Special Needs

  1. Special Needs Adhd ds 10. I've been writing a lot about him lately as he was off his meds all summer (ritalin) and then 2 weeks ago stopped taking his prozac that he had taken for almost a...(more) 16 min ago (11 replies)
    year. He is hell to deal with. He is so up and down. He refuses to do anything I ask. He shouts and screams at me and then eventually I do it too. He is amazing sweet sometimes but then switches on a dime and acts like a crazy person. I call him an asshole and a fucking brat under my breath in my room so many times a day. I feel like I just cannot deal with him. But the good times are so good. but just not that often. or so sporadic. The meds made him weird too though so what to do. He was aggressive with the prozac, he would act so strange and have these weird fits about 30-45 minutes after taking it, and he would hit. He's stopped that completely since stopping it. But now the defiance and belligerence is even worse. I gave him a ritalin two days ago to start up again for school and he was pretty good until bed time and then had one of the scariest awful episodes ever. not aggressive though like he used to. totally bizarre I wanted to call an ambulance almost. our dr is away. he
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    • did you get these prescriptions from a shrink, or a pediatrician? 14 min ago
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      • psych 5 min ago
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        • and didn't take your call? 4 min ago
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          • she is away until the 21st 4 min ago
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            • bizarre. had you gone off meds over the summer under her guidance, or just did it on your own? 1 min ago
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              • no she said he could go off the ritalin but not the prozac. that he does well in a non school setting the majority of the time without the ritalin so we could try. If it wasn't...(more) 8 sec ago
                going well we could go back on the ritalin but he had a pretty great summer. school is the hugest issue for focus and odd behaviours. social issues.
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    • My dd satrted having terrifying episodes on aderrall. raging and panic attacks. Took her off, shrink switched to Focalin, which is great for the ADD, and zoloft has helped even...(more) 13 min ago
      out the mood spikes and relieve the depression/anxiety behind them. Next life, I am being born to a mother without the same issues, and not marrying a bipolar dh.
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      • op-we tried adderal too and had the same reaction :( 5 min ago
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    • It sounds like you need to speak with his dr about type and dosage. The rage you had after re-starting him on the ritalin is called rebound, and is normal in the first week or so...(more) 12 min ago
      (based on my experience). Do you have a small dose you could give him in the afternoon to taper off?
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      • my dd's rage on Adderall wasn't rebound…sometimes it seems no matter how experienced the doctor, meds is such a damn crapshoot. 8 min ago
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      • op-I only gave him 5 to start..he used to take 10mg in the am and 10mg at lunch at school...no rebound..he was great on it overall...but he was taking the prozac and dr thought...(more) 1 min ago
        that's why he could tolerate it and that without the prozac he wouldn't be able to. but he tried adderal and biphentin and concerta on and off the prozac and horrible side effects both times. then tried ritalin IR and it worked. so I am at a loss :(
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  2. Special Needs Anyone have experience getting CPSE related services done recently? Our IEP starts as of today but not a single call from any agency about any related service. CPSE admin referred...(more) 1 hr 37 min ago (8 replies)
    me to her colleague who is handling the related services part of the IEP and I emailed early last week but no response. What are good ways for me to get this done?
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    • when you had the meeting, did you get a list of service providers? 1 hr 35 min ago
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    • nope. 1 hr 32 min ago
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    • in nyc? you simply have to be relentless. It can be a fulltime job. 1 hr 32 min ago
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    • ugh, yep. basically w/ everything CPSE related I had to show up in person...(more) 31 min ago
      calls/emails never returned. when our services seemed to never get going, I actually called some places (for ot/speech) and asked if they had availability and brought that info with me to CPSE. i am not sure if this was a miracle or what, but the guy called and approved us to start at those places right then (after weeks and weeks of nothing before we did this). good luck!
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      • also want to add that, in our case, my DC was starting service WAY late anyway...(more) 29 min ago
        (spring, last few months of school year), which may have made a difference. but again, going in person was the only way anything ever happened for us.
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  3. Special Needs Epilepsy moms: how long did it take you/your dc to stop having seizures? finding the right meds? We are going on 1.5 yeasr now. Need to keep changing his meds. Will work for a...(more) 1 hr 53 min ago (1 reply)
    little while and then start up again. Wish we could just find something that works all the time...hate seeing him like this.
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    • unfortunately we have never achieved seizure freedom. Ds is nearly 5 and has been having seizures since 4 months of age. He is on the keto diet (nearly 4 years now) and that's...(more) 1 hr 49 min ago
      helped us reduce the seizure count to about 3 per month, which is good as per our neuro (for ds' condition). We're not on any regular seizures meds, just Klonopin as a rescue med for each seizure lasting more than 5 min
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  4. Special Needs Winston HS Mom, can you pls reply if you are here? TIA 2 hr 6 min ago (0 replies)
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  5. Special Needs Need advice please. Just started my 2yo db in a therapeutic nursery program this morning through EI. I ordered a car service with a car seat and db (who tends to be very rigid)...(more) 2 hr 10 min ago (18 replies)
    absolutely freaked when I tried to get him in the unfamiliar car seat even though I had prepped him earlier. I ended up holding him in my lap so that I wouldn't be late to the program the first day. I don't think I will be able to get him into the unfamiliar car seat tomorrow either and it would be quite difficult/time consuming for me to get there 3 mornings per week by public transport. Do you think it would be super irresponsible to just hold him in my lap for the 25 blocks to the program? TIA
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    • Can u buy a car seat that will travel with the kid? 2 hr 7 min ago
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      • ^^do NOT ride commando without buckling up 2 hr 6 min ago
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    • Are you in nyc? I never used a car seat in a nyc taxi. 2 hr 6 min ago
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      • OP: Yes in NYC (on the UES ) 2 hr 4 min ago
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      • NP risky 2 hr 3 min ago
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        • OP: yeah I really don't like it either but I really am at a loss here. DB absolutely will not go in unfamiliar car seat and I would have to budget an hour there and back to go...(more) 2 hr 1 min ago
          with public transport and it will be difficult in the cold and snow. Also db needs to nap as soon as the program is over in the morning and so it would take us too long to get home by public transport. Maybe I could try to find a super lightweight car seat to take into a car service perhaps.
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          • do it. Just run up to Target and get one. It doesn't have to be anything special and you can have db get used to it at home. You can let him watch tv in in, read to him while...(more) 1 hr 31 min ago
            he's in it, etc
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    • Anyone who thinks no seat belts for you or your kid in the taxi should google TOM GLAVINE TEETH. (Mets pitcher lost them in a cab accident) 2 hr 1 min ago
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    • Maybe leaving earlier and taking public transportation is the best way 1 hr 59 min ago
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    • i know this doenst help your immediate situation, but are you getting aba for ds? that would help exactly this kind of thing 1 hr 56 min ago
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      • OP: He is getting an hour per week of special instruction but not ABA because he didn't formally qualify as ASD (though he has many features of being on the spectrum). What...(more) 1 hr 55 min ago
        would the ABA therapist do to help this?
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        • systematic desensitization, positive reinforcement for appropraite behavior in presence of car seat 1 hr 53 min ago
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          • OP: Okay thanks. Sounds like this would be helpful. For now I am considering trying the bus and seeing how that goes. I think it would work well enough for now but worried...(more) 1 hr 41 min ago
            about when it gets really cold or when there is snow. I guess I can always revisit things when we get to that point.
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            • you can always check the bus time app on your phone or computer. It's really accurate and has been a game changer for me. 1 hr 30 min ago
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        • did you see dr. cross thru ei? do it. push for asd diagnosis just for services, youll automatically get 20 hrs of aba 1 hr 52 min ago
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          • OP: Yes I did see dr. cross. She thinks he has sensory issues plus an anxiety d/o and woudln't give him the ASD dx because she doesn't think he is ASD (though a different dev...(more) 1 hr 43 min ago
            ped at albert einstein disagrees with her). We did manage to eek out close to 10 hrs of services which is pretty great considering he did not manage to get the formal asd dx. My son is only 2yo and has a confusing presentation...
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            • have you looked into your insurance coverage? you may be able to get aba covered with the private doctors diagnosis 1 hr 37 min ago
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    • Zip Car? At least you can leave earlier and there's just you and your child. 1 hr 37 min ago
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  6. Special Needs It was so nice to not have to deal with school in te summer. I am o dpressd to be getting back to it. Just seeing ds at drop off trying to interact but not really getting it was...(more) 2 hr 47 min ago (3 replies)
    so hard.
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    • ^^^sorry sticky keys 2 hr 47 min ago
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    • I am also dreading it. Next Monday. Postponing the inevitable awfulness. I know I shoud have a better attitude. 2 hr 44 min ago
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      • op - it just brings it all right ou there kwim 2 hr 41 min ago
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  7. Special Needs My son is 10 + nonverbal. He recently started risperdal & we are hearing words for the first time in 5 years. Dr. says it can happen but very unusual. I almost feel off my...(more) 2 hr 54 min ago (6 replies)
    chair when he said MaMa.
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    • oh wow, amazing! does the dr say it will likely continue? 2 hr 54 min ago
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      • No way to tell. I'd love if he could say bathroom, hurt, etc. Basic words to help him. 2 hr 51 min ago
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        • hope that happens. mama is pretty awesome. 2 hr 50 min ago
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    • OMG I hope this continues for you, even if he can just communicate a few words, or perhaps it'll help him use whatever device he communicates with as well. Wonderful. 2 hr 22 min ago
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    • wow! That is amazing! I hope it continues. Will be thinking of you and hoping for the best. 2 hr 18 min ago
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    • Wow! You must have been in tears herring that! Btw my dc has been on Risperdal for 7 years and it has been a wonder drug. He is not own the spectrum so different issues but...(more) 1 hr 34 min ago
      it has been incredible for him
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  8. Special Needs Can anyone recommend a CBT therapist? DS is 9 y/o, spectrum adhd major anxiety. NYC, west side but I'll go anywhere for the right person!...(more) 3 hr 32 min ago (5 replies)
    DS also had mixed expressive/receptive language disorder so processing really delayed.
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    • we saw anne cohen on west 81 for a bit 3 hr 31 min ago
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      • Ok, thank you. I'll look into. 3 hr 30 min ago
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    • op: oops mean, "has" not had language disorder. Hoping he is ready for CBT. 3 hr 30 min ago
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    • Maybe try cucard in Columbus circle. They have a split reputation but could be good for the right kid. It's very very straightforward CBT so if you need someone willing to be more...(more) 1 hr 8 min ago
      Eclectic it might not be the right place.
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      • thanks, will look at... 47 min ago
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  9. Special Needs Okay, we are going to do the intake appointment, if it doesn't work with follow up scheduling, we are going to have to change his pediatrican to get in the other network and go...(more) 4 hr 9 min ago (0 replies)
    from there. Which is just going to SUCK ass.
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  10. Special Needs Wwyd. I got dc in to a canceled drs apt. I need a sitter for my nt ones. A friend said shed take them but is now not answering her phone. Do I head over or just take all kids...(more) 4 hr 26 min ago (2 replies)
    to the specialist?
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    • go w/everyone 4 hr 24 min ago
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    • Take them all with a lot of toys/books. 4 hr 19 min ago
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  11. Special Needs OMFG I HATE THIS SHIT> I WANT TO CRY. Ds is 10yo. at 6yo was dx borderline adhd. we chose not to medicate at the time but do OT an CBT. it was working great. we moved, got him...(more) 4 hr 32 min ago (6 replies)
    established with a new CBT. However, he has said somethings to us that make us want to bump up the care, maybe go to meds, and have him retested. I called the new place, the ONLY time they do intakes is during the school day #1. #2 when I asked if he would then be scheduled for therapy after school the stupid lady couldn't tell me because "each clinician sets the schedule" well fuck you becuase why shoudl I go through the intake there and then not be able to schedule anything? THEN TO TOP THAT OFF, i decide to call this other place, but they won't take him because he is not in their system and I would have to switch his pediatrician. There is one more place i cna try, but WTF?
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    • Deep breath. Step away and do something else. Missing the first days of school is not ideal but do able. 4 hr 30 min ago
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    • I remember you. That is SO frustrating! Do you have the numbers of the individual therapists? Pain in the butt, but can you call just to see if they are even taking new patients?...(more) 4 hr 29 min ago
      And it sucks intake is during the school day, I get that. But once that's done hopefully he can get on a schedule and things will get better
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      • I just called the third place. The nurse is going to call me back. They have after school hours 4 hr 27 min ago
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        • ^^FUCK nope, he has to be in THEIR SYSTEM. I FUCKING HATE OUR HEALTH CARE 4 hr 26 min ago
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    • CAn you call for a "crisis appt?" Call the local peds ER or if you are in NYC, call the Psych ER. It may not be an emergency - just a situation that you realize needs to be...(more) 4 hr 22 min ago
      changed. Clinicians have the right to set their own schedules, just as you had the right to opt out of meds 4 years ago.
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      • oh I know they do, but shouldn't the scheduler have a clue about the person you are seeing so you can say no, this won't really work for me? 4 hr 10 min ago
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  12. Special Needs My ds had a disastrous K year last year, ending in daily tantrums and running out of the classroom. We moved and he's repeating K in our new district (our choice b/c of late...(more) 5 hr 1 min ago (14 replies)
    summer bday and bad experience last year). The CST has all of his evals, knows his issues, has assigned him a shared aide for the year. I want to give his new K teacher advance warning. Should I email her before school starts? Outline some strategies for supporting him in that email, or request an in person meeting? Request a meeting when I meet her Thursday morning? Would you get out in front of this, or assume that with all the documentation with CST that the teacher has been briefed?
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    • I would give the teacher a week to settle in and then make an appt 5 hr ago
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    • Don't request a meeting when you're there Thursday morning. Greet her warmly and say you look forward to a great year. I would e-mail her Monday and say something like "Ms. Smith,...(more) 4 hr 49 min ago
      it was nice to meet you on Thursday and we're looking forward to John having a great year with you. I'd really like the opportunity to talk to you at your convenience. I realize this is a busy time for you, so please let me know what your schedule permits." Then when you meet or talk on the phone, keep it very positive. Don't get into TOO much detail about DS - you want her to get her own sense of him. But do share with her whatever methods DS responds to (praise, positive reinforcement, structure, etc). I would also reach out to his aide too - she's the one who will also need to know how to support DS in addition to the teacher.
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      • ^^and by too much detail about DS, I mean oversharing everything with respect to the disaster last year. Instead, tell her what might not have worked (i.e. "John gets overwhelmed...(more) 4 hr 47 min ago
        when SYZ happens") and then tell her what methods help DS ("John responds really well to visual schedules and being given a heads up before transitions").
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    • I would reach out before the first day of school. Why wait? Don't wait until day 1. It will be crazy for her and it deserves her attention. 4 hr 49 min ago
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      • the truth is before first day the teacher isn't going to turn her attention to it necessarily anyway. She's focusing on setting up her classroom, etc. for Thursday 4 hr 46 min ago
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        • yes, but forewarned is forearmed 4 hr 43 min ago
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          • WTF? The point isn't the warn the teacher, it's to strategize to best support OP's son. 4 hr 41 min ago
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            • Np: sigh, its not an iep meeting. That will happen 4 - 6 weeks into school. Now is a meeting with the teacher to give a heads up. 4 hr 34 min ago
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              • I'm well aware. I've been in OP's position. 4 hr 34 min ago
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            • use whatever semantics you want. IME it's best for the teacher to have as much info as possible to help provide the best possible setting for the child. I do not understand...(more) 4 hr 13 min ago
              parents like you
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              • Parents like me? Gee, you're a real gem. I never told OP to hide anything, I told her to just wait for the teacher to have a day in the classroom. 2 hr 25 min ago
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                • No, you said "WTF? The point isn't to warn the teacher....." 1 hr 20 min ago
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    • Call the Cst now and ask that you meet with the teacher before school starts with dc to ease anxiety. Do a quick 15 min to make sure she's read the iep. I do this every year. 4 hr 36 min ago
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      • ^most teachers appreciate a heads up. Keep it short and simple. I've had teachers bring in toys or books just for dc after our meeting 4 hr 33 min ago
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  13. Special Needs Is the poster on who was having negative reaction to Ritalin/Prozac? 5 hr 10 min ago (0 replies)
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  14. Special Needs Where do you think is the line between a difficult personality that will mellow with maturity and a SN like anxiety/ADHD with attendant behaviors? I feel like my dc sits right on...(more) 5 hr 47 min ago (11 replies)
    that line.
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    • there is truly no clear line and there's also no clear way to predict which child will have issues that interfere with daily life in adulthood and which will not 5 hr 46 min ago
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      • op: That's the issue. :-( 5 hr 45 min ago
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        • I guess you just have to pay close attention to the trajectory you are seeing. If things do not seem to be going in the right direction, take note and take action 5 hr 36 min ago
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    • IME you just keep treating the anxiety and other symptoms and go on faith that over time the combo of therapy/ treatment and maturity will help your dc. It is HARD to do that...(more) 5 hr 45 min ago
      for sure but we are seeing a lot of changes over the past couple of years as my dc has started puberty.
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      • Ita. The only diff being that for true ADHD meds might help, but either way treating the behaviors/emotions is key 5 hr 32 min ago
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    • Ditto. Mine meets criteria for nothing 5 hr 44 min ago
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      • How do you treat/respond? 5 hr 42 min ago
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        • With empathy. Lots of exercise. Time. Work closely with teachers 5 hr 41 min ago
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      • If it would help for your dc to work with a therapist (psychologist, play therapist) then it's worth doing that criteria or not. Tons of NT kids see psychologists, right? I know...(more) 5 hr 36 min ago
        child psychs who don't actually have any SN kids in their clientele.
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    • The main thing is not to rely on maturity to fix all. Some kids need more proactive assistance learning skills like managing emotions, self-regulating, etc 4 hr 20 min ago
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    • I feel like my db sits right on that line as well. It is hard because I can't connect with mainstream moms but I also don't feel like my son is quite SN either and so I don't...(more) 2 hr 9 min ago
      feel like we fit anywhere. It is a very isolating feeling.
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  15. Special Needs Can anyone share their experience in applying to District 2 ICT spots for middle school? I know about LAB but what other schools have different standards for kids that are in the...(more) 5 hr 57 min ago (0 replies)
    ICT class? TIA
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  16. Special Needs Does anyone follow a gfcf diet for dyspraxia and see results? I can't say for certain but I feel like DC drools more and becomes unintelligible after eating gluten and possibly...(more) 15 hr 8 min ago (13 replies)
    cheese. I also have noticed more falling/balance issues.
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    • Celiac disease causes neurological symptoms in dc, fwiw 15 hr 6 min ago
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      • OP- celiac runs in my family but DC tested negative. 15 hr 4 min ago
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        • Blood test? 15 hr 2 min ago
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          • Yes 14 hr 58 min ago
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            • It has a 70% failure rate, FYI. It was wrong for 3 of my family members, all who were later confirmed to have it later 14 hr 57 min ago
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              • DC doesn't have leaky gut..ate pizza and bagel today and bowels were normal. Does that matter? 14 hr 52 min ago
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                • No, it does not. Not every celiac has leaky gut. Some only have neuro, some only GERD, some sinus infections, or migraines, or dental, or infertility. 14 hr 49 min ago
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                  • How did your family members find out? What test? Stool 14 hr 43 min ago
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                    • np: here's info for you on celiac testing. 6 hr 4 min ago
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    • I think you have a strong signal that gluten is to be avoided in your child! Also, if you can hang on, I want to link a document for you if I can...it's from Kelly Dorfman. Hold...(more) 6 hr 12 min ago
      pls.
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    • I would try eliminating dairy first (it's easier), and then do gluten. Don't do both at once or you will not know which affects DC. 6 hr 6 min ago
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  17. Special Needs Hi - I need some help. I have a 5.5 year old DS who likely is on austism spectrum. We are awaiting an appointment for a neuropsych. In the meantime, I have deposits at two...(more) 15 hr 36 min ago (18 replies)
    kindergartens that start this week. #1 is a super loosey goosey school, no academics, no rules, extremely small ratio of kids to teachers (3 kids per teacher), run by someone who has a masters in SN. #2 is a strict schools with three teachers for 30 kids, is very old school academic, and high levels of expectations and transitions. Thoughts?
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    • If he's on the spectrum, wouldn't you want him at this young age to be in a setting with support? 15 hr 33 min ago
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      • It will be months before we have a DX. I need to start K in like three days. I have deposits at two schools. 15 hr 28 min ago
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        • What kind of setting has he been in up until now? How has he done? What is easy for him and what is hard? Instinctively i think he would need structure. 15 hr 24 min ago
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          • Loving, structured preschool. He has turned into an absolute monster over summer and refuses to do most anything, even at summer camp. I worry that giving him a loosey goosey...(more) 15 hr 21 min ago
            environment will make him impossible. But that said, he wants little other than one teacher paying full attention to him and that is possible at loosey goosey school
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    • The first one!!!!!!!!! 15 hr 16 min ago
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    • Can you name the schools? 12 hr 30 min ago
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    • #2 would be better for my ds 12 hr 26 min ago
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    • Follow your gut. And call the BOE today for an eval. There are dr that can see you sooner, but they don't take insurance. You have great options - trust your gut 7 hr 13 min ago
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    • This is a tough one. Structure is really key for my ASD kid, but he also needs attention that he would not get in a class of 30. If the class of 30 you're referring to is...(more) 6 hr 34 min ago
      Success Academy (and I'm guessing it's not) I would stay away. What are the SN supports like at the school of 30? Can they differentiate learning? Do they address sensory issues? Can the SN school provide ds with structure? EVen if the school is loose, perhaps there is a way to provide him with a visual schedule, rewards system, etc. Tough call and I wish you luck
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      • 1st OR: these are great questions. I would want to know how he could/would be supported in the more loose option. That said if OP is hoping her DC is mainstreamed, the structure...(more) 6 hr 6 min ago
        from the 2nd might be helpful
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        • The difference in the ratios is staggering. My guess is that there is probably some middle ground that would be better, but I do understand the time crunch. 4 hr 43 min ago
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    • I find it hard to believe that #1 option has no rules? None? That's not possible for a school to function. And zero academics? Are you sure they don't work on it at all versus...(more) 5 hr 58 min ago
      it's not pushed and they focus a lot on behavior and social? Also these schools are seriously on two opposite ends of the spectrum. Is your DC cognitively advanced? Because #2 will be a nightmare otherwise. 30 kids I huge & overwhelming (even with 3 adults in the room), with rigorous academics? That sounds awful IMO
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    • Last year we were in a less extreme position with a similar kid, trying to choose a K teacher. We went for structure and it was a disaster. He fell apart and the teacher hated him...(more) 5 hr 39 min ago
      for disrupting her structure. He started running out of the room. Now he's about to start 1st grade in a hippie private school.
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    • We had similar situation and asked to at least meet with and start the Neuropsych for advice. Made the world of difference. We spoke to the dr and he got us in immediately. Gave...(more) 4 hr 42 min ago
      great advice to the current school and helped us eventually transition. Don't know who your np is and if that is possible?
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  18. Special Needs Anyone familiar with dialectical behavior therapy? And boarding schools that offer it? 16 hr 42 min ago (3 replies)
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    • you would need to look at residential treatment centers for DBT 7 hr 3 min ago
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      • YES - i know - just wondering if anyone here has any recommendations or experiences 3 hr 51 min ago
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    • Psychiatrist mom (of SN child) here - DBT is a wonderful treatment for emotional dysregulation, self-injurious behavior, and other "para-suicidal" activities. It teaches people ho...(more) 5 hr 10 min ago
      w to handle their intense emotional states without resorting to harmful behaviors or dangerous "cries for help." That said, it requires intense commitment on the part of patients, families, and treatment providers. I use it on myself when overwhelmed by SN child's demands to keep me from spiraling into a tailspin. Not sure about boarding schools that use it. But I know they exist. Good luck.
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  19. Special Needs Anyone moved to Churchill frpm Gaynor--Q soley cased on funded school status. 16 hr 52 min ago (5 replies)
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    • I know people have done it. 16 hr 51 min ago
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    • Q? what is that? 16 hr 43 min ago
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      • question 16 hr 42 min ago
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        • Np, looks like it is supposed to read "question solely based..." 2 hr 41 min ago
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  20. Special Needs Next step post GBS for child not ready to mainstream: 17 hr 3 min ago (18 replies)
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    • don't they help you with exmissions? 17 hr ago
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      • why are you disliking this? the schools do help with exmissions. 16 hr 54 min ago
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        • GBS doesn't counsel up... only out and down 16 hr 52 min ago
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          • are you kidding? Gillen Brewer? they must help with exmissions. 16 hr 48 min ago
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          • Just not true. I know kids at GBS who were counseled into Churchill, Lowell, Gaynor, small private parochial schools, ICT classrooms, Gateway. 16 hr 42 min ago
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            • ditto 16 hr 28 min ago
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              • yes, but in the cases I know of the parents pushed for thos, not the school. 7 hr 31 min ago
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                • -but the school did eventually get on board and helped w process. 7 hr 30 min ago
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                • Not the cases that I know. Some parents may push but they won't help in that case. They do counsel "up" though. 5 hr 40 min ago
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                  • ..and they do counsel down. 5 hr 40 min ago
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          • I will never understand this kind of post. What is your purpose in giving this kind of misinformation? 16 hr 36 min ago
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            • thank you for saying that! what is the reason to post this? 16 hr 21 min ago
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          • Untrue 16 hr 31 min ago
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          • ok..so isnt op looking for more restrictive SN setting? 2 hr 51 min ago
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            • sounds like she's looking for SN setting that's less restrictive than GB. 2 hr 28 min ago
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    • How old? What are the issues? 16 hr 58 min ago
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    • Summit 1 min ago
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  21. Special Needs SN ds had a great summer and is doing really well. NT ds (4yo) has been very moody and easily agitated. Is it possible he's upset b/c he's no longer the 'good' boy? 18 hr 14 min ago (6 replies)
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    • How old is sn ds? 18 hr 13 min ago
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      • He is 6. 18 hr 7 min ago
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        • I don't know. This is a tough situation. Good luck to you and both your dc! 18 hr 6 min ago
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    • I can't figure out my NT kid to save my life. who knows what goes thru his crazy head. I know this sounds daft but typical kids are super hard to understand. 16 hr 59 min ago
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    • Your 4 year or could just be 4. I wouldn't base every reaction he has to how it relates to your sn child. He is his own person. 6 hr 7 min ago
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  22. Special Needs So dc 10 was on prozac since last october. it was ok, he seemed to be a bit calmer. then in april he started new stimulants again (the first ones we tried before the prozac were...(more) 18 hr 47 min ago (19 replies)
    disastrous) and finally ritalin IR 10mg in the am and a lunch was working ok. he tolerated it. still not great, still kind of angry and aggressive sometimes. a couple weeks ago we were away and I spilled his prozac by accident (he only took 7.5mg) and it was shocking how quickly he seemed to be so much better. not hitting or being so moody. anyway, dr wanted me to try the ritalin again to build it up in his system again for school. so I started with 5mg yesterday. he was fine all day. at bedtime he lost his mind and had a two hour very scary meltdown and bizarre episode. I was so close to calling an ambulance. I don't know what to do. today his mood is so up and down, so happy but then with me he's screaming and crying, then happy then crying. I'm sure he's overtired as well but how and when will I know if it's the meds. that he really did need them or that he needs something else. It makes me sick watching him for the last 2.5 years going on and off all these
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    • Sorry. Are you saying he was better off the Prozac? 18 hr 44 min ago
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      • its only been two weeks but overall yes...he would literally have a meltdown half an hour after taking it every single day. he would hit and yell and act odd...it was torture...(more) 18 hr 42 min ago
        getting him out of the house...then through the rest of the day he would be ok but up and down..
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        • I posted a bit below. My ds is also on Prozac (was Zoloft first) and I don't think it's helping him at all. We re started on his focalin a few weeks ago too and while I don't...(more) 18 hr 40 min ago
          I don't think it changed his behavior his sleep was awful the first day. As in he woke up at 245am for the day. Things have been so crappy this summer I don't know what is what but I def don't think the Prozac is doing good for us either
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          • And fwiw my ds is sweet for about an hour in the am and then he gets the Prozac. About 930 he's turned into a controlling monster... That is with or without the stimulant 18 hr 39 min ago
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            • op-so interesting! exactly like us! he is fine then I gave him the prozac then half an hour to 45 minutes later he's crazy! we didn't do the ritalin all summer 18 hr 38 min ago
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              • Us either for focalin. I'm calling his dr tmrw. I think we just need to stop with the ssris. It's not helping. 18 hr 37 min ago
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    • Oh jeesh, poor kid and poor you! Do they ever do a 'system clean-out' to see how he does with nothing? That's not medical advice, obviously, as we have not done meds yet, but I...(more) 18 hr 43 min ago
      just wonder if it would help to have clean slate. Sorry you are going through this!
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      • op-thanks so much...I feel like that too, clean slate would be good. It feels like everywhere we go they push us on meds because its the easiest way to deal with him. I hate it. I...(more) 18 hr 41 min ago
        want him in some sort of behaviour therapy, something anything, our psych says that it doesn't really exist or work for kids his age..?? bizarre right?
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        • or - Okay, I'm calling bullshit on that. It seems like psychs and therapists often disagree/disparage each other's modes of treatment. Are you in NYC? Maybe call around to some of...(more) 18 hr 38 min ago
          the CBT centers here and talk to therapists and talk to them. Your docs shouldn't dissuade you from trying new things for you kid. Good luck!
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          • op-not in NY but this is a good idea, thanks 18 hr 37 min ago
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            • People here might have rec's, depending where you are 18 hr 35 min ago
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            • my ds is 10yo and has been in CBT since he was 6yo. It's there 18 hr 35 min ago
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        • NP= my dc saw a cbt child psych with me at 3 for selective mutism and anxiety 17 hr 9 min ago
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    • I don't know but I am sorry you are going through this and I hope it all works out soon. 18 hr 42 min ago
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    • What is his dx? 18 hr 42 min ago
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      • adhd inattentive and generalized anxiety. I personally rarely see the anxiety except in school situations where he's having a hard time or teacher is getting mad at him or he...(more) 18 hr 39 min ago
        will act strange and weirdly goofy in class. But on the meds he didn't seem better per se, just different and a bit of a loss of his happy personality. Now he's just angry again, he pushes my buttons constantly. He's always pushing me to see how far he can and I don't know why.
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    • i dont have any real advice, but ritalin does not need to build up in your system, nor do you need to start at a super low dose if you have taken it in the recent past, so i find...(more) 18 hr 35 min ago
      your doctor's advice a little odd
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      • op-sorry I didn't really mean build up..just that he's been off of it all summer and we wanted to make sure any side effects would be passed by the time school started. he had 2...(more) 18 hr 30 min ago
        weeks of stomach and head aches when he started last time
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        • ah, gotcha, makes more sense. no good ideas here but i wish you good luck 18 hr ago
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  23. Special Needs Anyone receive an RSA for ot, spl, or setts yet? 18 hr 50 min ago (6 replies)
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    • No and if you're in NYC you won't 18 hr 49 min ago
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      • I did last year 18 hr 49 min ago
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        • Networks are told from Central NO RSAs - service in schools 18 hr 47 min ago
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          • My day get 18 hr 46 min ago
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            • ^^ds gets services at his ms private. Will that change? 18 hr 45 min ago
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              • oh no probably not - i assumed you were at public 18 hr 44 min ago
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  24. Special Needs Anyone in nyc love their dc psychiatrist? I feel like we are down this road of trying out meds for ds. I'm not happy because it's not working. I feel like the psych sees ds...(more) 19 hr 1 min ago (3 replies)
    periodically for 29 minutes but relies on my feedback only. Is this how it should be? Ds is 6 so young for talk therapy.
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    • nyu child study center 19 hr ago
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    • yes, ds too young for talk therapy. Psychiatrist must rely on parents feedback. We see Dr newcorn at Mt. Sinai. He's really good. 3 hr 37 min ago
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    • Ian Canino. Yes. 3 hr 37 min ago
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  25. Special Needs Do you think modern dance would be fun for a 7yo who has a ton of energy, not a lot of focus, but loves to move and dance? 23 hr 20 min ago (2 replies)
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    • try and see. I know many adhd kids who hyperfocus on a sport. 22 hr 56 min ago
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    • what about hip hop 19 hr ago
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