Special Needs

  1. Special Needs Wow - 5 Autism Simulations to Help You Experience Sensory Overload...(more) 4 hr 44 min ago (1 reply)
    • i think i am on the spectrum. most of my social interactions are like this 4 hr 41 min ago
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  2. Special Needs Would you follow therapist recos from a great friend but her dc is higher functioning? 5 hr 13 min ago (1 reply)
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    • I would definitely at least meet the txs and have them meet my dc and see them interact. 4 hr 54 min ago
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  3. Special Needs Can IEPs be formulated to address bullying issues -- dd has poor social skills and is a bully magnet and has a hard time defending herself. what's a typical way of addressing this...(more) 5 hr 35 min ago (2 replies)
    in an IEP? asking for dedicated playground aide (where much of the mischief happens...)
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    • Do you know if your dc has an anti bullying policy? An aide is a great idea but can also be a magnet. IME doing some social skills training and having gos for that in the iep...(more) 5 hr 17 min ago
      behavioral section are important. One idea is to have a playground facilitator, and adult that helps organise the kick ball game. This way dc does not have an aide that can be a target and the support is there. I'd also want to know what the school does to encourage understanding. Is there an understanding challenges day where students learn about sn.
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    • Request an fba 5 hr 8 min ago
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  4. Special Needs 10 dd is barely on the spectrum but has social challenges, adhd, does not act appropriately at times. she gets attention being outrageous and has other friends with similar...(more) 6 hr 5 min ago (19 replies)
    issues. of course they egg each other on and wind each other up. but their behavior can be off-putting to girls dd wants to be friends with (and who would be far better influences on her). should I address this with her? I am afraid her peers are going to egg her on to do something really stupid or inappropriate and she'll do it out of a need for acceptance...and then they'll turn on her.
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    • make a social story about this 6 hr 4 min ago
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    • Future Ramona. 6 hr 3 min ago
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    • I have a 10yo dd who is barely on the spectrum (I posted about her last night), we dont quite have these issues. but my dd and I are reading this book called 6 hr 2 min ago
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    • I would teach her proper behavior but do not put down her friends. She may be egging them n just as much. The more mainstream girls may or may not accept your daughter. Teach her...(more) 2 hr 45 min ago
      how to act but I wouldn't separate her from her friends.
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  5. Special Needs Any Mary McDowell parents in NYC- how long is commute to brooklyn? 6 hr 9 min ago (8 replies)
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    • from where? 6 hr 9 min ago
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      • - no subject -...(more) 6 hr 6 min ago
        From upper west side- by school bus?
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        • school bus .. who knows. by mass trans it's 35 minutes 6 hr 5 min ago
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          • 35 minutes from upper west side ? That's great 6 hr 4 min ago
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            • hop stop it. but it's 2/3 right to borough hall 6 hr 3 min ago
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              • How old is your child. 6 hr 2 min ago
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                • 2 - but I happen to live across the street from MM 6 hr 1 min ago
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    • We take 4/5 from GCT. 16-20 minutes to Boro Hall if trains are running efficiently. MMFS so worth the commute. Wonderful school 6 hr 7 min ago
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  6. Special Needs We started Prozac this week (1 mg for 8 yo) and I've applied for 5 day SN camp (o'night) - please wish me luck! we need some good news. 7 hr 4 min ago (11 replies)
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    • good luck! 6 hr 59 min ago
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      • btw, my 11 y.o. was on a different SSRI for depression (long-standing, since age 6) and new doc switched him to Prozac and it's great-along with great therapy. :-) 6 hr 47 min ago
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    • we've had a lot of luck with Prozac for my 8 yo. wishing you all luck! 6 hr 58 min ago
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      • thank you! he is SO RIGID and OCD.. he HUNTS me down to pick a fight and will moan constantly when asked to do ANYTHING .. our family really needs some relief from this. he needs...(more) 6 hr 56 min ago
        relief (and *I* need relief)
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        • god, i so feel you. we put 8 yo on it in august and it has really realllly helped. my guy is now 8.9 and we are thinking of trying to wean him soon. i'm nervous bc he did so much...(more) 6 hr 54 min ago
          better on it. he is on 4ml now. we noticed a difference within a week, honestly. he even said he felt so much better.
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          • I really think this is going to help him.. I was bulemic in HS (6 years!) and I was put on prozac at 19 and in one year, it was GONE and I weaned off it and never looked back.....(more) 6 hr 51 min ago
            that said, I'm not sure I'll wean ds if its making him better!)
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            • I was on it too in my 20's when I was going through a rough patch and it really helped me, too. After a year, I didn't need it again and I'm 42 now. Keep us updated! xo 6 hr 35 min ago
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              • will do! we've come a long way from my tantrum over the fkking hyperbaric chamber in my living room!! 6 hr 24 min ago
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      • do you remember how long til you saw an effect? what dose is he on? 6 hr 55 min ago
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    • Np: Prozac to treat what? 6 hr 56 min ago
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      • DX is autism. this is specifically for the OCD / rigidity / anxiety 6 hr 55 min ago
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  7. Special Needs I don't know if it is soecific to iur state or county-- Case 21 testing each quarter. In the math portion my 5 th grader scored a 1-. That is a "1 minus". Less than a 1. The...(more) 7 hr 26 min ago (0 replies)
    teacher said he will not be retained even though we had been warned. We have an IEP and transition meeting next week. We have to place him in the appropriate middle school track for each subject. I know we should always go for the LRE but he scored so poorly. There are 3 levels of remediation. Sorry I am rambling, i just don't know what to do w him. I cannot imagine how he can go through school like this.
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  8. Special Needs What public setting would be the best place to have a social skills class? 3-4 kids around 9-years-old 7 hr 51 min ago (5 replies)
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    • Why not just am the teacher for suggestins? 7 hr 50 min ago
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    • Park? 7 hr 50 min ago
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    • If public place were your only option, I'd make it more like a field trip class. E.g. quick lesson about eye contact, thank you, asking for things, and behavior around doors, and...(more) 7 hr 50 min ago
      apply it at a trip to the library.
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      • Agree, out in the community is great. Grocery store, getting pizza, post office, bookstore, library. 7 hr 49 min ago
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    • What issues are you working on? If your working on playground skill meet at a playground, for lunch rules meet at a diner, board games - library...(more) 7 hr 48 min ago
      l
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  9. Special Needs Has anyone heard of the dual gifted program in Irvington? 8 hr 7 min ago (2 replies)
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    • yes. it's part of BOCES. Know someone whose kid went there. Emotionally fragile but doing fine academically. Very small class. Allowed to integrate w/gen ed at some point for...(more) 5 hr 54 min ago
      electives, etc.
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      • You can't choose to go there. Must be sent by district. 5 hr 53 min ago
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  10. Special Needs I'm beginning to wonder if my 7.5yo has hfa. would it be odd to diagnose it so late? 8 hr 33 min ago (14 replies)
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    • nope - it happens to a lot of people 8 hr 28 min ago
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    • Absolutely not. HF kids can really fly under the radar for a long time. And then there adults who don't get dxed until their 40s, think of them! 8 hr 27 min ago
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      • op true enough. who is best for an eval? an neuropsych? 8 hr 26 min ago
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        • Are there issues in school? If so, yes, neuropsych. 8 hr 24 min ago
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          • op not academic. i'm pretty sure he has adhd (inattentive) and he has a very tough time understanding social conventions and struggles with some receptive language. 8 hr 20 min ago
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            • Is it affecting him at school in other ways? 8 hr 11 min ago
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              • op he has trouble making friends, and trouble not arguing with adults. he will tell you what he thinks because "it's true." he genuinely doesn't understand, for example, why...(more) 8 hr 8 min ago
                telling you that your shirt is ugly is rude. he knows to say, "i don't want to hurt your feelings, but...". to him if it is a "fact," it's neutral (even though he knows it won't be taken that way). when he gets in trouble it is never his fault, and the backstory always involves someone not understanding what he wanted/needed/was doing. he is a very sweet boy, and doesn't goad others on purpose, but he doesn't have many friends and struggles to stay calm when he feels wronged.
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                • ^^^and thank you, very much, for taking the time to ask. his older brother has adhd, and i can't parse whether i'm just so used to pathologizing behaviour that i'm doing it now,...(more) 8 hr 7 min ago
                  or if there could be a real problem.
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                  • Your gut is talking to you that SOMETHING is going on - and there's a family history. I definitely agree that an eval is in order. 8 hr 2 min ago
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                    • op you're right. argh. i know you're right. listen to my gut. lol. i hope you aren't the kind soul who went through months of talking to me before i had ds #1 evaled! it won't...(more) 8 hr 1 min ago
                      take me as long to come around this time.
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                      • This isn't Seattle mom, is it? 7 hr 56 min ago
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                        • oh no! yes. head totally hung in shame. 7 hr 55 min ago
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                          • ^^^at least you know my crazy. 7 hr 54 min ago
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                            • Well, and you know mine! 7 hr 52 min ago
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  11. Special Needs Does this sound like autism? My ds is 2 he's adopted we got him when he was 15, months. He's from here so he knows English. I've begun to notice more that he doesn't speak...(more) 8 hr 52 min ago (18 replies)
    clearly and he doesn't speak to us or he's speaking to himself. He's very self directed and tactile defensive. He's a struggling food eater. Tube fed. But there is no history of any other problems. Waiting for EI but I'm curious if there is anything I can change now to help him out. .
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    • Tube fed but no other problems? Tube fed is a sign of other problems... 8 hr 50 min ago
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      • That we have found. He's perfectly healthy in all other ways normal birth. 8 hr 49 min ago
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    • um tube feeding would be a big RED flag 8 hr 49 min ago
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      • not of autism. other issues, yes. 8 hr 48 min ago
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    • none of those things clearly say autism. Why is he tube fed? 8 hr 49 min ago
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      • He's had a hard time with feeding from his other family. He doesn't like anything in his mouth. Neurological wise there is nothing that says why he has that problem. 8 hr 47 min ago
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        • It's unusual to see that in a child with no other issues; to me that says there are likely issues not yet diagnosed. 8 hr 44 min ago
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          • op: could be which is why I say no other issues but should have added found. He's thriving now per his doctors. He's healthy minus the feeding issues. No documented...(more) 8 hr 42 min ago
            developmental issues hit his milestone on time.
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            • that's all really good. Does he do any pretend play? Can he understand the joke if you, say, pick up a bannana and pretend it's a phone? 8 hr 41 min ago
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              • He doesn't. He usually just runs from phones or gets aggressive. He does well with soft toys like teddy bears. 8 hr 38 min ago
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                • no pretend play is a bit concerning, but not enough for me to say autism. I am glad you are having EI evaluate him. Don't ever hesitate to push EI - you get the most service if...(more) 8 hr 36 min ago
                  you push a bit :-) GL!
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                  • Yeah, thanks. He's just not where he should be I know and I can't hug him or its a clothes battle and I don't know who and what he is talking to but it's not to us. 8 hr 32 min ago
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                    • Don't overlook the adoption trauma plus whatever happened to him previously that made him available. Don't overlook adjustment and attachment issues. He may have good reason for...(more) 5 hr 48 min ago
                      not wanting to get too close to fast. Not at all uncommon and not a permanent one. From another adoptive mother (I don't know you, it might not be adoption related).
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    • Op: I just ask if it's autism because of his sensory issues and weird language, not talking to us or communicating with us. 8 hr 44 min ago
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      • Is the not communicating with you new, or has it been going on since you adopted hm? 5 hr 47 min ago
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    • Does he have a history of abuse? Hard to believe the extreme feeding issues without either other special needs or maybe history of abuse surrounding good, ie food withholding,...(more) 8 hr 38 min ago
      force feeding, etc
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      • Not te know of. He's been checked for reflux and anatomy issues. He literally seems to not like to swallow or have food in his mouth. He's been in feeding therapy since we got...(more) 8 hr 36 min ago
        him.
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    • Read about attachment - many adopted kids start off being defensive, controlling, lack of communication w/new parents. It takes time and effort to build the relationship. 5 hr 36 min ago
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  12. Special Needs Has anyone had the nueropsychological testify at their hearing. What did they chage 9 hr 50 min ago (5 replies)
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    • Didnt they write a report? 9 hr 49 min ago
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    • >>>meant how much did they charge? 9 hr 46 min ago
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      • Salsberg does it as part of initial fee for neuropsych 7 hr 21 min ago
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        • Tats nic. Mine is charging what seems like an insane amount 5 hr 49 min ago
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  13. Special Needs Moving to burbs and someone recommended Beryl Nightingale but she is 5K and has no time till end of July or her associate can do it for 3500 in May, we just paid 3K for NYU Child...(more) 9 hr 59 min ago (22 replies)
    Study for meds and I don't know what to do, I would like to have a private eval to have a better chance of getting a favorable placement but it is so much money.
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    • call hospitals and participate in a study. You can get a semi veal 9 hr 57 min ago
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    • Nelson dorta is in westchester 9 hr 56 min ago
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    • I just met someone that used het associate and was very pleased. 9 hr 32 min ago
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    • In some burbs they will do the testing themselves. Why not wait until you move? It's also helpful to have a np who knows the programs available in your burb so they can put...(more) 9 hr 5 min ago
      those services in their report.
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      • They will surely do testing I assume, but I am concerned that my slow processing inattentive dc will not test as well with a school psych as with a private evaluator. Basically...(more) 8 hr 48 min ago
        I'm hoping for a NP that says dc is very smart to get a good placement and worry that won't come through with a school psych. But it's an awful lot of money. I could even tell her the program I'd like for dc! (which is not in-district, another reason to have a private eval). Grateful for any further thoughts.
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        • I would wait and see how dc does on the districts evals / tests and then if needed go to a np. A good np will know how to fill in the gaps of the district tests. This is a...(more) 8 hr ago
          common thing in burbs. What makes you think dc will do better with a private eval then the school. DD does not know either tester and if anything may see the school psych a few times prior to testing or around school. Burbs are a very different system then nyc. There really is not a 'placement' issue like nyc. In the brubs a np helps design your IEP. The np says dc needs OT x times a week to work on y. Some schools have ICT other have resource or after school programs for wilson or aba classrooms and some dont. Knowledge of the program can be of value. Do you know where you are moving and what services the school gives?
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          • ^ If you are moving to a different state there may be different special ed laws and that knowledge can be important. 7 hr 57 min ago
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          • Yes and I am looking for an out of district placement (I know you're thinking, why not move to the place that has the desired program? Anyway, that's the way it is). My concern...(more) 6 hr 58 min ago
            is if go to burb then probably won't think it's worth it at that point to get private unless burb psych seems really poor, but might have been better to get private to begin with. I have a complicated dc. And there is a placement issue because I want a program this burb doesn't have, and I want them to think dc is smart and not write off.
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            • Ok do you know the school you want and if the school your moving to easily gives out of district placements? I would suggest talking to an advocate or attny who knows your...(more) 6 hr 10 min ago
              district school so they can advise if you private testing ect for your case.
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              • Very difficult to get out of district. That's why I thought a private eval might help--the school psych will not recommend a type of program they don't have. 6 hr 3 min ago
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                • To win out of district you need to prove that the program the school is offering will not meet your child's needs. You probably will need a lawyer and one who knows your district...(more) 5 hr 50 min ago
                  Will be able to guide you on testing ect.
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          • also if burb has already done their testing might seem more adversarial to go private at that point I think 6 hr 57 min ago
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            • It's going to get contentious no matter what but seeing as you want out of district id follow a lawyers advice. 5 hr 41 min ago
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        • you dc doing poorly on the test is in dc's best interest as it means more services. 7 hr 54 min ago
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          • Not really--I want a placement for a higher cognitive level, not the slower tracked ICT. 6 hr 58 min ago
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            • What type of program do you want? Ict does not always mean slow. In burbs ict are not equal. There can be GT ICT classes. Ict means an extra teacher. That could be full day...(more) 6 hr 6 min ago
              or only part of the day. Ict can be great for kids with slow processing.
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              • I would love an ict but the class is too big (30 plus). I need small class and regular level curriculum. 6 hr 4 min ago
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                • How do you know the class sizes? Not being snarkey but doesn't that change yearly? 5 hr 53 min ago
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                  • I have seen large ict classes where a group of the kids go to resource or another class for academics making it a small group. Do you know if the burb your moving to has resource...(more) 5 hr 47 min ago
                    Or how all the ict / ics / LLD classes work?
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              • Sorry I meant not the slower tracked 12:1:1. Ict would be great, but too big. 6 hr 3 min ago
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  14. Special Needs New NP eval says dc age 8 has ADHD, executive function disorder, and probably NVLD. Average intelligence. Currently in public ICT and failing....(more) 13 hr 19 min ago (16 replies)
    We already do a remedial class in school 3x per week, OT 3x weekly, and private math tutoring 2ce a week. Is there anything else we can do that will help dc succeed in public school? We are not rich and are very afraid of the expense of the special needs schools route.
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    • Does your NP recommend SN school? Perhaps you can get state funding. 13 hr 18 min ago
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    • what is nvld? non verbal learning disorder? just figured that out as i typed 13 hr 18 min ago
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    • If ds failing, really failing, in ICT, you have a better case for state aid at a private. 13 hr 17 min ago
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      • OP: Sorry, just responding now, I got called away. Dc is failing in the sense that school is urging retention (doing 2nd grade over). NP is very doubtful current school with 30-...(more) 11 hr 57 min ago
        kid sized ICT classes can ever get her what she needs, but understands we may want to try.
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        • op (cont.): NP thinks our case for funding is complicated -- not a slam dunk. We are meeting with an attorney next week. So while some of the SN schools look like good options, I...(more) 11 hr 47 min ago
          feel we can't go down that road if we can't pay for it. So I'm trying to figure out if there's anyway to make the public school work for us, but I'm not sure what other supports we can ask for above what we have. I guess I'm wondering if any kids with this profile can make it work in NYC publics, and if so what that looks like. We were hoping ICT would make things better (started in gen ed), but obviously it hasn't.
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          • have you looked into d75 programs? they have many classes of 12 and might have an appropriate profile for your dc 11 hr 40 min ago
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            • NP said dc was too bright and high functioning for d75 programs 11 hr 32 min ago
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              • If your dc is too bright for D75 and is failing and being failed by ICT that is exactly the kid that the SN privates serve and I don't understand why you're not a good candidate...(more) 11 hr 31 min ago
                for them/funding.
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                • No, she probably is, but the price tag is scary. 11 hr 21 min ago
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                  • Totally hear you. Just take it step by step and see what the lawyer says. 11 hr 20 min ago
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          • NPs are lovely but they are not lawyer, do not assume anything until you have talked to an attorney. 11 hr 32 min ago
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            • Good point -- thanks. :) 11 hr 31 min ago
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    • You should talk to an advocacy organization, they are free and if you qualify they can often give you legal assistance at no cost. 12 hr 58 min ago
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    • look into a special school and look into having your district pay for it. 11 hr 56 min ago
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      • I agree with posters recommending you see a lawyer. Our NP said he would not get funding and we got 90% 7 hr 19 min ago
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    • hi op--i wish you luck and wanted to thank you for posting this. our dd is very much like you described and I never would have known the lawyer route was a possible option for...(more) 5 hr 54 min ago
      her, since we also cannot afford the private school that she might eventually need.
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  15. Special Needs Can executive function weaknesses impede a child at sports? Ds is typical ADHD innattentive and seems to have trouble figuring out how to play basketball, soccer, etc. trouble...(more) 15 hr 2 min ago (12 replies)
    following the rules, knowing what to do, etc which seems to come naturally to the other kids. Needs to be taught to catch and throw which also comes naturally to others.
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    • My dd has ADHD and is very athletic in individual sports. She's not very good on teams because she has trouble following directions. 15 hr ago
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      • But does she seem to have trouble with basic ball skills, etc or is that something separate? 14 hr 59 min ago
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        • Sometimes. I think she just doesn't pay enough attention to what the others are doing, if that makes any sense. 14 hr 57 min ago
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          • Ha ha - yeah, it does. What individual sports have worked for you? 14 hr 56 min ago
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            • She's an excellent swimmer and tennis player. They are great sports for her. I think she gets stressed out in group sports. 14 hr 55 min ago
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              • Ds' ST recommended tennis for him. He's only six but I think we will give it a shot soon. 14 hr 53 min ago
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    • Does he have motor planning challenges? 14 hr 59 min ago
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      • I guess perhaps he does but I've never been told this. Who would determine something like that? 14 hr 57 min ago
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        • OT usually, sometimes a PT. 14 hr 53 min ago
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    • It cold affect motor planning and sequnecing 10 hr 4 min ago
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      • this. my dd has issues like yours, op, and soccer used to induce meltdowns. she is far, far happier in swimming and karate. there is so much to process with dynamic team sports,...(more) 5 hr 59 min ago
        too....lots going on at once...in addition to the motor planning/sequencing issues mentioned above.
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    • not every child is athletic. having said that, tennis and swimming have been good for my kids. believe it or not, squash is too-they think it is just like dodgeball with...(more) 5 hr 56 min ago
      racquets and only one other person
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  16. Special Needs DD was just diagnosed with ADHD and executive function disorder, among other things. I know about Smart but Scattered, but are there other books you can recommend on ADHD and...(more) 17 hr 57 min ago (3 replies)
    exec. function? Just trying to get a handle on everything. Thanks.
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    • I hear good things about Late, Lost, and Unprepared but haven't read it. 17 hr 54 min ago
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    • I don't love the books - I like additudemag.com 17 hr 53 min ago
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    • That Crumpled Paper Was Due Last Week: Helping Disorganized and Distracted Boys Succeed in School and Life," by Ana Homayoun 16 hr 8 min ago
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  17. Special Needs Tell me not to get stressed that the school has still not done most of ds's testing for iep meeting, and nys tests are next week. I've been telling the school psych since march...(more) 18 hr 12 min ago (9 replies)
    to do the testing way before nys tests since dc gets anxiety, and since iep meeting is right after the tests. Every freaking time I email the psych goes "yes, I am testing her later this week", or "next week"...well state tests are next wk, and now she's saying this friday the latest. I cannot stand this.
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    • IME the worse your dc performs for the school psych the better. So not to be cold blooded about it but this could ultimately help you if you are trying to show that your dc has...(more) 18 hr 10 min ago
      more challenges than the school wants to admit.
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      • see I want to get an accurate picture of where dc is now. I really do. Mainstreamed with minimal support as it is. 18 hr 6 min ago
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        • Do you feel that your school eval team will give you a truly accurate picture? Not asking in a snarky way. 18 hr 5 min ago
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          • Do you mean that in terms of school psychs being bad at testing vs private? OR do you mean are they going to deliberately bias results? If the former, maybe, but I still think a...(more) 18 hr ago
            mediocre execution of the test would still give me insights into dc. I have done testing with private and with school before and the results were not dis-similar. If you mean they may bias results to get what they want, no. I have a good team, think they have best interests at heart. 5th grade so have been at this for a while, and they have been supportive, have never had to fight for anything
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            • Gotcha. I'm guessing you are not in NYC by your answer! 17 hr 59 min ago
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              • no, burbs! 17 hr 58 min ago
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                • Makes much more sense now! Very different experience there. 17 hr 57 min ago
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    • Was your evaluation request in writing? They have 60 school days to complete. Verbal requests can be fobbed off. 18 hr 10 min ago
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      • its not a request. Its a triennual, they have to do it 18 hr 7 min ago
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  18. Special Needs Any advice from parents who have been through impartial hearing? Ours is coming up very soon. We have attorney so I'm not looking for legal advice, just support or any...(more) 18 hr 52 min ago (4 replies)
    words of wisdom for those of you who have been through this.
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    • It is stressful but you will get through it. I leaned on my lawyer a lot. We worked out a bunch of like hand signals and looks so lawyer could warn me if I was going off topic in...(more) 18 hr 19 min ago
      my testimony. One thing I didn't realize is that you are all just sitting around an office table in a conference room. It feels like a meeting, not a trial. Our IHO was very fair and listened, and even the DOE attorney was pretty civilized. I told my dc's story and I felt like they were listening even if they weren't necessarily on my team. That helped.
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      • Really helpful, thank you. I sort of feel like we are going to trial, so the idea of a meeting makes it a little less scary. 18 hr 3 min ago
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        • There will also be a person operating the recording equipment so don't be surprised by that extra random addition. :) Be prepared to take notes, even though your atty will...(more) 18 hr ago
          eventually get the transcript, the notes are important.
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    • bring a really cute picture of dc and put it on the conference table 18 hr 10 min ago
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  19. Special Needs What public setting would be the best place to have a social skills class? 19 hr 11 min ago (18 replies)
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    • the train 19 hr 11 min ago
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    • weekly or a one day thing? 19 hr 10 min ago
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      • weekly or twice a week 19 hr 10 min ago
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        • age and number of kids? 19 hr 8 min ago
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          • 3-4 kids ages 9-10 19 hr 7 min ago
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            • Do you move around or sit still? 19 hr 6 min ago
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              • Not sure. I'm the parent and don't have the details from my son's teacher yet. This will be after school and we're discussing places. Figured our houses would be too distracting. 19 hr 5 min ago
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                • agree - I'd switch locations (playground, train, bus, restaurant, store) 19 hr 2 min ago
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    • reataurant or library private room 19 hr 10 min ago
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      • OP: library is on the list 19 hr 4 min ago
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    • Playground 19 hr 7 min ago
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    • The bus 19 hr 7 min ago
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    • I long to have a real-time social skills class on the playground with instant feedback and practice. No question this is where ds struggles the most. He is HFA and very outgoing...(more) 18 hr 15 min ago
      always asking kids to play, but unable to really tell if they want to engage. I HATE going to the playground. It's heartbreaking and I physically can't keep up with him. I get concerned for his safety around certain kids.
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      • Can you go to playground with an ABA therapist? She just looks like a babysitter to all the other kids. You don't need a group for this, 1:1 is fine! 18 hr 13 min ago
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        • Well, we used to when he was in CPSE, but he aged out. Had he been born a few days later, we would have had 1 more year with out incredible BCBA. We just can't afford to pay for...(more) 17 hr 27 min ago
          one on our own and I'm on my employer's insurance who elect not to cover any treatment for ASD, so the NYS mandate has no impact on us sadly
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          • That SUCKS I am sorry :( 17 hr 13 min ago
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      • np: Oh god, this is my 5yo right now. Not HFA, but so wants to play with slightly older boys, crashes into them in an attempt to engage them, they want him to buzz off, start...(more) 16 hr 8 min ago
        teasing him . . . It's awful to watch.
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        • OR :sounds EXACTLY like my 5 yo HFA ds 12 hr 36 min ago
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  20. Special Needs Proud of dc. He has AS and plays on ms little league team. He was hit by a pitch previous game, and generally has trouble flinching away from the ball versus catching it. He...(more) 20 hr 59 min ago (1 reply)
    volunteered to play catcher last night (a position he has never been trained for in practice), dealt with two innings of balls flying at him. On purpose, to inure himself.
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  21. Special Needs School! Hurray! 21 hr 42 min ago (2 replies)
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    • no kidding 21 hr 37 min ago
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    • I know right!! I think I've just got my sanity back. 14 hr 29 min ago
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  22. Special Needs Unsticky all posts MY STICKIES Preschool Dc accepted to Summit but have been hearing some bad stories .. Lots of bad behavior meltdowns, kids throwing things in a Class, teachers focus on kids that ne 4-22-2014 10:22pm (9 replies)
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    • you can't ever listen to these "stories." Every school, from Horace Mann to York Prep to all of the SN schools have these stories. And they have the good stories. You toured,...(more) 4-22-2014 10:47pm
      you should speak to families there, and figure out if it's a good fit for your child.
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    • My kid is in 7th. Started in 4th - there was one kid who misbehaved enough to be taken out of class occasionally but he left in mid 5th grade...(more) 4-22-2014 10:53pm
      Now the bad behavior is kids talking too much in class
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    • Who are you hearing these stories from? 4-22-2014 11:10pm
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    • you are going to hear terrible stories about any school. We heard all of this about ASD Nest, Stephen Gaynor, you name it. Honestly, it's like a relationship. "The one" for one...(more) 18 hr 13 min ago
      kid is totally wrong for another. You need to listen to your gut and not the stories from others.
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    • You can't expect there to be solely model behavior in a school for SN, especially one known for working with kids who have emotional issues as a component. The question is...(more) 18 hr 2 min ago
      whether they are equipped to handle outbursts appropriately with little disruption to the learning of the class.
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      • There is not solely model behavior in *any* school. 10 kids were recently suspended from my other child's school, and two expelled. 17 hr 13 min ago
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        • My point exactly. OP seemed to be judging a school based on whether kids ever had meltdowns, which frankly can happen anywhere. It's about how they deal with it. 17 hr 6 min ago
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          • - no subject -...(more) 9 hr 27 min ago
            Yes, that's great point-- does Summit deal with it so that all kids are learning despite the "meltdowns", which can and do occur everywhere-- while understandably their kids with behavior issues- are there "social" kids as well? My dc has anxiety/rigidity which I believe Summit could address, but am also seeking some "social" role models for him, and hoping he will find some there???
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            • Summit known for being good with anxiety and probably the most academic of the SN schools, I think. Many very happy there. Don't listen to the stories....(more) 5 hr 37 min ago
              Our NP said Summit seems to be accepting more LD kids than previously - kids w/o the emotional/behavioral component, but that's just one NP talking.
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  23. Special Needs Any one familiar with generation rescue? Ty 4-22-2014 9:51pm (1 reply)
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    • Yes, know it fairly well. 4-23-2014 12:15am
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  24. Special Needs Nyc SN parents- DC has sensory issues and hypotonia. 4-22-2014 8:49pm (7 replies)
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    • ^^where can we go for private swim lessons this summer? DC loves to swim - but has this horrible fear of submerging his head and also hates all the splashing. Thanks! 4-22-2014 8:50pm
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      • I got both my kids private lessons at the Y and eventually transitioned into group. 4-22-2014 9:39pm
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        • ps--my son was a sensory avoider but he did it slowly via private lessons and has been thriving in groip swim since Feb. 4-22-2014 9:53pm
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    • We use Take Me to the Water. They have various sites, see their website. 21 hr 18 min ago
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      • (And I have two kids with sensory issues, one dyspraxic/hypotonic/SPD, the other an aspie.) 21 hr 17 min ago
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      • Thanks! It looks like there is a location near us. Did your dyspraxic/spd/hypotonic son take private or group? 16 hr 44 min ago
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        • He is in a "group" of two. 16 hr 42 min ago
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  25. Special Needs What were the most difficult years for you as an SN parent? The past 2 years (DC will be 5) have been so hard...dh and I have been consumed- constantly thinking of ways to help...(more) 4-22-2014 8:38pm (15 replies)
    DC function better - diets, supplements, doctors,social skills, therapy, etc. every night conversation revolves around DC. We are both so tired and sick of all of the worry. I often wonder if things will get better- whether it's from us just coming to terms with our dc's challenges or maybe DC will mature. I will say that at 5, I was really hopeful that the gap would narrow with dc's peers. But it's just gotten bigger. It's exhausting.
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    • what are the issues? 4-22-2014 8:38pm
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      • Spd, hypotonia, dyspraxia, speech delays, as low processing, and attention issues. 4-22-2014 8:47pm
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        • It will get soooooo much better. You are at the worst possible point. 4-22-2014 8:49pm
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          • I really needed to hear that. My marriage is virtually nonexistent and my nt DC has taken a backseat for the past 2 years. 4-22-2014 8:53pm
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            • Mine has a similar profile and at 6.5 is a different child and so pleasant to be around. I'm still worried about him in school, but things have changed drastically for the better. 4-22-2014 9:02pm
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    • The preschool years were HELLLLLL 4-22-2014 9:06pm
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      • Parent of former severe aprxic child, SPS, low muscle tone and at 6 things are much better. I also gave up my life bit so worth it! He is at Gaynor where he is engaged and reads,...(more) 4-22-2014 9:41pm
        writes and socializes.
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        • gave up my personal life for about 4 years but seeing the light at the end of the tunnel now 4-22-2014 10:29pm
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    • 2nd grade when he was for sure in the wrong school and getting in trouble every day, and this year, 5th grade, adjusting to middle school even in SN school has been hard. 4-22-2014 10:48pm
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    • Age 6 - we thought he had oppositional disorder -- couldn't even test he was so difficult 21 hr 44 min ago
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    • Mom to two SN boys here. My younger one is similar age/dx to yours. The hardest part is from the preschool years until whenever proper school setting and supports are figured...(more) 21 hr 15 min ago
      out. (For our older one, that was mid-2nd grade. We're quick learners, so I'm optimistic about our K plan for our youngest.)
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      • Op- what k plan did you decide for your second? I have to say that this is part of some major anxiety.. 16 hr 47 min ago
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        • He is going into a 12:1 class at our well-regarded neighborhood school, with a shared para and a separate toileting assistance para, pretty maxed out on ST/OT/PT. They've finally...(more) 15 hr 48 min ago
          backed off their historical practice of pushing SN kids who aren't cognitively delayed into ICT's.
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          • We will review and reconsider SN school when he's a bit older--right now, it would require an amount of travel that we're not comfortable with at his age. 15 hr 46 min ago
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    • age 3 to 5. It gets better every year. Today I got all uptight about my kids not testing well despite being so smart. well, 4 years ago I was worried about my oldest ever reading...(more) 7 hr 43 min ago
      or having to live in a group home. When i realized that my testing anxiety attack really seemed silly.
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