Special Needs

  1. Special Needs Anyone with an ADHD impulsive kid who, despite meds being okay most of the time, still has "incidents" here and there at school? maybe our meds aren't okay, and I'm in...(more) 18 min ago (4 replies)
    denial.... I'm just exhausted from the tweaking and adjusting
    permalink | log in or sign up to post a comment
    • how old? 17 min ago
      log in or sign up to post a comment
      • 6 16 min ago
        log in or sign up to post a comment
        • ok, so he's new to all this. the meds don't get him all the way there. because once he has that, now he has to start learning how to behave. 15 min ago
          log in or sign up to post a comment
    • Home and school are often very different. I have felt like the ds at school is not even recognizable as the kid I have in my house. 7 min ago
      log in or sign up to post a comment
  2. Special Needs I had to yank all the wires out of the tv and take the cable box away so that ds cannot watch the tv. he is obsessed with tv and electronics. we always had rules, no tv before...(more) 1 hr 12 min ago (7 replies)
    school. but I've been slacking and it's been spring break and I know transitions are hard but calling me names and screaming and hitting me for an hour when I say no the first time is not ok. I'm so sick of this life sometimes. so now how do I take away the computer and video games? He can't handle it. He loses his shit every single time it's time to turn it off. he says "one sec" for an hour if I don't physically turn it off and if I do that it's hell. hell of him screaming bloody murder and being physically violent. he is 10. it's been like this for years. I can't do it. can I put a small tv in my room so I can watch the news or something at night sometimes? and he can watch a movie with me on friday nights or something? I need the computer to work. he does need to use a computer for school...how HOW do I do this?! He's not on meds right now and that's making things harder. but even when he was it was always a battle. a
    permalink | log in or sign up to post a comment
    • Sorry this is happening to you. Is it a possibility to take everything away and let him earn back tv time with good behavior? 1 hr 11 min ago
      log in or sign up to post a comment
    • is he in therapy? you may want to try CBT. 1 hr 10 min ago
      log in or sign up to post a comment
      • yes and no...what we've been doing hasn't been working..we have dr's and we've started seeing a new one and he's also just started a new school and program for kids like him.....(more) 1 hr 7 min ago
        it's a transition time which is very hard but this has gone on for years. I could use rewards and then he earns his hour on saturday and that time would come and at the end of the hour he would start melting down and then he would lose his shit. and he cannot transition from the games to something else in a reasonable way. t
        log in or sign up to post a comment
        • it's like he's on crazy drugs that make his brain go wonky and he can't reset 1 hr 7 min ago
          log in or sign up to post a comment
    • passwords 1 hr 10 min ago
      log in or sign up to post a comment
    • this might be helpful, there are website blockers that will limit the time you can spend on certain websites. one is stayfocused.com. i used it to block youtube for ds. some have...(more) 1 hr 6 min ago
      timers. I should use it on myself for ybm :)
      log in or sign up to post a comment
  3. Special Needs I find it so hard to talk to new people in our life about ds with adhd...ds starts new season of baseball tonight and it's a new coach we've never met, he has no idea of our...(more) 1 hr 18 min ago (11 replies)
    history. I emailed him and said ds had adhd which has challenges etc I would like to have a separate meeting with you privately let me know when..he wrote back and said yes talk to me tonight at practice. well..my ds will be there and all the other kids and parents...I need a private moment! and what do I tell him? sometimes ds is great, other times he will lose it and not participate and we never know when...I never know how much or little to divulge or what to say as far as strategies...this coach could be an ass I have no idea. and with ds that makes or breaks it. someone who is gentle and caring and kind and listens etc...then ds will be so successful and happy! if they aren't like that then he hates it and won't want to be there and will fight it and not do what the coach asks anyway...any tips?! things I should/could mention? ds is almost 11...adhd inattentive and anxiety and some ODD (with me especially)
    permalink | log in or sign up to post a comment
    • You've done enough, I promise. The coach isn't a teacher, he doesn have 8 hrs per day with yiur child, yiur child isn't academically stressed during basketball. Deal with issues...(more) 1 hr 15 min ago
      When/if they come up, you really, really don't have to meet with the coach privately about this.
      log in or sign up to post a comment
      • Baseball, sorry. 1 hr 14 min ago
        log in or sign up to post a comment
    • just send him an email with the most important points. 1 hr 14 min ago
      log in or sign up to post a comment
      • Poster above, I agree. This will make you feel better. But know that I. The coahc's eyes your child isn't any different than any other kid on the team. Kids who all have good...(more) 1 hr 12 min ago
        and bad moments. He's not invested at all in yiur child's behavior, whether it's the result of his ADHD or not.
        log in or sign up to post a comment
        • op-ok but I think he needs to know what he might and probably will do. i.e.: coach..if you put my kid in the outfield where there is nothing going on he's going to sit down on the...(more) 1 hr 9 min ago
          ground or twirl around because he's bored and can't sit still. other coaches would get so mad at him when he would do that and then he would get upset and not do anything and it was even worse. Can't I tell him that if you yell at him ds will shut down and storm off the field. you will make him embarrassed and hurt and he won't trust you and he won't want to be here. Not exactly that but there are certain things that set ds off...that could be avoided
          log in or sign up to post a comment
          • tell him 1 hr 8 min ago
            log in or sign up to post a comment
          • Of course tell him. But my btdt experience is that he won't retain it the way you want him to, and if/when any of this happens he will either ignore it or be angry as you said...(more) 1 hr 3 min ago
            others were. He just won't be as invested in it, so manage yiur expectations accordingly. Also, yiur child is a season older, so maybe things will be different.
            log in or sign up to post a comment
    • As the mom of 2 sports-playing SN kids, my best advice is for you or your spouse to get as involved as you possibly can - either as a coach or team manager, or just someone who...(more) 1 hr 8 min ago
      can help run practices. Youth volunteer coaches have zero training in typical childhood development, much less the needs of SN kids. IME, unless you have an unusually receptive parent/coach, they're already going to be overwhelmed with the duties of coaching a team of kids, and will not be too interested in trying different strategies and interventions to support your child's needs. I would suggest asking for an email and having this conversation via email, and keeping it short, simple and constructive: Dear Coach Frank, We're really looking forward to soccer this spring! Joey has some special needs, and I just wanted to make you aware of his situation. There may be times when he needs directions given more than once, and he can be easily overwhelmed, so may need to take a break. We'll be at all of the practices or games to help support him, but we just wanted to make sure everyone was on the same page. Let me know if you have any questions or concerns. Than
      log in or sign up to post a comment
      • thanks thats very helpful :) 1 hr 6 min ago
        log in or sign up to post a comment
        • Happy to help. I've thought about writing a little pamphlet for youth sports organizations on participation by children with special needs. Just a general guide, as more SN kids...(more) 1 hr 3 min ago
          get involved in mainstream sports. I think it's great, and kids should have equal access, but I also think that both the coaches and the parents could use some basic guidelines about how to make it work.
          log in or sign up to post a comment
          • np - I think this is a FABULOUS idea. 100% support from me on this. 1 hr ago
            log in or sign up to post a comment
  4. Special Needs 11yo dd attended her own iep meeting for the 1st time. She was so great reasoning about what she does not want and need. DH and I left meeting separately, he called to tell me he...(more) 1 hr 56 min ago (3 replies)
    was barely holding it together, he wanted to burst into tears in the meeting he was so proud. Mild asd, I posted a few days ago about her not wanting to be in a co-taught/integrated class since she is strong academically and does not want the special ed label (we came to a compromise that I think will work). It was so cool looking at her talk to the whole team. Nervous at first but she was really good, and was not afraid to push back, and offer solutions. I feel so good. Such a big change from her very first CSE meeting at 3yo where I cried for a good 2 hrs after.
    permalink | log in or sign up to post a comment
    • That is such a nice story. I think that one of the silver linings of having a kid with disabilities is they learn to persevere from day 1. I hope my ds will be able to advocate...(more) 1 hr 54 min ago
      for himself the way your dd did. Thanks for sharing that nice story.
      log in or sign up to post a comment
    • That's really wonderful and inspiring. Thanks got saying. 1 hr 54 min ago
      log in or sign up to post a comment
      • ^^^for sharing 1 hr 53 min ago
        log in or sign up to post a comment
  5. Special Needs Please don't flame - 4yo ds gets OT and PT each once a week. I currently WAH, but for financial reasons may need to go FT. Because we have two kids at different schools, the...(more) 4 hr 18 min ago (13 replies)
    logistics of getting ds to his appointments after school is going to be really costly. Would it be terrible if he missed the last month or so of sessions, and we resumed in September? He is not a 'twelve month kid', so doesn't get services in summer. We would continue with swimming and other activities to continue helping
    permalink | log in or sign up to post a comment
    • Why can't they seem him at school? 4 hr 16 min ago
      log in or sign up to post a comment
    • If he is still CPSE they should be able to service him in his preschool 4 hr 16 min ago
      log in or sign up to post a comment
      • if he's in private preschool they may not allow the service providers in, the provider may not be able to come to that school, there are all kinds of scenarios. and silly to...(more) 4 hr 8 min ago
        start with someone new for 1 month.
        log in or sign up to post a comment
    • Do what you need to do. REALLY. It's not a magic wand---if he misses some services, so be it. He will get more attention in different areas. honestly, I would meet with...(more) 4 hr 11 min ago
      service providers, explain the situation, and ask them for tips or "assignments" that you could work with him---or that the sitter could. That way you can just make little adjustments to your routine that gives him access to the skills.
      log in or sign up to post a comment
    • missing a once a week appointment a few times isn't a big deal, IMO. if he's been doing OT and PT for a while, you probably have a sense of what he's working on and could...(more) 4 hr ago
      supplement. but it's probably worth asking at preschool whether the therapists could come there, and/or asking your therapists if they'd be willing to do home visits for that month.
      log in or sign up to post a comment
    • You do what you have to do. But if it's 1x/ week for one kid the OT/PT provider might be able to get you better times, particularly in August when many people go away, cancel and...(more) 3 hr 59 min ago
      providers make less money.
      log in or sign up to post a comment
      • np: her kid doesn't get summer services 3 hr 57 min ago
        log in or sign up to post a comment
        • or: sorry OP - did not read carefully 3 hr 49 min ago
          log in or sign up to post a comment
    • op - Had to step away. Thanks all. We did try to get him in-school services, but it didn't work out with his private preschool. There was no one available. That was back in the...(more) 3 hr 52 min ago
      fall, so I guess I could check again to see if there is anyone for the last couple months of school
      log in or sign up to post a comment
    • Hire a sitter. He needs the services. 3 hr 51 min ago
      log in or sign up to post a comment
      • you absolutely don't know if he needs them or not, you make it sound like life or death. a month off of OT for most kids has NO discernible affects 2 hr 1 min ago
        log in or sign up to post a comment
        • I assume if she is working during the time slot that dc normally has OT, she has someone watching dc. Why can't that person take him? 1 hr 57 min ago
          log in or sign up to post a comment
    • Although ds gets most of his services at school, we couldn't get vision therapy for severe amblyopia done there. We had a sitter bring him to about half of the appointments,...(more) 2 hr 30 min ago
      because it didn't otherwise work logistically with our work schedules.
      log in or sign up to post a comment
  6. Special Needs Can anyone recommend a dessert that meets these criteria? - store bought, nut free, gluten free. Thanks! (Specific brands would be great too.) 5 hr 20 min ago (19 replies)
    permalink | log in or sign up to post a comment
    • there are cupcakes in my local grocery store called nutphrees 5 hr 19 min ago
      log in or sign up to post a comment
    • Anything that says kosher for passover 5 hr 19 min ago
      log in or sign up to post a comment
      • op: actually, this is a good idea. i know all kosher for passover is gf. 5 hr 18 min ago
        log in or sign up to post a comment
        • NO: Very not true. Matza contains gluten. MOST passover foods are not gf. 3 hr 47 min ago
          log in or sign up to post a comment
      • Nuts can be kosher for Passover 5 hr 18 min ago
        log in or sign up to post a comment
        • It's easy to look on ingred list and see, though. 5 hr 18 min ago
          log in or sign up to post a comment
        • op: yes, i will make sure nf too 5 hr 18 min ago
          log in or sign up to post a comment
      • what?! traditionally, passover flour-free torts and other cakes are made with nut flour! 5 hr 15 min ago
        log in or sign up to post a comment
      • Not true - passover is unleavened. PLenty of unleavened but flour-containing items 5 hr 6 min ago
        log in or sign up to post a comment
    • Fruit salad 5 hr 19 min ago
      log in or sign up to post a comment
    • op: i should add that we're doing whipped cream w/ strawberries, so looking for another idea. 5 hr 18 min ago
      log in or sign up to post a comment
    • Strawberries with non-dairy whipped topping 5 hr 18 min ago
      log in or sign up to post a comment
    • applesauce : ( 5 hr 16 min ago
      log in or sign up to post a comment
    • gelato 5 hr 15 min ago
      log in or sign up to post a comment
    • Ice cream 5 hr 11 min ago
      log in or sign up to post a comment
    • Fairway has a section in their bakery dept. There are also gluten free bakeries in nyc. 5 hr 10 min ago
      log in or sign up to post a comment
      • Yep, this is the best place. I searched high and low for a long time. They have all kinds of good stuff there that meet all kinds of criteria. 5 hr 6 min ago
        log in or sign up to post a comment
    • Udi's makes some great nut-free gluten-free cookies and muffins that are essentially like cake. There is also a donut that if GF & nut free. They sell it in the freezer at whole...(more) 3 hr 13 min ago
      foods and it's in a brown box. Enjoy life also has a bunch of cookies to choose from that fit the bill.
      log in or sign up to post a comment
      • ^^here are the donuts available at whole foods. The price on the site is for 8 packs, (they run like $6/box) also another whole foods idea - they have delicious, albeit...(more) 3 hr 11 min ago
        expensive cookies called "my father's cookies". I bought the black & whites this week for ds and he is in love. http://www.vitadigest.com/groc-620133002230.html
        log in or sign up to post a comment
  7. Special Needs ODD - Can you please describe the symptoms of this? I have a very difficult 7th grade ADHD son and wonder if it's also ODD. TY 6 hr 22 min ago (6 replies)
    permalink | log in or sign up to post a comment
    • very defiant, no respect for authority 6 hr 21 min ago
      log in or sign up to post a comment
      • ^^^see inside...(more) 6 hr 20 min ago
        • ok - This is my son! wow. How do you deal with this? Is it medication or therapy or food or behavioral/environment changes? 6 hr 18 min ago
          log in or sign up to post a comment
          • Is your son medicated? 6 hr 16 min ago
            log in or sign up to post a comment
            • Yes - Ritalin LA 30mg in AM and 10mg (regular in afternoon). 6 hr 14 min ago
              log in or sign up to post a comment
              • he needs a lot of therapeutic support as well, it's been shown that parental involvement is a huge factor too 6 hr 5 min ago
                log in or sign up to post a comment
  8. Special Needs Anyone with any experience with an ABA therapist who has been a district 75 teacher only previously? I am looking at supplemental ABA and the best therapist is someone who...(more) 7 hr 13 min ago (0 replies)
    hasn't provided care at home. We have a 4yo HFA. Thanks!
    permalink | log in or sign up to post a comment
  9. Special Needs Supposedly ICT class is the same level scademically, but the work I see on the wall from the non-ICT class is much more interesting, higher quality assignments. Also advanced 1-2...(more) 16 hr 36 min ago (9 replies)
    By 1-2 units. My dd has SNs and has to be in the ICT room but I feel a bit bad that she doesnt get to do the interesting assignments.
    permalink | log in or sign up to post a comment
    • That is the least of my worries. 16 hr 36 min ago
      log in or sign up to post a comment
    • not the case at our school, even the HW that comes home is identical, same curriculum, it's like clockwork before state testing, very specific 16 hr 33 min ago
      log in or sign up to post a comment
    • That's dependent on the particular teachers and class composition of any given class. Some ICT's do more, because they can do it with the better student/teacher ratio. 7 hr 15 min ago
      log in or sign up to post a comment
    • Is there only one non-ICT class? Are you perhaps looking at work from a G&T classroom? 7 hr 15 min ago
      log in or sign up to post a comment
    • ours is 100% the same. My NT was in ICT as a gen ed kid for several years--she was very shy and the 2 teachers were a help--and she (and I) loved it, same exact curriculum but...(more) 7 hr 15 min ago
      more support.
      log in or sign up to post a comment
    • Even my child's self-contained 12:1 is getting the same curriculum, they just get much more support to access it. 7 hr 13 min ago
      log in or sign up to post a comment
    • Ime it depends on the class and school. In our school there are two ict per grade one has the sn kids with high iqs (adhd) kids and goes at the same pace the other class has the...(more) 6 hr 14 min ago
      ld kids and goes at a slower pace. The thing with ict is that there are so many variables. What my school has may not be what yours has or does and unfortunately there is no way to know until you try or if you know the school well enough to know the kids in the ict.
      log in or sign up to post a comment
      • ^both the classes do the same curriculum but the ld ict class is watered down: less homework, projects not as complicated. They cover the same material but imo it's the...(more) 6 hr 11 min ago
        Difference between an honors and regular. It's watered down by a small amount.
        log in or sign up to post a comment
    • When my dd was in public she did both gen ed and ICT, and there was no difference in the level of work. 3 hr 53 min ago
      log in or sign up to post a comment
  10. Special Needs Dd is in first grade, ICT. Her teacher has never communicated with me about her behavior at all, but at parent teacher conferences or iEP meetings she always brings up Dd's...(more) 17 hr 37 min ago (31 replies)
    frustration levels about academic work (especially writing, dd has fine motor challenges) and makes it seem like dd often cries or refuses to do work out of frustration. Would it be good to email the teacher and set up a behavior chart to reward dd for not having frustration-related outbursts?
    permalink | log in or sign up to post a comment
    • Communication can't hurt. 17 hr 36 min ago
      log in or sign up to post a comment
    • call a PPT and have the special ed team suggest something. don't suggest it yourself in an email to the teacher. and that's bullshit that you don't find out until those...(more) 17 hr 35 min ago
      meetings.
      log in or sign up to post a comment
      • What's a ppt? Also, by special Ed team do you mean dd's teacher and the OT and PT? 17 hr 33 min ago
        log in or sign up to post a comment
        • But maybe it would be good to explore why she's having these problems, rather than reward her for not having outbursts. Maybe if they can help her more effectively, she will...(more) 17 hr 17 min ago
          perform better and have less frustration.
          log in or sign up to post a comment
          • They are using some strategies to help her, one reason I thought about asking them to do a chart would just be to figure out exactly how often this occurs and have more...(more) 17 hr 9 min ago
            communication with the teacher about it. I was talking to the mom dd's friend who sometimes calls out impulsively while the teacher is talking, and she said she receives many emails and notes about this behavior. I felt kind of hurt that they didn't communicate about dd's behavior in the same way.
            log in or sign up to post a comment
            • np: is the other kid in the sp ed part of the oct or a mainstream kid? 17 hr 7 min ago
              log in or sign up to post a comment
              • ^^ict 17 hr 6 min ago
                log in or sign up to post a comment
              • The other kid also has an iep. 17 hr 5 min ago
                log in or sign up to post a comment
                • then I would be complaining about lack of communication. I asked about the other kid because sometimes they are tougher on the ms kids and let more slide with the sp ed kids...(more) 17 hr 2 min ago
                  because they know it is out of their control. I also have a 1st grader in an ict class. communication is regular and I would be shocked at not being told about this. what is your dd"s dx?
                  log in or sign up to post a comment
                  • She has mild cp and adhd inattentive. I think having a (mild!) physical disability causes people (especially this teacher) to write dd off and not have high expectations of her....(more) 16 hr 59 min ago
                    It's been very frustrating this year for me, it's hard to
                    log in or sign up to post a comment
                    • that sucks. does this teacher loop up to 2nd grade or will dd have a new teacher next year? 16 hr 57 min ago
                      log in or sign up to post a comment
                      • I'm having a bit of a dilemma about next year. I'd like for dd to repeat first grade, she's young for the grade and socially immature, also not up to grade level in reading. If...(more) 16 hr 51 min ago
                        she repeats first grade it may be a great opportunity to mature a bit and work on some of those issues that cause the most frustration (reading, fine motor). If dd turns out to not be helped by the extra year i'll try to get her into an SN school the following year. BUT the vice principal is INSISTING dd could not repeat first grade with the other teacher but would HAVE to stay with this teacher who I don't think is a good fit with dd because she has iCT on her iep. Even though the other teacher is also SN trained and has taught ICT in the past. And the other class also has a teaching assistant. If dd goes to second it will basically be a social promotion. If she was NT they would not promote her.
                        log in or sign up to post a comment
                        • ict is ict. they cannot put her in the other class if oct is on her iep. its not him, its the law 16 hr 46 min ago
                          log in or sign up to post a comment
                          • I'm sure it can be changed/waived/whatever for one year. 16 hr 46 min ago
                            log in or sign up to post a comment
                            • I'm agonizing about this because I will not have dd with the same teacher again, but second grade will be punishingly tough at the level dd is now, talk about frustration! 16 hr 45 min ago
                              log in or sign up to post a comment
                              • see if they will take ict off the iep. I think you need an advocate and a formal cue meeting asao 16 hr 44 min ago
                                log in or sign up to post a comment
                    • ^^ come up with ways to tell the teacher to push dd more, especially since she already has a lot on her plate with a pretty challenging mix of kids. Dd has a health/mobility para...(more) 16 hr 57 min ago
                      who in actuality mainly redirects dd's attention and helps her organize her stuff, and I worry the teacher leaves dd to the para and focuses more on other kids.
                      log in or sign up to post a comment
                      • I can easily see this happening 16 hr 55 min ago
                        log in or sign up to post a comment
                    • and have you tried cbt therapy to work on frustration tolerance? if the writing tasks are difficult due to her disability you would think the sp ed teacher would be especially...(more) 16 hr 56 min ago
                      sensitive
                      log in or sign up to post a comment
                      • No because I don't really see much of that behavior at home. It's all to do with the demands of reading and writing. And since I only hear about it twice a year, it hardly seems...(more) 16 hr 49 min ago
                        worth it! But maybe it's a big problem and the teacher doesn't want to deal with me.
                        log in or sign up to post a comment
                        • the demand of reading and writing are only going to get greater. we went through this this year too. just finished neuropsych and ds is dyslexic, ld's come out in 1st grade....(more) 16 hr 44 min ago
                          not saying your dd has this, but the reading and writing demands can bring out a lot of frustration and anxiety that wasn't there before
                          log in or sign up to post a comment
                          • It's possible she's dyslexic, definitely. We will get her retested next year. But since dh didn't read till 8 and it was just developmental, I want to give her another year in...(more) 16 hr 41 min ago
                            public school to make absolutely sure she won't catch up before being sucked into the whole SN private quagmire.
                            log in or sign up to post a comment
                            • ^^ she gets OG tutoring already 16 hr 40 min ago
                              log in or sign up to post a comment
                              • OG tutor would probably be able to tell. I don't think many public school sp ed teachers pick up on that. they didn't know ds was dyslexic and meanwhile np described him as...(more) 16 hr 37 min ago
                                "profoundly dyslexic". I think you need a proper meeting, not a 15 minute parent teacher conference to discuss what is going on.
                                log in or sign up to post a comment
                                • I meant retested by the neuropsych. He said last year "probably not but too soon to tell" and I was pretty annoyed that we payed $$$ for inconclusive results, I'm waiting until...(more) 16 hr 35 min ago
                                  it's DEFINITELY possible to tell (7 yo) before paying that much again.
                                  log in or sign up to post a comment
                                  • I dont blame you! 16 hr 30 min ago
                                    log in or sign up to post a comment
                            • np: I'd go back to NP this summer and apply to SN privates this Fall, you don't have to attend, just see what is out there, NP will be able to detect some LD's at this age 16 hr 38 min ago
                              log in or sign up to post a comment
                              • So if you apply and get in, will they give you a spot for a year later or would you have to reapply? 16 hr 34 min ago
                                log in or sign up to post a comment
                                • If you apply and get an acceptance then you decide and you'll already be half way through second grade which is a harder year in public. 16 hr 27 min ago
                                  log in or sign up to post a comment
                                  • ^^and speaking from experience, my child is a few years older, ICT and ADHD inattentive, I'd line up a NP sooner than later 7 hr 41 min ago
                                    log in or sign up to post a comment
          • Np from ct: ppt is a term used only in ct. It means pupil planning team and is an Iep meeting. 7 hr 49 min ago
            log in or sign up to post a comment
  11. Special Needs Boston moms on? Recommendations for good neuropsych for college junior: possible attention/working memory/executive funciton issues. TY! 17 hr 41 min ago (2 replies)
    permalink | log in or sign up to post a comment
    • We saw david stein, affiliated with Childrens, he seemed very good for the one exam we did 3 years ago (we are expats so not that much ongoing contact since) 12 hr 8 min ago
      log in or sign up to post a comment
      • Thanks so much! 5 hr 53 min ago
        log in or sign up to post a comment
  12. Special Needs DS' daily behavior chart usually either says he did "OK" in a particular period, or lists what task refusal, rudeness, etc. he's been up to. Coming off a week or two straight of...(more) 17 hr 53 min ago (0 replies)
    good reports, and today we got a rave about how proud they are of how he behaved during a long, out-of-routine assembly. I think I'm framing this one.
    permalink | log in or sign up to post a comment
  13. Special Needs Should I be going to a dev pediatrician or a neuropsych for an evaluation for my 2.5-year-old? We have a pretty good grasp of his issues already (motor planning, some mild SPD...(more) 19 hr 4 min ago (12 replies)
    stuff, expressive delay), so it's unlikely any eval will change our current course (OT, PT, ST), and we already know where the delays come from (a minor brain variant). BUT our actual diagnosis was prenatal (at my 20-week ultrasound and an MRI), so we're thinking we might need something more current and "official" to fight for services when we transition to CPSE this summer. Any advice? And any particular dev peds or NPs to recommend for a case like ours? TIA.
    permalink | log in or sign up to post a comment
    • I'd go dev ped. where are you? 19 hr 2 min ago
      log in or sign up to post a comment
      • Sorry, forgot to mention I'm in Manhattan. 16 hr 41 min ago
        log in or sign up to post a comment
    • You could save yourself some money - do the CPSE meeting and if you don't feel you are getting sufficinet services, do the dev ped and then bring that back. If you have the CPSE...(more) 18 hr 52 min ago
      transition meeting early enough it might save some money.
      log in or sign up to post a comment
    • Dev ped 18 hr 50 min ago
      log in or sign up to post a comment
    • CPSE isn't when I'd invest if you already know what his issues are more or less. T5 is a bigger deal, and CSE is harder to get services out of than CPSE. 18 hr 37 min ago
      log in or sign up to post a comment
      • My experience was CPSE was generous in 2012 but I had plenty of good evidence in the form of reports and evaluations. I got more services than in EI for my child but you must be...(more) 17 hr 55 min ago
        prepared.
        log in or sign up to post a comment
        • CPSE is when they tend to be generous with services. They want to get them ready for K. 17 hr 52 min ago
          log in or sign up to post a comment
    • neuropsych is typically 4+, go to dev ped for now 17 hr 54 min ago
      log in or sign up to post a comment
    • a dev ped for sure. you should see them regularly so they can keep track of your dc's progress. its very helpful. neuropsych is for school age stuff and not necessary for a...(more) 17 hr 8 min ago
      while
      log in or sign up to post a comment
    • OP: Thanks for the advice, everyone, I really appreciate it. We'll have to think about whether we want to schedule a dev ped appointment ahead of the transition...we're hoping to...(more) 16 hr 34 min ago
      get some SEIT hours, not sure how hard that will be? And any particular dev peds recommended?
      log in or sign up to post a comment
      • Consider a pefiatric neurologist. I use Dr. Wellsvand his reports are very helpful inbgetting appropriate services atvright mandate. He is a straight shhotervandvtobthevpoint,...(more) 16 hr 25 min ago
        no hand holding.
        log in or sign up to post a comment
        • sorry, typing on a tiny ybm screen on my phone 😊 16 hr 24 min ago
          log in or sign up to post a comment
  14. Special Needs Anyone have a dc on Ritalin? Ds has been on it since last year and it's worked great, but I think it might need to be upped. He's better with it than without it, but he still...(more) 20 hr 49 min ago (4 replies)
    falls behind and can't get it all done and often brings school work home to finish, along with homework. It's really frustrating.
    permalink | log in or sign up to post a comment
    • it doesn't matter if it's ritalin or any of the others. occasionally the dosage needs to be adjusted. tell the prescribing dr what you are seeing. do you do every other month...(more) 20 hr 35 min ago
      height and weight checks? mention it.
      log in or sign up to post a comment
      • YEs, we need to see him again soon. Will mention it. 19 hr 50 min ago
        log in or sign up to post a comment
    • yes we're in the midst of this now. ds takes the lowest dose of the generic once per day, after 7 months, it's fading by noon. We may consider a booster. At first we were told...(more) 17 hr 52 min ago
      to take 2 pills, double dosage made him anxious.
      log in or sign up to post a comment
  15. Special Needs Socioeconomic, racial &/or ethnic diversity in nyc sn schools?...(more) 21 hr 52 min ago (62 replies)
    I'm struck by the lack of socioeconomic, racial or ethnic diversity at the few sn schools I've seen. Are any of the nyc schools substantially different in this regard?
    permalink | log in or sign up to post a comment
    • How can you see the socioeconomic diversity? Fwiw there is at a lot of the schools. Maybe not on the very low end but there is a huge range. My dc is at Winston an there is...(more) 21 hr 49 min ago
      all of that. Was at another school and very little racial ethic
      log in or sign up to post a comment
      • >>or ethnic diversity but there was soci economic 21 hr 49 min ago
        log in or sign up to post a comment
        • Are you speaking of black and Hispanic kids? Are Asians diversity to you? 21 hr 25 min ago
          log in or sign up to post a comment
          • Yes. Posted below. Not a lot of Asians but some 21 hr 23 min ago
            log in or sign up to post a comment
      • Agree...(more) 21 hr 33 min ago
        Point well taken (this is original poster) that you can't see SES diversity. that comment comes from talking with parents @ the school, not observation at the school. This disparities issue re access to sn schools makes me sad,sick,etc.
        log in or sign up to post a comment
      • Diversity at Gaynor? 21 hr 32 min ago
        log in or sign up to post a comment
        • There is some 21 hr 30 min ago
          log in or sign up to post a comment
        • No and not a lot at gateway where we were before or MMD. However at Winstn there is a lot. In my dc's class of 12 he has 2 black students, 2 Puerto Rican and a mixed race black...(more) 21 hr 29 min ago
          and Hispanic student. Over all there are many black students and Hispanic and lots of kids get FA
          log in or sign up to post a comment
    • Because it takes money to sue the city 21 hr 46 min ago
      log in or sign up to post a comment
      • this. we couldn't even get started. couldn't even afford the neuro or attorney, nevermind the school. so sad. the DOE tested my son, but the attorney insisted on a neuro...(more) 21 hr 43 min ago
        phych. couldn't afford it. my ds is a mess in a nyc public. very sad.
        log in or sign up to post a comment
        • Can you homeschool? 21 hr 41 min ago
          log in or sign up to post a comment
          • it's his senior year. no. 21 hr 40 min ago
            log in or sign up to post a comment
        • There are places that do a no on a sliding scale. You should look into that and there is also Connor funding 21 hr 40 min ago
          log in or sign up to post a comment
          • looked into it all. believe me. twisted myself into knots. started late in the process, when ds was a junior. long story. he's suffering and struggling thru his last year....(more) 21 hr 39 min ago
            not sure if he'll even graduate. so sad and depressing.
            log in or sign up to post a comment
            • I am sorry. The system really sucks!! 21 hr 38 min ago
              log in or sign up to post a comment
              • totally. plus, the one friend who sued the DOE and won, her dc goes to a school that cost - well - a lot. it's all being paid for, and she and her dh are really wealthy. so...(more) 21 hr 36 min ago
                sad.
                log in or sign up to post a comment
                • Why is it sad? because she accessed her resources that are available to her as a taxpayer? it has nothing to do with you. I'm sorry that for whatever reason your child didn't...(more) 20 hr 21 min ago
                  get the help he needed....but your friend's child has a right to that school, regardless of your friend's income.
                  log in or sign up to post a comment
                  • I assume they are saying it is sad for them and it can be frustrating to see how much easier it is for people with money to get a better education. I don't want more money except...(more) 19 hr 50 min ago
                    that it would allow us not to have to worry about where we put our child school wise.
                    log in or sign up to post a comment
                    • understand completely. Some people on this board in the past have said (not this poster) that wealthy people should under no circumstances sue the district for an education tha...(more) 19 hr 34 min ago
                      they can afford. but I don't understand that.
                      log in or sign up to post a comment
                      • Np: I can Undersdtand what they are saying in a way. I've known people pay 40k at ms private for many years but when their dc is counseled out they end up suing fore tuition for...(more) 19 hr 11 min ago
                        SN privates. It's their right to sue but this is an instance when I've seen people make this same comment about why sue if you can afford and were attending private before. I'm poor so I have to sue either way...their money they can do as they please
                        log in or sign up to post a comment
                        • Nnp: Well the truth is once you have a sn child your expenses increase significantly, tutors, therapy, pt, ot, st all things that are not necessarily covered by insurance and...(more) 18 hr 50 min ago
                          they need doe funding. So it's not as simple as paying one private school tuition and then paying a but more for sn private, and it's usually about 10 to 15 k more
                          log in or sign up to post a comment
                          • Who you telling. Lol...poor mom here. Getting our ds what he needs is always with lots of fingers crossed. The doe have been real asshats as usual 18 hr 18 min ago
                            log in or sign up to post a comment
                            • I am adding to the conversation. Who are you telling? We all fight. Fwiw my other 2 dc are in public 18 hr 1 min ago
                              log in or sign up to post a comment
                              • Yes we all fight....but having $$$ to fight makes things a tad less stressful 7 hr ago
                                log in or sign up to post a comment
        • NYU Child study center and Albert Einstein college of med have some studies going that involve free evals. my friends had their dc eval'd there. 21 hr 34 min ago
          log in or sign up to post a comment
    • well that's depressing 21 hr 45 min ago
      log in or sign up to post a comment
    • funded schools tend to be more diverse 21 hr 40 min ago
      log in or sign up to post a comment
      • ours is very diverse. 21 hr 13 min ago
        log in or sign up to post a comment
        • so is ours. 21 hr 12 min ago
          log in or sign up to post a comment
        • Which one?...(more) 21 hr 9 min ago
          Which one?
          log in or sign up to post a comment
      • I agree. We're at the Child School and it's diverse. 20 hr 44 min ago
        log in or sign up to post a comment
    • That's because most of the SN privates (that I looked into) do not offer FA like ms privates do. The only one that told me they have need based FA was gaynor. So if you have an...(more) 21 hr 14 min ago
      Have a hhi of 98k like we do, three dcs (two in ms privates with lots of FA) and the 3rd needed a SN learning environment...you or should I say...I freaked out. We were lucky and the school offered us a connors seat. We are still worried that we won't get the doe to approve the funded spot. Btw we had to hire a lawyer and we asked if they could give us a break on the retainer and they did. Instead of 5K we paid 3k
      log in or sign up to post a comment
      • Windward has needs based financial aid, about 25% of their student come from NYC 21 hr 9 min ago
        log in or sign up to post a comment
        • >>>so does Winston but does not start until 4th grade 21 hr 8 min ago
          log in or sign up to post a comment
          • Yes I know about Winston but I was looking for kindergarten 21 hr 5 min ago
            log in or sign up to post a comment
        • That's good to know...I was speaking on the schools I looked into. Didn't bother with windward since it was way to far for my 5 yr old on bus. Now I hear they are opening in...(more) 21 hr 6 min ago
          then City which is great.
          log in or sign up to post a comment
          • It takes my dc longer to travel via school bus to his school in our borough (60 min) than my other dc to ride to WW (45 min). WW is worth the trip although they look for dc older...(more) 21 hr 3 min ago
            than 5 yr.
            log in or sign up to post a comment
            • How does your dc get to Winward? Bus? Do they have traffic ever 21 hr 2 min ago
              log in or sign up to post a comment
              • WW starts at 1st grade, won't help if your applying for K. 20 hr 59 min ago
                log in or sign up to post a comment
                • I am not applying. Just asking 20 hr 58 min ago
                  log in or sign up to post a comment
              • np, my ds has been on the bus and has been in a carpool. It's generally 45 minutes from the UWS. Of course there is occcasionally traffic. For us, the transport hasn't been an...(more) 20 hr 31 min ago
                issue.
                log in or sign up to post a comment
            • Unfortunately my ds has horrible motion sickness and putting him on s bus to windward would be an issue. Luckily we are close to his school. Didn't know windward started in first...(more) 20 hr 56 min ago
              grade. Good to know for the future if we have to apply out if doe doesn't give us funding. We would have to apply to schools that offer FA
              log in or sign up to post a comment
    • Can I ask you why this is important to you? if your child needs SN school for whatever reason, why do you care abou tthis? To me, when people say this, they are just making...(more) 20 hr 27 min ago
      excuses to keep their child in their "diverse" MS school bc that's a better environment than the supposedly all white, all wealthy Sn private school where the kid would get the education s/he needs. JMO, and feel free to dislike or call me a name. That's just how I see it.
      log in or sign up to post a comment
      • ^^ and I'm just reading where you're sad and sick over the lack of socieconomic diversity in these schools. yes, it's a shame that people without rscources can't access them the...(more) 20 hr 23 min ago
        same way wealthier more educated people can. But honestly, when I'm choosing a school for THIS kid, I'm choosing the one that's best for remediating his special needs....not the diverse one. make up for it by doing some work in your community if you're sad and sick about it. But don't blame the schools.
        log in or sign up to post a comment
      • I've been thinking the same thing. I chose the school bc it provides the education my child needs not because of the way the other kids look.(np) 20 hr 19 min ago
        log in or sign up to post a comment
      • I think this comes down to values...I feel the same way as the OP. It's not just about wanting to keep my ds in a ms school. It's about why I am in NYC in the first place. If i...(more) 18 hr 19 min ago
        didn't prioritize having my kids in a diverse school, I might not even be living here. And I feel very distressed that having a kid with sn means he won't get that. I had it, and I want it for him. Period. I will do it if it's my absolute last resort, but honestly, when I went to visit Aaron the lack of diversity in the school and on the tour made me queasy. Thanks for raising this issue OP!
        log in or sign up to post a comment
        • if you want your child to experience diversity, just let them know your friends -- the people you socialize with and they see regularly will be more than fine. btdt 17 hr 59 min ago
          log in or sign up to post a comment
          • I agree with this. My values are education first, regardless of peer group...then diversity. Or anything else. 17 hr 53 min ago
            log in or sign up to post a comment
          • I guarantee you that all these people that day they want diversity don't have a diverse group of friends. It's just nice for them to see it, but they are not so interested I. The...(more) 17 hr 48 min ago
            Real mix
            log in or sign up to post a comment
            • then it isn't going to matter. kids model what they see. sitting next to someone in 5th grade isn't going to cut it. 17 hr 46 min ago
              log in or sign up to post a comment
              • My point exactly! They don't really care 17 hr 45 min ago
                log in or sign up to post a comment
            • I'm the one who posted what you are responding to. Not true at all, and that's why I'm saying what I'm saying. Maybe unlike other posters here I also chose a community (clinton...(more) 1 hr 55 min ago
              hill) that is diverse, and I have diverse friends there. It is a huge disappointment to send my dc out of the community to a special needs school that is not diverse. You are definitely coming from your own rather narrow experience of most likely, a wealthy manhattan district. And people who are clueless or don't really care about diversity. Not everyone is like you.
              log in or sign up to post a comment
        • NYC is still diverse and most publics in manhattan are not really diverse any more. So of that's the only reason you live here then it's time to leave 17 hr 57 min ago
          log in or sign up to post a comment
          • I agree with you. Any school in NYC is far more diverse than the suburban public I grew up attending many years ago. The only exception to this is the D75 schools. I have visited...(more) 3 hr 55 min ago
            them each year (my dc attends an unfunded private and I visit a recommended public placement annually) and they could not be LESS diverse. Almost 100% minority. So not diverse at all. The private sn schools are far more diverse than the public schools based on what I have seen. However, in summary, what is important to me is finding the right spot for my child not whether or not or to what extent a school is has a diverse population (which can be defined in all types of ways too).
            log in or sign up to post a comment
    • We have some lovely SN kids in my public school, who wants to help pay for them to sue the city? 18 hr 16 min ago
      log in or sign up to post a comment
      • I see more diversity at Gaynoe than my daughter's district 2 public. There are many public schools that lack all you stated OP....(more) 17 hr 52 min ago
        I comment yearly in my survey that Gaynor needs more diversity.
        log in or sign up to post a comment
    • Here's the makeup of our Queens public self-contained special ed class: One Chinese kid, one Afro-Carribean, two Italian extraction (one of whom is half Latino, I think), one...(more) 7 hr 17 min ago
      Bukharian Orthodox kid, three modern/assimilated Ashkenazic kids, and one kid of some sort of silk road Asian ethnicity like Turkish or Azeri or something.
      log in or sign up to post a comment
      • And it's pretty reflective of the makeup of the community, except that we're missing somebody from the Indian subcontinent. 7 hr 14 min ago
        log in or sign up to post a comment
  16. Special Needs I really feel like I am not connecting with my 11 yr old dd lately. How do you bond with MS kids? 23 hr 13 min ago (5 replies)
    permalink | log in or sign up to post a comment
    • i'll probably get flamed, but you could watch a tv show together. my dd is obsessed with The Voice. 23 hr 12 min ago
      log in or sign up to post a comment
      • Ditto...we watch lots of Nat geo, dance moms, project runway, hgtv...we love home improvement shows 20 hr 2 min ago
        log in or sign up to post a comment
    • take her out for a girls day- pedicures, shopping for summer clothes, out to lunch at her favorite resturant 23 hr 6 min ago
      log in or sign up to post a comment
    • I watch King of the Nerds with my 12 yo ds every night 21 hr 32 min ago
      log in or sign up to post a comment
    • I have an 11 yr old dd and we do movies together, snuggling up in my bed to watch a fav show, nail salon, lunch at her fav spot, etc 20 hr 3 min ago
      log in or sign up to post a comment
  17. Special Needs At 3:30 pm each day I have a cup of black coffee. I can still go to bed by 9:30 pm. That is ok right? 23 hr 36 min ago (6 replies)
    permalink | log in or sign up to post a comment
    • that is fine. 23 hr 35 min ago
      log in or sign up to post a comment
    • Why wouldn't it be? 23 hr 35 min ago
      log in or sign up to post a comment
      • Doesn't caffeine screw up your sleep patterns? 23 hr 34 min ago
        log in or sign up to post a comment
    • I'm about to have my last coffee of the day, so sure, as long as you can sleep 23 hr 35 min ago
      log in or sign up to post a comment
    • thanks for reminding me to make coffee. 23 hr 34 min ago
      log in or sign up to post a comment
    • My cut off is 2p. When I go later I feel it. 23 hr 31 min ago
      log in or sign up to post a comment
  18. Special Needs Any moms with older kids on who had IEPs in elementary school that were successful later on in life? I could use some inspiration! 23 hr 47 min ago (13 replies)
    permalink | log in or sign up to post a comment
    • My ds is 15. He still has an IEP, but he's in an honors/AP program and thriving. 23 hr 45 min ago
      log in or sign up to post a comment
      • So good to hear. So they can be academically successful. 23 hr 44 min ago
        log in or sign up to post a comment
        • To be honest, I had given up completely on him ever being successful academically. And I was OK with it. Not everyone needs to be academic, or has to be. I focused on ensuring...(more) 23 hr 43 min ago
          that he had good values and was loving and caring. I just wanted him to be able to hopefully hold down a job of any type and lead a good life. His academic success was a wonderful surprise.
          log in or sign up to post a comment
    • Yes. Dc is a junior in hs, still has an IEP, is a straight A student and did very well on SAT. Looking at really great colleges right now, many which his school told us would be...(more) 23 hr 24 min ago
      Safety's. I was not sure this kid would ever go to college, let alone be able to go away and have choices
      log in or sign up to post a comment
    • This post has been disliked 3 times. showI never knew that IEP's precluded success in life. I hate these kinds of posts. Dislike if you want, but there is no tacit assumption that kids with IEP's won't be successful....(more) 23 hr 13 min ago
      There should
      log in or sign up to post a comment
      • ^^there shouldn't be 23 hr 13 min ago
        log in or sign up to post a comment
      • If you have a 4th grader who's struggling overall, it's hard to imagine him shining in high school so I assume OP is looking to hear about those success stories. 21 hr 30 min ago
        log in or sign up to post a comment
        • If I have? I have 2 kids with ld's, one at windward and one at private school with accommodations. 6th and 10th. I've been watching and supporting the struggles for years. I...(more) 21 hr 2 min ago
          Never questioned that they would be successful people overall, ever.
          log in or sign up to post a comment
          • np: it bothers me that you see OP's reaching out for help, support and encouragement at a low moment as somehow casting aspersions on your kids. Can't you see that OP is looking...(more) 20 hr 4 min ago
            for help? Just tell her that your kids are doing great without the judgement and "I hate this kind of post" - which serve no purpose except to make her feel bad for feeling bad.
            log in or sign up to post a comment
            • the intention isn't to make her feel bad,but rather to bring awareness that this is what a lot of people do. assume that their kids with IEP's won't be successful. It has to...(more) 19 hr 33 min ago
              start with us. FWIW, Op, I'm sorry if I hurt your feelings. i really am. And I am sure your kids will find all kinds of success in life, and in school.
              log in or sign up to post a comment
    • Sure. My nephew had an IEP for speech all through elementary school. He is now honor roll and a star pitcher on his baseball team, looking to get a scholarship. 22 hr 21 min ago
      log in or sign up to post a comment
    • My cousin had an IEP throughout college (northeastern) and went to Cambridge for graduate school. Closer to home, my dc had an IEP starting in 2nd grade, now headed to Eleanor...(more) 21 hr 8 min ago
      Roosevelt High school.
      log in or sign up to post a comment
    • I know many. They are bright kids who are dyslexic or have adhd, etc. One of the most successful is HFA -he was offered over 100,000 while still in college. 21 hr ago
      log in or sign up to post a comment
  19. Special Needs How long after I make a request for a meeting does the Doe have to have the meeting. Is it 60 days or 60 business days? 23 hr 47 min ago (3 replies)
    permalink | log in or sign up to post a comment
    • 60 business days 23 hr 46 min ago
      log in or sign up to post a comment
    • 60 school days 23 hr 44 min ago
      log in or sign up to post a comment
    • We have waited much longer than 60 business days although that is their rule. 21 hr 6 min ago
      log in or sign up to post a comment
  20. Special Needs DC is 6 and desperately needs OT per two evaluations. IEp has not kicked in. Insurance denied claim. We are not rich and cannot spend thousands on this. Please advise! TIA! (Oh...(more) 23 hr 53 min ago (22 replies)
    and the IEP may not come in for several months).
    permalink | log in or sign up to post a comment
    • your insurance does not do partial reimbursement? I would work out a deal with a facility, sliding scale until you get approved 23 hr 52 min ago
      log in or sign up to post a comment
      • Insurance declined. Sliding scale is still like 1500 a month, right? And we have other therapies and cannot afford additional ones 23 hr 51 min ago
        log in or sign up to post a comment
      • np: ITA. but read your benefits information closely to make sure OT is not covered--sometimes you just need the right paperwork: prescription from pediatrician, diagnosis code,...(more) 23 hr 46 min ago
        procedure code. when we were waiting for our RSA for OT and speech to come through, we did therapy privately through a sensory gym that charged us the Board of Ed rate (which was half their private rate) until we got our RSA.
        log in or sign up to post a comment
        • ^^also, does dc need the OT for sensory issues? fine motor? 23 hr 43 min ago
          log in or sign up to post a comment
          • Thank you! 23 hr 19 min ago
            log in or sign up to post a comment
            • ^ I think he has sensory but it has not been DXed by NP. But fine motor and some gross motor too 23 hr 19 min ago
              log in or sign up to post a comment
              • Bear in mind that it also depends on your specific insurance plan. My employer chooses not to cover services for asd, which sucks. 3 hr 7 min ago
                log in or sign up to post a comment
    • Can you read up and work on it with dc? 23 hr 51 min ago
      log in or sign up to post a comment
      • Yes, how do I start? His DX is complex and he does NOT work well with me (lots of resistance) 23 hr 51 min ago
        log in or sign up to post a comment
        • Read about dc's particular issues. You can approach it as if you're just playing with dc. 23 hr 47 min ago
          log in or sign up to post a comment
    • What do you mean by "kicked in"? 23 hr 51 min ago
      log in or sign up to post a comment
      • Requested meeting, do not have IEP yet, NP report claims we need 23 hr 50 min ago
        log in or sign up to post a comment
        • Has the IEP meeting been held? 23 hr 47 min ago
          log in or sign up to post a comment
    • The IEP has to "kick in" they have to. If not, y are entitled to compensatory services. Are you in ny? 23 hr 49 min ago
      log in or sign up to post a comment
      • Yes in NYC and most likely will get it written into IEP but the damned meeting has been requested nearly three months ago and still no word from the evil DOE 23 hr 48 min ago
        log in or sign up to post a comment
        • Google nys department of education. Find your region. Call them. You are entitled to services even if it carries over the summer. 23 hr 47 min ago
          log in or sign up to post a comment
        • do you have a lawyer? 23 hr 38 min ago
          log in or sign up to post a comment
        • np: contact school. i think they have a set number of days to respond. 23 hr 10 min ago
          log in or sign up to post a comment
      • Call Resources for Children with Special Needs. They can help and they're free 23 hr 46 min ago
        log in or sign up to post a comment
        • and this is the type of thing they are really good for 22 hr 57 min ago
          log in or sign up to post a comment
    • Doesn't the IEP have to kick in by law by a certain date? 23 hr 47 min ago
      log in or sign up to post a comment
  21. Special Needs Experience with lawyer Michelle Siegel?...(more) 3-25-2015 2:59pm (0 replies)
    I'm just starting the process of entering a sn school for my 10yo. choosing between lawyers neal rosenberg and michelle siegel. can anyone comment on their experience with m siegel?
    permalink | log in or sign up to post a comment
  22. Special Needs Mom of my 6yo's friend always wants to plan an event for Friday or Saturday evenings with our kids. My ds is a monster at about 6pm on from the rebound of his ADHD meds. I...(more) 3-25-2015 12:35pm (21 replies)
    have put her off and she keeps suggesting evening plans. This time it's a movie at 7:30pm on Friday. It's Friday before spring break! I get it. But ds will be bouncing off the walls by then (and btw, his bedtime is 8:30 or he's a nightmare the next day). I just convinced myself I have to put her off yet again, but I feel like a jerk at this point.
    permalink | log in or sign up to post a comment
    • you need to be honest with her. look my kid is not in any shape for a playmate at past 630 at night. we can get together for a movie during the day but not at night sorry 3-25-2015 12:36pm
      log in or sign up to post a comment
      • I think i have to do it this way.... and maybe that will cut it off for good. Thanks 3-25-2015 12:38pm
        log in or sign up to post a comment
        • ^^^cut it off at "inappropriate" times for good, i mean. Thank you 3-25-2015 12:38pm
          log in or sign up to post a comment
      • NP This is a good way to phrase it. Many NT kids are this way too; she won't give it another thought and I respect that you are protecting your son's privacy. 3-25-2015 1:06pm
        log in or sign up to post a comment
      • NP, this is a great way to phrase it. i'd also profusely thank her for including your child in the plans, and I'd call her to try to plan something during the day....you mention...(more) 20 hr 28 min ago
        spring break. how about a movie or activity during the day?
        log in or sign up to post a comment
    • have you told her straight up that it isn't a good time, with the rebound meds and his bedtime is pretty strict 3-25-2015 12:36pm
      log in or sign up to post a comment
      • I'm trying to avoid any disccusion of meds. DS would be mortified. He already has to go to the nurse at school for a booster after lunch (he's severe) and she and he worked...(more) 3-25-2015 12:37pm
        something out that he's going to get a sticker or something vague
        log in or sign up to post a comment
        • then say, look, it isn't a good time, we really can only do this during the day 3-25-2015 12:38pm
          log in or sign up to post a comment
        • well thats different kettle of fish. you both need to accept that this is what he needs to function and he needs to own it. don't lie to your friends be honest 3-25-2015 12:39pm
          log in or sign up to post a comment
          • np: i disagree. i don't thiink sharing that your 6 year old is medicated for adhd is necessary or helpful. OP - I just say that dc gets really tired in the evenings, but that he'd...(more) 3-25-2015 12:45pm
            love to have a daytime playdate. And then invite the kid over when you can host.
            log in or sign up to post a comment
            • nnp - I'm wondering who this poster is, because it actually just offended me 3-25-2015 12:46pm
              log in or sign up to post a comment
          • its no ones business. signed mom of a 7yo on adhd meds. my close friends know but that is my choice. you cant tell another mom how to handle that 23 hr 35 min ago
            log in or sign up to post a comment
        • You can't tell her and ask her not to say anything to her dc? 3-25-2015 12:40pm
          log in or sign up to post a comment
          • What is your child's disability? Is he/she in a mainstream school? NP 3-25-2015 12:46pm
            log in or sign up to post a comment
    • Just tell her the truth. It's a lot easier to hang out with someone if you're not trying to hide something huge like this. 3-25-2015 12:39pm
      log in or sign up to post a comment
      • OP here. No, I'm not prepared to do that. It's not my call, IMHO. It's ds's. It's his disability and apart from healthcare and school professionals, we do let him decide 3-25-2015 12:52pm
        log in or sign up to post a comment
        • This post has been disliked 3 times. showHe's 6. How many life choices can ANY 6 year old make, ADHD or not? I sense some larger issues in your home that may be explaining why he's a monster at home. 3-25-2015 1:48pm
          log in or sign up to post a comment
    • suggest saturday afternoon 3-25-2015 1:16pm
      log in or sign up to post a comment
    • I just have to put in that I think it's totally bizarre to set up play dates that late at night for a 6yo! Your friend is setting ANY kid up for disaster to have them out that LTR...(more) 3-25-2015 1:52pm
      late at that age. That was bedtime for my 6yo, not the start of a playdate!
      log in or sign up to post a comment
    • I dont even think you need to reference the meds at 6yo. just tell her ds is a nightmare at that hour. full stop 23 hr 40 min ago
      log in or sign up to post a comment
    • All these responses are killing me. Do you kinow how many NT kids at 6yos get cranky and melt down at night if they have had too much. They are 6! 23 hr 33 min ago
      log in or sign up to post a comment
  23. Special Needs What helped you mild asd/adhd dc do better in school? 3-25-2015 10:07am (9 replies)
    permalink | log in or sign up to post a comment
    • Getting a good IEP and behavior plan. School had been punishing for "spectrummy" behaviors, or rewarding behaviors we were trying to extinguish with computer time. Counseling,...(more) 3-25-2015 10:10am
      both in school and outside, for social skills and anxiety. OT for self-regulation. In our case, complicated by dysgraphia, so we had a scribe for classroom notetaking and standardized tests for a while. Meds for impulse control.
      log in or sign up to post a comment
      • mine has dysgraphia too, and it is severely limiting his function. Just had a meeting with the team and he'll be starting OT after the break. Mine has adhd inattentive, so his...(more) 3-25-2015 10:12am
        problems aren't so much impulse control as focus, attention and organization. I'm just really confused. It's like a million tiny problems all collecting to make really huge probelms
        log in or sign up to post a comment
        • Age? If elementary, try pushing for a para who can redirect him as needed. 3-25-2015 10:18am
          log in or sign up to post a comment
          • 9- fourth grade. I wanted to wait on the drugs, but now I'm wondering if it would improve his ability to concentrate? Hoping the OT helps. He was diagnosed with retained primitive...(more) 3-25-2015 10:22am
            reflexes and this apparently makes it really hard for them to develop normally in many areas.
            log in or sign up to post a comment
            • Oh hi, I remember you. I don't love using meds either, but ds is doing well on Intuniv at the moment. If there is ASD, I'd try to avoid stimulants as they can have quirky...(more) 3-25-2015 10:30am
              effects.
              log in or sign up to post a comment
              • that's one of the ones the doctor suggested. I wanted to try other stuff to see what happened but I think he's really having trouble functioning in school, so I may revisit it 3-25-2015 10:51am
                log in or sign up to post a comment
                • FYI, the first week or two it causes extreme tiredness, which then fades away. I'd try to time any medication trial to avoid weeks with any big events. 3-25-2015 10:56am
                  log in or sign up to post a comment
    • Structure, Structure, Structure. Good teachers who catch the good and praise in the moment, have patience to re-direct when necessary, and a supportive administration 3-25-2015 11:17am
      log in or sign up to post a comment
    • meds, small class size, special needs school 3-25-2015 12:20pm
      log in or sign up to post a comment
  24. Special Needs Anyone have a child with weak ankles? Did p/t help? How long until you saw results? 3-25-2015 9:03am (1 reply)
    permalink | log in or sign up to post a comment
    • This board moves slowly. You don't need to repost the question after less than 24 hrs. 3-25-2015 10:07am
      log in or sign up to post a comment
  25. Special Needs Private ms k and elementary school - all the posts on here are about LD or at best ADHD kids being able to attend ms private school. Has anyone ever tried sending HFA ASD kids...(more) 3-25-2015 8:44am (8 replies)
    (ASD Nest profile or even milder that struggle mostly with pragmatic language and social stuff) to private ms school or would that just be utter madness and foolishness? Any thoughts appreciated. Thank you!
    permalink | log in or sign up to post a comment
    • For my kid, it would be utter madness. 3-25-2015 8:45am
      log in or sign up to post a comment
    • I think it depends on the school and by that I mean you need what all MS *should* be but are not: small, with lots of support, perhaps progressive albeit with a good support...(more) 3-25-2015 8:47am
      curriculum in place. Often people use the small privates for this at least in NYC.
      log in or sign up to post a comment
    • Personally speaking, for my HFA (nest kid), he'd be fine in a school that had clear expectations and a high level of structure. A progressive school would be his undoing....(more) 3-25-2015 9:28am
      Structure is key for him and I'm sure there are very structured ms privates.
      log in or sign up to post a comment
    • I have an AS/HFA kid in ms elementary--I'd think ms private would be fine given that the class sizes are much smaller than ms public. I agree with pp that clear expectations and...(more) 3-25-2015 10:05am
      structure are needed, as well. I'd avoid very loosey-goosey "child directed" programs. You'd need to choose one with a culture that is warm and doesn't tolerate bullying.
      log in or sign up to post a comment
      • To be clear, he's currently in ms elementary in NYC public. Like 30 kids. So I think he could do the private class sizees. 3-25-2015 10:06am
        log in or sign up to post a comment
    • I'm sure people have, but it depends on the degree. ALL of the private MS schools counsel out (including the SN friendly ones), and many of them are looking less and less to take...(more) 3-25-2015 12:38pm
      these kids, so it's an issue of (1) if you will get into one of these schools; and (2) if DC will be able to manage it socially (given that these programs don't provide social support) and otherwise. If not, you'll be looking at a SN school down the road.
      log in or sign up to post a comment
    • Not even that it's utter madness (which it would be, for my dc), but why does a mainstream private school want to take on educating a kid they have no idea how to educate? My dc...(more) 3-25-2015 1:46pm
      would be a mystery to them not to mention a great deal of extra work. Getting an NT dc into mainstream private is difficult enough (and I did it for my NT dc), but a child who struggles to learn in a classroom that's not set up right...well, there's no reason a mainstream private would take that on, no matter how smart and delightful my SN dc is.
      log in or sign up to post a comment
    • OMG, I can't even imagine. 17 hr 13 min ago
      log in or sign up to post a comment
next page »