Special Needs
- Special Needs My kids are having a water fight in the bathroom for the last 20 min. I'm terrified to see the mess but they are having so much fun and it's great for SN DC!
- Special Needs I'm in NYC. Is there any resource/website etc. you can point me to to figure out what the process would be if I want to get the DOE to help fund dd at a SN private school? I see...(more)
- This post has been disliked 3 times. hasid?
- You are on the special needs board, FYI.
- See the Advocates for Children website or wrightslaw.com.
- Call Reaoirces for Children with Special needs and Advocates for Children of NY. Both are free nonprofits that can give you a sketch of the process.
- ^Resources that is.
- This guide from Advocates is a good place to start - it has a section on Due Process Rights...(more)
- This post has been disliked 3 times. hasid?
- Special Needs Longshot, but does anyone have a name or contact info for the chairperson of cse region 10? we have not been contacted about services for next year and i know it must be past...(more)
- Mark Jacoby
- ^But I would make a trip in person to 125th or nothing will happen, BTDT. Go first thing in the morning and wait. You'll get his attention and don't leave without a meeting date.
- ok, i have mark's info. but i was under the impression he wasn;t the person i need to contact to see about setting a meeting. maybe i'm wrong. sent him an email but i will try...(more)
- He's the chair of Region 10 so far as I know. But I would just go there with your IEP and tell them what's going on.
- is it also possible Maurice Collins might be someone to check out?
- He's the placement officer (or he was last year), very nice guy. Honestly this late in the year if you haven't been contacted for a meeting, go to the office. I made that mistake...(more)
- thanks, i will. our situation is kind of odd because...(more)
- If you are terminating services just write a letter to Mark telling him your dc is done and you are terminating services. If there needs to be a meeting, you've let them know!
- thanks, i will. our situation is kind of odd because...(more)
- He's the placement officer (or he was last year), very nice guy. Honestly this late in the year if you haven't been contacted for a meeting, go to the office. I made that mistake...(more)
- is it also possible Maurice Collins might be someone to check out?
- He's the chair of Region 10 so far as I know. But I would just go there with your IEP and tell them what's going on.
- ok, i have mark's info. but i was under the impression he wasn;t the person i need to contact to see about setting a meeting. maybe i'm wrong. sent him an email but i will try...(more)
- ^But I would make a trip in person to 125th or nothing will happen, BTDT. Go first thing in the morning and wait. You'll get his attention and don't leave without a meeting date.
- Mark Jacoby
- Special Needs My ten-year-old needs a math tutor/specialist who knows how to work with many different math programs/curricula. My DC has struggled in math....(more)
- any good teachers at DS's school?
- Does the Orton-Gillingham method apply to math too? It's a multi-sensory approach that worked for my dd in reading.
- Special Needs This morning i brought my kids (aspie 7yo, nt 5yo) to a local park where there is an outdoor fitness center that has restricted access to folks 14 and over but special needs kids...(more)
- Sorry, that kind of situation is always flustering. After the first missed connection I would have gone over to her and said in a soft voice "My son has special needs. Thanks."
- we were the only people there and she was 2 feet away from me this whole time
- Then she really is an idiot not worth your time. I totally understand why this stayed with you. It is uniquely upsetting to have our legitimacy challenged. She thought she was the...(more)
- we were the only people there and she was 2 feet away from me this whole time
- I understand how offputting this kind of encounter is -- I'd still be thinking about it and would feel the same way -- but you handled it very well.
- ^it was clearly her issue, not yours.
- I especially think OP's statement about some special needs not being obvious was very good. She didn't want to say too much with her dcs right there
- op here - thanks
- what a loony tune. i would be flustered, too.
- Although tempting (and I would've done the same!) it's never worth it to engage with people like that. What you said was a perfectly fine explanation. That woman was nasty. Now...(more)
- This.
- thanks. btw, this is what the woman at the town parks department said to me too two hours ago! :)
- First let me say I totally sympathize - situations like this always get under my skin & bother me for day (I need to develop a thicker skin)! Second of all I think that you...(more)
- you just gave me an idea: the fitness center's entire cost was underwritten by a local special education committee. i should write to them and suggest that the sign at the...(more)
- Good idea! Unfortunately I think many uneducated people still think of special needs playgrounds as being for kids with obvious physical disabilities or obvious impairments like...(more)
- you just gave me an idea: the fitness center's entire cost was underwritten by a local special education committee. i should write to them and suggest that the sign at the...(more)
- I am sorry you had to deal wtih it. but I am curious why they allow special needs kids to use it and not typical children? why woudl sn kids benefit and not others? or is their...(more)
- logic, huh? it doesn't make sense to me either. besides, you go on the weekends, and there are tons of nt kids there.
- what sort of fitness center is it?
- this is the official url for the place...(more)
- what sort of fitness center is it?
- np - I was assuming it was bc special needs kids have fewer resources and probably benefit from using facilities that aren't as crowded. But I might be totally wrong
- Those all abilities playgrounds they build now can accommodate wheelchairs, other sensory stuff that's scarce for kids with SN's.
- np: a lot of SN kids can get overwhelmed in public spaces. By controlling the # of kids on the equipment, it helps kids with SN. Also many ASD, ADHD, and low tone kids have...(more)
- logic, huh? it doesn't make sense to me either. besides, you go on the weekends, and there are tons of nt kids there.
- I'm so sorry, that is awful...I used to get flustered and not respond and now I'm that mom who loses it on people who do that kind of stuff. She's obviously the one who didn't...(more)
- Your situation reminds me of a documentary on autism I saw. In it the mom of 3 sons with autism parked in a handicapped spot (she had the permits) and some man says "you all don't...(more)
- np: I have 3 boys with autism and we have a permit too.I have gotten a lot of looks and those types of comments.
- np- what do you need to prove to get the permit?
- you really just need a autism dx, but no one tells you this when you get the dx
- get out. I would feel bad taking hte spot from someone with a disability that keeps them form walking from their car to the store. I could not do it
- not the np here - remember that not everyone with a physical disability is necessarily manageable in a parking lot. i can think of many kids i've met with autism who can...(more)
- OR: this was the situation with the woman in that documentary. She had 3 severely impaired, nonverbal children parking lots were dangerous - they'd dart out, start stimming...(more)
- my kids are involved and not a mild case at all. parking lots are dangerous with them. besides there are a few spots, not just one.
- nnp: My ds uses a wheelchair and I don't see the problem with it. My ds only needs the card because our vehicle has ramp otherwise we have no problem walking, usually if I am not...(more)
- not the np here - remember that not everyone with a physical disability is necessarily manageable in a parking lot. i can think of many kids i've met with autism who can...(more)
- get out. I would feel bad taking hte spot from someone with a disability that keeps them form walking from their car to the store. I could not do it
- you really just need a autism dx, but no one tells you this when you get the dx
- np- what do you need to prove to get the permit?
- np: I have 3 boys with autism and we have a permit too.I have gotten a lot of looks and those types of comments.
- I would feel exactly the same thing. What a bitch! I'd be fuming still like you are.
- Sorry, that kind of situation is always flustering. After the first missed connection I would have gone over to her and said in a soft voice "My son has special needs. Thanks."
- Special Needs Can anyone tell me more about execu search for OT/PT in nyc. I understand that they are a placement agency, but who do they work with (which tier) and are they still subject to...(more)
- Special Needs How long on meds before a difference. Ds 14 dx with depression and OCD, thinking there is bigger things at work now. He is on 10 mg of prozac and 15 mg of abilify. He is still tje...(more)
- I'm glad you managed to get him to take the meds! That's certainly a step in the right direction
- He is fighting us on it every day now, and says he hates how he feels on them. Big figjt after he takes them.
- SOunds like it's the abilify that's making him feel wonky.
- Would you cut the abilify? We need to target his aggression, he is very physical now.
- Speak to his doctor about abilify. If it makes him feel too wonky it may be because it's early days. There are several substitutes for abilify too so that's not the only med of...(more)
- Thanks. I speak to him about it.
- Speak to his doctor about abilify. If it makes him feel too wonky it may be because it's early days. There are several substitutes for abilify too so that's not the only med of...(more)
- Would you cut the abilify? We need to target his aggression, he is very physical now.
- SOunds like it's the abilify that's making him feel wonky.
- He is fighting us on it every day now, and says he hates how he feels on them. Big figjt after he takes them.
- A month. 10 mg Prozac is nothing
- We are slightly increasing every week.
- DS 11 we tried him on lexapro & tenex--not helpful at all, not big change, if anything worse. Off of those & was prescribed prozac at school (boarding) and saw good results right...(more)
- I think we are going to have to send him away, he doesn't want to, but I am worried about my safety and his now. hoping.to.work a lot of this out this summer.
- It is a very difficult decision. But I have to tell you that so far it is the best thing we have ever done for DS. He was miserable before he left & taking us all down with him....(more)
- I don't know how it will work, because ds doesn't even think he has a problem, according to him he is "fine" and we are "making things up" and aggravating him. One look, ...(more)
- My DS did not want to go. We took him for a tour & interview. He admitted the school was nice but didn't want to go. I was so scared when I took him back to enroll about how it...(more)
- this is what I want for ds to be aware and def less physical. Its a huge physical fight to get him to therapy. He cannot just committ to it.
- Mine is not that big & still a bit young, but starting to get physical & also doing things that were dangerous for him, destructive to property. He was starting to refuse going...(more)
- He still goes to school with no fight. He is getting a bit oppositional and puffing his chest a bit though while there..Not him at all. At home, man, we get the anti christ.I has...(more)
- We had a big difference between school & home--usually cooperative, quiet, respectful at school (thought kind of trying to disappear due to an LD). At home it was WWIII....(more)
- I feel like a huge failure, like we should have gotten help sooner.Everyone says but he is so smart and still goes to school.But he can't be in school forever, and no smart...(more)
- I am so sorry. I really know how down you can get. No one should have to live like this--not him & not you.
- It makes me so sad for him. He is throwing his life away.
- He's not. He's 14. The meds will start to work. If not these then other ones. YOu're doing all the right things. Now just don't lose your resolve.
- Do you mind saying what boarding school your ds goes too? Sounds like it has done wonders.
- I mentioned it before--Little Keswick. We tried a lot of different therapies + SN private before + different behavioral approaches at home & we could not find anything that...(more)
- Thanks, I feel like I need to make a list for the future just in case. Did you get the state to pay for it? Thanks for telling your story too, because I know now it can work, if...(more)
- There are options out there. I think if you do some research it will give you a positive place to focus your energy (at least, that happened for me). We don't have funding. We...(more)
- ^^also, you are not a failure. You have a kid who is WAY tougher than what's typical. You're probably working a lot harder at being a mom than most women.
- Thanks. I will try to remember that.
- Thanks again. Your ds is lucky to have you.
- ^^also, you are not a failure. You have a kid who is WAY tougher than what's typical. You're probably working a lot harder at being a mom than most women.
- There are options out there. I think if you do some research it will give you a positive place to focus your energy (at least, that happened for me). We don't have funding. We...(more)
- Thanks, I feel like I need to make a list for the future just in case. Did you get the state to pay for it? Thanks for telling your story too, because I know now it can work, if...(more)
- I mentioned it before--Little Keswick. We tried a lot of different therapies + SN private before + different behavioral approaches at home & we could not find anything that...(more)
- Do you mind saying what boarding school your ds goes too? Sounds like it has done wonders.
- He's not. He's 14. The meds will start to work. If not these then other ones. YOu're doing all the right things. Now just don't lose your resolve.
- It makes me so sad for him. He is throwing his life away.
- I am so sorry. I really know how down you can get. No one should have to live like this--not him & not you.
- I feel like a huge failure, like we should have gotten help sooner.Everyone says but he is so smart and still goes to school.But he can't be in school forever, and no smart...(more)
- We had a big difference between school & home--usually cooperative, quiet, respectful at school (thought kind of trying to disappear due to an LD). At home it was WWIII....(more)
- He still goes to school with no fight. He is getting a bit oppositional and puffing his chest a bit though while there..Not him at all. At home, man, we get the anti christ.I has...(more)
- has your doc recommended any books to help you manage his behavior?
- some books about oppositional behavior and ocd, I cannot remrmber the title. my dh also started reading something from total connection or something like that
- Mine is not that big & still a bit young, but starting to get physical & also doing things that were dangerous for him, destructive to property. He was starting to refuse going...(more)
- this is what I want for ds to be aware and def less physical. Its a huge physical fight to get him to therapy. He cannot just committ to it.
- Tough decision and good for you! You have to maintain that you're the boss. I think that's really critical (and he's still a child even if he thinks you're nuts and he's jus...(more)
- I feel like I am close to losing the control though. Hard being the boss while taking some pretty hard blows.
- My DS did not want to go. We took him for a tour & interview. He admitted the school was nice but didn't want to go. I was so scared when I took him back to enroll about how it...(more)
- I don't know how it will work, because ds doesn't even think he has a problem, according to him he is "fine" and we are "making things up" and aggravating him. One look, ...(more)
- It is a very difficult decision. But I have to tell you that so far it is the best thing we have ever done for DS. He was miserable before he left & taking us all down with him....(more)
- I think we are going to have to send him away, he doesn't want to, but I am worried about my safety and his now. hoping.to.work a lot of this out this summer.
- You still have the specter of taking him out of the school he wants and replacing it with therapeutic boarding school; hopefully that gives you a little leverage for a while...(more)
- Yeah we are barely hanging on to that at the moment. Some days it works better than others. He feels as if we are threatning him.
- It is a threat. And a credible one at this rate too.
- One minute he can say then do it, then the next time he is throwing a fit over me overreacting. How many chances do we give before I start calling schools. He doesn't seem to get...(more)
- I'm the mom above with the DS in boarding school. It was not his decision & it wasn't done as a reaction to a specific behavior or set of behaviors. It was based on looking at...(more)
- I would like to reason with, but I don't think I can anymore.
- It doesn't sound like that's possible right now. Fingers crossed the meds will help in time. Give them another month and keep up your spirits!
- Thanks. I am trying. Trying to stay out of his way too!
- It doesn't sound like that's possible right now. Fingers crossed the meds will help in time. Give them another month and keep up your spirits!
- I would like to reason with, but I don't think I can anymore.
- I'm the mom above with the DS in boarding school. It was not his decision & it wasn't done as a reaction to a specific behavior or set of behaviors. It was based on looking at...(more)
- One minute he can say then do it, then the next time he is throwing a fit over me overreacting. How many chances do we give before I start calling schools. He doesn't seem to get...(more)
- It is a threat. And a credible one at this rate too.
- Yeah we are barely hanging on to that at the moment. Some days it works better than others. He feels as if we are threatning him.
- I don't know anything about the subject, but just wanted to offer you a supportive word, as this must be a very difficult situation. Best of luck.
- thank you.
- I'm glad you managed to get him to take the meds! That's certainly a step in the right direction
- Special Needs DD's new glasses came again, this time I brought her aba therapist to help with the transition. She smacked them out both of our hands before we could get them on, meltdown...(more)
- I think you need to hand this whole projec to the ABA therapist.
- this. also, the aba therapist should know to just start with reinforcing dd for tolerating the presence of the glasses (not even wearing them)
- I think you need to hand this whole projec to the ABA therapist.
- Special Needs Recommendation for a service coordinator (EI) ?...(more)
- Special Needs If you are at a SN school did you have your Ei yet with CSE? my dd ends school this week and they cancelled our meeting a few weeks ago and never rescheduled it. How long do they...(more)
- August 15. We have not had our meeting either and it has NEVER been this late in all these years.
- Special Needs Is Bank Street school a SN school or welcoming of kids with LD or SN?
- no
- Not a s school and not known as one of the welcoming schools
- what's the target population?
- Parents who believe in progressive education
- what's the target population?
- The Bank Street Family Center has CPSE spots. It's not connected to the School for Children at all.
- 30 years ago, Bank Street invited my 5 year old son to leave. They said he was psychotic and would live in an institution for most of his life. By accident we discovered thT he is...(more)
- OMG write them a letter!!!
- Special Needs How did you find the best therapists for your dc? word of mouth? hate having to share dc's issues with the world in order to gain info on who is good
- I had first appointments with 1/2 a dozen for speech, behaviorist, ot, pt, psych. then I stick to them like glue when I find a good one. we've had the same nurse for 3 years
- All word of mouth & ybm. Very happy with all of them.
- EI assigned great therapists ds's first year and after that they all recommended people they knew for CPSE.
- word of mouth from other parents and referrals from current therapists/providers. personally, im selective and what information i share and with whom outside of the sn community,...(more)
- Special Needs For those of you with SN kids who are very happy in life, how do you think you do it? Do you think you have a positive outlook in general and this makes it easier?
- I think it has to do with personality. My 6 year old ASD kid is the happiest kid in the planet. And I'm the complete opposite. I've always thought of myself as being a bit...(more)
- One day I decided I wanted to be happy. I wanted to enjoy my dc. It took time to come to that decision but for me, it was a choice. Dc is who dc is, I can't change...(more)
- np: this, totally. I also know 2 people who lost their DCs to cancer - really makes you realize things could be worse, and you need to embrace the positive while you have it.
- Not sure how to read the question. Are you asking about SN kids who are happy in life or moms who are happy in life?
- I meant you as the parent
- I've always been a generally positive person, and that definitely makes things somewhat easier. I tend to be able to let go of negative emotions a lot faster then DH for example....(more)
- np - agree verbatim with pp
- Tritto.
- np - agree verbatim with pp
- I've always been a generally positive person, and that definitely makes things somewhat easier. I tend to be able to let go of negative emotions a lot faster then DH for example....(more)
- I meant you as the parent
- part of having angelmans is to be happy so that helps also keeping his life familiar with open.communication options. As for my other dc, its jot that easy for him, but he is...(more)
- OP: I phrased that weird. I meant how have you found happiness in life. I have found it difficult and wonder if it is because I tend to be negative about things in general
- I have the worse negativity about my dd, I don't enjoy her at all, and so am not happy to be her mom or around her at all. I cannot stand it. But I see no good in her rigjt now to...(more)
- Denial.
- I think I'm generally an optimist and I also have perspective. My first child died. No matter how frustrating dealing with ds special needs can be, I'm always so thankful that...(more)
- Special Needs Anyone on have a dc in diapers or pull ups? Ds 4 is leaking through them. Best brand to stop the leaking? Should we double up on them?(we do this at night and it helps a bit...(more)
- Are you using the nighttime ones. They are made for dcs older then 4. My dc wore them on and off until 7. I also got the hospital pads so if it leaked which was not often, I...(more)
- I recommend goodnites as well. Previously bought inserts that went into diapers - not sure if they still sell them, but they were similar to a maxi pad - may be worth trying that...(more)
- Op: Thank you ladies will give it a try
- Special Needs Ice breakers and helping me feel more comfortable? Ds has 2 nurses, they are very nice people, but its weird having people in the house we don't know yet. I feel like I am making...(more)
- Just be yourself and go on with life as normal. Do what you would do even if they were not there. iF that means walking around in pj's drinking a coffee do it.
- So far I have been doing this. I just feel like maybe I ahould engage in conversation? maybe? Do I ask them if they want to watch something on tv? if they want something to eat?...(more)
- If I make coffee I ask them if they want some. I want to make them feel welcome but at the same point it's my house and if I need to clean the oven, I'm going to clean the oven...(more)
- So far I have been doing this. I just feel like maybe I ahould engage in conversation? maybe? Do I ask them if they want to watch something on tv? if they want something to eat?...(more)
- Food is a big icebreaker for me. If I bought something delicious over the weekend I might say to them "Do you want to try this cheese? It's amazing" or whatever. Or mentioning...(more)
- Just be yourself and go on with life as normal. Do what you would do even if they were not there. iF that means walking around in pj's drinking a coffee do it.
- Special Needs Question for moms with kids in nyc sn privates: have you ever requested a teacher? My kid had a great teacher last year and I would love that teacher to be homeroom teacher next...(more)
- doubt you can but try it I do know that I was asked if my dc wanted certain friends in her class next year
- Special Needs Being fat just sucks so much and has pretty much consumed my life
- so change.
- don't be mean. this is sn and believe me, we all are stressed out. Food can be a huge comfort
- I'm not trying to be mean. : ( I meant it. Change is hard though.
- np your delivery could use some work (and empathy)
- I'm not trying to be mean. : ( I meant it. Change is hard though.
- so goddamn flippant.
- don't be mean. this is sn and believe me, we all are stressed out. Food can be a huge comfort
- join WW! It comes off slow and steady and stays off.
- I've done weight watchers for years
- the great thing about weight loss is you can always start it the next day. Can you take long walks? that's how I started losing weight.
- This, and it's good for stress
- I do and I have periods where I will lose weight but it's very hard for me to sustain
- i hear you. I weight myself every morning which I vowed not to do but it does help if I find myself starting to go up
- the great thing about weight loss is you can always start it the next day. Can you take long walks? that's how I started losing weight.
- I do ww and have lost 96 pounds so far (started in Oct 2010). It has completely changed my life. It taught me how to eat. It is not a diet and meeting are awesome. So much of...(more)
- I've done weight watchers for years
- me too ;( i know it seems like its fixable, but for some reason, I just can't. have tried everything! It completely consumes me, depresses me and is ruining my life. New therap...(more)
- thank you -- to you too. I honestly feel like there's not a moment when I'm not thinking/worrying about it.
- I feel your pain. It's been a problem for most of my life. I'm doing Jenny Craig now because even with WW I was not able to stick with it. I needed a kickstart, which it helped...(more)
- gl!
- I'd suggest working with a psych. I'm a personal trainer and I think it's mostly in people's heads. It's hard to make behavioral changes. A psych can help you see yourself ...(more)
- I was you 3.5 months ago, my weight had crept up over the years and I was miserable. I downloaded the my fitness pal app and started to log in calories and also bought the Fitbit...(more)
- Overeaters anonymous
- so change.
- Special Needs 2 things every person with SN should have IMO: being out in nature and music therapy. other therapies are necessary, too, but i sometimes wish we hadn't neglected the nature and...(more)
- This what I know we're lacking--nature, vigorous exercise. Sucks not to have a hard and be NYC. Kids resist any organized sports
- ^^^yard
- ITD my dc needed fine motor help and eventually medication. Sure nature is important (my dc gets more outdoor time than most suburb kids I know bec. Make a point to get him out)...(more)
- OR below: actually there's studies demonstrating benefits to being in nature (and REAL nature - like hiking, out in fields exploring...not playgrounds outside) - helps with ADHD...(more)
- so funny you say this - I just read a great book about how all kids are nature deprived, and how much being in nature helps kids grow emotionally
- Coulda woulda shoulda There's 10 things I would have done differently. FWIW: My ds may be the only kid with autism who is not affected by music.
- I think both of those two things are so important and since Im a musician ds was always exposed to music and plays as well , made sure also we have lots of time in nature but it...(more)
- Ita. Dd's best therapy is the community garden on our block.
- This what I know we're lacking--nature, vigorous exercise. Sucks not to have a hard and be NYC. Kids resist any organized sports
- Special Needs So conflicted -- dropped out of big law because the life was so miserable but every now and then feel like a loser for not staying the course
- Do what works for you. There's nothing particularly noble about slaving away 30 years to make your employer rich.
- funding retirement and college, being a complete adult...those are values you get from working, it doesnt have to be big law or nothing
- you lost me "at being a complete adult" -- that's bullshit
- I look around at the 45 yo women around me who SAHm with kids in school f/t. Yoga and housework do not make for a rich, full life
- they may not to you but to others they may; also, what do you expect them to do at this point?
- work, go back to school, volunteer (and not just a Thanksgiving to make a point)
- you should tell them that to their faces. bet you don't.
- np: I am one of those. I have a masters as do most of my friends who are doctors, lawyers, some had their own practices they sold and made a choice to stay at home. Many do lots...(more)
- you should tell them that to their faces. bet you don't.
- work, go back to school, volunteer (and not just a Thanksgiving to make a point)
- they may not to you but to others they may; also, what do you expect them to do at this point?
- I look around at the 45 yo women around me who SAHm with kids in school f/t. Yoga and housework do not make for a rich, full life
- or. I never said that it did.
- what if college and retirement are funded?
- you lost me "at being a complete adult" -- that's bullshit
- funding retirement and college, being a complete adult...those are values you get from working, it doesnt have to be big law or nothing
- my friend left to be general counsel for a business as is so much happier.
- I went to a tt law school, but steered clear of biglaw from the get-go as a quality of life choice. There are plenty of other niches in the profession. Signed, gov't atty.
- Im a partner at a firm. It is extremely stressful because of the pressure to bring in business. It is no panacea and having 2 SN kids on top of it has made things pretty...(more)
- Like an above posted, I'm also a tt law school grad who avoided big law completely. I've had a great career in the non-profit world and eventually left doing legal work to...(more)
- Do what works for you. There's nothing particularly noble about slaving away 30 years to make your employer rich.
- Special Needs Hs dd having severe anxiety and may have processing issues; neuropsych evaluation recommended by school - anyone btdt
- I"m sorry. I have suffered severe anxiety as an adult so I really sympathize. We have a family history of anxiety/OCD. Definitely get the evaluation and in the meantime make...(more)
- thank you
- np: daily cardio is shown to help with depression, not anxiety as much
- I"m sorry. I have suffered severe anxiety as an adult so I really sympathize. We have a family history of anxiety/OCD. Definitely get the evaluation and in the meantime make...(more)
- Special Needs Had a blow-up last night with DH over a messy kitchen and 3yo ds intervened, telling us to USE NICE WORDS and making us SAY SORRY. Sitting here at work feeling like the worst...(more)
- you're so totally getting your period
- it was not about the plates. your dc is right. you would probably really benefit from having some regular outlet for your frustration. everyone gets pissed off. if you bottle it...(more)
- ^or, yes, it could just be PMS
- she says they often fight- why are you people thinking she's hormonal??
- she said they do not, and she's a weepy angry mess.
- oh, missed that part. still think it's bizarre to jump to PMS when she did indeed have a difficult time
- well, i didnt jump to it, it was an afterthought
- oh, missed that part. still think it's bizarre to jump to PMS when she did indeed have a difficult time
- she said they do not, and she's a weepy angry mess.
- she says they often fight- why are you people thinking she's hormonal??
- ^or, yes, it could just be PMS
- just tell ds that he is right and you are sorry he heard you and dad fighting
- OP: To clarify, we don't fight a lot though we did for years. Once SN DS started services life got massively better. Secondly, as a matter of fact, period due any day.
- funny, we've been having serious issues with my son and my dh (after we left the hospital) wanted to make sure my car was washed before it went in for service and i was like wtf...(more)
- OP: Thanks for sharing. Made me smile.
- The fact that your dc understands the importance of using nice words and apologizing means you did a good job as a mom!
- OP: Wow... thank you for that perspective! Will apologize to him and praise him when I get home. Feels good to have a plan.
- Look on the bright side, ds has learned and knows what to do in a situation like this. Rather than beat yourself up, why not turn it around and pat yourself on the back? You...(more)
- OP: Thank you... you guys are great. Feel much better.
- On the upside, it's great your child knows it's better to use nice words. My dc has "caught" dh and i arguing and i have had to apologize and tell him he is right, i was not going...(more)
- OP: + 1 BIG LIKE.
- you should actually feel like the BEST mom at the moment. You are raising a thoughtful kind kid. Give yourself TONS of creadit for this. Your kid rocks! He (or she) did not...(more)
- Special Needs Trying to get DOE to pay for services in a placement...(more)
- are you in NJ
- yes
- NJ is good for that but you probably need an educational advocate if you don' t have one. Also, the state has services you might be able to receive if deemed necessary.
- yes
- Yes I am worried about side effects Dr said it is temporary to help kid learn how to deal.
- sorry wrong post
- I'd need more info on the situation. I have helped get services for kids in nj (at their home) until the school situation gets worked out. Most that I helped with have been due...(more)
- are you in NJ
- Special Needs Anyone have an LD kid in a public school with a lot of...(more)
- I think that the answers to this would be very individual based on the particular school. I've never seen this in our NYC public.
- I've got an AS kid in public with a ton of supports (no real choice, we got shut out of nps and ASD Nest). It's working well enough, and he has a few decent friends in his class.
- np: glad it's working out for you! Did they even give you a reason for the shut outs?
- We didn't know we had a need until around December, no clear dx until Feb. A lot of schools filled the class before getting to our app, and many just felt they couldn't handle a...(more)
- just surprised NEST would reject a kid with this profile
- He was ironically rejected for behavior that is pretty typical of AS, and supposedly because he currently has a para and "they don't do paras". Duh, he has a para because he's in...(more)
- just surprised NEST would reject a kid with this profile
- We didn't know we had a need until around December, no clear dx until Feb. A lot of schools filled the class before getting to our app, and many just felt they couldn't handle a...(more)
- np: glad it's working out for you! Did they even give you a reason for the shut outs?
- Depends what the LD's are and where you are and how they support him. My DS was in NYC small public from K through 2nd (2 times) and though extremely social with tons of friends...(more)
- where is he now? can you say?
- Churchill
- where is he now? can you say?
- it depends on hte kid and the school, but as you get into middle school , yes it is hard if you are isolated part of the day
- We go to a very good public school. I have a dc with adhd and no other LD who is academically advanced....(more)
- Special Needs If you have a kid who is extremely mild ASD, how would you describe them when it comes to their social, emotional, behavioral, fine motor traits?
- ^^^ I ask because I wonder about my own ds. Language processing issues and attention difficulty - often takes an extra beat to answer a question. Seems emotionlly overreactive at...(more)
- ADHD
- That's his current dx (he's turning six so still young) but it is hard for me to understand how it differs from HF ASD.
- There's a lot of symptom overlap between the two conditions. They can also be comorbid. A good neuropsych can suss out the distinction, but I find that school personnel and...(more)
- NP: have you done a Neuropsych eval yet? Try doing the theory of mind test on DC to see if his/her empathy is developed. That should give you a greater sense of whether you 're...(more)
- This. Happened to us, ADHD meds actually made symptoms worse. Luckily, it was no more than a couple of months before we figured out it was really ASD.
- That's his current dx (he's turning six so still young) but it is hard for me to understand how it differs from HF ASD.
- pushing too hard for a dx. Treat what you see.
- I don't want a dx - trust me. And I have one - ADHD - but I jut get a feeling sometimes that ASD is a possibility. We treat with ST and OT currently.
- You are like us. We heard ADHD possibility for a long time but just felt that wasn't the right DX. Finally learned ASD at age 10....(more)
- I don't want a dx - trust me. And I have one - ADHD - but I jut get a feeling sometimes that ASD is a possibility. We treat with ST and OT currently.
- I'm not hearing even mild ASD. Id still want to see some rigidity in his thinking or behavior even if it isnt obsessive interests and there should be some awkwardness socially-...(more)
- Op: I don't really see that. He will however get upset sometimes if someone doesn't play what he wants to play, but I guess that is all kids.
- ADHD
- I have two: one mild ASD and one with .... stuff (multiple evaluations, no clea cut)..
- Can he really truly take the perspective of other people, understand that they have their own agendas, that other people don't necessarily know what he knows, that they are not...(more)
- This sounds SO much like my dd, who doesn't have a diagnosis yet.
- ^^^ I ask because I wonder about my own ds. Language processing issues and attention difficulty - often takes an extra beat to answer a question. Seems emotionlly overreactive at...(more)
- Special Needs Parents with PDD-NOS kiddos...how do you do with playdates for them? Are you open about their Dx? does that help? (0 replies)
- Well, pretty much our entire social circle has always been other SN kids so yes and it has never mattered. The playdates are not very effective unless there's someone very...(more)
- it;s an epidemic. where do you liev?
- NYC, and since dc went to SN preschool and SN elementary school we've stuck to our SN friend circle mostly because those are the families we've been surrounded by all these years....(more)
- it;s an epidemic. where do you liev?
- We only started doing play dates very recently 3 yrs, 3 mos. I keep them short. We do a mix of friends, some also pdd and some nt. I don't share anything I don't want to.
- I usually just tell the other parent that my DC has some self-directed behavior so I stick around on playdates just in case DC gets stuck.
- First of all, it's all ASD now. I have a PDD kid, but I started saying ASD a long time ago. It took a couple of months after dx to get there, but it's nothing to be ashamed of...(more)
- Im not there yet :(
- People assume ds's ABA therapist is his nanny. She picks him up from school and takes him on play dates like the other children at his mainstream school. The other nannies will...(more)
- My ABA therapist says she isnt allowed to take DC alone without nanny
- Well, pretty much our entire social circle has always been other SN kids so yes and it has never mattered. The playdates are not very effective unless there's someone very...(more)