Special Needs

  1. Special Needs Anyone know anything about Kim Kramer, a speech therapist on the UES? tia 45 min ago (0 replies)
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  2. Special Needs Can someone recommend a good occupational therapist on the UES who is contracted through EI/CPSE? TIA 46 min ago (1 reply)
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    • Pretty sure Making Milestones takes EI. Not many gyms do. 43 min ago
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  3. Special Needs My DS if 5 and camp has concerns. He cannot transition, gets overwhelmed by noise, chews on everything, and prefers to be around adults only. He's exceptionally bright, reads at...(more) 52 min ago (39 replies)
    4th grade level and does basic forms of algebra (I'm not bragging) for fun. Does he need an eval? What does this sound like? We didn't send him to preschool so this is his first school event. And I mean he cannot transition at all
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    • Yes. He sounds highly anxious. 51 min ago
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      • Is anxiety my fault or is it genetic? 35 min ago
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    • Aspie. Classic. Get an eval. A lot of camps have grant programs to provide shadows for kids like this. 50 min ago
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      • Thank you 44 min ago
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      • Under the new diagnostic manual htey will call it mild autism, but yeah, that's textbook Asperger's you sound like you're describing. 43 min ago
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      • Does he have a pet subject that he goes on and on about? 41 min ago
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        • op: he has a handful that he circulates 41 min ago
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    • sounds SPD for sure (sensory processing). 50 min ago
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    • sensory integration issues, anxiety...(more) 49 min ago
      fwiw, my ds is 5.5 and in some ways resembles yours (reads at a high level, does crazy math in his head, etc but also has anxiety and dyspraxia). many kids like ours have asynchronous development. google it but basically it means that in some ways they are very advanced and in other areas behind, suffer from anxiety, etc. Good luck, get an eval for peace of mind.
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      • But not aspie? 43 min ago
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        • Aspies usually have sensory issues and often fine motor issues, as well. 42 min ago
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          • DC has fine motor issues plus sensory (op here) 41 min ago
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          • no. he has some quirks like an aspie but he was eval'd by a dev ped and no dx. socially he's pretty good, makes great eye contact and appropriate conversation skills. 41 min ago
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            • ^^not op, i'm the one above with dyspraxic ds. op's may have ASD but only eval can tell for sure. 40 min ago
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            • So no DX, were there services for the other things? 40 min ago
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              • yes, ds started EI for pt at 13 mos. at 2 we did private OT b/c he didn't qualify....(more) 37 min ago
                got dyspraxia dx from McCarton at age 2.5. at age 3 he started public sn preschool and did that for 2 years (with a mainstream preschool program in conjunction) until he tested out and now has no IEP. he will start mainstream K in the fall (we held him back).
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                • OK good luck and thank you for sharing, most appreciated 35 min ago
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        • Do not go by what people are posting...have your ds evaluated ASAP. 41 min ago
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          • We are 41 min ago
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            • Good. When is it scheduled for? 41 min ago
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              • We called the center for autism in westchester and they are sending up paperwork. We cannot afford private at $5k 40 min ago
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    • I don't like to attempt to dx based on a post but I do think this warrants a comprehensive evaluation. You need more information about what is going on and how to help. 48 min ago
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    • needs an eval. 46 min ago
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    • why didn't you send him to preschool? 46 min ago
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      • This, that's usually where they spot issues and direct you to timely interventions. 45 min ago
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      • op: we had a 'governess" as DH works abroad for State Department. So he had playdates daily with a former preschool teacher -- but he was not taught in group sessions. Camp says...(more) 42 min ago
        he is annoyed by the other kids and wants to chat only with adults
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        • ^ meant he had playdates + lessons with the teacher, but not together 42 min ago
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          • this makes a huge difference. he may just need socialization and be overwhelmed in a group setting with a bunch of rowdy kids. 38 min ago
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            • He was very socialized abroad, but never required to transition between activities. This camp is 7 hours and transitions every 45 minutes! 36 min ago
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          • were you living abroad? 37 min ago
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            • Yes, in a hellhole 36 min ago
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        • What happens when you bring him to the park or another kid centered event where most kid would gravitate together to play - ie, park and he's in sand box. What happens? 33 min ago
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          • He plays, laughs, has tons of joy. But he doesn't sit and stare them in the eye 28 min ago
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            • ^ also in physical activities (swimming, sand box, etc) he always approaches kids who are older and joins their group. 28 min ago
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              • I don't find this concerning at all given his circumstances. Your OP paints a different picture though 27 min ago
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                • Right. That's why we're confused. He wants an adult counselor all to himself to talk and play. He doesn't like the kids and wants to sit somewhere quiet. He says the kids 'drive...(more) 25 min ago
                  him crazy" -- yet when he's home he goes to the playground and wants to play with them. So I'm confused
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                  • That is within a normal range imo. My son, in preschool for 2yo, preferred the teachers to the kids because he could speak so well and the other kids weren't where he was. He also...(more) 22 min ago
                    needed to be socialized more. He didn't love it at first but I had him in preschool 2x a week when he was 2 and 3x a week when he was 3. In his 3yo year, he was totally fine. Keep finding social situations for him where he can be with peers.
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    • Spectrum - Neuropsych to have full knowledge of what he's dealing with so you can help him. 35 min ago
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    • How does he do with other kids 24 min ago
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  4. Special Needs My dd is going to camp on saturday for the first time.. it's a mainstream camp. we, as a family, are collectively freaking out. dd has asked us not to talk about camp any more. I...(more) 1 hr 6 min ago (22 replies)
    had a fight with my therapist this morning because she offered me some helpful advice, and I think I'm getting a twitch in my right eye. I think it will all be okay, but the lead up is hard!
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    • sleepaway, then? and how old is she? 1 hr 5 min ago
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      • sleepaway, 2 weeks, and she's 9, will be 10 this fall. 1 hr 5 min ago
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        • sounds like she feels ready for it! 1 hr 4 min ago
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          • I think she is. I am so shocked at my own response! I thought I would be calm and collected. but I'm very rattled. I never thought we would send her to sleepaway camp at this age...(more) 1 hr 2 min ago
            anda I think she's ready and that does really make me happy. But the reality of it is way more intense.
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    • how old? 1 hr 5 min ago
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    • What is the worst case scenario? You have to pick her up early? 1 hr 5 min ago
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      • I guess. we don't really have one. the camp is supposed to be great about homesickness. one of her teachers works there and recommended it strongly to us. 1 hr 4 min ago
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        • So what is your anxiety based on? 1 hr 1 min ago
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          • just everything. what if the bus crashes on the way there and she dies? What if her shyness remains so crippling she never talks? what if puberty swoops in during these 2 weeks...(more) 1 hr ago
            and it's overwhelming? What if there's a pedophile there? My anxiety is not realty-based.
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    • My ds is at a JCC Camp, his SN are mild for the most part, but one thing I love about the JCC is they have a behavioral specialist on staff and they work with kids, and they have...(more) 1 hr 4 min ago
      the keshet program and it is so inclusive
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    • Asking this gently: are you more anxious about the prospect than your dd is? 1 hr 4 min ago
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      • op: Oh no, she is far more anxious than I am. She has almost stopped talking. 1 hr 3 min ago
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        • Poor kid, poor all of you! I am sure it will be great but sometimes anticipatory anxiety is such a killer. 1 hr 3 min ago
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          • NP can you plan a fun reward, acknowledging that this is a HUGE step? Something for her to look forward to upon return? 1 hr 2 min ago
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            • op: well, she is dying to go, and has been so since we went to the orientation. But we will pick her up and go on a fun trip through maine and vermont, so that's nice. 1 hr 1 min ago
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              • Perfect. Maybe tell her you will have a small special surprise waiting, and then have something. 59 min ago
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    • I'm willing to bet that it goes EXTREMELY well. :-) Yay for your DD! 1 hr 2 min ago
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      • op; Thanks! thanks to all for letting me vent. I appreciate it. 59 min ago
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        • Big milestone, comin' right up. I look forward to the post-camp post! 58 min ago
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          • op: fingers crossed it will be a nice one. She's a great kid and has come a huge huge way. Her teacher practically dragged us to the camp dog and pony show. I was totally...(more) 56 min ago
            skeptical and my dd walked into the room while reading a book (that's how she manages anxiety sometimes, by reading her way into scary things). And by the end we were all sold and excited. but now it's almost here...
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            • Your dd sounds awesome! Good luck!!! 54 min ago
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  5. Special Needs I have been posting and learning from this board from it's inception. My 10 y.o. ds has an ASD and this board has been invaluable. Now I would like to share my new product with...(more) 1 hr 11 min ago (2 replies)
    you. It is a product that will transform potty training for so many families and is the only way I was able to potty train my son when he was 4 1/2 I have btdt (the embarrassing stares at a 4 year old in diapers, the poop smears, the accidents at the worst times) and I would love to provide a solution to any parents struggling to potty train their SN child. Visit my site at http://www.peekaboopottysticker.com and use YBM20 for a special discount just for youbemom users. Thank you and Happy Summer
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  6. Special Needs If you have ST 2 X per week, how do you space it out? We're moving from 1X to 2X and the SLP has a super tight schedule. She's proposing openings on 2 consecutive days that fit...(more) 2 hr 16 min ago (3 replies)
    with everyone's schedule. I prefer the visits be spaced out, but perhaps this is unnecessary? I don't know if there would be any data or research on this, but I'd be interested to hear others' experiences.
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    • It is idea to space it out just to not overwhelm DC but do what you need to for scheduling, absolutely. 1 hr 44 min ago
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    • ideally, spaced out but scheduling that can be very hard 1 hr 38 min ago
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  7. Special Needs What is the typical fee for a 45 minute speech therapy session in manhattan (UES). TIA 2 hr 17 min ago (2 replies)
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  8. Special Needs Educ. attys.--Might need to hire one. Here's a crazy question: If you are suing the DOE for tuition reimbursement, do you have to sign a new contract with the atty. for each year...(more) 3 hr 20 min ago (24 replies)
    that you try to get reimbursed? So if one person's feel is $5,000 for the 2013-14 school year, then it's safe to assume that I'd be paying that amount for every year that my son is in school if he is in a non-approved DOE school, which could add up to $30,000 for sixth thru 12th grade, not counting appeals or anything like that. Make sense?
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    • Yes, we pay a retainer every year. 3 hr 19 min ago
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    • Yes, but if DOE takes you to hearing and you win, they have to pay legal fees on top of dc's tuition 3 hr 18 min ago
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      • Not necessarily. Sometimes lawyers decide not to file for reimbursement of fees, sometimes they do. 3 hr 17 min ago
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        • If your kid goes to a non-approved school and you agree to settle with the DOE for whatever percentage, is the cilient still responsible for the atty. fee or is that on the DOE....(more) 3 hr 10 min ago
          Or does the DOE only pay atty. fee if we turn down the offer and later win at a hearing? Did I make any sense just now, lol?
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          • we paid attorney fees last year when DOE settled. this year we won at hearing and lawyer will submit paperwork to get legal fees reimbursed. skyer 3 hr 7 min ago
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            • But the state will overturn you. They always overturn the family victories! 3 hr 5 min ago
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              • You cannot say that so blanket-ly. There are families who win at hearing, especially for more restrictive schools, and the DOE does not appeal. 3 hr 2 min ago
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            • Sorry, but would you mind explaining a bit more? Why did you go to hearing rather than settle, and how much more did you initially have to pay her for the additional time/work? 3 hr 4 min ago
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              • DOE would not settle. We had to pay a couple thousand more in attorney fees for the hearing 2 hr 57 min ago
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              • when I have gone to hearing, I pay my attorney another $3,000 up front. Assuming I win at hearing, my attorney then bills the city hourly for her fees, and I get back what I paid...(more) 2 hr 55 min ago
                up front. Having said this, however, my last win was appealed to the SRO by the City. THey won at the SRO level and we now appealed to District Ct. So additonal legal fees for me at both the SRO and District Ct. level. To date, no reimbursement of legal fees or tuition. Waiting for a decision. This process is not for the faint of heart or of pocketbook. It's a tough city out there.
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    • Correct. For as long as you file a lawsuit for tuition reimbursement you will need to retain your lawyer every year. The retainer fee may go up incrementally although in general...(more) 3 hr 18 min ago
      the special ed lawyers in NYC have had pretty stable rates for some time.
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      • OMG, how can "regular" folks afford this? Between annual atty. fees and the $50+ grand for school, very small potatoes like me can't afford it. Forget about the reimbursement...(more) 3 hr 14 min ago
        part, just the $5.000 atty. fee alone is a big annual bite.
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        • Kids are expensive. 3 hr 12 min ago
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        • it is really hard. we raided dcs savings accounts and cashed in their savings bonds plus borrowed money from family to come up with attorney fees and tuition deposit. around the...(more) 3 hr 4 min ago
          time this was happening, i got a big promotion at work and negotiated a big bonus that helped us bankroll the first year of school
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          • wow, that's great. I think I'm on the verge of being laid off and child's dad lost his job, but doing menial work to help pay my rent. 3 hr 2 min ago
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        • They generally don't. Most SN kids go to public school. 2 hr 59 min ago
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        • np: if your dc qualifies for a 12 month program (as opposed to a 10 month program), you could consider the $5,000 to be money you are saving on not having to pay for summer camp....(more) 2 hr 58 min ago
          And as another poster has said, kids are expensive. If you think about all the expenses of having a child over time-- lessons, summer camps, braces on the teeth, tutoring, childcare etc., you will see that $5k is just a drop in the bucket. If you want to get away from this expensive program, consider a move to a suburb with a sn friendly public school system.
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          • i disagree. unless youa re quite well off, $5K on top of all of the regular kid expenses is a major hit each year. 2 hr 45 min ago
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            • I paid $2700 for camp this summer, and that wasn't the cheapest possible. 2 hr 27 min ago
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          • this shows how unrealistic it is for most people - very few people have $5,000 for summer camp and almost all 12 month programs still have several weeks off in the summer...(more) 1 hr 38 min ago
            regardless
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        • Sometimes they can get a Connor funded spot and work with a pro bono lawyer or advocate, I know families in that situation. More often they try really hard to find a...(more) 2 hr 57 min ago
          state-approved school and get a CBST deferral to have it be funded directly.
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        • they can't 1 hr 41 min ago
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        • lots of people cannot sustain the continuation of paying for years and years - they either end up moving, going to a funded program, or going public 1 hr 37 min ago
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    • holy crap. 3 hr 17 min ago
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  9. Special Needs Any recommendations for a pediatrician on the UES...(more) 3 hr 24 min ago (3 replies)
    that is good with high functioning/delayed children?
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    • An UES friend raved to me about Chloe Rowe for her SN dc. 3 hr 23 min ago
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    • Audrey Olivera, Cornell. 3 hr 22 min ago
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      • she was ok with sn dc but awful to me 2 hr 14 min ago
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  10. Special Needs Moms of older HF ASD / Aspie kids. Does it get harder? DS is 6. Easier than 3-5 but still HARD. 4 hr 9 min ago (13 replies)
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    • That was a really hard age for us. It got easier around 7-8 and starting around 9yo, life started being positively pleasant. 4 hr 7 min ago
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      • Oh please please please say more. What kind of school setting? What changed? 4 hr 3 min ago
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        • SN school and various things after school (some therapies, some activities). Everything helped, nothing overnight, just a long gradual process of dc maturing, getting better at...(more) 4 hr 1 min ago
          strategies, being more in touch with feelings, sensory issues really pretty much no longer being an issue, dc developing skills and talents I would not have guessed at. My best advice is to keep plugging away and don't give up!
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          • OP: I love you. 3 hr 52 min ago
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            • Hang in there. I know a million people have said "it's a marathon, not a sprint, yada yada yada," but it IS. I posted very similar things back when my dc was that age. I could not...(more) 3 hr 50 min ago
              conceive of the good times we had ahead - they were not possible for me to even imagine. It's not all sunshine and roses but life is good!
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              • I'm seriously in tears. I want to BELIEVE so badly that all of this hard work will someday allow my child and us as a family to break through the surface of the water and enjoy...(more) 3 hr 45 min ago
                the fresh air purely NT families have. It is such endless work, work, work and disproportionately on me (sorry to complain but there you go). And I know there is a great kid in there. I know. I have dreams that he has an identical twin that we left at the Discovery Room at the American Museum of Natural History and 'rescue' and he's perfect. So when I get a txt from teh nanny that he just had a big argument with the instructor at Lego camp that there are no monorails in outer space and he refused to do the project my heart sinks. SO... thanks for the ray of hope.
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                • My best advice is to try not to live so minute to minute. You know? Try not to hear a good story and think "At last! The light at the end of the tunnel!" or hear an unfortunate...(more) 3 hr 42 min ago
                  one and think "Oh no, all our work is for naught." Try to get up juuust a little higher to see the 50-foot view, if not the 10,000-foot view. Also? If you work, bury yourself in work. If you don't, find ways to be busy and distract yourself. Work has been a very big escape valve for me since my dc was 1yo and entering EI and without it I would have gone absolutely batshit crazy.
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                  • ^In that vein: tell your nanny she DOES NOT have to tell you about every goddamned meltdown the moment it is happening. 3 hr 42 min ago
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                    • OP: I do work PT and it is an AMAZING job. And TBH I'm completely distracted and am constantly wondering how ds is doing. I spend ages googling articles, strategies, etc. I...(more) 3 hr 37 min ago
                      think about him for 80% of my waking hours. That's just true. But I hear you. (What do you do?)
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                    • ^And one more thing. Please do not believe that purely NT families are all breathing some rarified air that has been denied you. It ain't true. They have an easier time in many...(more) 3 hr 35 min ago
                      ways and they do not struggle with the fundamental things we struggle with, for sure. And we have worries about our kids they will never understand. But the idea that families with only NT kids are all out having a good time all the time and only ever enjoying themselves with no meltdowns? That is not only untrue and not realistic, it is damaging to your outlook and leaves you feeling more cheated. Believe me, the next 5 families you see where everyone is scowling or a kid is screaming while the parent walks ahead of them on the sidewalk? Where a kid is pointing at a dropped ice cream and making an unholy racket? Where a family is hustling a kid out of the museum? Those kids are NT and they're just as troublesome (and lovable) as our kids, giant pains in the asses too!
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                      • OP: Well said. 1 hr 37 min ago
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                        • - no subject -...(more) 1 hr 36 min ago
                          If you are the poster yearning for a dd...I talked to you a lot about that last week (I'm the one who suggested the action item list). If you ever want to chat offline, let me know - post an anonymous-type email and we can correspond, because I know we've spoken here multiple times!
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      • ITA. My aspie is 8.5, drastic improvement in the last year. 2 hr 56 min ago
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  11. Special Needs If you have had another baby after your child was diagnosed with ASD, was your next child on the spectrum as well? 4 hr 10 min ago (4 replies)
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    • Not on spectrum but has mild tics. 4 hr 8 min ago
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    • not so far (dc2 is only barely a year), but so far we're seeing no signs... 3 hr 41 min ago
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    • ASD child is my oldest, but we didn't know until after his brother was born. Younger has his own, completely different neuro issues, not spectrum. 2 hr 55 min ago
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    • No. Thank god. My eldest is spectrumy/adhd. I lost a lot if sleep worrying about my 2nd 21 min ago
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  12. Special Needs Did anyone see this story? Jenny McCarthey's son is being bullied at camp and she doesn't know what to do? why not send him to an apporpriate camp? She is so stupid...(more) 5 hr 9 min ago (75 replies)
    • yeah friend's son goes to a summer camp for kids with these type of issues 5 hr 6 min ago
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    • Also nasty that she's using this situation to stay in the news. 5 hr 6 min ago
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    • as much as I don't care for her I understand the situation and it sucks. 5 hr 4 min ago
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    • There are a few spectrum kids at my kids day camp. Cit teen told me kids were picking on a boy we kind o know, she told them to leave him alone. Then let the counselor know. I...(more) 5 hr 2 min ago
      told the mom, and she said oftentimes he isnt aware when asshole kids are making fun of him. Which i guess is a blessing. But he's fairly isolated, even in this group setting. It's tough on the kid, the parents, and the counselors!
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    • I have no sympathy. Ds went to a WONDERFUL camp and they got kids from all over the country there 5 hr 1 min ago
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    • Well if she hadn't spent so much time pretending she had 'cured' him with the help of her anti vax, gluten free friends she might have a better handle on his issues and put him in...(more) 4 hr 55 min ago
      a more appropriate environment.
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      • This times a million 18 min ago
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    • "I lost my job and haven't been in the news lately. What can I do that will get me coverage in People or Us?" That's how she thinks. She has been whoring out that poor kid for...(more) 4 hr 48 min ago
      years AND she has blood on her hands with this vaccine bullshit. I think she is Satan.
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    • he is 12, can you imagine your mother putting this out their for everyone on TV and People Magazine, kids will bully you just for that 4 hr 35 min ago
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    • I'll be the odd man out. Regardless of how you feel about her OPINION on vaccinations, why don't we show some kindness and compassion. Bullying is a problem that can happen to...(more) 4 hr 17 min ago
      any child, NT or ASD, and in lots of settings, including SN schools and camps. It's unfair to say she didn't send her son to an "appropriate" camp as we don't know the details.
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      • he wouldn't be bullied at an appropriate camp. you can be odd man out, and feel good for standing up to the crowd, but you sound as deluded as she is. 4 hr 14 min ago
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        • I don't know how you could know if the camp was appropriate unless you know her son personally, have talked to his therapists and teachers, read his evaluations and IEP, and know...(more) 3 hr 55 min ago
          what camp he is going to.
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          • I can judge a woman who goes on national tv and tells the world her son is being bullied, and yet she seems to do nothing about it (except ask Whoopi GOldberg for advice). now...(more) 3 hr 13 min ago
            there's a good mom!
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          • np, my ds has gone to "appropriate sn settings" and been bullied there as well. We need to stop judging other moms. 2 hr 11 min ago
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            • Oh, I feel perfectly comfortable judging Jenny McCarthy. I don't consider her another mom in the way I regard my friends and acquaintances. 2 hr 10 min ago
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            • np: my judgement is just that previously she claimed he didn't have autism. Now that her 15 min are up (leaving The View), he has it again/ is in the press again? Hmmm... 2 hr 10 min ago
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              • or, i know she has flip flopped but i don't think she is making up what is going on now and as a mom whose ds was in a similar situation to hers, i get it. 2 hr 1 min ago
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                • I'm not suggesting that she's making up that he's being bullied. I just think she uses autism at her convenience, specifically when she wants some attention. 2 hr ago
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                  • ^^and while I too get the situation, to go on national TV & say "gee, what do I do?" is ridiculous. Do you let your child be a pawn who is used for bullies entertainment? HE's 12,...(more) 1 hr 59 min ago
                    not 7. She needs to teach him to stand up for himself & not do things just because others ask him to especially if the others are NOT doing it themselves & just asking him to do it.
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                  • yes, I see your point and those of the other posters but I respect the fact that she is open about this. She is far from perfect but who is. If she didn't announce this then...(more) 1 hr 56 min ago
                    people would critcicize her for that.
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                    • "Far from perfect" is pretty kind considering so many women stopped vaccinating their children after she spread false information that the MMR caused autism. She had/has quite a...(more) 1 hr 55 min ago
                      following in the ASD community & she did a LOT Of damage based on her own spin, so I criticize her endlessly due to that. STFU and stick to Playboy.
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                      • or, i always disagreed with her anti-vax stance but I don't think you can blame her for people not vaccinating her kids because there were many others in the medical field who...(more) 1 hr 50 min ago
                        used to say that.
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                        • or, mistake, meant to say people not vaccinating THEIR kids 1 hr 49 min ago
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                        • She used her celebrity as a major platform to push an anti-vaccine agenda. How can you not say she didn't play a part in people's decisions to not vaccinate when she's saying the...(more) 1 hr 49 min ago
                          MMR causes autism & bringing her quack dr. on Larry King, Oprah, etc. telling America this? You don't see how some will be swayed by this?
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                        • Oh no, I can blame her and I can blame her hard for becoming a tv-friendly talking head ready to yell at people from the CDC and give the uneducated the figurehead they need. 1 hr 48 min ago
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                        • NOT in the medical community. that is ridiculous. 1 hr 48 min ago
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                        • No one respectable in the medical field! No one with actual data. 1 hr 47 min ago
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                          • or, yes, there were people in the medical field who used to say that. look people believe what they want to. People hope to cure their child. fwiw, Jenny's ds is close in age...(more) 1 hr 43 min ago
                            to mine, who was dxed at a similar time. I NEVER believed the anti-vax argument but I have come across other believers, including an MD with an ASD child who regressed after vax, over the years and no one cited JM as an authority.
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                            • np: but honestly, many have cited JM as a true advocate for autism. 1 hr 42 min ago
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                            • But your ds and hers are similar in age, whereas people with younger kids who came into the autism world after she became a huge celeb known for this, with books and media...(more) 1 hr 41 min ago
                              appearances, cite her as an authority.
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                              • or, my point is that no one I know who is anti-vax cited her as an authority. My ds is younger than JM's and my dr friend who is anti-vax has an asd 6 y/o so I do know people who...(more) 1 hr 32 min ago
                                could have drunk the JM cool-aid but DIDN'T.
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                    • She is a dangerous person. She is not some fun fluffy bunny who is only there for amusement. She has caused real harm to many children. 1 hr 54 min ago
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      • this, come on ybm 4 hr 14 min ago
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      • I am sorry her son has to deal with the fact that he was born to a fame-hungry idiot who doesn't believe in science. I really am. That's my main sympathy for him. 4 hr 14 min ago
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      • True, I am assuming he got bullied at a SN's camp. He attends a SN school, I don't think she'd just sign him up for MS camp. 4 hr 9 min ago
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      • I doubt there's any lack of compassion for her son being bullied on this forum.How she handle this issues/other issues regarding her son's Autism lacks a lot to be desired. 4 hr 7 min ago
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        • Exactly this. She has caused so much trouble and hurt so many people. These responses are not really about her son's situation, they are about her. 4 hr 5 min ago
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      • You can't really have an "opinion" about hard, cold scientific facts. 2 hr 26 min ago
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      • I'm not assuming she sent him to an appropriate camp, and I feel badly for her son. I just judge over how she uses him for press. 2 hr ago
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        • ^^oops I mean I'm not assuming she sent him to an inappropriate camp. What is happening to him could easily happen at any camp, SN or otherwise. But I still think she's using his...(more) 1 hr 50 min ago
          situation for exposure, now suddenly being open about his autism again, using it for discussion.
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    • Not really the point, but didn't they figure out that he had some genetic disorder rather than autism? 2 hr 21 min ago
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      • She says whatever she needs to to get media attention week to week. 2 hr 13 min ago
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      • np: no, she never said it was a genetic disorder. In fact, she claimed it was a celiac type situation. Truth is, he has autism, always has (and I have read her books) 2 hr 11 min ago
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        • She also wrote about how she was worried from a young age but then in a later book said that when he got a shot, she watched his soul disappear from his eyes. Like she thinks her...(more) 2 hr 10 min ago
          readers are idiots.
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          • Yup. I read the first book & she admitted signs were there early on (and classic signs too). Later on she calls the MMR the "autism shot". 2 hr 6 min ago
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            • remember the Indigo children shit she spouted for a while? 1 hr 47 min ago
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              • yes, before she got the diagnosis that gave her a mission...and then that diagnosis didn't apply anymore because she "healed" him...and he was going to a regular school...except...(more) 1 hr 46 min ago
                he was homeschooled with a stripper pole...except he was at a school for kids like him...except it was digestive issues...except now it's autism again.
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                • and don't forget he supposedly was "100% typically social" (her words, on TV< I saw it)...but now he doesn't pick up social cues because of his autism. I would respect her more ...(more) 1 hr 45 min ago
                  she just stayed with one story & stuck to it.
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    • Wait - she flat out said in the past year that he doesn't have autism & it was all digestive issues? OMG, so now when it suits her he has autism again? 2 hr 12 min ago
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    • Seriously? She hasn't a clue as to what to do? Come on! 2 hr 9 min ago
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      • He has been her meal ticket for years, she can always get mileage out of him. Isn't it horrible? 2 hr 7 min ago
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        • Even in this article/segment...seriously? You publicize this & ask for advice? You don't have any idea that you should teach your son to not necessarily do whatever anyone tells...(more) 2 hr 4 min ago
          you to do?
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          • OF COURSE she does, she is stupid but not that stupid - she wants attention, and she wants positive attention for being a poor sad mom with a poor sad kid, as opposed to a fired...(more) 2 hr 2 min ago
            TV host with dangerous views who is partially responsible for illness and death.
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            • and Whoopie's advice is even dumber...at 12? You invite the kids/parents over & chat the parents? Really? HOw about demanding the camp be more on top of the bullying, and then...(more) 1 hr 57 min ago
              teaching your son self esteem & standing up for himself, as you would any child.
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    • i would like to point out that jenny mccarthy to me looks alot like a high functioning asd or quirky adhd/add kid who flew under the radar and became a comedian for her outrageous...(more) 1 hr 58 min ago
      behavior that made people laugh. this is a well travelled path. she was probably not bullied because she learned to be audacious and a wild card not to be messed with by her peer group. her teachers probably called her odd. i think her lack of pragmatics is awkward but also a gift in that she says things that moms with strong pragmatics will not say and just puts it out there and opens it for discussion. i would almost argue that nature provides biodiversity in personality types to offer just this kind of challenge to establishment group think. in effect this provides stimulus to allow for cultural norms to change and adapt to changing times. case in point here is bullying, sports culture, male identity politics. she's poking at the hornets nest of establishment group think on male identity politics by talking about bullying.
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      • I would be more inclined to see her in this less negative way if she weren't a complete MORON about science and she really has done enormous harm to our public health system. She...(more) 1 hr 57 min ago
        has blood on her hands.
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        • ita. posted above that she has a big following & many stopped vaccinating due to her rhetoric. 1 hr 54 min ago
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          • www.jennymccarthybodycount.com/...(more) 1 hr 53 min ago
            www.jennymccarthybodycount.com/
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            • Sorry here it is linked...(more) 1 hr 53 min ago
              • I've seen this before. And speaking as someone who has read her books & seen her on talkshows, if you are not one to question things or want scientific proof, she is VERY...(more) 1 hr 51 min ago
                convincing esp as a fellow mother. I can see how many were drawn into her circle and generation rescue.
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                • It's very seductive. Who among us isn't desperate for answers? For one big narrative tying everything together? 1 hr 51 min ago
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                  • And it would be damn nice to truly have a REASON why your DC has ASD. Finally, you can point the finger at the cause. 1 hr 50 min ago
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        • there are complete morons writing about psudoscience on every media outlet for the last ten years, why don't you guys hold marissa mayer accountable for the avalanch of...(more) 1 hr 50 min ago
          crap psudo science journalism that is yahoo news. i honestly feel like there is a weird lord of the flies mob mentality that loves to attack the woman. not unlike what her son is experiencing.
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          • Who the hell reads Yahoo news though?? 1 hr 48 min ago
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            • many people still have yahoo as an email account and when they check their email the are pulled into these tabloid stories which then serve you ads. this is the only reason why...(more) 1 hr 44 min ago
              is still relevant as a business (to serve ads) and why it was seen as a big deal for mayer to leave google and take that post.
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              • I just do not think that the CEO of Yahoo is as responsible as a celebrity who has traded on her son's special needs for years now and who has appeared on talk shows spreading...(more) 1 hr 42 min ago
                total misinformation and lies.
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                • np: that's my issue. I'm ALL for a mother advocating for her child, and even advocating whatever programs (even alternative) they used that helped THEIR child. But when you start...(more) 1 hr 40 min ago
                  making false claims about vaccines, curing autism, recovery...that's where I think I draw the line & think she's done damage by spewing so much misinformation...which by the way she has spent the past few years distancing herself from - including her own organization Generation Rescue.
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                  • "I don't need science. My science is at home." 1 hr 39 min ago
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          • Oh brother. Her son is being bullied. We are judging a CELEBRITY who pushes false science on the public, did public harm and whose big claim to fame isn't science it's..most...(more) 1 hr 47 min ago
            playboy centerfolds. Seriously?
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          • i agree with you and i am alway surprised by the level of vitrol that is thrown at this woman on this board. what kind of person would ever buy her books?...(more) 1 hr 16 min ago
            I never bought her books. Who actually bought them? The view, yahoo news who served her stories in their headlines, network television executives who hired her knowing she was completely loopy. Why are they not held accountable for all of the unvaccinated kids?
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      • This is such a reach, I'm sorry. She does not seem like she has ASD at all, and she doesn't have issues with pragmatics at all. 1 hr 56 min ago
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      • What issues with pragmatics does she have? 1 hr 55 min ago
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      • Being dim and inarticulate are not issues with pragmatics. 1 hr 53 min ago
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  13. Special Needs Someone posted on here recently stating that CBT had helped with her 3yo. If this poster is on can you say more about the CBT program? Was this for treatment of anxiety? I have...(more) 6 hr 11 min ago (16 replies)
    a highly anxious 2 yo db and am trying to consider all tx options. Was surprised to hear that CBT would even be an option for a preschooler. tia
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    • 2yo seems really young for CBT. 6 hr 10 min ago
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      • OP: yeah that is what I thought too which is why I was surprised and wanted to learn more 6 hr 9 min ago
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      • Depends on whether the dc is on the spectrum or not. CBT for very young dc's is different than the typical CBT that a school aged dc or adult would do. There was a lot of training...(more) 5 hr 15 min ago
        On my part. But it worked.
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        • ^^and there are mother moms of preschoolers on here who went through CBT for similar issues. I've takes to them on numerous occasions. 5 hr 14 min ago
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    • I'm here. It was for separation anxiety and selective mutism. It was amazing. 5 hr 18 min ago
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      • ^psycj set up a gradual exposure plan for both, worked with me and dh and then tackled some of the selective mutism at dc's school 1x wk for about an hr. 5 hr 16 min ago
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    • We started prior to turning 3 for severe separation anxiety which eventually turned into selective mutism at 3.8yo. The psych told us that at 2yo he had the verbal ability to do...(more) 4 hr 40 min ago
      the therapy, no other issues though and it was very targeted.
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      • OP: Okay thanks. This sounds interesting. My db is not ASD but can present that way in unfamiliar settings due to severe social and separation anxiety. Would you mind telling...(more) 2 hr 31 min ago
        me the name of psych? Did you go through
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        • ^^ Sorry. Did you go through CPSE for this or did you pay privately? 2 hr 31 min ago
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          • Saw Nick Seivert, privately, not CPSE. 2 hr 14 min ago
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            • ^^he has since moved though 2 hr 14 min ago
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            • OP: Oh okay. Too bad because I know that he relocated. Do you know of anyone else who does this type of work? not sure where to look. TIA 2 hr 14 min ago
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              • OP: Are there others that were in his practice who are any good? 2 hr 13 min ago
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                • Sorry I can't be of much help but his website is online if you google. You could probably email him and ask him for a recommendation. Good luck! 2 hr 12 min ago
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                  • ^^and I would also get a complete CPSE evaluation if you haven't already done so just to make sure nothing else is going on. 2 hr 10 min ago
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                    • OP: Okay thanks! My son already had EI eval and dev ped said anxiety with significant sensory and emotion regulation issues. She did not think he was spectrum though 46 min ago
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  14. Special Needs Would you travel with a 2yo for ST from the 70s on 1st avenue to 94th and 5th ave for speech therapy? 2yo db has articulation issues. This ST was recommended by other posters on...(more) 6 hr 13 min ago (19 replies)
    this forum (lavinia pereira) but it will be quite a trek for me to get him there and back plus I am already taking him on the subway once per week to union square for play therapy. Feel bad about having to drag him all over the city for these therapies. Will also start 2x per week OT soon as well as additional play therapy through EI. WDYT? TIA
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    • Does the place where he is going to play or OT also offer speech? I'd see if you could back-to-back those sessions. 6 hr 12 min ago
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      • OP: I am not sure yet where he will be going for OT or play therapy. Meeting with EI in a couple of weeks to negotiate services and then need to locate service providers....(more) 6 hr 9 min ago
        People on this forum have recommended that I try to get providers through YAI.
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    • That is not that bad a trek all things considered - I have gone much farther with my dc over the years! I would at least try her out and see if she is really good with your ds and...(more) 6 hr 12 min ago
      see how onerous the trip is.
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      • OP: Yeah it is not so bad on its own. I guess my concern is that each of these appointments is going to eat into db's schedule and I'm concerned there won't be enough...(more) 6 hr 10 min ago
        unstructured down time for him. He is only 2 for goodness sake!
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        • It is a hard feeling to have these extra things in your dc's schedule, I agree. The other thing to think about is whether there might be an amazing all in the Union Square area so...(more) 6 hr 9 min ago
          so you could do speech the same day as the play therapy.
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          • ^that should say "amazing SLP" stupid autocorrect 6 hr 8 min ago
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          • OP: yeah this is an idea though I am concerned that to do 2 back to back appts might be a bit much for db at this point since engagement and socialization is a work in progress...(more) 6 hr 3 min ago
            andquite tiring for him. And if I break up the appts then it means having to just hang around the union square area which doesn't sound too great either.
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            • Well, there is a fantastic playground there but it will get old in the winter. 6 hr 2 min ago
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              • OP: Yeah it will get really cold in the winter :( 5 hr 58 min ago
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        • How often does he need to go? 6 hr 9 min ago
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          • OP: He prob could benefit from 2x per week ST but he did not qualify through EI so we will prob just start sending him 1x per week and see how he does with that since we are...(more) 6 hr 5 min ago
            paying privately and it is expensive (aside from it being a bit of a trek as well)
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    • We traveled from 94th & Columbus to 23rd between 1/2 for 2 years. Well worth the trip for a great therapist IMO 5 hr 39 min ago
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    • NO. Don't do it. We trekked about 20 blocks 3x/ week for therapies for dc (age 3). It was miserable - so much transit time for short appointments and dragging a baby along to...(more) 3 hr 39 min ago
      boot.
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      • Meant to add that you should look at what it does to nap schedule. That was the biggest issue for us - dc most needed socialization of school so it had to be after school and that...(more) 3 hr 17 min ago
        meant missed naps. And missed naps meant dc gained less from school and therapies in general. And was impossible at home.
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        • OP: Thanks. Yeah there is absolutely no way I will skip db's nap. He desperately needs his nap still. No therapy is worth him missing his sleep imo. I am really conflicted as...(more) 2 hr 27 min ago
          to whether to try this person out when it seems like it would be such a schlep. We'd prob only be going 1x per week but I'd also possibly be shlepping to mt sinai 3x per week for therapeutic nursery program, a sensory gym 2x wk, and a play therapy appt downtown 1x per week. It is feeling overwhelming even thinking about how I am going to do all of this. Seems like it will be hard on db
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          • Really don't do it. Kids need their sleep to learn. The therapuetic nursery will cover a lot of this other stuff and if your dc did not qualify for speech under EI I'd prioritize...(more) 2 hr 2 min ago
            other areas. You can also revisit EI in another 3 months and see if dc qualifies for speech at that point. Having a therapist come to your home is by far preferable. I'd even consider skipping sensory gym and getting pt/ot at home under EI. travel is just so hard on little ones in NYC, particularly once the weather is colder.
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    • Kim Kramer is on 79th and 2nd. I really liked her. They are so expensive so it's best to go with best fit over location. or see if you can find someone that comes to you if the...(more) 2 hr 30 min ago
      schedule is too much
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      • OP: Okay thanks for the recommendation. I really liked the person over the phone and I am sure she is good just not sure I want to commit to another appt that I know is going to...(more) 2 hr 27 min ago
        be a big shlep for us when I will be shlepping to many other appts during the week
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        • OP: I just left a message for kim kramer since I googled her and realized she is 2 blocks from me. Would make my life so much easier and it sounds like she is good. I saw that...(more) 2 hr 18 min ago
          somebody else posted about her being very $$$. Do you know if that is true? Any sense of her ballpark fee? Thanks for replying
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  15. Special Needs What is 505 services/process related to school eval? 7 hr 15 min ago (4 replies)
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  16. Special Needs DS has temper/impulsive issues in school. has become a hitter in school, but only when instigated- he is not a bully at all. one on one, at home, i see the temper, nto...(more) 17 hr 58 min ago (3 replies)
    hitting, and I really don't see that much out of the norm. I am going to take him to a child psych, I think, since obviously whatever I am doing is translating to him keeping his hands ot himself at school. anyhow, lie ki said, one on one he is a sweetheart, he looks like an angel. will a good child psych be able to pick up issues? he is 5 btw
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    • If the child psych is good and does a comprehensive consult, including a school evaluation, you should have some answers. GL. 17 hr 35 min ago
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      • you think i'm better off taking him to a child psych or a center like nyu child center? 17 hr 8 min ago
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        • NYU Child Study Center is supposed to be amazing. 3 hr 27 min ago
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  17. Special Needs Anyone at or going to send DC to Manhattan Star Academy (YAI)? We may be, and just looking to connect. . . 18 hr 10 min ago (2 replies)
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    • I know someone who did. Was just too expensive though and got CBST referral for this year. 8 hr 13 min ago
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      • what is the tuition? 6 hr 49 min ago
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  18. Special Needs My 10mo dd has recently been diagnosed with "low tone". We are taking steps to get OT. Can anyone provide guidance or share their experience with this diagnosis? 18 hr 44 min ago (9 replies)
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    • PT will help too. DC had it. Tired easily, poor core strength. In addition to PT and OT, we did swimming lessons and lots of play ground time 18 hr 43 min ago
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    • PT will help. DD started PT at 9mo. 18 hr 37 min ago
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      • May I ask what she wa able / not able to do at that point? Did she begin reachig her milestones? 18 hr 34 min ago
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        • I knew much earlier when she could not lift her head during tummy time but she was late to sit and did not do traditional crawl. PT was extremely...(more) 18 hr 28 min ago
          helpful, walked at 13mo. PT suggested OT & ST evals around 18mo and added those therapies. At that point, I saw a dev ped.
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          • Was there an underlying diagnosis? 18 hr 21 min ago
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    • Have you had a full EI eval? Low tone often affects motor skills and stamina, if oral low tone can affect speech. They only figure out the underlying cause sometimes, usually...(more) 9 hr 18 min ago
      doc will rule out some things and then you just do PT/OT/ST as necessary. Mine is 5 now. ITA re: swimming and playground time.
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      • just made the call today. very nervous about the whole thing 3 hr 22 min ago
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        • Don't panic. The therapies help if it's anything. 2 hr 53 min ago
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  19. Special Needs 6yo doesn't listen, intentionally defiant. What works?? 19 hr 13 min ago (9 replies)
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    • ^ and constantly whining and conplain 19 hr 12 min ago
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      • doesnt sound like there's been much discipline 19 hr 12 min ago
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        • np check your board stamp 19 hr 10 min ago
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        • I've done time outs, incentives, fun mom, now I am just angry scary mom 19 hr 9 min ago
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      • np: No answers here. DD turned 6 just 2 mos. ago, and it's like someone flipped a switch permanently to "whine." 19 hr 12 min ago
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    • This was the rough roughest age for us ... At that point son was getting therapy for speech, occupationa and physical but no diagnoses .. We thought he had oppositiona disorder...(more) 6 hr 37 min ago
      ..2 yrs later dx'd with aspergers
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    • Pcit 5 hr 13 min ago
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  20. Special Needs I'm tired if having to explain that my 2yo is delayed. It's just going to get worse. How do you deal? 19 hr 16 min ago (5 replies)
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    • I did a lot of smiling and nodding 19 hr 9 min ago
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      • Smiling and nodding is a very effective approach to many things in life. My grandma taught me that. 19 hr 6 min ago
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    • to whom are you explaining it, and why do you feel the need? i'm not saying you should or shouldn't, but it helps to understand why you are doing it -- it feels different if you...(more) 19 hr 7 min ago
      are trying to educate than if you are trying to justify, for example.
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    • Just get your line down and say it in a matter of fact way so that it doesn't open the door for a conversation. "She has develomental delays and is getting therapy." Don't sound...(more) 7 hr 7 min ago
      sad, hesitant, or apologetic because then it makes people feel like they have to say something back.
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      • ITA with this. BRISK is the key word. Be brisk and businesslike with a manner that says "I got this, no need to worry about us" and people will take their cue from you. 6 hr 41 min ago
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  21. Special Needs Well, all 5 people in my house are officially ADD. I am having a really hard time. 19 hr 25 min ago (26 replies)
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    • are you one of the 5? we are 3 out of 4 here, and I'm the outlier. 19 hr 24 min ago
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      • No, I was dx'd at 13....have been off meds for 2 yrs and in those 2 yrs my youngest 2 boys have now been dx'd and things are just insane in my house and I'm constantly being told...(more) 19 hr 21 min ago
        to be more calm, more consistent and it's impossible for me! I'm making everything worse for my kids, feeling so bad.
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        • ugh, that's really hard. you need someone to come in and make some scaffolding for your household. all the routines, etc that i (try to) set would be really challenging for my dh...(more) 19 hr 20 min ago
          w/adhd to come up with.
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        • It's impossible for everyone. 19 hr 20 min ago
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          • np itd. i can mostly be calm and consistent. not 100%, but far more often than not. 19 hr 20 min ago
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            • Op, and I can't I am quick to flip out and cannot hold a routine no matter how hard I try to 19 hr 19 min ago
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            • I'm talking to op about the "perfect organization" no one is perfect in an impossible situation and expecting it is setting yourself up for failure 19 hr 14 min ago
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              • Fwiw I certainly don't expect perfection of myself, not even close, close isn't even an option, I'm talking about getting through the days 19 hr 12 min ago
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                • Well you got through yesterday, right? What is it you want to get through? 19 hr 11 min ago
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          • Oh I know, I just wish SO MUCH that this wasn't an issue for me 19 hr 19 min ago
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            • ^maybe I should go back on meds 19 hr 17 min ago
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    • 3 of 4 here and I'm the one 19 hr 23 min ago
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      • It's so hard but It's got to be easier to not have it as the mom, I'm such a bad example for dcs. Feeling so bad about myself 19 hr 20 min ago
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        • Ah good lord it's not easy so stop beating yourself up. I find that if I even try to put a label on a godamn box someone is swinging from the shower rod before the marker has even...(more) 19 hr 17 min ago
          Touched the paper.
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          • It's nice that you can sympathize :) 19 hr 16 min ago
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          • wtf could make a system under such chaotic and demanding needs! Godamn it all 19 hr 16 min ago
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    • 2/4 here 19 hr 20 min ago
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    • at least you know how to handle it? and you're all on the same speed? 19 hr 19 min ago
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      • It sadly doesn't work like this, you'd think I'd be more understanding but I'm the opposite and quick to flip out 19 hr 18 min ago
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        • well then that sucks 19 hr 17 min ago
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          • It really does and it makes me think I'm hurting dcs by not going back on my meds, but I really don't want to 19 hr 17 min ago
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            • if it helps, we all have problems dealing with our kids, with patience, with frustration. add or no. we all have personality or mental or chemical shit that we have to get...(more) 19 hr 14 min ago
              through. Sometimes I wish I weren't such an introvert and I don't give my kids enough active attention. I know it's not the same, but sometimes it helps to remember that there are plenty of challenges to go around
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              • Thanks but I'm sorry I do not think being an introvert compares to 3 boys with ADHD, I know everyone has struggles, truly I do. 19 hr 11 min ago
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            • Why did you stop meds? 19 hr 13 min ago
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              • Moved and never got around to finding a new dr 19 hr 10 min ago
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                • Ha :) sorry! Sounds familiar. Meds can help but I have issues with hyper focusing on meds so that's an issue for me. I get so angry if they don't let me finish my manic floor...(more) 19 hr 8 min ago
                  washing.
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  22. Special Needs I have one ds with ASD and one NT. They are 6 and 9 and I am 38. Why can't I let go of the desire for another child. It is constantly on my mind and i...(more) 19 hr 36 min ago (8 replies)
    know everyone will think i am crazy.
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    • who cares what anyone else thinks? is it right for you & your family? 19 hr 35 min ago
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      • I guess I am worried about the finances and the possibility of another child with a disability but not enough 19 hr 32 min ago
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        • ah, well that's another story. 19 hr 25 min ago
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    • why don't you do it? 19 hr 24 min ago
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      • dh and i keep going back and forth. When one says let's go for it the other says I'm not sure meanwhile time is passing by. 19 hr 22 min ago
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    • I could have written this! I've posted here several times about exactly this problem. Right now I'm at peace with two. I really love being with them now, they are interesting...(more) 17 hr 5 min ago
      people. As much as a sweet baby makes me melt, I would not want to pull away from these two sons to care for a baby/toddler/little kid. ASD DS was so much work. And he was my first and I was a energetic 33 year old. I'm 39 and tired and have my heart, mind and hands full. I let myself daydream (it's healthy) but the dream evaporates when someone needs me.
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      • Yearning for a dd mom from last week? How are you doing? 16 hr 55 min ago
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        • Indeed. I'm much better this week. I'm taking to heart all of the comments (here and IRL) that a relationship with a child is not as dictated by gender as I assumed. Basically...(more) 5 hr 30 min ago
          that my 'writing off' having a close relationship with my sons because they are male is completely wrong-headed. Of course I can have a close relationship with my sons - as children and (God wiling) adults. There are huge advantages to having two children close in age now that we are out of the endlessly laborious baby/toddler years. We can really DO things. Outings, trips, projects... My sons have a close bond with one another (they are on a never-ending playdate) which is gratifying to watch. Etc. Etc. I'm warming to taking the tough days in stride and warming to the idea of simply enjoying it when things go well. They go well more and more as a function of time. I think we're two and very much done.
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  23. Special Needs And just when I thought I could focus my anxieties on work and men, there is a phone call and we are back to school/camp problems. Sigh... 19 hr 51 min ago (3 replies)
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    • Ditto X2 19 hr 49 min ago
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    • :( it never ends. sorry. 19 hr 41 min ago
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    • Whack-a-mole :( I'm sorry 19 hr 41 min ago
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  24. Special Needs I was out today and saw a group of kids from this camp, I wanted to share because I was really impressed by the staff and the children. The qualifications for the program are...(more) 20 hr 42 min ago (0 replies)
    more needs based, one has to be at an underperforming public but if you qualify, you get 5 wks of camp which includes tutoring and year round tutoring on the weekends (if you have an IEP). I wanted to share in case anyone is interested or knows of anyone, to if you are interested in just volunteering: http://www.goprojectnyc.org/
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  25. Special Needs Floortime - does it really work? 21 hr 59 min ago (9 replies)
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    • Honestly, any intervention that teaches reciprocal play is helpful. 21 hr 42 min ago
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      • ^^ if your child's issues are joint-attention then Floortime is good. If it's more than this, than you may want more ABA/VBA 21 hr 36 min ago
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    • Absolutely. If the child in question is a good candidate, and the therapist is well-trained, it is highly effective. 21 hr 39 min ago
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    • Yes! It helped my dc immensely. However, we took dc to see stanley Greenspan and went to him 3 to 4 times a year and he worked with dh and I so that we were constantly doing...(more) 21 hr 10 min ago
      floor time with dc, not just with the therapists. I think it's really important for the parents to keep it going and to make that they way you interact with your dc for the bestresults
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      • We are working with a therapist who is training/teaching DH & myself. What benefits did you see for your DC? Mine is very engaged already but lacks imaginative play, can't sustain...(more) 20 hr 31 min ago
        play, and can be very self-directed with play too.
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        • Hard to remember everything because dc is now 16 and he was 3 when we started. I do remember that his play was rigid and although he was pretty engaged he needed a lot of work...(more) 18 hr 47 min ago
          on reciprocal conversation. Also his level of engagement varied. It helped with all of those areas as well as eye contact and many other areas that I am not recalling right now. I am now spending the week looking at colleges with ds who is incredibly creative, wants to be a screen writer and he also acts and does improv. So I would say that floor time really opened up his whole world.
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          • that's amazing! What else have you done over the years...he's obviously a major success story!! 1 hr 43 min ago
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            • Yes, for sure he is however I should say that he was never considered on the spectrum. He did have regulation issues and pragmatic language issues as a young child and was later...(more) 44 min ago
              dxed with ADHD, anxiety disorder and aspects of nvld. So he had speech therapy and ot, and counseling and moved to a sn school in 2nd grade. Went back to ms in 9th grade. We practiced floor time until he was about 12. We were no longer sitting on the floor and playing but did the higher levels of floor time and it became the natural way to relate and talk to him.
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    • it was great for my kid early on, just for playing. then she sort of could build on what we did. 17 hr 27 min ago
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