Special Needs

  1. Special Needs Is Mary McDowell "straight" ld- my dc has some other issues (ADHD, anxiety, expressive/receptive) - 29 min ago (0 replies)
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  2. Special Needs Can anyone tell me if parkside is closed this week? Our downpayment is due today, and I don't want to lose our slot. 48 min ago (2 replies)
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  3. Special Needs DS 4 has low tone and some sensory issues -- qualified for CPSE for OT, but not PT or speech, which we were also hoping for. Took him to ENT and audiologist, who says he has...(more) 1 hr 47 min ago (4 replies)
    hearing loss due to fluid build-up, which is probably causing his speech pronunciation/intonation issues. Is there any reason NOT to have tubes put in as the doctor is suggesting? It just surprised me because I think of tubes being for kids with chronic ear infections, which he's really never gotten.
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    • Put the tubes in! the reason some get chronic ear infections is becuase the sinuses drain down and bacteria builds. 1 hr 45 min ago
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    • its an easy surgery, and while it bothers me when it is suggested for less than very chronic ear infections, if your child is having an issue that is impacting his everyday life...(more) 1 hr 45 min ago
      and this could help, i would probably do it. if you think the ent you saw is just a cutter, get a second opinion
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    • Tubes are an indication for conductive hearing loss 1 hr 42 min ago
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    • op: thanks. I think I just need to research the doctor a bit more and make sure he doesn't seem to push for surgery overly much. 1 hr 26 min ago
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  4. Special Needs After considerable work, Ive decided to ask for mainstream with SEIT for HFA at her CPSE meeting. Im stressed that the approver may not agree...tips to best represent his case?...(more) 3 hr 8 min ago (11 replies)
    Those of you that were successful getting this, what worked for you? TIA
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    • I did this with one of my kids. They will probably ask you why you aren't considering center based programs. 3 hr ago
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      • I have definitely looked into it..had a dev pedi look at her as well..consensus is MS is best and her MS preschool agrees 19 min ago
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    • we got this because ds was not accepted at any center-based programs. He was too impulsive for the larger integrated setting and too high-functioning for the 12:1:2s. It was the...(more) 2 hr 35 min ago
      only logical solution and worked well for us. We put him in a small MS class of 12 and had his SEIT for 20 hours/week
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    • IME, they will agree to this if there is not a spot at an appropriate CPSE program. My (not dxed then, but HFA) kid was offered a placement in a center-based school where he was...(more) 1 hr 41 min ago
      literally the only verbal child, and we questioned how he was going to be working on social skills in that situation. They ponied up the SEIT for ms preschool.
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      • Will they know if she has a seat at a CPSE program? 18 min ago
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        • np; they can call around and ask for a spot 7 min ago
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    • I tried and failed with this. If your dc has enough services (speech, O/T) they will push for CPSE preschool, possibly integrated setting....(more) 1 hr 32 min ago
      In retrospect we ended up with SEIT in ms preschool for a year (due to lack of space) and it would have been a lot better in a CPSE school. IN the end they will make a recommendation based on the level of services your dc requires. I would recommend not asking for too many SEIT hours if youa re really committed. More than 10 and they will say the setting is not appropriate.
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      • sorry - as in if your dc needs more than 10 hours of SEIT per week to function in ms then dc needs a better setting. Our experience was that our administrator had decided what to...(more) 1 hr 31 min ago
        give on all fronts before we even walked in the door.
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      • More... i was so unclear we got cpse preschool but then partial services of speech, o/t and seit in ms setting since no spots available in cpse when we needed it 1 hr 26 min ago
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    • Our administrator was of no help to us. Our son has OT/PT/ST and SEIT for 10 hours and we were so blind to the depth of our son's issues that we asked for a mainstream setting...(more) 1 hr 23 min ago
      and she just said- ok- if that's what you want- never discussing withus teh merits of a center-based program or why they thought thsi woudl be better for them. She gave no input in our child meeting. So some may just give in without question.
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    • Can your dc function without the SEIT? Is that preschool okay with this? You may just get 10 hours. 5 min ago
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  5. Special Needs Reality check: Ds is having a slumber party for his birthday. He has only a few friends, but he has...(more) 5 hr 39 min ago (29 replies)
    friends. We invited two neighborhood kids, who ds is friendly with but doesn't play with a lot. We are friends with the parents. Df emailed back that the kids will come for the evening festivities but don't want to spend the night. For some reason, this is really upsetting me. I'm wondering if there is some social issue I am not aware of here and if I need to call the mom to find out. Talk me down. I think I am 100% overreacting.
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    • They might be scared 5 hr 38 min ago
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      • They are 9 and 12. Ds is pretty friendly with the 9 yo (at least according to my ds). 5 hr 37 min ago
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    • If they aren't at your house much they're probably nervous to spend the night. Sleepovers are intimidating. 5 hr 38 min ago
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    • Not every kid sleeps out- do NOT ask 5 hr 37 min ago
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      • Ok. The only other thing I would add is that the mom said in her email to me that she doesn't know why they won't spend the night. THat's what has me all out of sorts and looking...(more) 5 hr 36 min ago
        for a meaning between the lines.
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        • Leave it alone 5 hr 36 min ago
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          • ok. I just fret so much about my ds' social skills it's hard not to frame everything through that lens. I feel ridiculous but I literally have a pit in my stomach about this! 5 hr 35 min ago
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        • So you'll pay attention that night--see if everything is OK. not everything is a detective novel. 5 hr 35 min ago
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        • She's unhappy and embarrassed that her kids aren't socially appropriate. Sound familiar? :) 5 hr 35 min ago
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          • lol. story of my life. 5 hr 33 min ago
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            • NT parents have these feelings too (and no SN to explain it!). She is a kindred spirit to you, I am being serious. As SN parents it is so easy to think that we are aurrounded by...(more) 5 hr 32 min ago
              adults and children who are ferociously social and outgoing and never struggle...and it's just not true! Hope this thread helps you feel better. It has NOTHING to do with you or your ds.
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              • TY. This thread does help. I really struggle sometime because of my anxiety about ds' future and of course social skills are a huge part of that. I am much calmer than I used to...(more) 5 hr 30 min ago
                be but I still worry -- and this particular situation has definitely triggered something in me. Thank goodness for the SN board
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        • she probably meant it flippantly. don't pursue. 5 hr 27 min ago
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    • parents do that a lot these days. there was just a post about this recently. leave kids till 11pm and then pick up. kids/parents aren't ready for slumber parties. how old is...(more) 5 hr 37 min ago
      your ds?
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      • my ds is 11. the neighborhood kids are 9 and 12. 5 hr 36 min ago
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      • Yes, it seems like parents are issue 5 hr 35 min ago
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    • You are overreacting. I hated staying overnight at places-loved going home late after a party. Might be these kids--might be that they feel shy around other kids they do not...(more) 5 hr 36 min ago
      know well. It is not bout you.
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    • My dc doesn't allow sleepovers for her dcs because she feels nobody sleeps well 5 hr 36 min ago
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    • MANY kids do that when THEY are nervous about sleeping over - has nothing whatsoever to do with you or your dc!! Check the toddler board, you will see many posts from parents...(more) 5 hr 35 min ago
      whose kids are afraid to spend the night and they end up taking the kids out before bedtime.
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    • You need to step back. A lot of dc don't like sleepovers, especially if they aren't close friends. 5 hr 35 min ago
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    • My dd 5 hr 29 min ago
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    • My dd is 8.5yo and wears pull-ups. She declines most sleepovers. My 12yo loves having people here but only sleeps at people's homes he knows well. You'd never know he was such a...(more) 5 hr 28 min ago
      chicken.
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    • lots of kids don't like to sleepover. some still wet the bed occaisionally 5 hr 28 min ago
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    • Some parents are helicopter and don't allow it. 5 hr 25 min ago
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      • ^my friend just started allowing her 12yo dd and it's only at her bf's house. 5 hr 24 min ago
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    • This is very normal. My NT child had a sleepover and 2 of the kids didn't want to stay. Some kids get very nervous away from home. 4 hr 25 min ago
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    • FWIW, I'm NT and didn't like to do sleepovers - even when I was 12. I would not put the mom on the spot. 4 hr 16 min ago
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    • If he doesn't play with them a lot, then they may not be comfortable staying over. That is understandable. 4 hr 15 min ago
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    • We tried to have a sleepover party for 10 yo DS this year, and of the 4 kids we invited, 3 declined because they still had accidents/wet the bed. I was really surprised, and we...(more) 2 hr 5 min ago
      ended up just having kids over for dinner and a late movie.
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  6. Special Needs Longshot: anyone on that convinced their insurance company to follow their state mandate for autism coverage? 7 hr 5 min ago (21 replies)
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    • coverage for what 7 hr 3 min ago
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      • not limit O/T & P/T coverage 7 hr 2 min ago
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        • Does your state law actually require that? 6 hr 54 min ago
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          • Yes. The law states, "A health insured plan issued or renewed on or after April 1, 2009, shall provide coverage to an eligible individual for... treatment of autism spectrum...(more) 6 hr 29 min ago
            disorder through speech therapy, occupational therapy, physical therapy, and applied behavioral analysis." Coverage for services described in subsection (3) shall be limited to $36,000 annually and may not exceed $200,000 in total lifetime benefits. Coverage may not be denied on the basis that provided services are habilitative in nature." Our insurance company is claiming that O/T & P/T are medical services that fall under Short-term Rehab therapy and, therefore, limited to 30 visits per year up to $36,000. Behavioral/Mental Health Services, however, do not have session limits.
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    • They don't have a choice if it's clear that it's required. 7 hr 2 min ago
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      • OP: Our state has a two page statute. DS meets all criteria. There's one clause that looks like the loophole insurance co can use that reads, "Coverage may be subject to other...(more) 6 hr 58 min ago
        general exclusions and limitations of the insurer's policy or plan, including but not limited to, coordination of benefits, participating provider requirements,..." Why have a state mandate if there's a loophole and it can't be reinforced?
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        • That doesn't seem to say they can get out of coverage, only that if there are two policies they don't have to pay the full amount and your provider can't be forced to take your...(more) 6 hr 55 min ago
          insurance.
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        • I was able to convince my husband's company to provide ABA benefits, but not to get rid of session limits on OT & PT. This is incredibly difficult to do. It is the next thing...(more) 6 hr 53 min ago
          that lobbyists are trying to tackle in private insurance reform. It will take time though.
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          • My employer chooses not to cover Autism treatments at all. I would love to be able to have OT, PT & Speech and especially ABA. EVen though the state mandates it, employers have...(more) 6 hr 20 min ago
            private plans and a choose to opt out. Learned that the hard way
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            • The only way this changes is if someone high enough up in the company has a kid with autism. Then all of a sudden it's a big outrage and things start changing. 6 hr 14 min ago
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              • exactly. I'm actively working with our HR to reassess this. They are doing an in-depth review of all benefits this year with a focus on what is and is not covered by insurance....(more) 6 hr 9 min ago
                They have said that ASD is a key piece they will be looking at, so fingers crossed.
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                • Good for you and good luck! Let us know how it goes. As the economy improves, this is a way for companies to hold on to talent and they know this. 6 hr 4 min ago
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                  • That is the point that I'm pushing. I work for a large university. Overall, benefits are phenomenal, but this is one area that is sorely lacking. 6 hr 2 min ago
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    • We never got coverage because dh's company's hq was in another state. Sucked. It was a constant battle to get coverage. 6 hr 53 min ago
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      • np: ours is in NYS but is self-insured so they don't have to cover a damn thing. And they don't. 6 hr 31 min ago
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        • OP: That sucks, sorry. My plan is a fully-insured HMO plan, but they are still fighting me. Next step is to appeal. 6 hr 28 min ago
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    • My dh works in NYC but his company is based in CT. Cigna initially refused to cover ABA, OT, and SLP, but they relented when the HR rep in dh's company pushed back. They cover 4 hr 39 min ago
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      • 20 hours of ABA/week and 60 sessions per year of SLP and OT each. 4 hr 39 min ago
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        • And when they did agree to pay for the therapy, Cigna also tried to say we could only use therapists that were in-network, except there were none for ABA. HR also pushed back and...(more) 4 hr 36 min ago
          they reimburse us for our own providers after I submit receipts. Reimbursement is slow (like three months later), but they do pay.
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        • that is amazing! 4 hr 36 min ago
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          • Insurance companies will pay if they are pushed hard enough by HR. I know three other families who receive a similiar rate of reimbursement. 4 hr 32 min ago
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  7. Special Needs I find religion so dumb. Just ridiculous. Had to get that off my chest. 13 hr 7 min ago (2 replies)
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    • Oops meant for toddler of course 13 hr 7 min ago
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    • So sorry for you. 13 hr 6 min ago
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  8. Special Needs Does your dc just completely fall apart emotionally if they're the slightest bit hungry? My ADHD dd does and lately it's getting so that if I don't feed her every 2 hours she...(more) 13 hr 25 min ago (5 replies)
    goes nuts. Could it be a growth spurt or something?
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    • my NT 9yo ds does. If he hasn't eaten, heaven help us all. Way back in preschool, the wise director observed him having consistent time-to-go-home meltdowns, and suggested that I...(more) 13 hr 18 min ago
      have a bagel in my pocket when I walked through the door, and put it in his hand immediately. Made a world of diff.
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      • Yes, I greet her at school pickup with copious snacks. It's a bit tough because i want to wean her brother off so many snacks but of course he wants whatever she's having. 13 hr 15 min ago
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        • Protien or fruit. Doesn't have to be crap 11 hr 49 min ago
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    • Yes, both my dc are like this nt and sn and so am I. The key is to have protein at every meal and snacking to eat every few hours small meals 8 hr 19 min ago
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    • Yes. We are all grazers in my house. 1 hr 40 min ago
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  9. Special Needs Did anyone watch the Ken Burns PBS documentary about the sn school in Vermont where the kids memorize and recite the Gettysburg Address? Powerful stuff! 16 hr 12 min ago (13 replies)
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    • loved it! Actually looking at boarding schools, this is one of them. 16 hr 8 min ago
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      • Burns was on Travis Smiley last night plugging the doc, but he was so sincere of his admiration for these kids, their challenges, their strengths, and their enjoyment of just...(more) 16 hr 6 min ago
        being boys
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        • he is terriffic! 16 hr 5 min ago
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      • was weeping, happy mess. so many of these kids were dead ringers for dc's friends and classmates. i have such admiration for them all 16 hr 5 min ago
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      • have you seen any good co-ed LD boarding schools? we are looking for a summer program. 13 hr 26 min ago
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        • We have not begun our real search yet, sorry. 7 hr 55 min ago
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        • I have a friend whose dc goes to Camp Dunnabeck at Kildonan and likes it. 6 hr 30 min ago
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          • Would love to send dc to Camp Dunnabeck, but it would require winning the lottery :) 5 hr 18 min ago
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          • how old? thinking os sending dd but she is a teen and afraid it is all little kids. 4 hr 44 min ago
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            • Started as a 10yo and has gone each summer thereafter. 4 hr 29 min ago
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    • I missed this. I am assuming this is the same thing, but there was a competition at Winston to so this and the winner went to a school in Vermont with a teacher. Not sure of all...(more) 16 hr ago
      The details because dc didn't do it. I imagine it is the same thing.
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  10. Special Needs Anyone on familiar with the transoptions.org bicycle riding classes in nj?...(more) 17 hr 2 min ago (2 replies)
    anxious 8 y/o dd is a very nervous rider, finally agreed to have the training wheels off but she doesn't enjoy riding b/c she refuses to practice. wondering if anyone has experience with these classes. thanks.
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    • No but keep me posted-12'yos hate it 17 hr 2 min ago
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    • We used icanbike. 16 hr 43 min ago
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  11. Special Needs If your dc takes ADHD meds, do you think it has helped his/her behavior and impulse control when off the meds?...(more) 17 hr 10 min ago (6 replies)
    I am increasingly thinking that ds is more aware of his behavior/ actions even when off meds because he is so much more controlled/calm when he is on the drugs. Maybe it's maturity, too -- he just turned 11.
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    • 100% yes and mine is only 7. its not perfect but so much better 17 hr 9 min ago
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    • makes sense. slows them down and gives them an opportunity to observe interractions, socialization, rules... sure 17 hr 8 min ago
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    • Maybe he has matured. I think this country is way ott with ADHD dx and medicate way too young. I am a teacher and detests he way this is all going now and seems that every week...(more) 16 hr 50 min ago
      another kid gets evaluated. I adapt some of my lessons to appeal to the boys sometimes as I think they have a genuinely harder time just to sit and focus when the subject is not that appealing but I notice a huge improvement from 2 to 3 rd grade. I teach a 2/3 grade
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      • well, my 5th grader has the mostly inattentive type so he wasn't diagnosed/medicated until late last year. My younger ds, who is in 2nd grade, is very impuslive, day-dreamy, etc....(more) 16 hr 31 min ago
        and I hope you are right re: the improvement in 3rd grade. FWIW, I think the 2nd grader seems pretty normal -- but it's still a lot of work to corral him in the classroom.
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      • It's incredibly refreshing to hear a teacher speak this way. Thank you. Most of the reason parents feel compelled to medicate is because of pressure from schools. 6 hr 24 min ago
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    • mine has awareness when i ask him to consider it but his impulsivity and hyperactivity are SO severe off meds, it's difficult to get an answer! 15 hr 57 min ago
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  12. Special Needs United States of Autism: thoughts? 17 hr 14 min ago (2 replies)
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    • for what? 17 hr 14 min ago
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      • critique of the film? 17 hr 13 min ago
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  13. Special Needs Very good friend asked if SN child will "get better". Would you correct? 17 hr 17 min ago (11 replies)
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    • Did she mean it as improve or recover? 17 hr 16 min ago
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      • recover 17 hr 16 min ago
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        • Yes, I probably would 17 hr 15 min ago
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    • if it's a very good friend, I would correct in a nice way. I'm guessing she did not mean this unkindly. 17 hr 15 min ago
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    • of course i would - a small service we can offer our children is to increase people's understanding of what SN means 17 hr 15 min ago
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    • Sorry but I take that as will your child improve. Why do you assume she means recover? 17 hr 12 min ago
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    • I would say gently and nicely that dc isn't sick so he won't get better, but that therapy is helping him make all kinds of improvements. 17 hr 10 min ago
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    • Why would you correct? Just educate or inform. 16 hr 40 min ago
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    • I would just say, "with therapy, we hope he will progress." I wouldn't get into a tizz about the friend's exact choice of words because before ds was dx'd i...(more) 16 hr 10 min ago
      I may not have used the most appropriate words either.
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    • People don't make the best word choices, and people who are outside of a given world don't realize all the nuances within that world. You can't parse it too finely. Just assume...(more) 16 hr 3 min ago
      she meant if there are expected changes/prognosis.
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  14. Special Needs Summit School vs Mainstream with a Para vs Gaynor? 19 hr 21 min ago (21 replies)
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    • Summit 19 hr 21 min ago
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    • friend has a dd at Summit. Talk to me 19 hr 20 min ago
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      • What can you add? 19 hr 10 min ago
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        • depends on your dd's issues, I guess. My friend's dd wasn't going to class and was ADHD with depression 19 hr 9 min ago
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          • Was Summit helpful? 19 hr 6 min ago
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    • Need to know more about the profile and presentation, but given those two options I would not go for mainstream with para. 19 hr 10 min ago
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    • where do you live? if one is nearby, that can make a big difference. Also, does one fit your child's "profile" better? 19 hr 6 min ago
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    • Aren't profiles very different --Gaynor v. Summit? 18 hr 45 min ago
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      • The academics are great at Ganor--my little one is learning and pushed to learn but know nothing about Summit. It must be pricey to foot a para--I do not think DOE will provide...(more) 17 hr 45 min ago
        this at unfunded school.
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        • Oh sorry I see ms with para. How is the child doing socially, academically and emotionally. Gaynor expects pretty solid classroom behavior especially as kids get older. 17 hr 43 min ago
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    • I would do MS with a para if that would work. We are at an sn school and if there were any way for dc to be in MS I would do that. I think dc will never "get out" of this...(more) 17 hr 42 min ago
      atmosphere and I don't buy that the skills translate later to the "real world."
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      • ditto 17 hr 27 min ago
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      • My dc is at Summit and if OP's dc is anything like mine then the skills her dc needs are not ones that a para is going to teach. The concentration on emotional health, social...(more) 17 hr 11 min ago
        skills, and exec functioning, for instance, are things my dc badly needs in order to become any kind of success in the real world.
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        • dd is social but immature, very high iq and tested above grade level across the board...(more) 15 hr 7 min ago
          However, social and emotional is really important. We are yet to apply to gaynor and Summit
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          • i'd be wary about paras -- it's a crapshoot if you get a good one and then if you get to keep one that makes a connection 15 hr 5 min ago
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          • No language based ld's then? I would not do Gaynor, if that is the case. 3 hr 35 min ago
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    • I agree that para is a hit or miss but Summit is a long commute and it would be hard to socialize since all the kids come from far away. Gaynor seems so elitist and arrogant....(more) 5 hr 24 min ago
      Which school will have the best academics? Btw from the special ed schools which one is the most academic? Is summit similar to West End Day or more restrictive?
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      • If OP is in manhattan there are many kids going to Summit from there. Everyone at SN schools comes in from all over the place so if you go you get used to having friends all over....(more) 4 hr 27 min ago
        We have always worked to set up social opportunities for dc throughout Manhattan and in Brooklyn and Queens.
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      • We are at Gaynor and I can tell you it is a warm and nuturing environment. Nothing elitist or arrogant about the school. Yes, they have many very wealthy and some celebrity...(more) 3 hr 32 min ago
        parents, but so what? I'm a single mom with a very modest income and I LOVE, LOVE this school!
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    • any bad experiences at Summit or Gaynor? Do they differentiate learning well? Do they councel out much? 3 hr 8 min ago
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      • I do not know where you heard gaynor is elitist--not true. We are of modest means and everyone is terrific. My child is reading, writing, doing grat at math and emotionally and...(more) 1 hr 8 min ago
        socially doing well too. The parents, administration and staff are warm to all.
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  15. Special Needs Any suggestions for camps in NY that are "mainstream" but sn friendly-- small/assist with facilitating play, etc. 20 hr 4 min ago (6 replies)
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    • Yomi (92nd st uh 20 hr 1 min ago
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    • Nature Place in Chestnut Ridge 19 hr 59 min ago
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    • for what age? 19 hr 41 min ago
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      • I am also sending my child to Yomi this summer. 19 hr 38 min ago
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      • 7 year old boy 3 hr 8 min ago
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  16. Special Needs Is there a stigma having an IEP? 21 hr 54 min ago (2 replies)
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    • I used to think there was, but I am learning you can have an IEP or a 504 for anything and it is just a language of paperwork needed to navigate the school system. No stigma in...(more) 21 hr 52 min ago
      that.
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    • no 6 hr 10 min ago
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  17. Special Needs Blah, kindertargen ds suspended from school today for hitting a teacher. they continue to say he doesn't have special needs. his OT has diagnosed sensory issues, doesnt think...(more) 23 hr 21 min ago (40 replies)
    he needs NT, or meds. what could be going on with him? he's been in OT for a year, and I would say he's getting worse, certainly at school.
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    • you need a full on eval 23 hr 20 min ago
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      • of what? by whom? 23 hr 18 min ago
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        • of your child, but a neuropsych. You have posted about your ds before. He needs a full exam 23 hr 17 min ago
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          • neuropsych did an intake and said NT was inappropriate for him 23 hr 16 min ago
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          • I don't think this is the Staten Island mom who posted after her dc hit a teacher... 23 hr 9 min ago
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            • op: no that's not me 23 hr 9 min ago
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              • What does it mean that he doesn't need NT? To me NT means neurotypical (not SN) but I think you mean something else by that? 23 hr 8 min ago
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                • we saw a neuropsych, she didn't think neuropsych testing at this point was appropriate or would uncover anything of use. 23 hr 7 min ago
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                  • That doesn't sound like the right neuropsych then, but in any case, the picture has changed. Hitting a teacher and being suspended means he IS struggling in school - now you need...(more) 23 hr 5 min ago
                    to find out why.
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                    • I couldn't imagine a neuropsych saying a child wouldn't need testing. 22 hr 53 min ago
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                      • In some ways I guess you could say that makes the person more ethical but I don't like it either. Testing is just TESTING, it means that you aren't asking them to tell you for...(more) 22 hr 51 min ago
                        sure that your child has SN, but that you want a full and comprehensive picture of what's going on, and OP, at this point, something is going on.
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                        • More ethical? Sounds like someone who a) either doesn't like to do testing or b) doesn't know what they are doing. 22 hr 49 min ago
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                          • Right, I am stretching. I was thinking that someone who turned down a kid could be seen as someone not wanting to take the money of a family whose kid was obviously not in need of...(more) 22 hr 45 min ago
                            evaluation - but getting turned down by a neuropsych and then later having your kid hit a teacher means that the neuropsych missed the mark widely.
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                          • op: i think she & others recognize we are in a very precarious financial situation and didn't want to recommend something that wasn't absolutely necessary. based on what we've...(more) 22 hr 45 min ago
                            told her (which include a dozen other instances similar to this) she didn't think she'd uncover anything that would help us figure out what's going on.
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                            • Hold on. Your ds has had a dozen instances of inappropriate behavior in the school setting, including aggression, and the neuropsych told you that your ds doesn't have any...(more) 22 hr 42 min ago
                              learning needs that call for an eval?
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                            • Ugh. You need someone a whole lot better than this. Are you in NYC? 22 hr 41 min ago
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                              • no. and we've talked with 4 different child dev specialist who have said the same thing. it doesn't ring tru to me either, based on what i've read here, but they say that since...(more) 22 hr 36 min ago
                                he does so well academically at school, that neuro testing is unlikely to reveal anything.
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                                • So, do neurpychs only do educational testing? Maybe you need a behavioralist/child psychologist. 22 hr 35 min ago
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                                • What other incidents has he had in school? A kid who gets suspended for hitting a teacher is not doing well in school, no matter how well he is doing academically. 22 hr 35 min ago
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                                  • mostly hitting other people. or he'll play rag doll if he doesn't want to go somewhere (he doesn't transition well) and then they won't be able to move him to a new classroom, in...(more) 22 hr 29 min ago
                                    from recess, etc
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                                    • All sounds sensory. Is he at a sensory gym. In school OT tends to only focus on hand-writing and not motor planning and sensory issues. 22 hr 27 min ago
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                                      • I agree that it sounds sensory BUT her ds is reacting to sensory integration issues in a way that suggests they have become ingrained behaviors, and that is an approach that asks...(more) 22 hr 25 min ago
                                        for more than OT.
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                                    • Not transitioning well is something you told the neuropsych about? Is your ds self directed - wanting to stick to his own plan rather than do what teachers/peers ask him to? 22 hr 25 min ago
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    • sorry. what were the circumstances? why did he hit the teacher? 23 hr 20 min ago
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      • he cut in line for the swings, other kids started making fun of him, he was upset, teacher came over and told him he wasn't following the rules 23 hr 17 min ago
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    • What was the context. Is he impulsive? How is his attention span 23 hr 20 min ago
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      • his attention span is good. he has decent discipline when working on things he cares about. he is definitely in that "motor-driven" always moving category though. even if just...(more) 23 hr 14 min ago
        squirming
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    • hitting a teacher does not mean a child has sn. 23 hr 19 min ago
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      • not to say he doesnt have other issues but this alone is just about managing his anger and expectations 23 hr 19 min ago
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      • Not necessarily but at kindergarten age he should have the impulse control to stop before doing this. 23 hr 18 min ago
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    • Take him to a developmental ped. or neuropsych, privately. 23 hr 16 min ago
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    • Hey, I'm so sorry this happened to you. 23 hr 16 min ago
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    • Is he getting counseling for anger and impulse management? 23 hr 12 min ago
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    • that is shocking . sounds like the k teacher my ds had. she was horrible. took everything as an affront. i'm sorry this happened. that teacher needs help 23 hr 12 min ago
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      • Some neuropsychological evals are covered by insurance--especially in a hospital. I have a NYC list that takes insurance but do not know where you live. I think a peditaric...(more) 21 hr 2 min ago
        neurology appointment might be a good idea.
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        • I would love that NYC list even if OP can't use it TY!!! 20 hr 59 min ago
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    • maybe he is frustrated because he is NT in a SN school? maybe he is going crazy 20 hr 58 min ago
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      • Huh? 20 hr 50 min ago
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      • ok, I will look for it now 20 hr 44 min ago
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        • Eval sites that take Insurance--I received this in 10. 2011 so call....(more) 20 hr 40 min ago
          • Lenox Hill Hospital (Center for Attention Learning Disorders) 210 E. 64th Street (between 2nd Ave and 3rd Ave) New York, NY (212) 434-3292 Ask for Danielle • International Center for the Disabled (Center for Speech/Language, Learning, and Hearing) 340 E. 24th Street New York, NY 10010 (212) 585-6080 or (212) 585-6230 Ask for Shannon • Albert Einstein (Children’s Evaluation and Rehabilitation Center, Fisher Landau Center for the Treatment of Learning Disabilities) Kerri Ann Huggarth, Evaluation Coordinator 718-430-8600 ext. 6400 or ext. 5401; kerryann.huggarth@einstein.yu.edu • Dr. Carol Rosen, pediatric neuropsychologist conducts comprehensive psycho-ed and accepts medicaid and many of the attached HMOs. call 212-598-6250 and speak w/Roxanne (secretary), http://www.med.nyu.edu/hjd/centerforchildren/ • Riverdale Mental Health Center • Montefiore Medical Center • Bellvue Hospital
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  18. Special Needs New to ADHD meds. Just increased ds dose from 2.5mg Focalin to 5 mg Focalin. He went hyper and could not sit still. Do we continue giving this dose until his body adjusts to it or...(more) 4-15-2014 2:33pm (3 replies)
    is this not the right drug for him? he's needs a lot attention when he goes hyper and it's tiring for us to keep up with him.
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    • Honestly, you call your doctor. D t ask here. Advice given here may not pertain to a special situation you may ha e. 4-15-2014 2:59pm
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      • I did and am waiting fro a call back- thought I might ask here if someone had a similar experience. I know better than to live or die by YBM advice. 23 hr 54 min ago
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    • what age? My dc 10 is on 7.5 in the a.m. and neither he feels nor his teachers see any difference at all for focus. 21 hr 18 min ago
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  19. Special Needs Burb moms -- I need to get my dd dx'd for ADHD. We are moving to the burbs this summer, and our current psychiatrist (treating her for anxiety) said to request testing through our...(more) 4-15-2014 2:27pm (9 replies)
    new district (known for being good for SNs) vs. doing a full neuropsych workup. Is this your understanding of how it works? Psych said, since we're paying all those taxes anyway, might as well have the school district do the full eval, since they will do an excellent job. Thoughts?
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    • ^^^ Sorry, that should read "need to get my dd EVALUATED for ADHD" -- not dx'd! Not dx hunting here! 4-15-2014 2:28pm
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    • I'd trust a shrink who says that. Ours advised us not to go thru the district, for a number of reasons that didnt even have anything to do with money. I appreciated that too 4-15-2014 2:31pm
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      • op: he doesn't work with the district, but he said he's read reports/IEPs from the districts that are very well written. 4-15-2014 2:34pm
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        • No, i understand. If he recommends one way over another, i'd go with it. The nyc doe has a lot of problems with evals, some of which may be the education level of the evaluator....(more) 4-15-2014 2:37pm
          The shrink knows both your kid and the system, go with his rec'.
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    • Why doesn't your psych just give her the diagnosis? She is an M.D. I live in Westchester and school needs medical documetation of ADHD. They are not allowed to even suggest it....(more) 4-15-2014 2:38pm
      Child psychs diagnose it all the time. If your DD has it, she should give her a diagnosis. No one in burbs pays 1000s of dollars for a simple adhd diagnosis, vs. a complicated work-up.
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      • He only sees her every so often to tweak her anxiety meds, but last time he saw her he commented on how hyper she is. But we would need to do teacher evals, have me do that...(more) 4-15-2014 2:41pm
        behavior checklist, etc. I think he's saying that rather than pay him or a NP, to just request it through the new school district this summer. But like I said, I'm not sure how this aspect works.
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        • ^^^ Leaving now but will sticky 4-15-2014 2:41pm
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    • Yes and no. Yes good schools will do evals but often will not give a dx. You may need to go private for the dx. Also good schools while they are more generous then bad schools...(more) 20 hr 26 min ago
      will not advise as many services as a private eval. My advise would be to start with the school. Have them do the testing. Then see if you need to go to a private and I have shown the schools results to private nps and PsyD's for their interpretation. I am in a good burb but in the 9 years we've been here there have been times when I've had to really push for services, other years the iep meeting is so easy it's only 15min and gabbing about us not dc.
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  20. Special Needs Having a hard time. Dh is a speech therapist. I work in physical therapy. Our first child is having issues and we were quick to notice them tried working with him but he needs...(more) 4-15-2014 2:16pm (2 replies)
    help from those who work with children and it absolutely has dh and I in a bit of a rut. We know all these great health professionals but it sucks when it's your kid who has just been diagnosed with epilepsy is behind in motor skills and needs help. Just getting that off our chest.
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    • I am a physical therapist. I knew something was up with my ds fine motor when he was 2yo but I don't work with kids and was told it was "normal" and "age appropraite. Fast...(more) 4-15-2014 2:17pm
      forward, he is 6yo and acting out in school because he hates writing so much. I wish I Had listened to my instincts way back when. Good for you for listening to yours. At least you know what he needs and how to help at home
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      • For a while I didn't even want to bring him around my pt friends because I knew they would spot it out. But I asked my friend and she was like I was so close to laying it on you....(more) 4-15-2014 2:20pm
        It sucks though and the early help should work
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  21. Special Needs My dd who has hypotonia and dyspraxia is constantly asking for food. She can't get enough. When breakfast is over, it's "can I have a snack", "what's for lunch", &...(more) 4-15-2014 2:04pm (8 replies)
    dinner", etc. She does tire very easily- but I feel like even when I do give her food for energy it doesn't do anything. She can eat- doesn't know what her limits are and it's not uncommon for her to say her stomach hurts after every meal. We try portion control and she eats a very balanced diet, she just eats a lot. Should I see someone about this? Metabolic specialist or is this normal for kids with hypotonia?
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    • I'd want to look into that. Does she have an intolerance for pain? 4-15-2014 2:05pm
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      • No- I think her pain thresholds are normal. Who would I even speak to about this? 4-15-2014 2:16pm
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    • my hypotonic dd was the same. Now she is 7 and on adhd meds and has no appetite when taking the meds. Still very hungry when off meds. She used to be very chubby but slimmed...(more) 4-15-2014 2:10pm
      down since she started the stimulants.
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    • My hypotonic kid has always eaten like a bird, and in fact is very underweight now (15) 4-15-2014 2:10pm
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    • My DD is hypotonic and doesn't eat much. In fact, she was failure to thrive and remains 5% weight. Still, there are all kinds of hypotonia. Her big issues has always been...(more) 4-15-2014 2:11pm
      constipation...
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      • Ugh, right? I am so happy my teen discovered she enjoys raisin bran! 4-15-2014 2:15pm
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    • My NT dd is the same. To be completely honest, a lot is out of boredom. It helps us to have very set meal/snack times. 4-15-2014 2:16pm
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    • Hmm. My hypotonic/dyspraxic struggles with oral motor, so overeating is not the issue for us. I do think that their sensory signals tend to be off. Our neuro said that it was a...(more) 1 hr 37 min ago
      side effect of hypotonia, that it messes with how neural mapping is established in infancy.
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  22. Special Needs DC's behavioral issues are becoming so isolating. Feel like we need to turn down playdates and visits all the time bc they just end up in meltdowns or other bad behavior. Even the...(more) 4-15-2014 1:10pm (11 replies)
    close friends who are very understanding can get tired of the shenanigans, and DH and I are just so tired of being embarrassed. Just want to shut ourselves up in the house and not leave anymore.
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    • social skills class stat 4-15-2014 1:12pm
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      • we are waiting for neuropsych to put together a group. 4-15-2014 1:12pm
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      • I found these so worthless 4-15-2014 1:14pm
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      • aba stat 4-15-2014 1:19pm
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        • ITA - a good bcba can work wonders here. Ours did wonderful facilitated playdates for ds 4-15-2014 2:34pm
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    • Is he better when you go out? Age? 4-15-2014 1:13pm
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    • That sucks. Also, don't assume people who show interest aren't really interested. We have a gifted kid (don't flame) who is very well behaved, We find she connects most with...(more) 4-15-2014 1:16pm
      outliers, and I'm talking lots of different kinds of outliers. One her best friends has VERY low processing speed. Another, I'm not sure of but probably has whatever that oppositional defiance thing is. These kids get along very well together, and whenever I see a kid that my child connects to, I want to make that connection. Sometimes I think parents look at my kid and doubt my intentions. It's not pity or empathy. It's becauase it is good for my kid too.
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      • can i ask why you are on the sn board? 4-15-2014 1:23pm
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        • Ohhhh. If you knew all the problems my child has :-) 4-15-2014 1:23pm
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    • I hear you. In all honesty, I gave up. Play dates that always end in a shit show are not productive for anyone. I can honestly say I've only done a hand full of...(more) 4-15-2014 2:25pm
      playdates and my twins are nearly 5. We go to parks and playgrounds and my kids are gradually starting to play with other kids but I just don't believe in forcing these things. We don't go to places where it would be a big deal if the kids had a meltdown but have found a few cafes/restaurants that are good with kids but even those places we don't hang around for long. Your child will go to school soon and will have years and years of socialization, I wouldn't beat yourself up about playdates.
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      • Np. i agree with this. 16 hr 17 min ago
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  23. Special Needs A mom at the physical therapy center just told me ds' therapist are getting more of a workout than he is. 4-15-2014 11:52am (20 replies)
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    • My favorite Bikini Kill song:...(more) 4-15-2014 11:53am
      SUCK MY LEFT ONE!
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      • I feel that way but she was just making conversation 4-15-2014 11:54am
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      • that is so strange to me. I did not listen to that band but I had a friend in high school, in the late 80s, who used to say that. 4-15-2014 12:23pm
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      • I don't know why someone disliked this, it's exactly what I would have felt like saying to that mom too! 4-15-2014 1:06pm
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    • did it bother you that she said that? 4-15-2014 11:55am
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      • Yes and no. I've seen her around but haven't never spoken and usually aren't wwaiting together. 4-15-2014 11:56am
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        • Ok. It would have bothered me. 4-15-2014 11:57am
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          • It does but I don't think she was being rude or mean. We can both hear him and she came from the back and had wide eyes. 4-15-2014 11:58am
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            • yeah, I just think it might be something I would cry quietly about later... 4-15-2014 12:02pm
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              • I probably will. 4-15-2014 12:15pm
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                • I'm sorry. I think that was a really thoughtless comment, and it would be totally within your rights to say something like, "that's really not something I need to hear right now." 4-15-2014 12:16pm
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                  • I said that's usually the case and went on ybm so there goes that. 4-15-2014 12:20pm
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                    • yeah. I kind of want to punch her. 4-15-2014 12:21pm
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                      • The support here is always great. 4-15-2014 12:32pm
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              • I am sorry, I have a very impaired child and sometimes other SN parents can be just as thoughtless as any other parent with their comments and how they look at my DC. It often...(more) 4-15-2014 12:24pm
                hurts worse because you would think they would get it
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                • Her dc is pretty impaired herself. I'm just never in the mood to hear about how off center ds is. I think she was trying to make conversation but wrong thing to start with 4-15-2014 12:32pm
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                  • maybe she was trying to be humorous, but did it in a bad way 4-15-2014 12:45pm
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    • thats their job 4-15-2014 11:56am
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      • I know. I know when it's over I'm going to ask how it went very well knowing it was a disaster but they're going to be nice about it. 4-15-2014 11:57am
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    • Ever noticed that most physical therapists are in great shape? They are more than prepared for anything your dc will do. 4-15-2014 12:47pm
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  24. Special Needs Anyone read jane fondus book about being a teen? any good? 4-15-2014 11:36am (1 reply)
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  25. Special Needs Ds is doing so much better with his anxiety since starting medication. Dr originally said, let's do them for school starting in sept (which we started in aug and all went well)....(more) 4-15-2014 11:36am (4 replies)
    Then lets try and wean him after 6 months. So here we are 8 months in, ds is doing phenomenally with his anxiety, making huge strides and his confidence is up, we are just about to begin the weaning process and now I'm nervous. Anyone have a positive experience with this kind of thing? Dr did say if we wean and it doesn't seem good, we can always go back up, but I guess it would be nice if he can cope well without the meds. tia
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    • what medication? 4-15-2014 11:51am
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    • what meds? My son is exhibiting major anxiety and we are considering discussing with dr. Wasn't sure what meds they give to kids. 4-15-2014 11:52am
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      • prozac. he started with 1ml and slowly we increased it up to 4ml. that seems to be a good dosage for him. we thought we were going to go to 5, but 4 seemed to be a good place for...(more) 4-15-2014 1:43pm
        him. he's 8.
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