me I'd have trouble not eating it ;-) 12-20-2014 2:58pm
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    • Just a card 12-20-2014 2:10pm
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  16. Special Needs 6 year old has said the F-word at school 4 times since October. The last 2 times were these past two weeks. I can't figure how or why he continues to do this. He has adhd and is...(more) 12-20-2014 11:55am (40 replies)
    medicated, but I'm thinking this is something else. I punish and he doesn't care. At this point he has no television, couldn't go to the Christmas fair he was looking forward to going to and we took his elf on the shelf away. Told him that the elf was so disappointed he left. I got him everything he wanted for Christmas already but am thinking of holding something back because I feel like he needs to feel something for remorse. Is this all too harsh? Anyone btdt?
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    • i think it is too harsh. i have a child with adhd and learning disabilities, and i'd be trying to figure out what's going on, esp. since punishments haven't been a deterent. 12-20-2014 11:56am
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      • I feel like he WANTS to get in trouble. He was caught waving a note around repeating "This is inappropriate, this is inappropriate"...(more) 12-20-2014 11:58am
        over and over....until someone caught him. The note said "I think school is a fuck."
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        • Lolol. Sorry - I am your son's intended audience. I think combining AGE 6, with a showoff personality and adding adhd on top of it is the answer as to why. It will get better. But...(more) 12-20-2014 12:01pm
          I know from experience too, punishment in t a deterrent with kids like this.
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          • ^ and you are totally missing the silver lining - he can write!" 12-20-2014 12:03pm
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            • haha. You know my dh and I looked at the note and were like, Well of course now he takes the time to write neatly. His handwriting and fine motor skills are always a problem, but...(more) 12-20-2014 12:05pm
              of course fuck was clear as day. Infuriating because kind of shows when he writes with intent he can get it done.
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              • He's the class clown, obviously. I know it's frustrating and sometimes embarrasing. For now I think ignoring the word when he wants an audience is key. And talking at another time...(more) 12-20-2014 12:11pm
                about why words offend and what people think of kids who use those words, etc, etc, etc...
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    • have you posted before? if so, think we rec you s/w therapsit. 12-20-2014 11:57am
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      • I did. He is in therapy. Talk therapy once a week. 12-20-2014 11:59am
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    • Dude even non-Special Needs kids do stuff like that. Tell him if he says the f-word one more time you'll send him away to boarding school. That threat works. 12-20-2014 11:57am
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    • I havent exactly been there but ADD teen still has impulse-control issues. She's able to articulate that she knows while she is doing the stupid thing, that it's a big mistake and...(more) 12-20-2014 11:59am
      she'll pay for it. But in the moment, she cant stop it. That said, it's much, much better with maturity.
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      • but this last time, he took the time to write it down and wave it around. He is obviously seeking attention. Which I also don't understand because he gets loads of it. 12-20-2014 12:00pm
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        • It's never enough! I think you have a born performer on your hands. 12-20-2014 12:02pm
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    • Honestly, I wouldn't take away Christmas toys. I would schedule a meeting with the school for right after break and discuss how you can be on the same page. BUT I don't have a...(more) 12-20-2014 12:00pm
      sn dc, so please ignore if you want
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      • She will. 12-20-2014 12:01pm
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      • The meeting is scheduled. thanks =) 12-20-2014 12:03pm
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        • Ok. Good luck :-) 12-20-2014 12:04pm
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    • ODD maybe. 12-20-2014 12:08pm
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      • you know we filled out a sheet with the teacher, us, and out therapist for the pediatrician and it said he had ODD tendencies. I don't really know a lot about ODD, but at the time...(more) 12-20-2014 12:09pm
        (back in September) it felt more like they had just named defiance in kids. Maybe I need to know more about it.
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        • Does ds seem angry? 12-20-2014 12:13pm
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          • he seems more frustrated then angry. Like he is bored and when thinks don't go the way he wants them to, he will make a face or throw a mini tantrum. He was stealing for a bit....(more) 12-20-2014 12:16pm
            Coming home with other kids stuff and saying he found it. He damages property, breaks crayons, cuts his clothes with scissors. Our therapist said that stuff was more impulsive and that ODD doesn't really get diagnosed so young. It is more for when kids are older.
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            • Itttta. Frustration looks like "mad" much of the time. And adhd kids ARE frustrated with themselves sooooooo much of their waking hours. My teen said "mom; you only see part of...(more) 12-20-2014 12:19pm
              it, you have no idea how much worse it is inside". I have to keep remembering that quote when I get mad and the idiotic crap she still does at 16.
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              • When my son was 5 he told me he knew there was something wrong with his brain, because at night when he was supposed to be sleeping he was thinking about comets and music and the...(more) 12-20-2014 12:23pm
                ocean and black holes in space all at the same time. He called it "noise in his head that he can turn down the volume on". I tear up a bit every time I think of him telling me that.
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                • They are remarkably insightful, arent they? Dd was t dxd until 15 an was so relieved! She said she always had known things were harder for her than for her friends. 12-20-2014 12:27pm
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            • not so sure about this- DF's kid was diagnosed at 7yo. does he argue with you about the smallest requests? deliberately do the opposite of what an adult asks hime? 12-20-2014 12:20pm
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              • no. He is super obedient and remorseful. 12-20-2014 12:21pm
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                • ^^remorseful about having a bad day at school. Not about the f-word. 12-20-2014 12:21pm
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        • I only suggested this because swearing at a young age (not just testing the word) is a specific component off ODD. 12-20-2014 12:17pm
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    • I just told my dh this story. He laughed, and said "The kid is not only correct, he seems very wise and knows his audience!" 12-20-2014 12:12pm
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      • I mean. If it wasn't my kid, I would probably think it was hilarious. He always doing stuff like this. I told him he would be kicked out of school and he just blankly said back to...(more) 12-20-2014 12:14pm
        me "oh really? What will my new school be like?"
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        • He is a baby! But I predict he tenacious drive will serve him very well later in life! Btw, how is he social life? Has he got pals? 12-20-2014 12:17pm
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          • Everyone loves him. He has like four people he calls his BFF, but they are kind of the rag tag gang at school. There are group of boys who are a popular click and they make fun of...(more) 12-20-2014 12:18pm
            him for being so messy and immature.
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            • ^^but when he does something good or has a good day, those same boys will say "oh billy had a great day at school day." kind of like the younger brother they are looking out...(more) 12-20-2014 12:20pm
              for...so I don't know. But his crazy behavior is unpredictable and I think that the more mature kids don't know what to make of him.
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              • My non-adhd kid had a boy in her ass for years; Tommy was always "going on red", always in time outs, I know his mother was at the end of her rope. But he was a nice, smart, KIND,...(more) 12-20-2014 12:25pm
                funny, friendly and smart boy. He had some self-control issues that really only mattered in a school context. And obviously the daily punishment and warnings did nothing, his behaviors continued. In the scheme of things they were harmless! Not aggressive, mean or sociopathic! But they were a little disruptive to teachers who had 29 other kids to keep in line.
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                • this is my kid! always on red. just for doing crazy things. Like getting up, interrupting. There are 28 kids in his class too. 12-20-2014 12:27pm
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            • He sounds like a good kid who is also very smart. Just try and prevent him from hearing worse words than Fuck, as long as possible! 12-20-2014 12:21pm
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    • Could it be he seeks the negative attention? SO ignore it (school can do whatever they do) and try to find a way that he can get attention as a substitue...? 12-20-2014 2:06pm
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      • ^^ positive attention 12-20-2014 2:06pm
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    • Way too harsh! And it's not working go and everyone must feel bAd about it. He needs positive tie for cement not negative. He is also 6, not 16. If he says something g you....(more) 12-20-2014 4:22pm
      Need to act on it I. The moment and not for weeks after
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  17. Special Needs Ds adhd and anxiety is fixated with sports. At home he basically thinks he can only watch sports or play iPad. When I try to take a break he goes nuts despite the fact that he has...(more) 12-20-2014 11:18am (3 replies)
    Every possible game and toy that boys his age like. It's exhausting. I can't always plan stuff out of the home every minute of the weekend. I allow sports and iPad but not for hours on end. Can't wait for winter break.
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    • How old? 12-20-2014 11:19am
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      • 7. We are trying to figure meds out but being at home is so miserable unless he's doing what he wants 12-20-2014 11:20am
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    • How about baseball cards. Get him into collecting 12-20-2014 4:23pm
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  18. Special Needs Pg and anxiety. I basically can't sleep past 430am. I'm exhiastd already it's 10am 12-20-2014 10:19am (0 replies)
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  19. Special Needs It sucks trying to find the right med combo for anxiety/adhd ds 7. He is a slow metabolizer apparently so he's really sensitive to all the tweaks. It's been a roller...(more) 12-20-2014 10:05am (1 reply)
    coaster
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    • so sorry, even with a FAST metabolizer it's tough... GL! 12-20-2014 10:35am
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  20. Special Needs My ds was recently diagnosed with Crohn's. if anyone ever wants to talk or anything 12-20-2014 8:48am (7 replies)
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    • How old? I have it 12-20-2014 9:01am
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      • op: he is 8yo 12-20-2014 11:02am
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    • My dad had it. Helps to cooperate with the recommended regimen (which dad never would). 12-20-2014 9:08am
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    • I'm on Remicade, miracle for mine.... 12-20-2014 10:35am
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      • op: how often do you take it? 12-20-2014 11:03am
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        • It is an infusion, once every 6 weeks. It has been a miracle, oral medication was awful, didn;t work and side effects. I try to look at 3 hours tethered to an IV as me time (bring...(more) 12-20-2014 2:07pm
          book and the infusion center is actually LOVELY, go figure)
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          • ds's GI said the infusion place is really good with the kiddos 12 hr 17 min ago
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  21. Special Needs Will my hyper ADHD child ever slow down? age 9 12-20-2014 8:14am (20 replies)
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    • They say things get better with puberty 12-20-2014 8:15am
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      • things get different with puberty - better and worse. we're finding it harder with the medications - switched dosages several times, unlike in previous years. 12-20-2014 8:16am
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        • OP: Mornings and night are so hard. Mornings he wakes up with SO MUCH ENERGY and is LOUD. Night he is just unregulated and silly and can't handle anything past 6:30 12-20-2014 8:21am
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          • trust me, i get it. what medication is he on? what is the dosage? 12-20-2014 8:21am
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            • Focalin XR 10mg. It works great for during the day (at school, weekends) But when he's off it he is a loud, hyper mess (like always) 12-20-2014 8:34am
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              • have you thought of an afternoon booster, to get through hw and actiivties? 12-20-2014 8:37am
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                • then he doesn't go to sleep till 11pm. it's horrible since he's up at 5:30. and the worst is, he is so uncoordinated that he barley likes sports, we do them now since he's still...(more) 12-20-2014 8:39am
                  young but he doesn't love them and isn't that great at them so it's not a big energy burn for him. he does a lot of stand on side lines
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                  • I know this sounds harsh...but somedays my mind is just overcome with all these thoughts 12-20-2014 8:39am
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                  • have you tried swimming? that was a godsend for ds. 12-20-2014 8:42am
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                    • We have and the practice he was going to was at night 6pm and he was so out of control we stopped. he also was goofing off and not trying. But we do want to try it again in time. 12-20-2014 8:43am
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        • np: we took her off meds when puberty kicked in and it is working well. 12-20-2014 8:23am
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          • ds needs to be on medication - the hyperactivity and impulsivity are just too much still to be unmedicated. 12-20-2014 8:24am
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            • Op: that is us now and I think will be us during puberty 12-20-2014 8:35am
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              • after puberty is when a large percentage of hyperactive kids are no longer that way. Not during puberty. 12-20-2014 2:16pm
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    • meds meds meds (for us). praying puberty helps but he is 8 12-20-2014 10:36am
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    • after he goes through puberty. this is why you don't see high school classrooms with kids running all around. 12-20-2014 2:14pm
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      • kids act out in different ways. 12-20-2014 2:15pm
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        • two extremely hyperactive boys (would crawl on the floor sibling people's feet, could not sit still in early grades) are now seniors in high school as is my son. One just got into...(more) 12-20-2014 2:18pm
          Princeton. Other is just a great young man, leader type. Can't say for your kids but these boys no longer on meds. The inattentve adhd quiet ones still on meds.
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          • my kid isn't on meds. but we have seen other older kids still struggle with adhd - in different ways than the jump out of the chair way. that was my point. 12-20-2014 2:22pm
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            • I understand that. And I have adhd myself -the inattentive kind. I just wanted to point out that...(more) 23 hr 24 min ago
              often the hyperactive part gets much better after puberty, since the OP asked if her hyperactive child will ever slow down.
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  22. Special Needs Would you guys consider voting for my cookie on FB in the Met Opera Bake Off? I'm the busty red dress Carmen w the sprinkle cig...(more) 12-20-2014 7:47am (11 replies)
    • i woudl, but is it going to go on my facebook feed? is there a way to vote without that? 12-20-2014 7:49am
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      • great cookie btw 12-20-2014 7:49am
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      • I don't think it shares automatically to your feed. I didn't to mine or my friends. 12-20-2014 7:50am
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    • Done, love it btw 12-20-2014 7:53am
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    • Your really is the best one! Great job :) 12-20-2014 8:04am
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    • i voted 12-20-2014 8:05am
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      • Me too..It was my fav 12-20-2014 8:07am
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    • Are you in the lead? 12-20-2014 8:07am
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    • I voted! Very cute cookie. 12-20-2014 9:27am
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    • Done and I LOVE carmen 12-20-2014 10:37am
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      • TY guys!! I'll let u know if we win. They announce on Monday. 12-20-2014 11:03am
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  23. Special Needs I'm considering sleep away camp for my mild to moderate spectrum ds, who will be 12 this summer. I've heard Camp Akeela mentioned as well as Summit. Thoughts on these camps? 12-19-2014 9:22pm (7 replies)
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    • Akeela is a partner of my sisters summer camp. I spoke with them when they first opened. It seems great but $$$$$ 12-19-2014 9:23pm
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      • op: Thank you. What's the sister camp? (And we're fortunate that money isn't an issue.) 12-19-2014 9:24pm
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        • She owns Black Bear Lake 12-19-2014 9:25pm
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    • Dc went to Summit for 2 summers. It was different owners when he was there, so 6 years ago and not sure how or if it has changed. It was not for my dc, but he has different...(more) 12-19-2014 9:26pm
      issues, ADHD and ld and he felt like it was way too rigid and restrictive.
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      • op: Thank you. I think my ds needs restrictive/rules. 12-19-2014 9:27pm
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        • In that sense it was very well run. It just was a bad match for my paticular child 12-19-2014 9:28pm
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  24. Special Needs I posted before about finding an appropriate school for my 5 yo with anxiety. Anyone have a child with anxiety in an ICT class? Wondering if we should pursue that route. He...(more) 12-19-2014 9:00pm (2 replies)
    doesn't have an IEP or anything at this point. So I'm not sure where to begin.
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    • ^^^currently in private preK going into K next year. He's actually 4.11 so the cutoff isn't an issue. 12-19-2014 9:01pm
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    • I responded to your original post w/similar age dc that we did a ton of early preschool private psych work with anxiety. I think private psych is key. ICT while is great for...(more) 12-19-2014 9:07pm
      breakdown of smaller group instruction, does nothing to address anxiety in general. I have 1 dc in that setting and it tends to be a larger class than my other dc's class, which is a smaller gen ed class. It could be a good idea for K if you need an extra pair of eyes on dc but then you have to think, who is going to be in that class, will their be personalities to set your child off?
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  25. Special Needs Ladies, my dd with anxiety disorder, who has been up,hours afte bedtime for two weeks, whom I've been posting about nightly, just went to bed AND SATYED IN BED. and yes, it is...(more) 12-19-2014 7:55pm (15 replies)
    because she is exhausted, but I have never been so relieved.
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    • how old? poor thing! 12-19-2014 7:56pm
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      • 9yo. It has truly been a nightmare, anxiety spiraling out of control, both of us at our wits end and desperate. Exhaustion making it a thousand times worse. 12-19-2014 7:57pm
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        • I hope she sleeps great tonight! What does the doc say? 12-19-2014 7:58pm
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          • She has not been in therapy since Nick seivert left 5 months ago, which has been a real part of the problem. Starting back with someone new in January. 12-19-2014 7:59pm
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    • Poor baby. I have a 9yo ds with anxiety. It can be truly treacherous. Is your dd on meds? 12-19-2014 8:00pm
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      • She hasn't been yet and really woulda like to avoid them as long as possible. Once she is back in regular therapy, if this continues, I will peruse a psych to discuss it. How...(more) 12-19-2014 8:02pm
        about yours?
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        • Yes, we started fluoxetine when he was newly 8 and we saw a huge improvement. We weaned him off after about a year and it was awful. We started him back on about 6weeks ago and...(more) 12-19-2014 8:04pm
          he's like a new kid. I hate that I have a kid on meds, but I'm thankful for them bc his life was very hard without them.
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          • Can you tell me more about his anxiety? What kind? Does he have other sn? Is he in therapy? 12-19-2014 8:07pm
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            • He's got a lot of sensory stuff, he gets depressed and anxious, he's very sensitive, much more so than a typical kid. They just called it General Anxiety disorder, not specific....(more) 12-19-2014 8:10pm
              He doesn't have any other dx, but I sometimes wonder if he's aspie.
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              • ^^^we are seeing our therapist tomorrow (yay)! 12-19-2014 8:11pm
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              • Has he had a neuropsych? Are you in NYC? 12-19-2014 8:17pm
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                • Not in NYC. I took him to a NP and she said it was anxiety and that we should see a psychiatrist and psychologist. We went to NYU in Hackensack. 12-19-2014 8:20pm
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      • You need to get some meds for that poor thing. 12-19-2014 9:44pm
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