Special Needs

  1. Special Needs Are you flying soon and having anxiety dreams about it or something? 58 min ago (2 replies)
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    • I just flew a month ago and I can tell you my anxiety filled dreams started the night I booked the tickets. 16 min ago
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      • ^^^i don't like to fly and this was the first time flying without all of my children...so I was extra nervous but we had a great flight with jetblue 15 min ago
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  2. Special Needs I come here very often when I am depressed or anxious or avoiding things in my real life. aka when I am in a bad place (of course! Otherwise I'd be out living my life). I assume...(more) 1 hr 2 min ago (3 replies)
    many others are similar, so when I see people who appear to be on here 24/7, I figure they are as sleep deprived etc as me and the crazy posts make more sense.
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    • How 1 hr 1 min ago
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    • That's a smart POV. Makes sense to me too 1 hr 1 min ago
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    • Lol. Wanna talk about it? Anthropologistmom@hotmail.com 53 min ago
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  3. Special Needs CSE 9 (District 2): For those in private schools (parentally placed) with IESPs, how hard was it to get an RSA? Did you have to go through the cascade? Was there a long delay,...(more) 1 hr 6 min ago (2 replies)
    i.e. missed services before getting the transmittal/RSA? Wasn't a problem for us in CPSE, but now that we've transitioned to CSE, I want to know what to expect. TIA
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    • Ugh what a shit show. We had our ds in a private preschool with an IESP...The IESP gave him speech and OT twice a week for 30 min. Those numbnuts in CSE screwed it all up and...(more) 11 min ago
      never gave him the start date paperwork until spring...only after a lawyer sent them a letter. He missed his services from September thru March. I called, emailed, faved, constantly and got no where with them. They said they sent his paper work to another dc with the same name. Bullshit. This kid they said had the same name was a teen in another borough. If they'd look at case # or DOB, they'd see my ds was a 4 yr old.
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      • ^^^so my ds got only 2 months out of 10 months of services. Convenient for them in a financially 9 min ago
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  4. Special Needs Update from the 8yo having a hard time at camp. Camp ended last night, I picked her up. She seemed okay. She's been very subdued (maybe just exhausted!). There were a lot of...(more) 1 hr 8 min ago (3 replies)
    things she liked (campfire, funyaks, songs, etc), but she didn't like that she didn't have any "freedom" and it was "just like school" -- i.e. there were people telling her what to do. What she liked the most was the downtime, where she recruited 5 girls to make a "salon", where they gave manicures to other campers, massages, did their hair, etc. Apparently this was a big hit. That's my dd in a nutshell -- the big idea, creative one who can run the show, but can't take the smallest direction without backtalking.
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    • Glad she's doing good. Honestly, I understand how kids sometimes don't want all the structured time. Growing up, we just played. My ds begged me this summer not to sign him up...(more) 1 hr 4 min ago
      up for things. He also says it feels like school.
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      • op: I agree. Luckily the rest of summer she's just doing a few days at a very unstructured day camp that I think she will love. 1 hr 1 min ago
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        • I was hoping things would turn out nicely for her. I could totally see my ds reacting like your dd the first day. The anxiety can really take over. All in all it sounds like it...(more) 59 min ago
          it was a good experience.
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  5. Special Needs PSA: Wendy Hilliard Foundation offers SN integrated gymastics...(more) 1 hr 9 min ago (0 replies)
    They're at Riverbank State Park and they have Saturday classes Oct-Jun for $600-700 for the year. Friends of ours have sent their SN dd and loved it in the past. Ages 3-17. But they fill fast so if interested I'd sign up ASAP.
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  6. Special Needs Does anyone use Melvin Oatis? 1 hr 12 min ago (0 replies)
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  7. Special Needs DS's doc (postdoc psychologist at NYU) recommended melatonin for sleep. Anyone want to tell me why this is a good/bad idea for my 6 yo ADHDer? He is not yet on ADHD meds, but...(more) 1 hr 14 min ago (4 replies)
    will be later this month and he takes FOREVER to calm down enough to go to sleep & wakes up in middle of night and comes to my bed.
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    • We used it for years for my A 1 hr 13 min ago
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      • ^^ sorry. For my ASD child. It helped, I think. but now he won't take it. He's 10yo. 1 hr 13 min ago
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        • I've been reading that it may be a hormone disruptor and impact devlopment in kids? 1 hr 11 min ago
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    • It's like a miracle drug for my 5yo. Zonks out 15 minutes later, sleeps soundly through the night. That said, I'm nervous about using it consistently. I use it about 1-2x/week 1 hr 11 min ago
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  8. Special Needs Can someone describe how their inattentive adhd child is at home versus school, both socially and with attention? What about birthday parties and/or social events with organized...(more) 1 hr 29 min ago (0 replies)
    activities?
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  9. Special Needs Anyone know of any August break 'camps' during the August break for a 4 yo moderate ASD in Long Island (Nassau)? 1 hr 49 min ago (1 reply)
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    • no, but we used to arrange two weeks of playdates at dd's CPSE preschool so each family only had to stay home 2 days. 1 hr 12 min ago
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  10. Special Needs I have a friend who is always late and disorganized and blames the fact she is single and doesn't have help. She has no kids and a dog and while I get that she does everything...(more) 2 hr 9 min ago (6 replies)
    herself it's frustrating to keep hearing. I am married and have a 2 yo with special needs but she always romanticizes how much easier it is for me to get out the door on time. It drives me nuts but I don't know how to address it or if I should bother?
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    • Drop her. What an idiot. 2 hr 6 min ago
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      • I like her but to be honest when she makes these excuses I do think she sounds ridicuslous. I'm not sure how she thinks a husband would get her out the door on time? 2 hr 3 min ago
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    • Laugh in her face, with "well, if you say so". 2 hr 5 min ago
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      • lol! I feel like doing this often! 2 hr 3 min ago
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    • Leave it alone. I never knew how hard it was to be a SN parent until I was one. But it might also be hard to be single as we grow older - it can be lonely, depressing and...(more) 1 hr 27 min ago
      overwhelming for people who would rather not be single. Either you can brush it off or she's not the friend for you.
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    • np: people of all ages and marital statuses are "always late." This has to do with narcissism and being inconsiderate of other peoples time. Sometimes these folks also like to...(more) 5 min ago
      "make an entrance" and that is only effective if the "audience" is already there, waiting. So if it bothers you, drop her. If you think she is worth it for other reasons, then just live with it. But being single is totally irrelevant.
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  11. Special Needs Repost for sn board: need to buy a gift for a 13ish yo girl. she's neurologically disabled, no short term memory. she loves shiny, glittery, colorful stuff. i can tell from her...(more) (2 replie 2 hr 10 min ago (2 replies)
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    • your post got cut off, but does she enjoy doing art? i'd get something with glitter or bright colors appropriate for her motor skill level. 1 hr 31 min ago
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    • a cute pair of sunglasses 1 hr 12 min ago
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  12. Special Needs Wish me luck, friends....i am on hold with Aetna who denied coverage for dd's np when last time they paid over half. 3 hr 26 min ago (6 replies)
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    • Please post back. They covered more than half for us 3.5 years ago but this time for our re-eval, a pre-approval is needed by Aetna and they said they won't cover. I am going to...(more) 2 hr 50 min ago
      submit anyway and hope for the best. I hope you get the coverage as every policy is different.
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      • This is my same issue. Pre cert not required then but required now....I am still on the phone with them, the medical line sent me to the mental health line, etc. last time I...(more) 2 hr 48 min ago
        just faxed in and was approved after services. They say I can file an appeal since I was initially told I didn't need precertification.
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        • Good luck. One loophole for an appeal as far as I saw on their website, is that if you need testing done to call your school district. The triennial for us was a complete joke...(more) 2 hr 40 min ago
          and a few paragraphs so I was thinking of arguing the fact that the school district does not provide the testing that is needed.
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    • GL - they rejected ours. They said it was medical & wouldn't budge on that. 2 hr 43 min ago
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      • ^^oops said it wasn't medical 2 hr 43 min ago
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        • they are telling me it's mental health and is covered to an extent with the precert, which i was already told I didn't need....I have filed an appeal, will be back to you in 30...(more) 2 hr 29 min ago
          days. :)
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  13. Special Needs Movie-Tv advice....I have a 6 YO spectrummy DS who is way into science, math, transportation. We are going on driving vacation and I want to fill his Ipad with new thing. He has...(more) 3 hr 47 min ago (6 replies)
    liked Toy Story, Frozen, and a few other things but the Cars franchise was too noisy and boring. Currently loving Brain Pop and Leo's Pad. Any ideas? Thanks...
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    • Spy Kids? Is he into live action movies? My 6yo DS loves it. 3 hr 45 min ago
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      • ^^also, maybe Epic? 3 hr 45 min ago
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    • robots, bee movie, bolt, herbie movies, 3 hr 43 min ago
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    • Plants v zombies 3 hr 41 min ago
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    • Mine started digging Star Wars around that age. 3 hr 37 min ago
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    • Look into the Geronimo Stilton narrated books. 3 hr 35 min ago
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  14. Special Needs Anybody know of any sort of meetup group or playdate group for Aspies/HFA in Queens? 3 hr 53 min ago (0 replies)
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  15. Special Needs Does anyone have. Contact information for Dr. Salsberg? 4 hr 24 min ago (1 reply)
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    • (212) 481-1664 4 hr 20 min ago
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  16. Special Needs I'm tired of feeling like I don't do enough for dc or that I don't love dc enough. I have a very difficult child and mental illness runs in the family. What I can't stand is...(more) 11 hr 39 min ago (1 reply)
    feeling insubordinate. Either from dh or other kids or family and even teachers a lot of the time. I can only do so much. Just had to get that off my chest.
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    • A part of this is the way society is today (or maybe just America) in that everyone feels like they have to be super parents & everything we do is put under a microscope....(more) 2 hr 22 min ago
      My SN ds is in summer school and gets home at 2:30. He has no after-school activities at all this summer and some people act so surprised. The kid has been in school or therapies or gymnastics or something else since he was in diapers. He's tired.
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  17. Special Needs What kind of "tip" should I give to my son's camp counselor? 12 hr 32 min ago (0 replies)
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  18. Special Needs Ok I red about 7 books this year and I know the titles but I couldn't tell you what they were about. Is this terrible? I can barely remember yesterday. 12 hr 38 min ago (3 replies)
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    • Or how to spell "read" 12 hr 31 min ago
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      • It is the sn board. Speeding errors are to be expected. 12 hr 26 min ago
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    • Stress is hell on your short-term memory. 4 hr 39 min ago
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  19. Special Needs What kind of "tip" should I give to my son's camp counselor? 12 hr 40 min ago (5 replies)
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    • What are your son's challenges? 12 hr 38 min ago
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      • Adhd. He was assigned only to my son. My kid was actually pretty good at camp. 12 hr 37 min ago
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        • oh tip like money? i was thinking tip like suggestion. sorry, i have no clue. 12 hr 35 min ago
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    • Ask the camp what typical tips are. They should be able to guide you. I. 12 hr 27 min ago
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    • If you can afford it, I would do $10-20/week for 1:1. 11 hr 22 min ago
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  20. Special Needs Has anyone used Dr. Meridth Fetch at Cornell Weill for auditory processing eval.? It is completely covered with my insurance but welcome feedback. My child is 6.9 and eval...(more) 12 hr 42 min ago (0 replies)
    recommend ed by slp I trust.
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  21. Special Needs Changing Funded School on IEP...(more) 13 hr 30 min ago (9 replies)
    How hard is it to change from one funded school to another funded school in terms of having it on IEP? Does one have to go through the process of getting deferral to CBST all over again or once you have an acceptance from another school, can DOE change the name of the school as long as there is a valid reason for the transfer? Any input is appreciated it. Thank you!
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    • You probably won't get another deferral. 13 hr 29 min ago
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      • What makes you think that? You had the experience? 13 hr 23 min ago
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    • like you have Parkside on your IEP but you got into GB and so you want to switch it? 13 hr 12 min ago
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      • Yes, something like that. 13 hr 9 min ago
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        • I have no idea. Have you had your IEP where they put it on there? if you've had, I guess you have to reconvene the IEP, which is a pain. 13 hr 8 min ago
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    • dc already has one school listed on the IEP. Not sure if it is an appropriate placement any more. 13 hr 5 min ago
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      • possible, maybe even probable, doe will state your child can attend ps placement. However, I have no direct experience on your q. 12 hr 51 min ago
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    • I'd consult with a lawyer on this one. It's tricky. 1 hr 52 min ago
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      • Agree. If you do this you will have to have another IEP meeting and fight to get the deferral. Even more so if there is anything similar offered by D75 1 hr 29 min ago
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  22. Special Needs Does anyone know anything about the Lowell School? Their website seems kind of out of date, so it's hard to figure out what they're like and who they serve....(more) 16 hr 45 min ago (0 replies)
    Is it more like a Gaynor or a Gateway, which I understand to serve kids who are mostly LD with some other ADHD/processing stuff mixed in? Or does it served more involved kids like Parkside or GB? Trying to gauge how restrictive it is. Thanks.
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  23. Special Needs ASD DS was really unhappy at school and acting out behaviorally in a way we hadnt seen in quite a while...(more) 18 hr 19 min ago (8 replies)
    He's above grade level academically, but but the anxiety and behavioral component is getting worse. In addition to thinking about medications, I'm wondering if it is worth looking for a new school this fall if things don't change. What schools might be be good to look at that might be appropriately academically but also be willing to work with some negative behaviors.... I'm also wondering if the behaviors are related to being unhappy at the current school...
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    • how old? how is the anxiety manifesting? 18 hr 17 min ago
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      • He's 8. Every morning tears about going to school. When he gets to school he doesn't want to go inside. Sometimes he calms down for the day, but other times even the...(more) 18 hr 5 min ago
        smallest--aggravation can set him off. He's a bolter and will sometimes try to run off. Sometimes makes motions as if to hit. But at the same time, he does great in school academically...once calmed.
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    • What sort of school setting is he in now? 18 hr 3 min ago
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      • He's at a funded NPS 17 hr 52 min ago
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    • My AS dc did a combo of meds and counseling for anxiety starting at age 7. Also got on the school's butt to get bullying issue eliminated. He was doing well enough to go off...(more) 18 hr ago
      meds after about a year and a half. GL.
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      • Thanks. that is good to hear. We were hoping not to need to go on meds, but now we are thinking that needs something to, as I put it, help him get that moment between whatever...(more) 17 hr 49 min ago
        is triggering him and what he can do to calm himself/use a coping strategy. If that make sense. But if he is truly miserable in school as well...
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        • np: fwiw, some kids just always have a low level of anxiety going on - always on edge and reactive. A low dose med can really take that edge off. Without the edge off, it's hard...(more) 16 hr 52 min ago
          for DCs to utilize whatever strategies are being taught.
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        • That makes total sense. That's exactly how we used the meds; to make him able to be receptive to training in coping/self-calming mechanisms. When he nailed those methods, he was...(more) 14 hr 23 min ago
          done with meds.
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  24. Special Needs Has anyone here used Stuttering Association for the Young for speech therapy and/or their after school arts program? Tia 19 hr 52 min ago (0 replies)
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  25. Special Needs This board has been the best for me when my dc was dx. I didn't even think I could make it the first year. Turns out I could and did and all thanks to this board. There are days...(more) 20 hr 15 min ago (1 reply)
    where I am so down on my ds and life. I need a pick me up. I am stressed out with his development. He's doing some okay things for him but our life is just me trying to figure out what exactly he wants. He only knows one sign mom. That is it. He's working on another but it's slow. The crying for everything is making me anxious.
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